Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Dear ,Well Done for your determination and fortitude.Good luck from Ann xxxxx>> Well, I called and made an appointment for my husband to see Dr.> Patti today. We'll be seeing him on Valentine's Day (I hope that's a> good omen). Here's our busy upcoming agenda: Jan. 30 - Cleveland> Clinic for gastric emptying, barium swallow, and chest and abdomen CT> (as my sister the x-ray tech put it, "breakfast, lunch, and dinner").> Jan. 31st - pulmonary function and consult with Dr. Rice. Feb. 14 -> consult with Dr. Patti.> Sandi, I was a little disappointed because I didn't get to talk to> to schedule the appointment. Dr. Patti even suggested in his e> mail that I talk to him. I asked for him in the beginning but the> woman I was talking to said she could handle things. She did O.K.,> but when I asked about any help with directions, accomodations or help> with travel arrangements, she said they don't offer anything like> that. We haven't taken the time to check into airfares and hotel room> rates nearby yet, but I was thinking of checking UCSF's website for> any suggestion of help for that kind of thing. I also had a really> hard time getting through on their phone system. Maybe it's because> I'm used to calling Cleveland (with their toll-free number, I might> add) and just asking for the extension for the doctor's office or> whatever department I'm looking for. At UCSF, I got lost in their> phone menu and disconnected more than once. Also, Cleveland Clinic is> very accomodating when it came to arranging any tests to be done while> we're in town (they got him next day appointments for tests while we> were there in August). From what this woman said, at UCSF, it would> take a while to get the tests scheduled. Hopefully, he doesn't need> any further tests. It's hard to just fly back any time for that. I'm> hoping the minor hassles (and the major hassle of traveling> cross-country) will all be worth it if he gives some hope of> feeling better!> Take care, all!> > in Michigan> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Here is Rodriquez' e-mail rodriquezf@..., last I heard he was Dr Pattii's admin assistant. UCSF used to have a list of local hotels, but the one they gave me was several yeras old, so maybe they gave up keeping it up to date. I'm late for work, tonight I tell you what I did about the hotel. Dave --- lilac_blossom_lady <lilac_blossom_lady@...> wrote: > > Dear , > > Well Done for your determination and fortitude. > > Good luck from Ann xxxxx > > > > > Well, I called and made an appointment for my > husband to see Dr. > > Patti today. We'll be seeing him on Valentine's > Day (I hope that's a > > good omen). Here's our busy upcoming agenda: Jan. > 30 - Cleveland > > Clinic for gastric emptying, barium swallow, and > chest and abdomen CT > > (as my sister the x-ray tech put it, " breakfast, > lunch, and dinner " ). > > Jan. 31st - pulmonary function and consult with > Dr. Rice. Feb. 14 - > > consult with Dr. Patti. > > Sandi, I was a little disappointed because I > didn't get to talk to > > to schedule the appointment. Dr. Patti even > suggested in his e > > mail that I talk to him. I asked for him in the > beginning but the > > woman I was talking to said she could handle > things. She did O.K., > > but when I asked about any help with directions, > accomodations or help > > with travel arrangements, she said they don't > offer anything like > > that. We haven't taken the time to check into > airfares and hotel room > > rates nearby yet, but I was thinking of checking > UCSF's website for > > any suggestion of help for that kind of thing. I > also had a really > > hard time getting through on their phone system. > Maybe it's because > > I'm used to calling Cleveland (with their > toll-free number, I might > > add) and just asking for the extension for the > doctor's office or > > whatever department I'm looking for. At UCSF, I > got lost in their > > phone menu and disconnected more than once. Also, > Cleveland Clinic is > > very accomodating when it came to arranging any > tests to be done while > > we're in town (they got him next day appointments > for tests while we > > were there in August). From what this woman said, > at UCSF, it would > > take a while to get the tests scheduled. > Hopefully, he doesn't need > > any further tests. It's hard to just fly back any > time for that. I'm > > hoping the minor hassles (and the major