Pain Relief

April 13, 2003

I am wondering why some docs won't prescribe " anything stronger than Vicodin

ES " , when studies have shown that long acting pain meds such as MS Contin are

less addicting, AND give better pain control? Keeping your blood level of

the drug constant for most of the 12 hours is much better than having it

rising and falling all day for the 4 or six hour cycles most pain meds offer.

I would challenge the doc who you are seeing about this policy on pain

management- armed with these facts and see what they say then.

group founder

April 13, 2003

In a message dated 4/13/03 7:42:38 PM Eastern Daylight Time, CTNATIVE@...

writes:

> I am wondering why some docs won't prescribe " anything stronger than Vicodin

>

> ES " , when studies have shown that long acting pain meds such as MS Contin

> are

> less addicting, AND give better pain control? Keeping your blood level of

> the drug constant for most of the 12 hours is much better than having it

> rising and falling all day for the 4 or six hour cycles most pain meds

> offer.

> I would challenge the doc who you are seeing about this policy on pain

> management- armed with these facts and see what they say then.

>

> group founder

>

,

You are so right. I think that in today's society that there is the ever

growing prescription addicts and tougher FDA laws and regulations that

doctors are scared to treat their own patients. And sometimes if you find a

doctor that will right for the meds you need pharmacy's are beginning to turn

away customers that have scripts for these (MS OxiContin, OxiContin, etc.)

drugs because they don't want to have the liability for despising them or the

risk of theft for stocking them. It is a cruel world for those of us who

need these meds. It took me a while to accept the fact that I needed

OxiContin to function and to find a good pain management doc to work with.

It is a fight that we should not have to fight, especially with a chronic and

debilitating illness.

April 14, 2003

My pain management doc has prescribed me Methadone plus Vicodin daily for pain

management for my PA and Fibromyalgia. When I first started with her she had me

taking one Methadone, 5mg, twice a day, in in the morning and one in the

evening. In addition to that she had me take up to 3 vicodin per day for

breakthrough pain, plus she also gave me prescriptions for Baclofen and Flexril

for muscle relaxers, Baclofen during the day because it wouldn't make me so

tired and the Flexril at night. At my last appointment I told her how the fibro

has seemed to be acting up and I believe it is related to all the stress I am

under, living with my family because my husband is away at school for the

military and we have been apart for nearly 6 months, not knowing whether he will

be deployed once we move to Minnesota, buying a house for the first time, plus a

bunch of other stuff. She agrees that I am flaring because of stress so she

increased my Methadone to 2 5mg pills in the morning and two 5m

April 14, 2003

,

My sister told me today that she saw a news report saying that laws are cracking

down on pharmacy's and doctors making them protect the patients privacy more.

The last time I was in Walgreens getting a script filled I waited forever,

walking around the store waiting for them to call my name to tell me my script

was ready. When I finally went to the window and asked if they were ready, they

informed me that they had been ready for a while, but they didn't call my name

over the intercom because due to new laws and policies they were not longer

allowed to call a patients name to advise them their script was ready, this was

in order to protect their privacy.

I agree that it is becomming more difficult to get strong pain meds filled for

those of us who need them to function. It really makes me mad when people like

us who need strong pain meds to function daily and we are constantly watched,

judged, and referred to as " addicts " because of this. I actually have had pain

management doctors SCREAM at me, accusing me of being an addict and a " drug

seeker " because I was telling them the pain medication I was taking wasn't

working for me anymore. Thankfully I now have a pain managment doc who is a

wonderful doc and truly listens to me. I pray that once I move I will be able

to find another doc who is just as good as her. You are right, we shouldn't

have to fight so hard to be able to get the meds we need to be able to function,

or constantly be judged as addicts or " drug seekers " because of the type of meds

we take. It is looking like some of the news coverage people like us are

getting is somewhat helping our cause, but we all still need

February 18, 2004

Has she seen a good rheumotologist? Has she tried any of the meds that can

help? If the pain is totally debilitating and unbearable has she been seen at a

pain clinic? Please do as much as you can as fast as you can. This disease is

terrible but can be managed. Please let us know how things go. Cheri :-))

February 19, 2004

She has seen a rhumatologist. At present she is 4 months pregnant and

this limits the drugs she can take. She is in pain all the time and

often it is unbareable. After the baby is born, what meds are on

offer. Can the pain be controlled so she can have some quality of

life back? Could she ever work again?

