Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 No active joints - does that mean you are in remission? Sure sounds great! Mark rheumatic doctor's visit > From: " Ken and " <kglg@...> > > I wrote yesterday about my SED rate being 2. Last night I saw my > rheumatologist. While he doesn't just go by SED rates, he does think they > are important to indicate the general level of inflammation and he takes > them into account while relying more on his thorough examination of the > joints. He says I've been stable for a while, but for the first time, he > found NO ACTIVE JOINTS!!!! Time will tell how long this will last. After > all, I've had RA for 21 years (diagnosed) with symptoms for another ten > years before that. Anyway, I'm so thankful to be feeling better! > > > (AP 21 months) > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 - What a lot to get accomplished in one day!!!! So glad to hear all of this. Keep us informed of the outcome from all of this....we want to hear about baby steps and giant steps, too. Have a good sleep!!! Love Ya, Judy (deejay) ---------- > From: KPSB2@... > APchatonelist; Rheumaticonelist > Cc: Hlmn@... > Subject: rheumatic Doctor's Visit > Date: Monday, December 06, 1999 6:15 PM > > From: KPSB2@... > > Hi Everyone, > I have come and gone to the Doctor today and had a good visit. He was > very kind and took time with me and sent me home with the following > prescriptions.. > One upholstered chair from the department of Rehab for my legs while I am > working at the computer. A glucometer to monitor my blood and test strips. > Unfortunately my insurance will not pay for this. Good news is there is a > business here that donates them so will get that tomorrow I called them and > need to call them back. Some pills to try that help monitor my insulin to try > and get it down called. Glucophage (Metformin) > For the leg cramps I got me some Soma and some Quinine. He also refilled > the Doxycycline for the Antibiotic treatment for the Ankylosing Spondylitis. > He is going to approve the house hold help from the dept. of Social > services. Tomorrow morning I go in for a fasting blood test and get the > computer signed off as well. So hopefully the medications will go well. He > says I should try magnesium as well for the leg cramps so I am gonna check my > flintstones to see if they have magnesium in them. > He is sending me to a Sansum Research program called Smart that will teach > me how to care for the diabetes in exchange for giving them information.. > Also he prescribed someone pill wonder for knocking out infection call > ducifian I think but my medical will not pay for it it only pays if you have > aids or cancer cost of this pill is $15.00 so I will probably think about it > and get it tomorrow. > Well, I am kind of tired. Love you all. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Is this your primary care physician? Have you asked for a referral to a rheumatologist? Or maybe a different doctor who DOES know something about it? > > As I put in my other post (a response to another post), I had an uneventful trip to the doctor's office today. I've just grown so frustrated. Most days at lunch I lay on the couch in one of our conference rooms to try to get some rest, or try to get rid of the pain, and this doctor keeps telling me its just muscular, and my bone scan was fine. I hate that almost since I started seeing him I've come off like a witch, but he's not actually doing anything....I mean, I was 2 months out with this pain, and he was ready to write it off like nothing was wrong - he only did the tests that he's done so far because I yelled at him. > > When I talked to him after I went to the ER (woke up one day - and was out of painkillers for a week and a half because the pain management doc was out - and I couldn't even stand up straight. That is when the provisional diagnosis was made.) he said, " Yeah, it could be fibro. " NOw today he says, " I don't think it is, but I don't know anything about fibro. " His method of checking tender spots, at least in my extremities, consisted of wrapping his hand around it and twisting....and evidently when I say it hurts to be touched, well. > > I'm sorry for venting so hard. I don't have a lot of people to talk to, and most don't want to hear all this. It just seems like it was 3 years ago - we dance up to the line on it....and then dance back. > > Tina > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 I have. So far, he's not giving out anything - and there is the problem of insurance, very few specialists take Medicaid around here, and the one in St. Louis that I found that does only treats it if it is a secondary diagnosis - RA, lupus, etc., have to be the primary diagnosis. I have an appointment June 6 to see a new primary care doc. I've already asked her office if they know of any specialists in the area that treat it, and I am waiting on a phone call back from them. Tina just call me Sheba <queen_o_sheba@...