Accomodation

[Guest guest]

Hal,

Maybe she could suggest they contact SHHH? I think they would know the

best of anyone. But thanks for the vote of confidence! LOL

In a message dated 11/3/2005 10:10:43 PM Eastern Standard Time,

halfencer@... writes:

My daughter just got a job she loves with the Museum of Radio and TV

Broadcasting in New York City. They want to make their exhibits user

friendly for

the hearing impaired and have asked her what should they do.

I suggested a loop system but I suppose they really should contact the

commission for the deaf and hard of hearing for ideas.

Or maybe you could just march over there and set them straight.

Any ideas.

Hal

[Guest guest]

Hal,

Since the loop is being recommended nationwide and is functional in

the US House of Representatives since 1/1/05 - this would be the

best recommendation as people bring in their own hearing equipment

(hearing aids and cochlear implants). There is a national effort to

have public buildings, airports, train stations, museums, government

offices, bank tellers, drive up restaurant windows, churches etc.

equipt with loops as they are now in Europe. Additionally, there is

a drive on to educate the audiologists to activate the T-coil in

hearing aids with this in mind and not just phone use. The surprise

has been the lack of education at the professional end but things

are rapidly changing in this direction. The audiologist has an

important part of this picture as they need to have their patients

order a T-coil when they order the hearing equipment. Surprisingly

enough, the average cost to add a T-coil to a hearing aid is $60.00.

The initial purchase can be expensive for the establishment but

there is very little maintenance needed once this is done and people

bring in their own device to utilize it - attached to their ears -

thus there is no need to continually maintain and replace the

external equipment.

Refer your daughter to this site if she needs it:

http://www.hearingloop.org/

Alice

http://www..com

>

> My daughter just got a job she loves with the Museum of Radio and

TV

> Broadcasting in New York City. They want to make their exhibits

user friendly for

> the hearing impaired and have asked her what should they do.

[Guest guest]

In a message dated 11/4/2005 3:20:34 A.M. Mountain Standard Time,

alice@... writes:

Alice, I didn't mean to get you off the recliner.

I hope you're healing fast.

I'll send her that address.

Hal

[Guest guest]

Dear China,

Thank you for the explanation of what " accomodation " means. I'm sure

someelse will benefit from the information. I, too have low levels of white and

red blood counts. When I was on INF, my wbc was l.0 and I had a friend with

lymphoma who has .01. She has been living with it for 40 years.

Would they be able to offer you a job with another agency, or does it have

to be within the current workplace. I know the insurance issue is a scary one,

but if you are over 50, AARP will insure you. I hope none of that will become

necessary, but at least you know your rights, something I didn't know, because I

have been out of the workplace for many years, other than a temp as a

Girl. Thanks for the link, I will take a look at it. After 18 years, you

should be well vested in a retirement plan, etc. I also see that you have had

several unfortunate circumstances that caused you to ask for leave. I met a man

at my granddaughter's pinning tonight. His daughter was also getting her

nursing pin. His mother graduated with me and he grew up in our neighborhood,

so my children attended school with them and knew their family well. When I

asked how his mother was, he said she passed away last year of Alzheimers. I

was shocked. It is a terrible disease to see someone waste away and I think I

would not trade CML for the other. Wishing you the best of luck, China, that

you can get a good placement elsewhere if your current job is dissolved.

Blessings,

Lottie

[Guest guest]

Lottie thank you for the good wishes....does that mean I should not hold out for

the hem/onc of my dreams?  Met with my supervisor this am.  He  will begin

working on finding me another spot since I am volunteering to move in order to

save those  I supervise( long story). Short term I need to stay here but things

are going to be quite ugly for a long time with layoffs etc.(it as already

started) and frankly- I don't need the stress.  My eye has been twitching for a

week.  So I will be looking for something outside my agency but I need to remain

insured with less than a 30 day break so they cannot refuse my pre- existing and

expensive condition.

 

Congrats on the nurse in the family!!!  Regarding the Alzheimer- I stopped going

back to Pa ( at my mother's request- I was there two weeks of every month for

about 6 months) when my father didn't know who I was. My mom wanted my daughter

 to remeber him as he was not who he was becomming( diapers, fearful etc). He

was very nice but he didn't have any idea of my name or that I was his

daughter.  He died 6 months later.

 

My dad had Alzheimers my mom has vascular dementia- I tell people it may not be

such a bad thing that I have leukemia.

 

Chi

From: Lottie Duthu <lotajam@...>

Subject: [ ] Accomodation

" CML " < >

Date: Friday, December 12, 2008, 1:22 AM

Dear China,

Thank you for the explanation of what " accomodation " means. I'm sure someelse

will benefit from the information. I, too have low levels of white and red blood

counts. When I was on INF, my wbc was l.0 and I had a friend with lymphoma who

has .01. She has been living with it for 40 years.

Would they be able to offer you a job with another agency, or does it have to be

within the current workplace. I know the insurance issue is a scary one, but if

you are over 50, AARP will insure you. I hope none of that will become

necessary, but at least you know your rights, something I didn't know, because I

have been out of the workplace for many years, other than a temp as a

Girl. Thanks for the link, I will take a look at it. After 18 years, you should

be well vested in a retirement plan, etc. I also see that you have had several

unfortunate circumstances that caused you to ask for leave. I met a man at my

granddaughter' s pinning tonight. His daughter was also getting her nursing pin.

His mother graduated with me and he grew up in our neighborhood, so my children

attended school with them and knew their family well. When I asked how his

mother was, he said she passed away last year of Alzheimers. I was shocked. It

is a terrible disease to

see someone waste away and I think I would not trade CML for the other. Wishing

you the best of luck, China, that you can get a good placement elsewhere if your

current job is dissolved.

