Re: Border line Neutropenia

[Guest guest]

Hi Sue, my neuts have been as low as .4, I have had no rashes, the only thing I

notice when my counts are low is fatigue.  And they cautioned me against going

in crowds, germs, fresh fruit and veggies, and wash hands all the time.  Bobby

 

From: suehurt28 <hollie@...>

Subject: [ ] Border line Neutropenia

Date: Friday, December 12, 2008, 6:33 PM

My labs have come back finally - still PCRU

But in the last 3 months I have now become borderline neutropenia

with both Neut and Lympth cells reduced quite alot from the

last lot of blood testing

Neut was 45% 1.5

Could this be a reason for my different type of skin rashes

besides that of glivec reaction

What does this really mean

Anybody that can advise would be appreciated

Sue (Aussie)

[Guest guest]

Hi Sue,

I've spent years with a neutrophil count between 1.1 and 1.5. It's

just part of being on Gleevec for me and I've never had a rash.

Tracey

>

>

> My labs have come back finally - still PCRU

>

> But in the last 3 months I have now become borderline neutropenia

> with both Neut and Lympth cells reduced quite alot from the

> last lot of blood testing

>

> Neut was 45% 1.5

>

> Could this be a reason for my different type of skin rashes

> besides that of glivec reaction

>

> What does this really mean

>

> Anybody that can advise would be appreciated

>

> Sue (Aussie)

>

[Guest guest]

Thanks Gals

I knew I was looking under a rock for any other excuse - I cannot keep blaming

everything on glivec

But obviously I can - it just me and glivec.

My haem just thinks I am just very sensitive and some people get headaches,

others the runs

- I get a rash - so not so bad - good trade off in the scheme of things -

especially since they

are non itchy

I have had a week now with no rash of any description - (after 2 months of three

various types)

this is a record. A few scars from sores on arms - No I did not rub them - skin

very dry still

and moisturiser is sucked up as quickly as it is put on.

Advised not to use soaps, wax or shave legs (What the !!!) I will be the hairy

legged woman from OZ

and as Bobbie suggested keep washing hands all the time - which I do by the way

plus the use of

wipes after going on trains, buses, strange places like libraries or anywhere

there has been lots of

people.

So if anyone ever visits, and sights a person - short, glasses, tadpole eyes,

lots of sores, and blood blister

rashes with hairy legs and a packet of wipes, and jumping up and down as I have

hot coal in my Bras, that's ME !!

Easily recognisable

Sue

# 1197

[Guest guest]

I love this group. Currently not much to laugh about with my job hanging by a

thread, but I always find a smile here.

> From: Sue <hollie@...>

> Subject: [ ] Re: Border line Neutropenia

>

> Date: Friday, December 12, 2008, 10:45 PM

> Thanks Gals

>

> I knew I was looking under a rock for any other excuse - I

> cannot keep blaming everything on glivec

>

> But obviously I can - it just me and glivec.

>

> My haem just thinks I am just very sensitive and some

> people get headaches, others the runs

> - I get a rash - so not so bad - good trade off in the

> scheme of things - especially since they

> are non itchy

>

> I have had a week now with no rash of any description -

> (after 2 months of three various types)

> this is a record. A few scars from sores on arms - No I

> did not rub them - skin very dry still

> and moisturiser is sucked up as quickly as it is put on.

>

> Advised not to use soaps, wax or shave legs (What the !!!)

> I will be the hairy legged woman from OZ

> and as Bobbie suggested keep washing hands all the time -

> which I do by the way plus the use of

> wipes after going on trains, buses, strange places like

> libraries or anywhere there has been lots of

> people.

>

> So if anyone ever visits, and sights a person - short,

> glasses, tadpole eyes, lots of sores, and blood blister

> rashes with hairy legs and a packet of wipes, and jumping

> up and down as I have hot coal in my Bras, that's ME !!

>

> Easily recognisable

>

> Sue

> # 1197

>

>

>

>

>

>

>

>