> wrote: Is this your primary care physician? Have you asked for a referral to a rheumatologist? Or maybe a different doctor who DOES know something about it? > > As I put in my other post (a response to another post), I had an uneventful trip to the doctor's office today. I've just grown so frustrated. Most days at lunch I lay on the couch in one of our conference rooms to try to get some rest, or try to get rid of the pain, and this doctor keeps telling me its just muscular, and my bone scan was fine. I hate that almost since I started seeing him I've come off like a witch, but he's not actually doing anything....I mean, I was 2 months out with this pain, and he was ready to write it off like nothing was wrong - he only did the tests that he's done so far because I yelled at him. > > When I talked to him after I went to the ER (woke up one day - and was out of painkillers for a week and a half because the pain management doc was out - and I couldn't even stand up straight. That is when the provisional diagnosis was made.) he said, " Yeah, it could be fibro. " NOw today he says, " I don't think it is, but I don't know anything about fibro. " His method of checking tender spots, at least in my extremities, consisted of wrapping his hand around it and twisting....and evidently when I say it hurts to be touched, well. > > I'm sorry for venting so hard. I don't have a lot of people to talk to, and most don't want to hear all this. It just seems like it was 3 years ago - we dance up to the line on it....and then dance back. > > Tina > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Tina, This might be a silly question but have you contacted Medicaid to find out who the doctors are in your area that they have on their lists? I would also contact the Arthritis Foundation to see if they have that type of information. Just some suggestions. HUGZ PeggyH > > I have. So far, he's not giving out anything - and there is the problem of insurance, very few specialists take Medicaid around here, and the one in St. Louis that I found that does only treats it if it is a secondary diagnosis - RA, lupus, etc., have to be the primary diagnosis. I have an appointment June 6 to see a new primary care doc. I've already asked her office if they know of any specialists in the area that treat it, and I am waiting on a phone call back from them. > > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Unfortunately, last fall, Illinois changed it's Medicaid to a managed care plan. Unfortunately, that means that the telephone representatives are only authorized to give you the names of certain types of practices - pediatrician, gp, family, and internist. Anything else, they tell you that you will have to find out from your doctor's office - which means if you can't get the name from the doctor, you have to do your own research and call every doctor you can find and ask if they take it. It was a poorly implemented plan all around, frankly. tina peggyhcrafts <peggyhcrafts@...> wrote: Tina, This might be a silly question but have you contacted Medicaid to find out who the doctors are in your area that they have on their lists? I would also contact the Arthritis Foundation to see if they have that type of information. Just some suggestions. HUGZ PeggyH Recent Activity 23 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Dog Groups on Share pictures & stories about dogs. . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Tina, I went to the Illinois website, http://www.illinoishealthconnect.com/ It sounds like a fairly standard type of HMO/PPO/managed care. In all types of insurance plans today you have to have a referral to get into a specialist or pay. My plan lets me go 'out of network', but I have to pay the first $500 and 20% after that, but it isn't part of medicaid. So waiting for a referral is much cheaper. Where you are having a problem is finding a doctor, first that believes in and will treat Fibro and related issues, and second, finding a Primary Doctor that has a Rheumatologist in his/her network/group of doctors to refer to. For the first, ask, just ask the receptist straight out, when you make an appointment if the doctor treats fibro. For the second, ask the receptionist what groups the doctor is part of, and if there is a rheumatologist. Do an internet search to find out what specialists are connected with those groups. I think the term used on the Illinois website was " Medical Home " instead of medical group. The other thing I found on the website was that they are actively soliciting specialist to join their State medical plan. Not all doctors can afford to do so. Most doctors who take plain medicaid, are doing it as a 'pro bono' type of work, as medicaid does not always pay for the overhead of your visit, let alone anything to the doctor himself. Yes, you are going to have to do research on your own. Few of us on HMOs have someone in the company do it for us. It's a liability issue, among other things. It's better to know what types of questions to ask, and ask them. C. > > Unfortunately, last fall, Illinois changed it's Medicaid to a managed care plan. Unfortunately, that means that the telephone representatives are only authorized to give you the names of certain types of practices - pediatrician, gp, family, and internist. Anything else, they tell you that you will have to find out from your doctor's office - which means if you can't get the name from the doctor, you have to do your own research and call every doctor you can find and ask if they take it. It was a poorly implemented plan all around, frankly. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 It's basically the same type of plan a lot of states are going to. There are 2 plans - Illinois Health Connect (the fee for service plan), and Harmony (more managed care). The Medical " home " is something that a lot of surrounding states are going through with the medicare program - it simply means someone that your care is coordinated through - a primary doc, ped, ob/gyn. That doc is your medical " home " and you only see other docs for specialties or ER visits. Keeps people from doctor shopping for meds - you can't see another doc as a primary/internist/gp (except partners of your listed primary) without having to change docs in the system. (doctor shopping for that reason, unfortunately, is real common in our area....and there are some docs that are " known " problems with writing out pills to anyone.) Right now, Harmony has the fewest doctors. The sticking point is a lot of the doctors who accept straight Medicaid won't accept either of the plans, because the reimbursement rate is about 1/2 of what Medicaid is giving on straight Medicaid. The ones that are are not accepting new Medicaid patients because their panels are full, with the majority of them. The exception is the health care clinics (usually run by Southern Illinois HealthCare Foundations). They don't keep any specialists on staff beyond pediatricians (SIHF). I was lucky to get a referral to a neurologist in my town, however, for my psychaitrist, I have to go 20+ miles away, to East St. Louis. There are absolutely no dermatologists in the area that take Medicaid, so my husband is paying cash ($90 per visit) to get his psoriasis treated (and this with both of us only working part time); luckily the prescription that doc prescribed was covered - although both of us have lost meds because they aren't covered now. With straight Medicaid, you can call into the hotline, and they will send you a printout of all the doctors of that specialty in your county (or the area that you specify like 15 mile radius, etc). I was able to call the plan and found out that there are no covered rheumatologists even in this half of the state. So I called the doc that I'm going to be going to in June. Told them what happened with this doctor, and asked if they knew of any rhuematologists in the area. They told me that if she does not feel comfortable treating or diagnosing my condition, she will make sure she can find me someone who does. They couldn't believe that the other doctor did that. Anyway, the referral part...for most specialties, that's just when your doctor tells you who is around to see - I know for pain management, psychiatry, and neurology, I actually did not need a referral, and made the appointments myself. As far as someone doing the research....well, in most health insurance plans, you have a list of doctors.....and in Illinois you could get a list of covered doctors up until October....and then you start making the calls from there, in most cases. Tina cynthiadew1 <cynthiadew1@...> wrote: Tina, I went to the Illinois website, http://www.illinoishealthconnect.com/ It sounds like a fairly standard type of HMO/PPO/managed care. In all types of insurance plans today you have to have a referral to get into a specialist or pay. My plan lets me go 'out of network', but I have to pay the first $500 and 20% after that, but it isn't part of medicaid. So waiting for a referral is much cheaper. Where you are having a problem is finding a doctor, first that believes in and will treat Fibro and related issues, and second, finding a Primary Doctor that has a Rheumatologist in his/her network/group of doctors to refer to. For the first, ask, just ask the receptist straight out, when you make an appointment if the doctor treats fibro. For the second, ask the receptionist what groups the doctor is part of, and if there is a rheumatologist. Do an internet search to find out what specialists are connected with those groups. I think the term used on the Illinois website was " Medical Home " instead of medical group. The other thing I found on the website was that they are actively soliciting specialist to join their State medical plan. Not all doctors can afford to do so. Most doctors who take plain medicaid, are doing it as a 'pro bono' type of work, as medicaid does not always pay for the overhead of your visit, let alone anything to the doctor himself. Yes, you are going to have to do research on your own. Few of us on HMOs have someone in the company do it for us. It's a liability issue, among other things. It's better to know what types of questions to ask, and ask them. C. