Guest guest Posted September 13, 1999 Report Share Posted September 13, 1999 , I've never had pain on my right side. However, every doctor who has examined me (and there have been too many) has poked and prodded the liver area and each has asked me if I had any pain. Most of these same doctors have commented that there is little if any pain associated with liver disease, so they must have been checking for inflammation or something else. None have ever considered that the LUQ pain could be the left lobe of my liver but they do say that pain there can be caused by other GI problems like cancer - not a pleasant thought. Since my spleen is always normal sized they never consider spleen, but the new Internist has now raised the question about a blood clot. Not inconceivable, but I hope that's an unlikely possibility. I still think it's muscular though sometimes the pain is rather sharp which makes me a little anxious. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 Micki, I'm glad to hear your mom is feeling a little better today. I'm not a lot of help with pain relief because I'm a grin-and-bear-it type as I don't react well to most meds. I do think, though, that your mom would get more relief from nsaids or ibuprofen (presuming she can " stomach " them) than she would get from Tylenol. As for natural approaches, I use rest, alternating heat and ice on flaring joints and I use my dumb little magnets. I have a pretty high pain threshold so my tough it out approach isn't for everyone but I find I can handle it as long as I just rest and really be kind to whatever area is flaring. a Peden PRYAH@... wrote: > > From: PRYAH@... > > Hello everyone! > Well my mom is doing a little bit better today...shes pretty convinced she was having a herx...she had a few really bad days. She asked me how long they usually last and I told her it was different for everyone. She has a very good attitude about it though and that's in no small part because of all of you. We feel we know what to expect. She wanted me to ask you guys what you all do for pain relief she is basically taking a bunch of tylenol and that's it. Right now her head is what causes her the most pain...and she was never one to get headaches. Maybe someone knows of some natural way she can get some relief...on another note...she sees her Dr. tomorrow..I'll write and let you know how she does. > > Thanks to everyone in advance > Micki > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 Micki-- I am a big fan of ice and heat for pain relief. In the summer, I use a lot if ice, in the winter, moist heat. Times of the year like now, when I can use both without getting myself too hot or too cold, I use both. For instance, I might put an ice pack on an achy shoulder for 15 minutes, then follow it up with moist heat. Two cycles of each is the most helpful--this takes an hour, but if I'm just watching TV or relaxing, it is a good way to pass some time. The heat and ice in cycles are especially effective for pain relief. If your mom is mostly in bed, you need to be careful with the heat, to avoid burns. I have used a Bed Buddy, available from Walgreens--it is a long tube-sock-like tube of fabric, filled with rice. When you microwave them, the rice gets warm and moist, and it feels great. My mom started making her own version of the Bed Buddies, so I didn't have to pay $10 for 25 cents worth of material. She sews up a small, long pillow-shaped piece of fabric, just like you would make a pillow. She leaves an opening at the corner and pours the rice in through a funnel. Then she sews the corner up by hand. She makes up several at a time, and gives them to her sisters and me, and keeps one for herself! They are great for cold feet, hands, stiff necks, all sorts of things. Be sure not to get it too hot--2 1/2 minutes works in my microwave. I think they are much safer than heating pads, because you don't have to worry about going to sleep and burning yourself. They just slowly cool off. Jean ---------- >From: PRYAH@... >rheumaticonelist >Subject: rheumatic pain relief >Date: Thu, Sep 23, 1999, 6:05 PM > > From: PRYAH@... > > Hello everyone! > Well my mom is doing a little bit better today...shes pretty convinced she > was having a herx...she had a few really bad days. She asked me how long > they usually last and I told her it was different for everyone. She has a > very good attitude about it though and that's in no small part because of > all of you. We feel we know what to expect. She wanted me to ask you guys > what you all do for pain relief she is basically taking a bunch of tylenol > and that's it. Right now her head is what causes her the most pain...and > she was never one to get headaches. Maybe someone knows of some natural way > she can get some relief...on another note...she sees her Dr. tomorrow..I'll > write and let you know how she does. > > Thanks to everyone in advance > Micki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 rheumatic pain relief >>Date: Thu, Sep 23, 1999, 6:05 PM >> > >> From: PRYAH@... >> >> Hello everyone! >> Well my mom is doing a little bit better today...shes pretty convinced she >> was having a herx...she had a few really bad days. She asked me how long >> they usually