Blessings,

Lottie

[Guest guest]

Chi, that is what they mean when they say even though we are upset with the dx

of CML one day we will learn to count our blessings.  My son in law has

parkinson's, and I am so thankful I have CML and not PD.  He is only 57 and I am

in better health than he is..and it breaks my heart to see him. We are so

fortunate that we have drugs that can allow us a halfway decent qol.  Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)  

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] Accomodation

" CML " <groups (DOT) com>

Date: Friday, December 12, 2008, 1:22 AM

Dear China,

Thank you for the explanation of what " accomodation " means. I'm sure someelse

will benefit from the information. I, too have low levels of white and red blood

counts. When I was on INF, my wbc was l.0 and I had a friend with lymphoma who

has .01. She has been living with it for 40 years.

Would they be able to offer you a job with another agency, or does it have to be

within the current workplace. I know the insurance issue is a scary one, but if

you are over 50, AARP will insure you. I hope none of that will become

necessary, but at least you know your rights, something I didn't know, because I

have been out of the workplace for many years, other than a temp as a

Girl. Thanks for the link, I will take a look at it. After 18 years, you should

be well vested in a retirement plan, etc. I also see that you have had several

unfortunate circumstances that caused you to ask for leave. I met a man at my

granddaughter' s pinning tonight. His daughter was also getting her nursing pin.

His mother graduated with me and he grew up in our neighborhood, so my children

attended school with them and knew their family well. When I asked how his

mother was, he said she passed away last year of Alzheimers. I was shocked. It

is a terrible disease to

see someone waste away and I think I would not trade CML for the other. Wishing

you the best of luck, China, that you can get a good placement elsewhere if your

current job is dissolved.

Blessings,

Lottie

[Guest guest]

Bobby-

Although it was the Alzheimer that ultimately took him my dad had prostate

cancer for 20 years and Parkinson's.  The Parkinson's was controlled with meds

but he was late 70's upon diagnosis.  I just read an article about J

Fox. It is a horrible disease especially when someone still has much life before

them.  Hugs and blessings to you and yours.  I agree we are very fortunate for

our drugs.  the next time I see a Novartis rep when I'm at my hem/onc I'm going

to kiss him-smile.

 

I feel I am being the bad child.  You will notice I am posting more than usual

because I am taking stress breaks from work- people are walking around shell

shocked.  No job is promised but the holidays are a terrible time to think you

may not have a job in a month.

 

Happy Holidays to all

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] Accomodation

" CML " <groups (DOT) com>

Date: Friday, December 12, 2008, 1:22 AM

Dear China,

Thank you for the explanation of what " accomodation " means. I'm sure someelse

will benefit from the information. I, too have low levels of white and red blood

counts. When I was on INF, my wbc was l.0 and I had a friend with lymphoma who

has .01. She has been living with it for 40 years.

Would they be able to offer you a job with another agency, or does it have to be

within the current workplace. I know the insurance issue is a scary one, but if

you are over 50, AARP will insure you. I hope none of that will become

necessary, but at least you know your rights, something I didn't know, because I

have been out of the workplace for many years, other than a temp as a

Girl. Thanks for the link, I will take a look at it. After 18 years, you should

be well vested in a retirement plan, etc. I also see that you have had several

unfortunate circumstances that caused you to ask for leave. I met a man at my

granddaughter' s pinning tonight. His daughter was also getting her nursing pin.

His mother graduated with me and he grew up in our neighborhood, so my children

attended school with them and knew their family well. When I asked how his

mother was, he said she passed away last year of Alzheimers. I was shocked. It

is a terrible disease to

see someone waste away and I think I would not trade CML for the other. Wishing

you the best of luck, China, that you can get a good placement elsewhere if your

current job is dissolved.

Blessings,

Lottie

[Guest guest]

When I'm stressed out I find great relief in posting to the group.  There is

almost always someone that has been there, or knows someone who has and it's

just nice to talk to someone who knows what you're going through,.  This economy

of our has shattered my world, but there is nothing i can do about it, not much

sense in crying, it won't put the money back. I am not in the working world, but

my heart goes out to you and those that are.  The word security is a word of the

past. I like to think things cannot get much worse, they have to turn around and

get better, this stress is not good for any of us.  Good luck, love, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)  

From: Lottie Duthu <lotajamcomcast (DOT) net>

Subject: [ ] Accomodation

" CML " <groups (DOT) com>

Date: Friday, December 12, 2008, 1:22 AM

Dear China,

Thank you for the explanation of what " accomodation " means. I'm sure someelse

will benefit from the information. I, too have low levels of white and red blood

counts. When I was on INF, my wbc was l.0 and I had a friend with lymphoma who

has .01. She has been living with it for 40 years.

Would they be able to offer you a job with another agency, or does it have to be

within the current workplace. I know the insurance issue is a scary one, but if

you are over 50, AARP will insure you. I hope none of that will become

necessary, but at least you know your rights, something I didn't know, because I

have been out of the workplace for many years, other than a temp as a

Girl. Thanks for the link, I will take a look at it. After 18 years, you should

be well vested in a retirement plan, etc. I also see that you have had several

unfortunate circumstances that caused you to ask for leave. I met a man at my

granddaughter' s pinning tonight. His daughter was also getting her nursing pin.

His mother graduated with me and he grew up in our neighborhood, so my children

attended school with them and knew their family well. When I asked how his

mother was, he said she passed away last year of Alzheimers. I was shocked. It

is a terrible disease to

see someone waste away and I think I would not trade CML for the other. Wishing

you the best of luck, China, that you can get a good placement elsewhere if your

current job is dissolved.

Blessings,

Lottie