Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Yes she is!!! Hi , I haven't read your original post but know that I am praying for you to get through this. Lottie mentioned depression. I experienced it a year after I was diagnosed. My stomach hurt all the time, I was terribly fatigued, I sat in a chair most days and stared at the TV. I thought it was just side effects from the drugs or cml. After much support from the nurses at MDACC, they suggested I see my local onc. and the social worker. I was prescribed anti depressants, zoloft, and have never regretted it. I don't advertise that I take them, but in this group I feel it is vital that patients know where we have been and where we are today. I'm feeling so much better and continue taking a low dose of zoloft. I hope you take Lottie's suggestion and visit with a social worker. They are very compassionate people and mine didn't cost a dime. God Bless you. I'll keep you in my prayers. Jackie S. dx 4/14/04 currently in 4th clinical trial at MDACC - HHT From: Rosen Lum <rrosenlum@...> Subject: RE: [ ] has lost her job Date: Saturday, November 22, 2008, 3:37 PM YOU ARE A COMPLETE BLESSING. Love, groups (DOT) com From: lotajamcomcast (DOT) net Date: Sat, 22 Nov 2008 01:31:35 -0600 Subject: [ ] has lost her job Dear , All I can do is offer my condolences on the loss of your job. I sincerely hope you can find one soon. There must be a community clinic nearby. Have you asked LLS if they had any information on this matter? Does your cancer clinic have a social worker, they normally have a wealth of knowledge from lodging to finances. That's just about all the sleep I get, so I know the tired feeling you must have. Do you think it could be depression from worrying about your job or lack thereof? I read that you had a lot of pain in your legs, mostly in the shins. Supposedly, that is when the meds are destroying the bad cells in such a hurry, your body doesn't have time to absorb them, sort of like having your spleen full of leukemia cells and it keeps enlarging. I can still feel the pain in my shins every once in a while on this trial, but I can tell you that while on Gleevec it was a constant. If this is no consolation, at least you will know you are not alone. Perhaps some of the cancer blogs would know where you can obtain free cancer care, including your CBC's, I would not stop asking. I was a volunteer with social services and they provided money for people who needed money to pay their rent, so why wouldn't they be able to help you with your CML needs? Never give up, there must be something out there, have you contacted someone in the state capital? I know everyone in this group must be praying and pulling for you to get out of this situation. Just keep asking. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 It never would have occurred to me to scout out a social worker on my own, believe it or not! But I surely am going to take this invaluable bit of advice. I will start with the LLS first thing Monday morning! It is sooooo helpful hearing that others have been through this. From: jschneider008@... Date: Sat, 22 Nov 2008 14:18:40 -0800 Subject: RE: [ ] has lost her job- Yes she is!!! Hi , I haven't read your original post but know that I am praying for you to get through this. Lottie mentioned depression. I experienced it a year after I was diagnosed. My stomach hurt all the time, I was terribly fatigued, I sat in a chair most days and stared at the TV. I thought it was just side effects from the drugs or cml. After much support from the nurses at MDACC, they suggested I see my local onc. and the social worker. I was prescribed anti depressants, zoloft, and have never regretted it. I don't advertise that I take them, but in this group I feel it is vital that patients know where we have been and where we are today. I'm feeling so much better and continue taking a low dose of zoloft. I hope you take Lottie's suggestion and visit with a social worker. They are very compassionate people and mine didn't cost a dime. God Bless you. I'll keep you in my prayers. Jackie S. dx 4/14/04 currently in 4th clinical trial at MDACC - HHT From: Rosen Lum <rrosenlum@...> Subject: RE: [ ] has lost her job Date: Saturday, November 22, 2008, 3:37 PM YOU ARE A COMPLETE BLESSING. Love, groups (DOT) com From: lotajamcomcast (DOT) net Date: Sat, 22 Nov 2008 01:31:35 -0600 Subject: [ ] has lost her job Dear , All I can do is offer my condolences on the loss of your job. I sincerely hope you can find one soon. There must be a community clinic nearby. Have you asked LLS if they had any information on this matter? Does your cancer clinic have a social worker, they normally have a wealth of knowledge from lodging to finances. That's just about all the sleep I get, so I know the tired feeling you must have. Do you think it could be depression from worrying about your job or lack thereof? I read that you had a lot of pain in your legs, mostly in the shins. Supposedly, that is when the meds are destroying the bad cells in such a hurry, your body doesn't have time to absorb them, sort of like having your spleen full of leukemia cells and it keeps enlarging. I can still feel the pain in my shins every once in a while on this trial, but I can tell you that while on Gleevec it was a constant. If this is no consolation, at least you will know you are not alone. Perhaps some of the cancer blogs would know where you can obtain free cancer care, including your CBC's, I would not stop asking. I was a volunteer with social services and they provided money for people who needed money to pay their rent, so why wouldn't they be able to help you with your CML needs? Never give up, there must be something out there, have you contacted someone in the state capital? I know everyone in this group must be praying and pulling for you to get out of this situation. Just keep asking. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
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