last and I told her it was different for everyone. She has a >> very good attitude about it though and that's in no small part because of >> all of you. We feel we know what to expect. She wanted me to ask you guys >> what you all do for pain relief she is basically taking a bunch of tylenol >> and that's it. Right now her head is what causes her the most pain...and >> she was never one to get headaches. Maybe someone knows of some natural way >> she can get some relief...on another note...she sees her Dr. tomorrow..I'll >> write and let you know how she does. >> >> Thanks to everyone in advance >> Micki >> >> > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 Hi Jean.........I, too, use rice bags for moist heat. Mine are about 6 " square, (perfect size for my hands).......... anything bigger is too heavy for me to handle. And, when the rice (eventually) " cooks " , I just open the bag, throw the rice out, wash the bag, and refill it. Sure does beat what they ask for it at stores! You can also use cracked corn (like from the feed store), but I don't care for the smell of that, personally. And, for cold packs, have you ever tried bags of frozen peas? They contour to all body parts, and can be refroze and reused again and again...........just thought I'd add my two cents........... Hi, . I never had so much luck with the frozen peas. The brand I got refroze into a lump. I buy small ice packs for about $3 from Sports Authority. They are Tru-Fit brand. They also come with a neoprene wrap with velcro, which costs $15 or so with one ice pack included, but they last a long time. They are great for my elbows and wrists. I ice often after working all day at the computer, so just wrapping a pack around the arm and forgetting about it for a whole is nice. I tried feed corn, but I have dust and mold allergies. The rice is much less bothersome in that regard. I know Dr. Brown recommended Ice for swollen joints for his patients in a herx. I like heat after they calm down a bit. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 A really easy way to make rice bags is to get some 100% cotton men's tube socks at the store and fill them with rice and tie a knot in the end. I had to make quit a few as my whole family loves them in the chilly winter. Heat them in a microwave for about 3 minutes (you will have to experiment with times depending on how full you make them and how powerful your oven is). Do try them if you have a microwave, they are so much safer than a heating pad if you are drowsy--my mom once scorched her mattress by falling asleep with hers on and it would have probably caught fire soon if my sister hadn't noticed it! For me, heat in the winter and cold in the summer works best, too. These joints just don't like extremes! Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 rheumatic Pain Relief This may be of interest to those of you who can get no relief from pain: http://www.medscape.com/adis/CDI/1999/v18.n03/cdi1803.03.glow/cdi1803.03.glow-01\ ..html Mark Is anyone besides me finding it diffucult to access this sight? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 I've read that the following relieve pain and have cancer-fighting properties (CAPITALIZED items are particularly powerful pain relievers): Herbs MAITAKE MUSHROOM (Grifola frondosa)-- alleviated pain in 83% of patients mistletoe (Iscador) tumeric (particularly the curcumin in it), burdock, and ginger reduce inflammation. chaparral-- check with a health practitioner on hazards of this herb before using it angelica noni (juice) Goldenseal root poultices amygdalin-- Available in the form of ground apricot pits, found in health food stores. Do NOT exceed maximum recommended oral dosage. Avoid eating (sweet) almonds while taking amygdalin. Do NOT take megadoses of Vit. C while taking laetrile/amygdalin, and do NOT use laetrile/amygdalin at times of fever. Take it with food, in several small dosages throughout the day (NOT 1 large dosage). Use a good brand, such as Kemdalin (www.kemsa.com/english/kemdalindescripcion.htm) from KEM, S.A. or Apricot Kernels from www.americanbiologics.com/NoFrames/Products/specialtynf.htm Miscellaneous Vitamin B-3 (Niacin)-- 50 mg, up to 6x/day Vit. C-- 500 mg, up to 6x/day (but I wouldn't even take that much while taking amygdalin w/o a health practitioner's recommendation) CESIUM-- may take up to 3 days to be effective coffee enemas (Check w/health practitioner before using them.) magnets-- I would consult a health practitioner knowledgeable about magnets before using them. VISUALIZATION/IMAGERY, MEDITATION, & RELAXATION TECHNIQUES Pain Control and Surgical Support Series audiotapes by Hemi-Sync (www.hemi-sync.com/catalog)-- I've been told they can be powerfully pain-relieving. Alt. Medical Treatments acupuncture neural therapy For healing cancer, it's best (if possible) to avoid chemical painkillers (except perhaps aspirin). For more info on cancer pain relief, see www.alkalizeforhealth.org Let me know if you have any questions about any of the above. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 call the pain and stress center for a free catalog: 1 800 669 calm or see painstresscenter.com Also search articles on Mercola.com [ ] pain relief I am looking for information on pain relief for my husband. He is suffering the most extreme pain in his esophagus from the chemo and radiation he recieved. It has been almost two weeks and even morphine can't relieve the burning and inflamation. He can't sleep or eat anything even water kills him to swallow. Please give me some advise. Thank all for any information, Sincerely, Georgia You are digging your grave with your teeth! Read Hundreds of Collected Cancer Testimonials and learn: cancer-testimonials/messages/ Learn more about cancer: http://curezone.com/diseases/cancer/ http://curezone.com/diseases/cancer/faq.asp You are receiving this email because you elected to subscribe to the . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Dear Georgia, Go to the natural food store and purchase 's Aloe Vera juice. I had burning stomach problems, and it has helped. It is not expensive. Maybe if he just sipped on it ever so slowly, it would promote healing in the areas that are burning. Hugs, queenmama85@... wrote: > > I am looking for information on pain relief for my husband. He is > suffering the most extreme pain in his esophagus from the chemo and > radiation he recieved. It has been almost two weeks and even > morphine can't relieve the burning and inflamation. He can't sleep > or eat anything even water kills him to swallow. Please give me some > advise. Thank all for any information, Sincerely, Georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2001 Report Share Posted August 13, 2001 Hi all, I have read and heard about dried Siitake Mushroom as having anti-Cancer properties. My wife who has Stage IV Cancer is taking it. She just started it so I don't know if it will help. Does anyone has knowledge about it. Sincerely, Sandip Thanks! Sandip Bist 201 395 2201(w) 201 395 3201(FAX) > Re: [ ] pain relief > > I've read that the following relieve pain and have cancer-fighting > properties (CAPITALIZED items are particularly powerful pain > relievers): > > Herbs > MAITAKE MUSHROOM (Grifola frondosa)-- alleviated pain in 83% of > patients > mistletoe (Iscador) > tumeric (particularly the curcumin in it), burdock, and ginger > reduce inflammation. > chaparral-- check with a health practitioner on hazards of this > herb before using it > angelica > noni (juice) > Goldenseal root poultices > amygdalin-- Available in the form of ground apricot pits, > found in health food stores. Do NOT exceed maximum recommended oral > dosage. Avoid eating (sweet) almonds while taking amygdalin. Do > NOT take megadoses of Vit. C while taking laetrile/amygdalin, and > do NOT use laetrile/amygdalin at times of fever. Take it with food, > in several small dosages throughout the day (NOT 1 large dosage). > Use a good brand, such as Kemdalin > (www.kemsa.com/english/kemdalindescripcion.htm) from KEM, S.A. or > Apricot Kernels from > www.americanbiologics.com/NoFrames/Products/specialtynf.htm > > > Miscellaneous > Vitamin B-3 (Niacin)-- 50 mg, up to 6x/day > Vit. C-- 500 mg, up to 6x/day (but I wouldn't even take that > much while taking amygdalin w/o a health practitioner's > recommendation) > CESIUM-- may take up to 3 days to be effective > coffee enemas (Check w/health practitioner before using them.) > > magnets-- I would consult a health practitioner knowledgeable about > magnets before using them. > > VISUALIZATION/IMAGERY, MEDITATION, & RELAXATION TECHNIQUES > > Pain Control and Surgical Support Series audiotapes by Hemi-Sync > (www.hemi-sync.com/catalog)-- I've been told they can be powerfully > pain-relieving. > > Alt. Medical Treatments > acupuncture > neural therapy > > For healing cancer, it's best (if possible) to avoid chemical > painkillers (except perhaps aspirin). > > > For more info on cancer pain relief, see www.alkalizeforhealth.org > > Let me know if you have any questions about any of the above. > > You are digging your grave with your teeth! > Read Hundreds of Collected Cancer Testimonials and learn: > cancer-testimonials/messages/ > > Learn more about cancer: > http://curezone.com/diseases/cancer/ > http://curezone.com/diseases/cancer/faq.asp > > You are receiving this email because you elected to subscribe to the > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 I can't agree more. Abbies doctor is extremely concientious about making sure that Abbie is in as little pain as possible. He expects us to make him aware of issues. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2001 Report Share Posted November 30, 2001 So, are most of your (meaning anyone reading this) kids on pain meds along with meds to counteract the disease? This makes me feel totally lame, which isn't the first time here, because I was trying to stay away from the meds that " cover up " the disease. know what I mean? Instead, trying to use the meds to counteract the disease and therefore make her pain free or to the greatest extent by controlling it all. Was that such a bad idea? So, am I a lame mama? The naproxen messed with her tummy. She took that for 3 weeks. She can't even take Tylenol more then a couple of times in a row now and she used to take that just fine. So I don't know if there is anything she *should* be taking for pain, but the Rheumy hasn't said so (probably