Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Thanks for your message. Im from south carolina. Yes, at the moment Im experiencing terrible joint pain, I am on celebrex 200mg. Those pains can be a night mare. BJ Re: [ ] Bobbie > Welcome to the group Bobbie, I will let one of the other members answer your > question about the joint pain. It's my daughter, Jodi 27 yrs. old with AIH. > She was put on the liver transplant list last week after being diagnosed last > Feb. We live in Central Florida so the transplant team is at the University > of Miami four hours away. Where are you located? Feel free to post often > and you will find some of the best people in the world are in this group and > will share any and all information we can. The group seems to be growing in > leaps and bounds. There are people in the group with sick kids, a parent or > a friend but the common factor is AIH. Again welcome and I hope this group > has been the God sent to you that it has been to me. Take care and God > bless. Genny/Jodi's Mom/Fl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Welcome to the group Bobbie, I will let one of the other members answer your question about the joint pain. It's my daughter, Jodi 27 yrs. old with AIH. She was put on the liver transplant list last week after being diagnosed last Feb. We live in Central Florida so the transplant team is at the University of Miami four hours away. Where are you located? Feel free to post often and you will find some of the best people in the world are in this group and will share any and all information we can. The group seems to be growing in leaps and bounds. There are people in the group with sick kids, a parent or a friend but the common factor is AIH. Again welcome and I hope this group has been the God sent to you that it has been to me. Take care and God bless. Genny/Jodi's Mom/Fl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Bj I also take celebrex. I found that it works best when taken with soma 3x a day. I think they are 200mg pills ask your Dr. Celebrex also helps headaches Chisti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 I am too. I live in San Francisco. Which part of the great state do you call home? On Saturday, July 17, 2004, at 09:02 PM, elwilkinson@... wrote: > And unfortunately, I'm in California Wagner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi Jonathon, I live in San , over in the hills off of Hwy. 101. And it's toasty. -- Re: Bobbie I am too. I live in San Francisco. Which part of the great state do you call home? On Saturday, July 17, 2004, at 09:02 PM, elwilkinson@... wrote: > And unfortunately, I'm in California Wagner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2004 Report Share Posted July 18, 2004 Hi athan, I am a fellow Californian and I am in Sonora. Liz....I will contact Bobbie tomorrow with some of my Oregon contacts.....I have a Veteran service Rep there that is a hepper also. Bobbie......I will catch up with you on Monday. Please send me an email so I have you email address on my book. Dick At 09:21 PM 7/17/04, Wagner wrote: I am too. I live in San Francisco. Which part of the great state do you call home? On Saturday, July 17, 2004, at 09:02 PM, elwilkinson@... wrote: And unfortunately, I'm in California Wagner </blockquote></x-html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Bobbie, I read where you suggested putting up some cardboard for headbanging for your son. Might I suggest a small nap mat. You can buy them at Wal-mart or Target for little of nothing. It would provide a cushioning and is inexpensive. Remember though, if he is seeking deep pressure he may seek to hit in a different spot to get the same amount of pressure. Hope this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Bobbie, I am so glad you got home safe. I wonder if that nurse had a head on her shoulders? Didn't she know the effects of those drugs would affect you? And shouldn'tyou get someone to drive you sweetie? That worries me a bit! I am so glad you did not get nauseated. I always appreciate hearing about Len and Ernie. Thanks for the update. Be well dear friend, Barb > > > > Hi Everyone, boy! what a day yesterday was.When I was waiting to be > called in for the infusion I decided to take a Compazine. I also > have Ativan (sp). A nurse came by and I asked her which would be > better, she said take both, a lot of people do. So I did,. I didn't > get infused for about an hour, it takes about 1 1/2 hrs. to finish. > I did not throw up, I didn't really feel nauseous. But on the way > home, it hit me. I remember very little of the almost 3 hr. drive. > I came in the house, at 5, went to bed, got up at nine, had severe > diarrhea 3 times, went back to sleep before 10, and slept until 8 . > I have felt drugged all day long. My tongue is numb so the taste > buds are on the fritz and that is good because I don't want to eat. > But I will do one or the other next week, never both. > > On a happier note I got to visit with my good buddy Len Paschal > and hubby Ernie. She is doing well, we had side by side chairs > yesterday 3 more doses and she goes up to my dose and I pray it does > as well for her as it has done for me. > > Now I am going to behave myself, no matter who comes into my > house with pizza, chocolate covered nuts or even peanut butter > suffle! I am sure, no matter what my vascular dr. has to say > tomorrow, part of it will be lose weight, do my legs a favor! > > Blessings to all, love, Bobby > > > > > > a (Bobby) Doyle > > Brecksville, Ohio, USA > > DX 05/1995 > > 02/2000 - Gleevec Trial/OHSU > > 06/2002 - Gleevec/Trisenox Trial/OHSU > > 06/2003 - Gleevec/Zarnestra Trial/OHSU > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > > #840 - Zavie's Zero Club > > 09/2006 - out of CCR > > 04/29/08 - XL228 Trial/ U.of Michigan > > 06/02/08 - CCR ( in 4 weeks) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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