No replies?????

[Guest guest]

I posted this last week and got NO REPLIES, OK I dont post often but

no replies at all???????????

Hi there everyone, long time no post.... I check the posts at least 2

times a day on my phone so I know how you all are but I have not

figured out yet how to reply on my phone.

I recently got my most recent BCR/ABL results and I understand I am

doing well but apparently my Oncologist told me MDACC are using this

new system of testing so here is how my results have gone tell me what

you think.

Upon DX I didnt have a BCR/ABL so my Oncologist says lets presume you

were at 100% on May 24, 2007

November 2007 11.10%

April 2008 6.8%

Aug 2008 6.4%

In August I gave up eating meat and started going to the Gym 4-5 times

a week.

Oct 2008 1.9%

I haven't posted on the CML weight loss site as I have not really lost

any weight but I have lost inches and my energy level has zoomed.

Next week my Husband and I are going on a cruise, the first time we

have been away without the children in over 20 years!

Please let me know if anyone understands what the name of this new

testing is.

Regards Donna--- In , ROBERTA DOYLE <rcd1929@...>

wrote:

>

> Hi, I had an appointment with Dr. Butt (not his real name of

course)  and he was in terrible pain due to a pinched nerve, therefore

he was very nice, guess it takes a little pain to humble a person. 

anyway, he said I only have to see him once a year, this keeps me

getting my labs done there, and saves me from looking for a new

doctor.  Eventually I will find one that I really like, but in the

meantime I do not need a local onc as I see Dr. Talpaz almost every

week.  I go to Ann Arbor  tomorrow, boo hiss, but on a happy note will

get to see Len and Ernie.

> That's it for now, everyone behave, stay on your diets,  Bobby

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840  -   Zavie's Zero Club

> 09/2006 -  out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>  

>

>