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 I had a doctor's appointment this week. I was concerned last month with my blood test results as my white count had gone up from the low 4's to 5. This month my white blood count is now 7.1. I asked the doctor if this was okay and would it know when to stop. He explained to me that my damaged white cells are now gone and being replaced with healthy white blood cells. He indicated that he felt they would stay in the normal range. I am still scheduled for monthly blood draws. Because I have fluid in my ankles (and at times in my knees and hands), he is having my thyroid tested next month. He thinks it is because of the gleevec, but is checking on my thyroid to be on the safe side. I asked about a water pill as I have gained weight and I feel most of it is fluid, but he said he didn't think there was enough fluid to warrant a pill. In December I am having the blood test that they use instead of the bone marrow to see how I am as my May bone marrow test showed genetic remission. If my counts go crazy again, I will have to have a bone marrow done again (ick). I really appreciate this group as I knew nothing about CML when I was diagnosed in February 2008. I am glad to have all the reference material and to know that there are others like me out there. I feel the side effects of gleevec seem to increase the longer I take it, but maybe I am just stressed out and that is why they are worse. I am really, really tired this month. Have others found this to be the same? Thanks, Jill in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Hi Jill, I had a doctor once tell me that " normal is normal " . This was in reference to my white count bouncing up a little. As long as your counts are in the normal range, normal is normal. I find drinking coffee and tea works great as a diuretic as long as I don't drink them regularly. Many of us find that the side effects cycle over time, meaning that they come and go. I find some days the fatigue is so bad that all I can do is stay on the couch and other days I'm full of energy. The diarrhea and the nausea also come and go for me all the time. Take care, Tracey > > I had a doctor's appointment this week. I was concerned last month > with my blood test results as my white count had gone up from the low > 4's to 5. This month my white blood count is now 7.1. I asked the > doctor if this was okay and would it know when to stop. He explained > to me that my damaged white cells are now gone and being replaced > with healthy white blood cells. He indicated that he felt they would > stay in the normal range. I am still scheduled for monthly blood > draws. Because I have fluid in my ankles (and at times in my knees > and hands), he is having my thyroid tested next month. He thinks it > is because of the gleevec, but is checking on my thyroid to be on the > safe side. I asked about a water pill as I have gained weight and I > feel most of it is fluid, but he said he didn't think there was > enough fluid to warrant a pill. In December I am having the blood > test that they use instead of the bone marrow to see how I am as my > May bone marrow test showed genetic remission. If my counts go crazy > again, I will have to have a bone marrow done again (ick). > > I really appreciate this group as I knew nothing about CML when I was > diagnosed in February 2008. I am glad to have all the reference > material and to know that there are others like me out there. I feel > the side effects of gleevec seem to increase the longer I take it, > but maybe I am just stressed out and that is why they are worse. I am > really, really tired this month. Have others found this to be the > same? > > Thanks, > > Jill in Illinois > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 , After all of that I think I would just want to punch him in the face and see who wins that one! Not suggesting that anyone try this, just my fantasy! Why do we put up with this? I am supposed to go back to my new DO Doc on Friday and I have pretty much talked myself out of even going. You know the stress of dealing with these idiots is just more than it is worth sometimes. I am taking my own Arimidex and DIM and just ordered hCG. Now the thought comes, why is it I am going to the doctor? Brett Doctor's Visit >I just came back from the endo. After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be fair, this test was > in > the morning before I applied the cream. I had other blood work that > required fasting. The 237 was on 10 pumps of Androgel and was taken late > in > the afternoon. I also started hcg (250 iu every 3 days) and Arimidex (.5 > mg > every other day). My estradiol went from 59 to 36. At least I have some > good news. > > The doctor wanted to up the cream to 3 pumps from 2. I kind of went off > on > him and told him I was tired of the " try this and see what happens " > approach > and that I wanted to switch to injections. He said the norm was every 2 > weeks. I told him I would be doing it weekly and I would self inject. > Surprisingly, he agreed. I also told him that I wanted to use Arimidex to > control the estradiol. He said there were not studies to support that. I > told him that was a JCEM article about such a study. He back tracked and > said he was aware of that study, but that he meant there we not any > studies > dealing with the long term safety of Arimidex usage in men. So, I lost > that > one. I then suggest using hcg to keep my testicles producing whatever > testosterone they can produce. He said that I could use hcg if I wanted > instead of the testosterone injections, but not both. I lost this one > too. > > > > He wrote the prescription for the testosterone injections, and new lab > work > testing only total testosterone and nothing else. I'll continue my hcg > and > Arimidex on my own, but I'm done with this guy. Anyone know of any good > places to eat in Lansing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Brett don't take both at the same time do one or the other of DIM or Arimidex. I got dam sick doing both at the same time. Co-Moderator Phil > From: Brett Savage <brshop@...