hassle of > traveling > > cross-country) will all be worth it if he gives > some hope of > > feeling better! > > Take care, all! > > > > in Michigan > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Hi , I don't have much experience with Dr. Patti. I have only been to see him once. It is Carolyn who is more experienced with the office staff there. I see Dr. Ostroff, the GI doc at UCSF who has experience with achalasia. I was just there yesterday and waiting for a call back from them today to schedule another endoscopy in 2 months. If I were you, I would call back and ask to speak to . This is what I did and he called me back right away, however he wasn't able to help me because my PCP had to take care of getting my initial authorization to be seen out of network. Now Dr. Ostroff's office takes care of it. Also, I would call back and make sure they know you are flying in out of town and tell them you need to have all the tests done in one visit! Hopefully they will be more accommodating of your scheduling needs. Here's a link to some hotels near UCSF...hope this helps! The Hyatt is very nice. It's downtown on Market St., right near BART and Muni. I guess you first need to decide if you want to be close to the hospital, and find out how easy it is to take public transportation to and from the hospital, or if it's in walking distance. http://www.ucsf.edu/sfaetc/resources/HousingHotel_List.pdf#search='UCSF%2F%20hotels' Feel free to email me privately if you need help! Hugs, Sandi Going to California Well, I called and made an appointment for my husband to see Dr. Patti today. We'll be seeing him on Valentine's Day (I hope that's a good omen). Here's our busy upcoming agenda: Jan. 30 - Cleveland Clinic for gastric emptying, barium swallow, and chest and abdomen CT (as my sister the x-ray tech put it, " breakfast, lunch, and dinner " ). Jan. 31st - pulmonary function and consult with Dr. Rice. Feb. 14 - consult with Dr. Patti. Sandi, I was a little disappointed because I didn't get to talk to to schedule the appointment. Dr. Patti even suggested in his e mail that I talk to him. I asked for him in the beginning but the woman I was talking to said she could handle things. She did O.K., but when I asked about any help with directions, accomodations or help with travel arrangements, she said they don't offer anything like that. We haven't taken the time to check into airfares and hotel room rates nearby yet, but I was thinking of checking UCSF's website for any suggestion of help for that kind of thing. I also had a really hard time getting through on their phone system. Maybe it's because I'm used to calling Cleveland (with their toll-free number, I might add) and just asking for the extension for the doctor's office or whatever department I'm looking for. At UCSF, I got lost in their phone menu and disconnected more than once. Also, Cleveland Clinic is very accomodating when it came to arranging any tests to be done while we're in town (they got him next day appointments for tests while we were there in August). From what this woman said, at UCSF, it would take a while to get the tests scheduled. Hopefully, he doesn't need any further tests. It's hard to just fly back any time for that. I'm hoping the minor hassles (and the major hassle of traveling cross-country) will all be worth it if he gives some hope of feeling better! Take care, all! in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Sandi, Thanks so much for the info! After I posted, I realized that it was Carolyn (and maybe Dave, also) that had the most experience with Dr. Patti. She has already contacted me with info as well. I think I will call soon to get more info. I would hope that they would try to help make things more convenient for a patient traveling cross-country to see them. We're hoping that the tests he's having in Cleveland would be sufficient for Dr. Patti, but I'm going to check with to make sure. Thanks, again, for your help and the link for the hotels! Everyone in this group is so kind and caring! in Michigan > > Hi , > > I don't have much experience with Dr. Patti. I have only been to see him > once. It is Carolyn who is more experienced with the office staff there. I > see Dr. Ostroff, the GI doc at UCSF who has experience with achalasia. I was > just there yesterday and waiting for a call back from them today to schedule > another endoscopy in 2 months. > > > > If I were you, I would call back and ask to speak to . This is what I > did and he called me back right away, however he wasn't able to help me > because my PCP had to take care of getting my initial authorization to be > seen out of network. Now Dr. Ostroff's office takes care of it. > > Also, I would call back and make sure they know you are flying in out of > town and tell them you need to have all the tests done in one visit! > Hopefully they will be more accommodating of your scheduling needs. > > > > Here's a link to some hotels near UCSF...hope this helps! > > The Hyatt is very nice. It's downtown on Market St., right near BART and > Muni. > > I guess you first need to decide if you want to be close to the hospital, > and find out how easy it is to take public transportation to and from the > hospital, or if it's in walking distance. > > > > http://www.ucsf.edu/sfaetc/resources/HousingHotel_List.pdf#search='UCSF%2F%2 > 0hotels' > > > > Feel free to email me privately if you need help! > > Hugs, > > Sandi > > > > > > Going to California > > > > Well, I called and made an appointment for my husband to see Dr. > > Patti today. We'll be seeing him on Valentine's Day (I hope that's a > > good omen). Here's our busy upcoming agenda: Jan. 30 - Cleveland > > Clinic for gastric emptying, barium swallow, and chest and abdomen CT > > (as my sister the x-ray tech put it, " breakfast, lunch, and dinner " ). > > Jan. 31st - pulmonary function and consult with Dr. Rice. Feb. 14 - > > consult with Dr. Patti. > > Sandi, I was a little disappointed because I didn't get to talk to > > to schedule the appointment. Dr. Patti even suggested in his e > > mail that I talk to him. I asked for him in the beginning but the > > woman I was talking to said she could handle things. She did O.K., > > but when I asked about any help with directions, accomodations or help > > with travel arrangements, she said they don't offer anything like > > that. We haven't taken the time to check into airfares and hotel room > > rates nearby yet, but I was thinking of checking UCSF's website for > > any suggestion of help for that kind of thing. I also had a really > > hard time getting through on their phone system. Maybe it's because > > I'm used to calling Cleveland (with their toll-free number, I might > > add) and just asking for the extension for the doctor's office or > > whatever department I'm looking for. At UCSF, I got lost in their > > phone menu and disconnected more than once. Also, Cleveland Clinic is > > very accomodating when it came to arranging any tests to be done while > > we're in town (they got him next day appointments for tests while we > > were there in August). From what this woman said, at UCSF, it would > > take a while to get the tests scheduled. Hopefully, he doesn't need > > any further tests. It's hard to just fly back any time for that. I'm > > hoping the minor hassles (and the major hassle of traveling > > cross-country) will all be worth it if he gives some hope of > > feeling better! > > Take care, all! > > > > in Michigan > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 When I had my myotomty with Dr Patti I had to travel to UCSF 4 or 5 times, I live about 4 hours away so usually would spend the night. I stayed at the Cathedral Hill Hotel, it is about 2 miles from UCSF, is a about a $12.00 cab ride and is convenient for public transportation (N Judah train, I think). The price varied between 100-125 a night, a bit pricey, I know, but for San Francisco isn't too bad. Their phone is 800) 622 0855 The closest to UCSF is the Carl Hotel, Ive heard good and bad about it, but I have never been there. Make sure or whoever you deal with at UCSF know how far out of town you are, they seem to really try to accommodate out of towners. Dave --- let45ride <brendacoyle@...> wrote: > Sandi, > Thanks so much for the info! After I posted, I > realized that it > was Carolyn (and maybe Dave, also) that had the most > experience with > Dr. Patti. She has already contacted me with info > as well. I think I > will call soon to get more info. I would hope > that they would > try to help make things more convenient for a > patient traveling > cross-country to see them. We're hoping that the > tests he's having in > Cleveland would be sufficient for Dr. Patti, but I'm > going to check > with to make sure. Thanks, again, for your > help and the link > for the hotels! Everyone in this group is so kind > and caring! > > in Michigan > > > > > > > > Hi , > > > > I don't