Sprycel & asthma

[Guest guest]

Dear ,

When I was on Sprycel, I was diagnosed with pneumonia, pleural and

pericardial effusions and was placed on several asthma meds, also. I was

diagnosed with a very serious lung infection. One of the drugs they gave me for

infection caused a drop in my blood pressure, which made me so weak, I couldn't

drive my car and my B/P dropped to 74. I was supposed to have foot surgery and

it cancelled because of this. I also had MRSA at the same time. All of this

happened while I was on Sprycel.

Once they put me in another trial, I stopped the asthma meds, never had any

more effusions or drop in B/P. With a lot of meds, I was finally cleared of the

MRSA. We are all different in the way our bodies assimilate drugs and we all

have different side effects. What we all have in common is CML.

We need to talk to our doctors about our difficulties and see if a different

dosage or drug would give us a better QOL, without compromising our stage of

remission.

My remission stopped at CHR, but my QOL is still better than some people

who do not have CML. We are never home free, we will always have a fly in the

ointment, so sometimes it is better to stay with the devil we know than the

devil we don't know. Changing our drugs may not always be in our best interest,

that is why we need to have some serious discussions with our doctors and tell

them what others are feeling with the same drugs.

Blessings,

Lottie