> > Subject: Re: Doctor's Visit > > Date: Tuesday, June 1, 2010, 6:33 PM > , >   After all of that I think I would just want > to punch him in the face and > see who wins that one! Not suggesting that anyone try > this, just my > fantasy! Why do we put up with this? I am > supposed to go back to my new DO > Doc on Friday and I have pretty much talked myself out of > even going. You > know the stress of dealing with these idiots is just more > than it is worth > sometimes. I am taking my own Arimidex and DIM and > just ordered hCG. Now > the thought comes, why is it I am going to the > doctor? Brett > Doctor's Visit > > > >I just came back from the endo. After switching > to compounded test cream, > > my total testosterone dropped to 136 from 237. > To be fair, this test was > > in > > the morning before I applied the cream. I had > other blood work that > > required fasting. The 237 was on 10 pumps of > Androgel and was taken late > > in > > the afternoon. I also started hcg (250 iu every > 3 days) and Arimidex (.5 > > mg > > every other day). My estradiol went from 59 to > 36. At least I have some > > good news. > > > > The doctor wanted to up the cream to 3 pumps from > 2. I kind of went off > > on > > him and told him I was tired of the " try this and see > what happens " > > approach > > and that I wanted to switch to injections. He > said the norm was every 2 > > weeks. I told him I would be doing it weekly and > I would self inject. > > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > > control the estradiol. He said there were not > studies to support that. I > > told him that was a JCEM article about such a > study. He back tracked and > > said he was aware of that study, but that he meant > there we not any > > studies > > dealing with the long term safety of Arimidex usage in > men. So, I lost > > that > > one. I then suggest using hcg to keep my > testicles producing whatever > > testosterone they can produce. He said that I > could use hcg if I wanted > > instead of the testosterone injections, but not > both. I lost this one > > too. > > > > > > > > He wrote the prescription for the testosterone > injections, and new lab > > work > > testing only total testosterone and nothing > else. I'll continue my hcg > > and > > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > > places to eat in Lansing? > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Phil, Thanks for the reply. Like a lot of guys here, I read more than I post, and the more I read, the more I think there are other problems going on besides low T. I don't know if it's thyroid, adreanals, or something else. I've been to see 2 endos and one DO. None of them want to look at the whole picture. I think the DO would be open to working with Dr. . The DO isn't up on TRT and didn't want to try and treat me. I can respect that. I haven't felt right for about 5 years, and I've wasted the last 2 with doctors that should be able to figure out the problem, but can't for whatever the reason might be. They seem to be living in the past with respect to TRT. I don't like the idea of treating myself behind my doctor's back. If I didn't have a choice, I would do it. Also, I could keep trying other doctors, and maybe I'd find one that was up to the task. I might get lucky and it would be the next one. Then again, it could be the 10th one too. Or, I could go to MI and make sure that the next doctor is the right doctor. . _____ From: [mailto: ] On Behalf Of philip georgian Sent: Tuesday, June 01, 2010 4:29 PM Subject: Re: Doctor's Visit sorry you had this bad luck with your Dr. the only thing I know of bad about taking Arimidex is going down to low on your Estradiol men have been on this from the time it came out. One Drug store told me he sells more of it to men then women. It's to bad but you could stick with him for your T shots and labs. Co-Moderator Phil > From: Wharff <robertwharff@... <mailto:robertwharff%40robertwharff.com> > > Subject: Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Brett, I totally agree with you. I was so worked up before the appointment that my blood pressure was about 20 points higher than it usually is. If I thought it would do any good, I'd punch him in the face to try and wake him up, but I don't think it would work. You are right. What is the point of having a doctor if you have to get your own drugs? I don't think doctors should just had out drugs like candy, but if they are going to hold themselves out as experts in a given area, they should be up on the latest trends. They should be open to discussing the treatment plan the patient wants and