have much experience with Dr. Patti. I > have only been to see him > > once. It is Carolyn who is more experienced with > the office staff > there. I > > see Dr. Ostroff, the GI doc at UCSF who has > experience with > achalasia. I was > > just there yesterday and waiting for a call back > from them today to > schedule > > another endoscopy in 2 months. > > > > > > > > If I were you, I would call back and ask to speak > to . This is > what I > > did and he called me back right away, however he > wasn't able to help me > > because my PCP had to take care of getting my > initial authorization > to be > > seen out of network. Now Dr. Ostroff's office > takes care of it. > > > > Also, I would call back and make sure they know > you are flying in out of > > town and tell them you need to have all the tests > done in one visit! > > Hopefully they will be more accommodating of your > scheduling needs. > > > > > > > > Here's a link to some hotels near UCSF...hope this > helps! > > > > The Hyatt is very nice. It's downtown on Market > St., right near BART and > > Muni. > > > > I guess you first need to decide if you want to be > close to the > hospital, > > and find out how easy it is to take public > transportation to and > from the > > hospital, or if it's in walking distance. > > > > > > > > > http://www.ucsf.edu/sfaetc/resources/HousingHotel_List.pdf#search='UCSF%2F%2 > > 0hotels' > > > > > > > > Feel free to email me privately if you need help! > > > > Hugs, > > > > Sandi > > > > > > > > > > > > Going to California > > > > > > > > Well, I called and made an appointment for my > husband to see Dr. > > > > Patti today. We'll be seeing him on Valentine's > Day (I hope that's a > > > > good omen). Here's our busy upcoming agenda: > Jan. 30 - Cleveland > > > > Clinic for gastric emptying, barium swallow, and > chest and abdomen CT > > > > (as my sister the x-ray tech put it, " breakfast, > lunch, and dinner " ). > > > > Jan. 31st - pulmonary function and consult with > Dr. Rice. Feb. 14 - > > > > consult with Dr. Patti. > > > > Sandi, I was a little disappointed because I > didn't get to talk to > > > > to schedule the appointment. Dr. Patti even > suggested in his e > > > > mail that I talk to him. I asked for him in the > beginning but the > > > > woman I was talking to said she could handle > things. She did O.K., > > > > but when I asked about any help with directions, > accomodations or help > > > > with travel arrangements, she said they don't > offer anything like > > > > that. We haven't taken the time to check into > airfares and hotel room > > > > rates nearby yet, but I was thinking of checking > UCSF's website for > > > > any suggestion of help for that kind of thing. I > also had a really > > > > hard time getting through on their phone system. > Maybe it's because > > > > I'm used to calling Cleveland (with their > toll-free number, I might > > > > add) and just asking for the extension for the > doctor's office or > > > > whatever department I'm looking for. At UCSF, I > got lost in their > > > > phone menu and disconnected more than once. Also, > Cleveland Clinic is > > > > very accomodating when it came to arranging any > tests to be done while > > > > we're in town (they got him next day appointments > for tests while we > > > > were there in August). From what this woman said, > at UCSF, it would > > > > take a while to get the tests scheduled. > Hopefully, he doesn't need > > > > any further tests. It's hard to just fly back any > time for that. I'm > > > > hoping the minor hassles (and the major hassle of > traveling > > > > cross-country) will all be worth it if he gives > some hope of > > > > feeling better! > > > > Take care, all! > > > > > > > > in Michigan > > > > > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Dear Debra, I am sure you will like Dr. Pacquette. I think he replaced Dr. Sawyers who left for Sloan Kettering Memorial. I can tell you that they are trialing the XL228 that Bobby Doyle is on. I wish you much luck and will look forward to hearing from you when you return to Illinois. Kudos to you for taking a giant leap of faith and stepping outside the box to make a change in your life. This could be the single most important move you hever had to make and I pray it is to your benefit. Wishing you all the best, you will receive excellent treatment there. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
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