Jeanie

January 26, 2002

continuing the discourse.... with good intentions

jeanie... i respect you opinions and comments but i don't really think it's

a good thing. i'm not saying what i have experienced in others staring and

judging is anything traumatic or anything to make me question my self worth.

it's just i was trying to say that no matter whether you are

short,tall,skinny,overweight,black,blue,white etc; you get the picture... no

matter who you are or what differences you have from others no one will go

through life without being discriminated against, rejected for their outward

self or judged in some way. i wasn't trying to say that it's undeserved

because yes i do things to myself that make people stare at me. i just

overlook it and despite what you think it is being rude and narrow-minded to

stare at someone.

regardless!! obviously you do fall into that category. i don't ever stare at

someone unless i think they are gorgeous. i wouldn't stare at someone if

they had another arm growing out of their forehead.

as for the guys on jackass that do crazy stupid things to amuse people; it's

called comedy , entertainment , having a sense of humor.

i came to this list to make new friends and i'm not excluding you jeanie but

i think you read something wrong in my message. as far as myself growing out

of this i'm almost 27 been this way since 13 and i don't see it changing .

nope! it's called a personality and a lifestyle choice...

what you consider mutilating the body god gave me i call me being free to

experiment with ink and art...

take care of yourselves and each other,

jen

>From: " jean malone " <j_bomber@...>

>jagergirl420@..., dwarfism

>Subject: Re: my contribution

>Date: Fri, 25 Jan 2002 06:06:43 -0600

>

>Hi Jen~

>

>Well I'm going to do as Davey suggests and " continue the discourse " . First

>of all, I don't believe that what you have experienced of APs' being rude

>and narrow-minded IS rudeness and narrow-mindedness. They probably look

>and

>you with your tattoos and piercings and green, orange or blue hair and

>wonder " why would one want to do this to themselves " . It's sort of like a

>really bad car wreck - you don't want to look, but dang!!! you just HAVE to

>see! Perhaps I am rude and narrow-minded as well, but geez what kind of

>statement are you making by ruining the beautiful body that God gave you?

>

>As for the other folks you mentioned in your statement, I don't know them,

>nor would I WANT to. People doing stupid and inane things for attention is

>not new nor " cool " . They are very sad people who crave some kind of

>attention but not enough brain cells to go about it in the proper manner.

>

>Nothing personal Jen, but I hope you grow out of this soon.

>

>jeanie (mal)

>

> >From: " jen yarbrough " <jagergirl420@...>

> >dwarfism

> >Subject: my contribution

> >Date: Fri, 25 Jan 2002 03:51:18 -0600

> >

> >hello everyone!! i hope all is good with everyone. i figured since i was

>on

> >this list i might as well say something. i would like to comment on some

>of

> >the things that i've read since i've joined. i am not speaking for all

>AP's

> >only for myself.

> >i know that alot of AP's and people in general can be very narrow minded

> >and

> >i know this from personal experience. i don't have anything wrong with me

> >that i haven't done to myself but i experience some sort of

>discrimination

> >in my hometown everyday. i have 8 tattoos and have had several piercings.

> >my

> >hair has been every color you could imagine and i don't dress like most

> >people. i will have rude ignorant people stare at me everywhere i go. i

>try

> >not to ever let this get me down. i am the way i am and i'm happy with

> >myself. although, i will never understand the challenge of having a

> >disability or of being an LP i do

> >understand the irritation caused by narrow minded judgemental people. i

> >just

> >want to let everyone know i am in no way your typical AP and i'm proud to

> >say that.

> >

> >in regards to the discussion about jason " wee man " on the mtv true life

>and

> >jackass shows. i am amazed at how well he can skate not because of his

> >stature but his shear talent. i only wish i could skate as well as him

>and

> >bam margera( who also stars on jackass).

> >as far as jackass goes wee man has done stuff that is crazy and

>disgusting

> >yes but so have they all.

> >i.e. johnny knoxville being place inside a porto-potty , rolled end over

> >end

> >and covered in poo. preston lacy (who is an overweight man) being dressed

> >as

> >a human bowling ball and the list goes on.

> >sorry for being so long...