have good reasons for not following that plan. . _____ From: [mailto: ] On Behalf Of Brett Savage Sent: Tuesday, June 01, 2010 4:34 PM Subject: Re: Doctor's Visit , After all of that I think I would just want to punch him in the face and see who wins that one! Not suggesting that anyone try this, just my fantasy! Why do we put up with this? I am supposed to go back to my new DO Doc on Friday and I have pretty much talked myself out of even going. You know the stress of dealing with these idiots is just more than it is worth sometimes. I am taking my own Arimidex and DIM and just ordered hCG. Now the thought comes, why is it I am going to the doctor? Brett Doctor's Visit >I just came back from the endo. After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be fair, this test was > in > the morning before I applied the cream. I had other blood work that > required fasting. The 237 was on 10 pumps of Androgel and was taken late > in > the afternoon. I also started hcg (250 iu every 3 days) and Arimidex (.5 > mg > every other day). My estradiol went from 59 to 36. At least I have some > good news. > > The doctor wanted to up the cream to 3 pumps from 2. I kind of went off > on > him and told him I was tired of the " try this and see what happens " > approach > and that I wanted to switch to injections. He said the norm was every 2 > weeks. I told him I would be doing it weekly and I would self inject. > Surprisingly, he agreed. I also told him that I wanted to use Arimidex to > control the estradiol. He said there were not studies to support that. I > told him that was a JCEM article about such a study. He back tracked and > said he was aware of that study, but that he meant there we not any > studies > dealing with the long term safety of Arimidex usage in men. So, I lost > that > one. I then suggest using hcg to keep my testicles producing whatever > testosterone they can produce. He said that I could use hcg if I wanted > instead of the testosterone injections, but not both. I lost this one > too. > > > > He wrote the prescription for the testosterone injections, and new lab > work > testing only total testosterone and nothing else. I'll continue my hcg > and > Arimidex on my own, but I'm done with this guy. Anyone know of any good > places to eat in Lansing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Hi Phil, It seems to be working OK so far. Only a few weeks. I found out I couldn't tolerate very much Arimidex because of the side effects but using just about 1/4 mg the day after my shot seems to minimize the rise in E2 better than just the DIM alone. I will keep what you are saying in mind and we will see if I develop any issues because of it. Brett Re: Doctor's Visit Brett don't take both at the same time do one or the other of DIM or Arimidex. I got dam sick doing both at the same time. Co-Moderator Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 , I am a new patient of Dr. Crisler. I am very satisfied with him so far. I strongly suggest that if your D.O. is willing to work with him (Crisler is a D.O. as well), then do so. Crisler will work with your doctor over the phone - just as if you saw him in person. Do it man..... you won't regret it. I drove from central Indiana all the way to Lansing just to see him because I was getting nowhere with my docs. It was worth it! Bill ________________________________ From: Wharff <robertwharff@...> Sent: Tue, June 1, 2010 6:49:14 PM Subject: RE: Doctor's Visit  Phil, Thanks for the reply. Like a lot of guys here, I read more than I post, and the more I read, the more I think there are other problems going on besides low T. I don't know if it's thyroid, adreanals, or something else. I've been to see 2 endos and one DO. None of them want to look at the whole picture. I think the DO would be open to working with Dr. . The DO isn't up on TRT and didn't want to try and treat me. I can respect that. I haven't felt right for about 5 years, and I've wasted the last 2 with doctors that should be able to figure out the problem, but can't for whatever the reason might be. They seem to be living in the past with respect to TRT. I don't like the idea of treating myself behind my doctor's back. If I didn't have a choice, I would do it. Also, I could keep trying other doctors, and maybe I'd find one that was up to the task. I might get lucky and it would be the next one. Then again, it could be the 10th one too. Or, I could go to MI and make sure that the next doctor is the right doctor. . _____ From: [mailto: ] On Behalf Of philip georgian Sent: Tuesday, June 01, 2010 4:29 PM Subject: Re: Doctor's Visit sorry you had this bad luck with your Dr. the only thing I know of bad about taking Arimidex is going down to low on your Estradiol men have been on this from the time it came out. One Drug store told me he sells more of it to men then women. It's to bad but you could stick with him for your T shots and labs. Co-Moderator Phil > From: Wharff <robertwharff@... <mailto:robertwharff%40robertwharff.com> > > Subject: Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 I'm at the airport now, gonna see him tomorrow! Can't wait. I'm leaving from FL Sent via BlackBerry from T-Mobile Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Another person in this group asked me what I thought of Dr. Crisler. One thing I suggested to him is to write down your questions so you don't forget. Bill ________________________________ From: Marc Michaud <MisterX225@...