cause I said no). After hearing from you all, I am brought to the conclusion that our Rheumy allows me to make most of the decisions, which I rather appreciate, but not if it effects the health of my child -- to an extent. I know that with the power of decision he has given to me, I need to be informed. Yet, I am afraid in all the decisions I must make in what meds my dd takes. I am a very natural choice mother, not even giving Tylenol for a fever under 102, (dependant on age) cause it is just a simple biological function in my opinion. Instead I rely on herbs and such for basic illnesses. This JRA definitely threw me for a loop. She is on mtx. and folic acid now and is doing fairly well. Was doing really well on the remicade also. I don't know why I even agreed (at this point anyway) to get the Enbrel instead. But I suppose it all ends with Enbrel. Which we finally have an appt for that on the 17th. Anyhow, I guess I was just rambling. Sorry to do that to your list. Take care everyone, I read your messages and feel for your children. Every time I look into my babies eyes, I know that you are there too. Lorie (mama to Liberty, age 4 poly JRA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Lorie You are not alone by a long shot. I have one child with JRA and one with epilepsy and BOTH were on meds that required constant blood and urine monitoring to make sure that their internal organs and blood weren't being compromised. I am a person who NEVER takes or give out medication unless absolutely necessary so heavily medicating my children nearly gave me a nervous breakdown. But after much consultation with many parents (including my own sister who has a child with serious auto-immune problems), doctors and researching online, I came to the conclusion that I needed to treat the whole disease including the pain because, as bad as the meds are, experts don't really have any idea of what the stress hormones that they believe are put off when you are in pain, especially chronic pain, do to the body, especially in young bodies, in the long term. I chose to take the action of something that could actually be monitored ie. medication. There is also a theory that I have heard from several parents (corroborated by a few articles that I have read but I don't think it's mainstream) that if you treat the auto-immune disease fully there may be the chance that you can "trick" the body into believing that it has "finished" it's job (attacking itself instead of a "real" enemy) and have remission - short or long-term. So that's how I decided. I know how agonizing the process is and I wish you the best of luck. My son (he has PA JRA) seems to be in remission now. He was on high doses of ibuprofen, along with Zantac because of stomach problems, for over a year. Should he go back into a flare we know that he will have to move up the meds chain because the Zantac no longer dents the stomach problems from Ibuprofen. I just keep my fingers crossed and pray for "permanent" remission. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Lorie Jo.............first off, you are NOT a lame mama!!!!! *I* think as parents, we all do what *we* think is right for our children at any given time. AND........every decision we make is a difficult one, JRA related or not. My ds takes motrin/advil or even OTC naprosyn for his JA symptoms and does quite well. Ok...........my dd is not on " pain " meds regularly. She is taking mtx,folic acid, prednisone, Enbrel, and Zofran (to counteract the horrible sickness she gets from the mtx). She unfortunately is allergic to most of the NSAIDS, and Vioxx as well So..........for her pain, if it is really unbearable, I will give her tylenol. I know it's really a low end drug, but even if it takes away the edge of pain, it's done it's job. Yes, my rheumy allows dd/me to take an active role in her treatment. We come up with suggestions/possibilities, and then we discuss them at length.......pros and cons. Sometimes we are not in agreement, but for the most part we are okay Have a great day. Isabel __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 hi lorie..i was wondering what happened that your rheumy stopped remicade and decided to go with enbrel..my daughter Tabitha who is sixteen and has poly jra..was your daughters age when i found out she had this nasty disease. She was on enbrel but her doctor thought it was doing that good when it came to fight the poly jra. So she has been on remicade now for a year and 1 month...and it is doing well. Her arthritis activity is low for now..which is good..she still has pain but it isn't as bad as it was..i know the meds work different in each child.i was just wondering why the remicade was stopped? Good luck to you and your child.. karen(tab16..poly) From: Lorie Jo <loriejo@...