CML Telephone Forum (Australia)

[Guest guest]

Hi everyone - I have been checking up on all your chats but have not

posted for a little while.

I am well but have another glivec rash which is not making me unwell -

but starting to be mighty annoying. Off to see the medicos to see

what is going on once and for all.

Anyone else having bothersome rashes or is it just me this month.

As stated previously glivec rashes and me go together.

That is the CML stuff

______________________________________________________________

Now for the Gossip in Australia

Melbourne Cup Week - for those who do not know - this is a Group 1

international horse race - it stops the nation. Everyone stops for

the race and have celebrations around the country - our office has a

party at lunchtime and we all wear our race hats - people bet or have

sweeps etc. Great day. We actually should have a national holiday

as work just stops in 99% of Australia and every State.

My neighbours have flown to Melbourne from our home State of Perth

for the fortnight. I have their horses having a sleep over at my

place until their return. Holiday for those little 4 legged friends.

One of my mares is in her element showing off to say she is the Queen

and all you boys better get used to it.

I am making my Melbourne Cup Hat - which will have lots of feathers.

Just have to go to the markets and find feathers - maybe balloons

will look better. Can you imagine walking around with a head of

balloons - I may do that - easier but funnier.

This will be interesting

The West Australia Branch of the LF have a seminar especially for CML

next week plus two other chronic leukamias. The keynote speaker is

from a well known city public hospital which is a teaching emergency

hospital and this hospital also does transplants etc. Has one of the

best haematology units in the State. (My treating hospital is a

private hospital nearby in the same city which my specialist

contracts from).

I have been invited and cannot wait. Besides listening and asking

questions from the specialist I may actually meet someone with CML

from my home state. In a funny way this part is very very exciting.

I have only met one other person in the flesh with my condition from

my own State which is great and we have met a number of times now.

She is also attending so that will give me another chance to catch up.

Back to CML info

________________________________________________________________

Do not forget their is a forum for CML people and other blood cancers

called Talkbloodcancer - www.talkbloodcancer.com.au - from

Australias Leukamia Foundation

Those who post to this forum and are from Australia you maybe

interested in this info. It is not that those not from Australia

cannot register but since I am not a techno guru I do not know how to

do this. If interested please contact Steele from the

Australian Leukamia Foundation. Contact details below.

________________________________________________________________

CML telephone forum

The Leukaemia Foundation is proud announce a new service for patients

with CML. A monthly telephone forum for groups of people affected by

CML will allow discussion on the issues they face. This forum will

promote education, support and encouragement for people all over

Australia who may not be able to attend other Leukaemia Foundation

sessions.

It will be fantastic to talk with the people we have heard from on

TalkBloodCancer and have provided so much encouragement and advice!

These forums will be facilitated by one of the Leukaemia Foundation's

trained Support Service Coordinators.

If you are interested in registering to participate, or if you would

like more information, please contact Steele:

asteele@...

Cheers guys

Keep in the best of health.

Sue

[Guest guest]

I have been on Gleevec 3 years ,in the summer a little sweat in the crotch area

and you guessed it . I have to watch not to get sweaty, frustrating because I

cannot finish things.

________________________________

From: suehurt28 <hollie@...>

Sent: Friday, October 31, 2008 5:01:31 AM

Subject: [ ] CML Telephone Forum (Australia)

Hi everyone - I have been checking up on all your chats but have not

posted for a little while.

I am well but have another glivec rash which is not making me unwell -

but starting to be mighty annoying. Off to see the medicos to see

what is going on once and for all.

Anyone else having bothersome rashes or is it just me this month.

As stated previously glivec rashes and me go together.

That is the CML stuff

____________ _________ _________ _________ _________ _________ _

Now for the Gossip in Australia

Melbourne Cup Week - for those who do not know - this is a Group 1

international horse race - it stops the nation. Everyone stops for

the race and have celebrations around the country - our office has a

party at lunchtime and we all wear our race hats - people bet or have

sweeps etc. Great day. We actually should have a national holiday

as work just stops in 99% of Australia and every State.

My neighbours have flown to Melbourne from our home State of Perth

for the fortnight. I have their horses having a sleep over at my

place until their return. Holiday for those little 4 legged friends.

One of my mares is in her element showing off to say she is the Queen

and all you boys better get used to it.

I am making my Melbourne Cup Hat - which will have lots of feathers.

Just have to go to the markets and find feathers - maybe balloons

will look better. Can you imagine walking around with a head of

balloons - I may do that - easier but funnier.

This will be interesting

The West Australia Branch of the LF have a seminar especially for CML

next week plus two other chronic leukamias. The keynote speaker is

from a well known city public hospital which is a teaching emergency

hospital and this hospital also does transplants etc. Has one of the

best haematology units in the State. (My treating hospital is a

private hospital nearby in the same city which my specialist

contracts from).

I have been invited and cannot wait. Besides listening and asking

questions from the specialist I may actually meet someone with CML

from my home state. In a funny way this part is very very exciting.

I have only met one other person in the flesh with my condition from

my own State which is great and we have met a number of times now.

She is also attending so that will give me another chance to catch up.

Back to CML info

____________ _________ _________ _________ _________ _________ _

Do not forget their is a forum for CML people and other blood cancers

called Talkbloodcancer - www.talkbloodcancer .com.au - from

Australias Leukamia Foundation

Those who post to this forum and are from Australia you maybe

interested in this info. It is not that those not from Australia

cannot register but since I am not a techno guru I do not know how to

do this. If interested please contact Steele from the

Australian Leukamia Foundation. Contact details below.

____________ _________ _________ _________ _________ _________ _

CML telephone forum

The Leukaemia Foundation is proud announce a new service for patients

with CML. A monthly telephone forum for groups of people affected by

CML will allow discussion on the issues they face. This forum will

promote education, support and encouragement for people all over

Australia who may not be able to attend other Leukaemia Foundation

sessions.

It will be fantastic to talk with the people we have heard from on

TalkBloodCancer and have provided so much encouragement and advice!

These forums will be facilitated by one of the Leukaemia Foundation's

trained Support Service Coordinators.

If you are interested in registering to participate, or if you would

like more information, please contact Steele:

asteeleleukaemia (DOT) org.au

Cheers guys

Keep in the best of health.

Sue