Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi Bobby, That is great news. Thank you for participating in the trial. It is because of people like you who endure the rigors of clinical trials that make it easier for those who need these new drugs.. I am so grateful for all those who participated in the early STI371 trials that made it easy for me. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of ROBERTA DOYLE Sent: December 1, 2008 6:06 PM Subject: [ ] xl228 update Hi, I've been on XL228 now for 7 months, not much has changed. I just had labs done, wbc - 2.7; hgb - 10.4; plt - 180, ANC 1.5. I am zero fish, and qpcr is still .4 something. So as inconvenient as this infusion is, I certainly can't complain, as it is working. I go for treatment this Wed., life is good, but I am looking forward to the new Ariad drug, it being a pill and not an infusion. If the side effects are minimal we may try it. That's it, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Bobby, So glad to hear you're doing very well! I, too, hope they come up with a pill for you. The infusion routine must get to be a real drag sometimes. You're so good not to complain! May your counts continue to be so good! Health and joy, L [ ] xl228 update Hi, I've been on XL228 now for 7 months, not much has changed. I just had labs done, wbc - 2.7; hgb - 10.4; plt - 180, ANC 1.5. I am zero fish, and qpcr is still .4 something. So as inconvenient as this infusion is, I certainly can't complain, as it is working. I go for treatment this Wed., life is good, but I am looking forward to the new Ariad drug, it being a pill and not an infusion. If the side effects are minimal we may try it. That's it, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Congrats Bobby, what good news. Eva From: ROBERTA DOYLE Sent: Monday, December 01, 2008 6:06 PM Subject: [ ] xl228 update Hi, I've been on XL228 now for 7 months, not much has changed. I just had labs done, wbc - 2.7; hgb - 10.4; plt - 180, ANC 1.5. I am zero fish, and qpcr is still .4 something. So as inconvenient as this infusion is, I certainly can't complain, as it is working. I go for treatment this Wed., life is good, but I am looking forward to the new Ariad drug, it being a pill and not an infusion. If the side effects are minimal we may try it. That's it, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Thanks Zavie, it's nice to be appreciated! Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) From: Zavie <zmiller@...> Subject: RE: [ ] xl228 update Date: Monday, December 1, 2008, 6:15 PM Hi Bobby, That is great news. Thank you for participating in the trial. It is because of people like you who endure the rigors of clinical trials that make it easier for those who need these new drugs.. I am so grateful for all those who participated in the early STI371 trials that made it easy for me. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmillersympatico (DOT) ca Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of ROBERTA DOYLE Sent: December 1, 2008 6:06 PM Subject: [ ] xl228 update Hi, I've been on XL228 now for 7 months, not much has changed. I just had labs done, wbc - 2.7; hgb - 10.4; plt - 180, ANC 1.5. I am zero fish, and qpcr is still .4 something. So as inconvenient as this infusion is, I certainly can't complain, as it is working. I go for treatment this Wed., life is good, but I am looking forward to the new Ariad drug, it being a pill and not an infusion. If the side effects are minimal we may try it. That's it, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
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