> Reply- Subject: RE: Pain relief Date: Fri, 30 Nov 2001 23:13:30 -0600 So, are most of your (meaning anyone reading this) kids on pain meds along with meds to counteract the disease? This makes me feel totally lame, which isn't the first time here, because I was trying to stay away from the meds that " cover up " the disease. know what I mean? Instead, trying to use the meds to counteract the disease and therefore make her pain free or to the greatest extent by controlling it all. Was that such a bad idea? So, am I a lame mama? The naproxen messed with her tummy. She took that for 3 weeks. She can't even take Tylenol more then a couple of times in a row now and she used to take that just fine. So I don't know if there is anything she *should* be taking for pain, but the Rheumy hasn't said so (probably cause I said no). After hearing from you all, I am brought to the conclusion that our Rheumy allows me to make most of the decisions, which I rather appreciate, but not if it effects the health of my child -- to an extent. I know that with the power of decision he has given to me, I need to be informed. Yet, I am afraid in all the decisions I must make in what meds my dd takes. I am a very natural choice mother, not even giving Tylenol for a fever under 102, (dependant on age) cause it is just a simple biological function in my opinion. Instead I rely on herbs and such for basic illnesses. This JRA definitely threw me for a loop. She is on mtx. and folic acid now and is doing fairly well. Was doing really well on the remicade also. I don't know why I even agreed (at this point anyway) to get the Enbrel instead. But I suppose it all ends with Enbrel. Which we finally have an appt for that on the 17th. Anyhow, I guess I was just rambling. Sorry to do that to your list. Take care everyone, I read your messages and feel for your children. Every time I look into my babies eyes, I know that you are there too. Lorie (mama to Liberty, age 4 poly JRA) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi , Very well said : ) And what you've said about remission holds true, I think, for medicated remissions, too. Some of our children with persistent JRA relapse each time we try to discontinue or lower the dose of some of their meds but if they can reach a point of having the majority of their symptoms controlled by continuing their cocktail of daily meds ... I think we've reached the same goal. Only trouble with that is the added worry about possible side effects (some very serious) from long term use of the meds or the possibility that some of the meds may lose their effectiveness over a period of time. It took me a long time to be able to accept that my son might need long term medicating rather than just a quick fix. Coming to terms with the idea that it's a chronic illness can take a lot of mental readjustment. We all, still, have a common bond. Hoping for remissions for our children and for others like them. And continued research, leading to a better understanding and one day soon, hopefully, a cure! All the best, to you and the children, Georgina You are not alone by a long shot. I have one child with JRA and one with epilepsy and BOTH were on meds that required constant blood and urine monitoring to make sure that their internal organs and blood weren't being compromised. I am a person who NEVER takes or give out medication unless absolutely necessary so heavily medicating my children nearly gave me a nervous breakdown. But after much consultation with many parents (including my own sister who has a child with serious auto-immune problems), doctors and researching online, I came to the conclusion that I needed to treat the whole disease including the pain because, as bad as the meds are, experts don't really have any idea of what the stress hormones that they believe are put off when you are in pain, especially chronic pain, do to the body, especially in young bodies, in the long term. I chose to take the action of something that could actually be monitored ie. medication. There is also a theory that I have heard from several parents (corroborated by a few articles that I have read but I don't think it's mainstream) that if you treat the auto-immune disease fully there may be the chance that you can "trick" the body into believing that it has "finished" it's job (attacking itself instead of a "real" enemy) and have remission - short or long-term. So that's how I decided. I know how agonizing the process is and I wish you the best of luck. My son (he has PA JRA) seems to be in remission now. He was on high doses of ibuprofen, along with Zantac because of stomach problems, for over a year. Should he go back into a flare we know that he will have to move up the meds chain because the Zantac no longer dents the stomach problems from Ibuprofen. I just keep my fingers crossed and pray for "permanent" remission. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Thanks, e : ) I am catching up on the posts and notice lots of concern about pain. Keep bugging your doc if your child is in pain. It is a big buzz word these days that health care providers have to be aware of and treat. We go to Seattle Childrens and there are posters everyone about pain relief, EMLA cream , etc. Keep calling and bugging. No one should be in pain, especially for children who don't understand. Pain can cause depression, weight loss, decreased movement, increased or decreased sleep, lack of concentration etc. There are all kinds of treatments out there with medication and without. Ask and bug them. Pain is supposed to be considered the 5th vital sign (with blood pressure, temperature, heart rate and respiration