> Sent: Wed, June 2, 2010 6:55:34 AM Subject: Re: Doctor's Visit I'm at the airport now, gonna see him tomorrow! Can't wait. I'm leaving from FL Sent via BlackBerry from T-Mobile Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 I will do that Sent via BlackBerry from T-Mobile Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Then ask this DO Dr. if he will work with Dr. over the phone this works out good for men they get all there meds from there Dr. and labs. Co-Moderator Phil > > > From: Wharff <robertwharff@... > <mailto:robertwharff%40robertwharff.com> > > > Subject: Doctor's Visit > > > <mailto: %40> > > > Date: Tuesday, June 1, 2010, 4:11 PM > > I just came back from the endo. > > After switching to compounded test cream, > > my total testosterone dropped to 136 from 237. > To be > > fair, this test was in > > the morning before I applied the cream. I had > other > > blood work that > > required fasting. The 237 was on 10 pumps of > Androgel > > and was taken late in > > the afternoon. I also started hcg (250 iu every > 3 > > days) and Arimidex (.5 mg > > every other day). My estradiol went from 59 to > > 36. At least I have some > > good news. > > > > > > > > The doctor wanted to up the cream to 3 pumps from 2. > > I kind of went off on > > him and told him I was tired of the " try this and see > what > > happens " approach > > and that I wanted to switch to injections. He > said > > the norm was every 2 > > weeks. I told him I would be doing it weekly and > I > > would self inject. > > Surprisingly, he agreed. I also told him that I > > wanted to use Arimidex to > > control the estradiol. He said there were not > studies > > to support that. I > > told him that was a JCEM article about such a study. > > He back tracked and > > said he was aware of that study, but that he meant > there we > > not any studies > > dealing with the long term safety of Arimidex usage > in > > men. So, I lost that > > one. I then suggest using hcg to keep my > testicles > > producing whatever > > testosterone they can produce. He said that I > could > > use hcg if I wanted > > instead of the testosterone injections, but not both. > > > I lost this one too. > > > > > > > > He wrote the prescription for the testosterone > injections, > > and new lab work > > testing only total testosterone and nothing else. > > I'll continue my hcg and > > Arimidex on my own, but I'm done with this guy. > > Anyone know of any good > > places to eat in Lansing? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 I broke out in a bad rash on the back of my legs it was the DIM with Arimidex. My next order of DIM was on back order and the rash went away. When I went back on the DIM the rash started up again. Co-Moderator Phil > From: Brett Savage <brshop@...> > Subject: Re: Doctor's Visit > > Date: Tuesday, June 1, 2010, 7:48 PM > Hi Phil, It seems to be working > OK so far. Only a few weeks. I found out I > couldn't tolerate very much Arimidex because of the side > effects but using > just about 1/4 mg the day after my shot seems to minimize > the rise in E2 > better than just the DIM alone. I will keep what you > are saying in mind and > we will see if I develop any issues because of > it.   Brett > > Re: Doctor's Visit > > > Brett don't take both at the same time do one or the other > of DIM or > Arimidex. I got dam sick doing both at the same > time. > Co-Moderator > Phil > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Also, gotta check out the dude's grip.  Dude's got rocks for hands! ________________________________ From: Marc Michaud <MisterX225@...> Sent: Wed, June 2, 2010 7:35:28 AM Subject: Re: Doctor's Visit  I will do that Sent via BlackBerry from T-Mobile Doctor's Visit > <mailto: %40> > Date: Tuesday, June 1, 2010, 4:11 PM > I just came back from the endo. > After switching to compounded test cream, > my total testosterone dropped to 136 from 237. To be > fair, this test was in > the morning before I applied the cream. I had other > blood work that > required fasting. The 237 was on 10 pumps of Androgel > and was taken late in > the afternoon. I also started hcg (250 iu every 3 > days) and Arimidex (.5 mg > every other day). My estradiol went from 59 to > 36. At least I have some > good news. > > > > The doctor wanted to up the cream to 3 pumps from 2. > I kind of went off on > him and told him I was tired of the " try this and see what > happens " approach > and that I wanted to switch to injections. He said > the norm was every 2 > weeks. I told him I would be doing it weekly and I > would self inject. > Surprisingly, he agreed. I also told him that I > wanted to use Arimidex to > control the estradiol. He said there were not studies > to support that. I > told him that was a JCEM article about such a study. > He back tracked and > said he was aware of that study, but that he meant there we > not any studies > dealing with the long term safety of Arimidex usage in > men. So, I lost that > one. I then suggest using hcg to keep my testicles > producing whatever > testosterone they can produce. He said that I could > use hcg if I wanted > instead of the testosterone injections, but not both. > I lost this one too. > > > > He wrote the prescription for the testosterone injections, > and new lab work > testing only total testosterone and nothing else. > I'll continue my hcg and > Arimidex on my own, but I'm done with this guy. > Anyone know of any good > places to eat in Lansing? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 No, he will work with your doc from the start. Bill ________________________________ From: Brett Savage <brshop@...> Sent: Wed, June 2, 2010 10:10:58 PM Subject: Re: Doctor's Visit  Don't you have to have seen Dr first one time before he will do this? Brett Doctor's Visit > > > <mailto: %40> > > > Date: Tuesday, June 1, 2010, 4:11 PM > > I just came back from the endo. > > After switching to compounded test cream, > > my total testosterone dropped to 136 from 237. > To be > > fair, this test was in > > the morning before I applied the cream. I had > other > > blood work that > > required fasting. The 237 was on 10 pumps of > Androgel > > and was taken late in > > the afternoon. I also started hcg (250 iu every > 3 > > days) and Arimidex (.5 mg > > every other day). My estradiol went from 59 to > > 36. At least I have some > > good news. > > > > > > > > The doctor wanted to up the cream to 3 pumps from 2. > > I kind of went off on > > him and told him I was tired of the " try this and see > what > > happens " approach > > and that I wanted to switch to injections. He > said > > the norm was every 2 > > weeks. I told him I would be doing it weekly and > I > > would self inject. > > Surprisingly, he agreed. I also told him that I > > wanted to use Arimidex to > > control the estradiol. He said there were not > studies > > to support that. I > > told him that was a JCEM article about such a study. > > He back tracked and > > said he was aware of that study, but that he meant > there we > > not any studies > > dealing with the long term safety of Arimidex usage > in > > men. So, I lost that > > one. I then suggest using hcg to keep my > testicles > > producing whatever > > testosterone they can produce. He said that I > could > > use hcg if I wanted > > instead of the testosterone injections, but not both. > > > I lost this one too. > > > > > > > > He wrote the prescription for the testosterone > injections, > > and new lab work > > testing only total testosterone and nothing else. > > I'll continue my hcg and > > Arimidex on my own, but I'm done with this guy. > > Anyone know of any good > > places to eat in Lansing? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 No at www.allthingsmale.com you can read about it or at his forum. http://www.musclechatroom.com/forum/forumdisplay.php?s= & daysprune= & f=2 Co-Moderator Phil > > > > > From: Wharff <robertwharff@... > > <mailto:robertwharff%40robertwharff.com> > > > > Subject: Doctor's Visit > > > > > <mailto: %40> > > > > > Date: Tuesday, June 1, 2010, 4:11 PM > > > I just came back from the endo. > > > After switching to compounded test cream, > > > my total testosterone dropped to 136 from 237. > > To be > > > fair, this test was in > > > the morning before I applied the cream. I had > > other > > > blood work that > > > required fasting. The 237 was on 10 pumps of > > Androgel > > > and was taken late in > > > the afternoon. I also started hcg (250 iu every > > 3 > > > days) and Arimidex (.5 mg > > > every other day). My estradiol went from 59 to > > > 36. At least I have some > > > good news. > > > > > > > > > > > > The doctor wanted to up the cream to 3 pumps from > 2. > > > I kind of went off on > > > him and told him I was tired of the " try this and > see > > what > > > happens " approach > > > and that I wanted to switch to injections. He > > said > > > the norm was every 2 > > > weeks. I told him I would be doing it weekly and > > I > > > would self inject. > > > Surprisingly, he agreed. I also told him that I > > > wanted to use Arimidex to > > > control the estradiol. He said there were not > > studies > > > to support that. I > > > told him that was a JCEM article about such a > study. > > > He back tracked and > > > said he was aware of that study, but that he > meant > > there we > > > not any studies > > > dealing with the long term safety of Arimidex > usage > > in > > > men. So, I lost that > > > one. I then suggest using hcg to keep my > > testicles > > > producing whatever > > > testosterone they can produce. He said that I > > could > > > use hcg if I wanted > > > instead of the testosterone injections, but not > both. > > > > > I lost this one too. > > > > > > > > > > > > He wrote the prescription for the testosterone > > injections, > > > and new lab work > > > testing only total testosterone and nothing > else. > > > I'll continue my hcg and > > > Arimidex on my own, but I'm done with this guy. > > > Anyone know of any good > > > places to eat in Lansing? > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
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