> >take care,

> >jen

> >

> >_________________________________________________________________

> >Chat with friends online, try MSN Messenger: http://messenger.msn.com

> >

>

>_________________________________________________________________

>Chat with friends online, try MSN Messenger: http://messenger.msn.com

>

_________________________________________________________________

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January 3, 2003

It's so funny that some people have such a good experience with their

VA clinic and others are treated like dirt. That just makes no sense

to me at all. They should be uniform for goodness sake. But I know

they are not.

The rep at my VA Center already told me on the phone this morning

that I will be denied. Big help he's gonna be. I'll just have to get

out my boxing gloves...and my dancing shoes. I'll dance around the

ones who have no clue and box the ones who want to fight!!

Congrats on a good biopsy!! I hope you do well on the treatment. It's

not fun or easy, but you sure have a good shot at it with that

genotype and the rest of the good news on your liver!

LeighAnn

February 4, 2003

HOW DO I GET IN TOUCH TO EMAIL LEIGHANN QUESTIONS? I WILL BE STARTING PEG IN

2 WEEKS AND NOW I AM HAVING SECOND THOUGHTS CAUSE OF SOME REATIONS TO THE

MEDS. I AM TYPE 1B AND HAVE A COUNT OF 250,000,000. I HAVE FIBROSIS WITH NO

BRIDGING. DO YOU THINK I WOULD BE SAFE TO WAIT.

NANCY

February 4, 2003

Jeanie,

It sounds to me like you are Stage 3 Fibrosis but with no bridging,

which is a good thing. They may even put it at Stage 2. As for the

RDW, I have heard of this and cannot for the life of me remember what

the heck it is, but I'll find out and post it for you ok?

LeighAnn

June 23, 2003

Pam,

Yes, it is hard for people to understand... most of the time, I don't like

like I don't feel good or that something hurts. I am lucky that those

around me at least believe me. When I was married to my ex, every time I

turned around he was telling me this is all in my head or that is all in my

head... makes ya really feel like doodoo... The description of where you

live sounds so lovely. I had a house in Britain, Wales actually, that sat

on 16 acres of river-front property, the driveway was gravel, a mile long...

it was the most beautiful place I'd ever seen or lived... I couldn't walk up

the driveway either, never could. Now, I'm back in the states, living in a

sweet little cedar condo or townhome or whatever one calls them *grins*...

it's quite nice here, but country it definitely isn't. City life was great

when I was younger, but now, I want nature around me... okay, I'll shut

up...

Princess

[ It is a 50 minute drive to a Mall. The closest one is in Macon. I would

be walking too and I love to walk. Three years ago I was walking between two

and three miles a day. Then we moved to the country and it took me 15

minutes to get to town. We live on a gravel road about 3/4 of a mile down

that before you get to our house. The gravel road is not something you want

to walk on when you have trouble with your feet and legs. It has been

getting so bad lately (leg pain) , I just make sure I'm with my husband or a

friend if I go any where. It is unbelieveable how you can be so healthy a

few years ago and still look healthy and inside you have so much

pain.....you can't see pain so it's hard for people to understand.]

May 9, 2005

Hi Janine welcome to the group I am sorry pain has brought you here.

Check into the SanFransico Spine Center.

http://www.spinenet.com/

I have read several articles about them doing wonders with FAILED

back surgeries. Hope this helps. Sharon Group Owner

> Hi Jeanie

> Thank you for responding to my email. I look forward to getting to

know all of you in this group. I am so very sorry to hear about all

that you have and are going through. Thank God that they were

finally able to find the fracture. I know what you mean about God

and helping you through it all. I have been at my lowest and know

that if it was not for him pulling me out of it I would be worse

off. I am in California and am in desperate search for a Doctor that

is good and accurate. Nerve damage has got to be one of the worst

things that I have experienced so far and very scary. I still have

no feeling in parts of my right leg and the feelings I do have in

the rest of the leg and the left leg as well are not nice. I am

praying for you as well as Teri for what you are going though and

the surgeries that you are going to endure. Please keep me updated

on how you are doing and if there is anything that I can do for you.

Thanks again for responding to my email and I look forward to hearing

> from you again.

>

> Sincerely Janine

>

> PS tell your daughter congatulations on her GRADUATION what an

awsome accomplishment.

>

May 9, 2005