rate being the other four.) Even in a flare it is amazing how much more functional a child can be when their pain is under control. Good luck to everyone and keep pushing and keep trying for the right "cocktail" as was mentioned several times. (Sorry to be on a soap box, but I have chronic pain from a work injury and I hate to see this area neglected.) --e, 14 y.o with poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi,its becki.I honestly believe the meds have to get the disease under control before the body can get the disease under control karens tribe wrote: > hi lorie..i was wondering what happened that your rheumy stopped remicade > and decided to go with enbrel..my daughter Tabitha who is sixteen and has > poly jra..was your daughters age when i found out she had this nasty > disease. She was on enbrel but her doctor thought it was doing that good > when it came to fight the poly jra. So she has been on remicade now for a > year and 1 month...and it is doing well. Her arthritis activity is low for > now..which is good..she still has pain but it isn't as bad as it was..i know > the meds work different in each child.i was just wondering why the remicade > was stopped? > Good luck to you and your child.. > karen(tab16..poly) > > From: Lorie Jo <loriejo@...> > Reply- > > Subject: RE: Pain relief > Date: Fri, 30 Nov 2001 23:13:30 -0600 > > So, are most of your (meaning anyone reading this) kids on pain meds > along with meds to counteract the disease? > This makes me feel totally lame, which isn't the first time here, > because I was trying to stay away from the meds that " cover up " the > disease. know what I mean? Instead, trying to use the meds to counteract > the disease and therefore make her pain free or to the greatest extent > by controlling it all. Was that such a bad idea? > > So, am I a lame mama? > The naproxen messed with her tummy. She took that for 3 weeks. She can't > even take Tylenol more then a couple of times in a row now and she used > to take that just fine. So I don't know if there is anything she > *should* be taking for pain, but the Rheumy hasn't said so (probably > cause I said no). > After hearing from you all, I am brought to the conclusion that our > Rheumy allows me to make most of the decisions, which I rather > appreciate, but not if it effects the health of my child -- to an > extent. I know that with the power of decision he has given to me, I > need to be informed. > > Yet, I am afraid in all the decisions I must make in what meds my dd > takes. I am a very natural choice mother, not even giving Tylenol for a > fever under 102, (dependant on age) cause it is just a simple biological > function in my opinion. Instead I rely on herbs and such for basic > illnesses. This JRA definitely threw me for a loop. She is on mtx. and > folic acid now and is doing fairly well. Was doing really well on the > remicade also. I don't know why I even agreed (at this point anyway) to > get the Enbrel instead. But I suppose it all ends with Enbrel. Which we > finally have an appt for that on the 17th. > > Anyhow, I guess I was just rambling. Sorry to do that to your list. Take > care everyone, I read your messages and feel for your children. Every > time I look into my babies eyes, I know that you are there too. > > Lorie (mama to Liberty, age 4 poly JRA) > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 e i bugged s doctor and bugged her and then bugged the rhuemy dr until they gave something to relieve the pain went through a few meds till the right one worked dont feel like your a nag this is what HAS to be done NOW when i take to the childrens hospital they ask what her pain scale is then they work from that they will not release her until she is pain free this is at the childrens hospital i had to take her to the adult regular hospital last week because my sister needed to go also so i figured take both to the hospital this was a experience the regular hospital didnt know what to do just asked had she fell i said no but they xrayed her and asked what meds she was on and gave her a pain shot the shot hurt worser and never did help the pain they just told me to contact her dr because they never experienced this JRA this is ATLANTA GA lololol home of Emory Unv the Medical college anyway i called her dr and she told me to medicate her with 3 meds at 1 time with a up in dose so i did called her and let her know it helped this dr is great if the up in dose didnt help then it was to the childrens hospital for the doctors are learning about this JRA and its complications as we are Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 In a message dated 08/16/2002 12:39:44 PM Eastern Daylight Time, meghan@... writes: > Also, for people allergic to sulfa drugs, Celebrex is BAD BAD BAD. > Vioxx has a similar structure to Celebrex but may cause much less of > a reaction since it is not actually sulfa-based. It really burns my > hide that they do not talk about that more. > Meghan - My doctor knew right away not to give me Celebrex as I'm allergic to sulfa - another good reason to always use the same pharmacy for all your rx's. Tell them your allergies, form a relationship with the pharmacist. If your doctor misses something, many times the pharmacist will catch it - drug allergies, interactions, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 I agree with Michele totally! I'm in absolute agreement with her! For those of you trying to manage pain with over-the-counter (OTC) drugs, you're going to find you'll still have pain and in several years you'll have liver and kidney damage because you haven't been getting regular blood tests to monitor the drugs going into your body. There are other NSAID drugs besides Vioxx. After speaking with a pharmaceutical doctor, Vioxx and Celebrex do as much stomach damage as other NSAIDs. But your doctor can add Nexium to the mix to protect your stomach. Some other NSAIDs include Voltaren, Mobic, Bextra, Relafen, Indomethicin, etc. There is an excellent list available on the Arthritis Foundation's drug site: http://arthritis.org/conditions/DrugGuide/nsaids.asp In any event, with a disease like PA you really should be discussing all your medications and pain needs with your doctor. Best wishes, Meghan > I wanted to comment to the newbies who have been taking large amounts of > aspirin or ibuprofen/advil for their pain and are not getting the results > they need either. > > First of all, you should know that Aspirin and Ibuprofen are NSAIDS- they are > just sold over the counter without a prescription. However, they will do > just as much damage to your unsuspecting stomach as other NSAIDS like > Voltaren, Relafen, > Indomethacin, etc,al. > > Might I suggest the following. If your pain is in the minimal to moderate > range, ask your doctor for a prescription for Vioxx. It is one of the new > COX 2 inhibitors and is not as hard on your stomach as other NSAIDs. > However, if you find it bothering your stomach, as it did to mine, you may > need a stomach protectant too. I am currently on Nexium and it works > extremely well- much stronger than Prilosec. Celebrex is for > mild pain and is not rated at all to work for moderate pain, so I would not > bother with trying it myself) Vioxx is rated well for moderate and acute > pain. > > If the Vioxx is not enough, I would ask the doctor for his suggestion. There > are other drugs in the NSAID family that are quite strong, and you could take > a separate stomach protectant like Prilosec or Nexium with them and be okay. > > > Once you get to the point that NSAIDs don't work or there is a medical reason > you cannot take them (say you have a bleeding problem), then you may have to > discuss narcotic pain management with your doctor. Long acting (8- 12 hour) > narcotic pain meds are considered to be the less likely to trigger addiction > than the every four hour types, so the drugs called Oxycontin, and MSContin > would be two that your doctor and you might consider trying if you were to go > the narcotic pain reliever route. They last 8-12 hours and will not bother > your stomach at all, unless you do not drink enough fluids in which case you > could get a case of constipation! You must also take into consideration the > timing of the dose of these type of meds- since it is not advisable to drive > on narcotic pain meds. > > We are all different, combinations of all the above and others I am sure I > missed discussing are going to be useful to all of us. Unfortunately, we have > to rely on ourselves and be proactive and learn what our options are ahead of > time in order to ask the doctor for what we want and need to get the optimal > quality of life we DESERVE! > > Keep on going friends- one day at a time- and right for what you deserve- the > best quality of life that is humanly possible to get! We all deserve it. > God wants it for us > and our families to have as wonderful a life as is possible. > > > Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 I just sent a messageI didn't mean to send, yet. Finger got too trigger happy there!! I take Celebrex (in addition to all my other meds). I asked my RD why he preferred Celebrex to Vioxx. He stated that Vioxx had more side effects than Celebrex, specifically affecting high blood pressure, and that he could increase the dosage of Celebrex with fewer side effects than with Vioxx. And, additionally, the increase of dosage of Celebrex would not affect your stomach as much as Vioxx. I have been taking 200mg 2Xday of Celebrex. He also stated that he considered 50mg of Vioxx to be considered a high dosage. Apparently, he considered 25mg of Vioxx to be equal to 200 mg of Celebrex. Sandy > > Might I suggest the following. If your pain is in the minimal to moderate > range, ask your doctor for a prescription for Vioxx. It is one of the new > COX 2 inhibitors and is not as hard on your stomach as other NSAIDs. > However, if you find it bothering your stomach, as it did to mine, you may > need a stomach protectant too. I am currently on Nexium and it works > extremely well- much stronger than Prilosec. Celebrex is for > mild pain and is not rated at all to work for moderate pain, so I would not > bother with trying it myself) Vioxx is rated well for moderate and acute > pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hi all, In talking with the pharmaceutical doctor, she explained that the difference regarding blood pressure and the risk for strokes was negligible between Vioxx and Celebrex. They think that inhibiting COX- 2 is what may be causing the risks. It's a catch between inhibiting COX-2 which causes inflammation and pain, but also may help the body as well. Also, for people allergic to sulfa drugs, Celebrex is BAD BAD BAD. Vioxx has a similar structure to Celebrex but may cause much less of a reaction since it is not actually sulfa-based. It really burns my hide that they do not talk about that more. > I just sent a messageI didn't mean to send, yet. Finger got too > trigger happy there!! > > I take Celebrex (in addition to all my other meds). I asked my RD > why he preferred Celebrex to Vioxx. He stated that Vioxx had more > side effects than Celebrex, specifically affecting high blood > pressure, and that he could increase the dosage of Celebrex with > fewer side effects than with Vioxx. And, additionally, the increase > of dosage of Celebrex would not affect your stomach as much as > Vioxx. I have been taking 200mg 2Xday of Celebrex. He also stated > that he considered 50mg of Vioxx to be considered a high dosage. > Apparently, he considered 25mg of Vioxx to be equal to 200 mg of > Celebrex. > > Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 The NSAIDS are pain relievers that act at the site of the inflammation - peripheral analgesics. The opioids act on the brain to cut out pain - central-acting analgesics. They also act on other centers in the brain to cause narcosis and addiction. One synthetic analgesic is a central-acting analgesic but is not an opioid - Tramadol, (brand names Ultram or Dromadol). Tramadol is very effective when nothing else will stop the pain - as happens to me when a tendon is inflamed. The standard tablets only last 4 hours but there is an extended release type (tramadol SR) that gives 8-12 hours of relief. Like the opioids, tramadol can cause constipation hence I only use it when I have to. I have found ketoprofen to be a very helpful NSAID. OTC it is called Orudis KT. I now use a prescribed 24-hr form called Oruvail. [Moderator's note: I guess you're lucky , because Ultram did absolutely nothing whatsoever to relieve my joint pain when I tried it - even Asprin or Ibuprofen worked better. I guess it just goes to show how differently we each react to the various drugs. Ron] On Friday, August 16, 2002, at 02:53 AM, CTNATIVE@... wrote: > I wanted to comment to the newbies who have been taking large amounts of > aspirin or ibuprofen/advil for their pain and are not getting the results > they need either. > > First of all, you should know that Aspirin and Ibuprofen are NSAIDS- they > are > just sold over the counter without a prescription. However, they will do > just as much damage to your unsuspecting stomach as other NSAIDS like > Voltaren, Relafen, > Indomethacin, etc,al. > > Might I suggest the following. If your pain is in the minimal to moderate > range, ask your doctor for a prescription for Vioxx. It is one of the new > COX 2 inhibitors and is not as hard on your stomach as other NSAIDs. > However, if you find it bothering your stomach, as it did to mine, you may > need a stomach protectant too. I am currently on Nexium and it works > extremely well- much stronger than Prilosec. Celebrex is for > mild pain and is not rated at all to work for moderate pain, so I would > not > bother with trying it myself) Vioxx is rated well for moderate and acute > pain. > > If the Vioxx is not enough, I would ask the doctor for his suggestion. > There > are other drugs in the NSAID family that are quite strong, and you could > take > a separate stomach protectant like Prilosec or Nexium with them and be > okay. > > > Once you get to the point that NSAIDs don't work or there is a medical > reason > you cannot take them (say you have a bleeding problem), then you may have > to > discuss narcotic pain management with your doctor. Long acting (8-12 > hour) > narcotic pain meds are considered to be the less likely to trigger > addiction > than the every four hour types, so the drugs called Oxycontin, and > MSContin > would be two that your doctor and you might consider trying if you were > to go > the narcotic pain reliever route. They last 8-12 hours and will not > bother > your stomach at all, unless you do not drink enough fluids in which case > you > could get a case of constipation! You must also take into consideration > the > timing of the dose of these type of meds- since it is not advisable to > drive > on narcotic pain meds. > > We are all different, combinations of all the above and others I am sure > I > missed discussing are going to be useful to all of us. Unfortunately, we > have > to rely on ourselves and be proactive and learn what our options are > ahead of > time in order to ask the doctor for what we want and need to get the > optimal > quality of life we DESERVE! > > Keep on going friends- one day at a time- and right for what you deserve- > the > best quality of life that is humanly possible to get! We all deserve it. > God wants it for us > and our families to have as wonderful a life as is possible. > > > Group founder > > > > Quote Link to comment Share on other sites More sharing options...
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