January 14, 2006

>

> Has anyone ever gotten to the point where they've gone into the ER for RA

related pain

relief. Sometimes lately its gotten to the point where I don't know what I'm

gonna do next,

then its as if that thought, makes the pain ease off. I'm not sure how ER staff

would react

and what kind of treatment if any you'd receive.

>

> ---------------------------------

> Photos – Showcase holiday pictures in hardcover

> Photo Books. You design it and we'll bind it!

>

January 14, 2006

Before I was dx with RA i went to ER. Gave me a good

drip that made the pain all but disappear. Sent me

home telling me I had an infection in my joints and

muscles because of fever and inflammation. If the

pain gets unbearable I would hope the ER could give

you something like a cortizone shot. Make ER last

resort if your docs are unable to see you. The less

time in hospitals the better. Also I hate to send you

to another Dr but I have a pain management Dr.

(thankfully I haven't see him since I'm on enbrel -

but my mom still sees him) and he understood the pain

and helped me alot. I'm sorry your suffering, keep

after your Drs. some combo of meds will help you.

Edie

--- kerri paquette <ksp2242@...> wrote:

> Has anyone ever gotten to the point where they've

> gone into the ER for RA related pain relief.

> Sometimes lately its gotten to the point where I

> don't know what I'm gonna do next, then its as if

> that thought, makes the pain ease off. I'm not sure

> how ER staff would react and what kind of treatment

> if any you'd receive.

>

> ---------------------------------

> Photos – Showcase holiday pictures in

> hardcover

> Photo Books. You design it and we’ll bind it!

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

January 22, 2006

,

Yes, pregnancy is quite a strain on the system and waking up four

times a night doesn't help either. I'm also having to redistribute

energy so I have some energy at home to keep up with the 2 year

old. I used to just work and rest. Now that I can't do that,

everything gets harder.

She sleeps through the night now but the 6:30 am wake up are so

tough. I could sleep forever it feels.

Thanks for the info- I react to meds, too, so it'll be some time

before I find something that works. The other hard part is that the

meds mask the pain, so I overextend myself, then when the meds wear

off, I'm hurting worse.

I just need to not be teaching. Over the summers I get so much better, then

fall into all the desperation again when the school year starts. Not easy

I am looking into disability benefits.

Thanks again,

Lenka

August 4, 2006

Hi,

For pain, try rubbing liquid soap in the area at night and leaving it there

until the next morning. Also put a bar of soap (or 2) under your sheets.

See it that works. I will also forward on some earlier chats on the subject

of pain that people have written about.

Hope the pain gets better.

Aletha

[low dose naltrexone] pain relief

>I have been successfully taken LDN for 3 years I have extreme lower

> back pain which is not relieved by any over the counter medication. I

> have tried marijuana but it have no effect. Does anyone have any other

> suggestion for non-narcotic pain relief?

> Thanks.

>

August 4, 2006

Hi Aletha, I don't know how this works, if it's the old panacea thing, that's OK with me. I now keep a pump bottle of liquid soap on my nightstand. One rub on my aching arthritic knee works. Not all night but long enough for me to go back to sleep. I felt very silly doing this but nothing ventured, nothing gained, right? Eve

[low dose naltrexone] pain relief>I have been successfully taken LDN for 3 years I have extreme lower> back pain which is not relieved by any over the counter medication. I> have tried marijuana but it have no effect. Does anyone have any other> suggestion for non-narcotic pain relief?> Thanks.>>>>>>>>

August 5, 2006

Hi everyone,

Just wanted to let you all know that Aletha's soap trick really

works! I have had lower back pain for a couple of years, and have

tried Baclofen (hated it, made my legs turn to jello) and Robax

Platinum (works ok usually, but not great to use long-term).

Yesterday was probably the worst it's ever been - even chiropractic

adjustment didn't do anything. So I decided to give the soap a

try. I only had liquid (not bar soap), so that is all I used.

Rubbed it into my lower back, and went to bed. Not only did the

pain go away, but I had the best sleep I've had in longer than I can

remember! I don't know how it works, but it really, really works!

Good luck to any of you who decide to try this!

>

> Hi,

>

> For pain, try rubbing liquid soap in the area at night and leaving

it there

> until the next morning. Also put a bar of soap (or 2) under your

sheets.

> See it that works. I will also forward on some earlier chats on

the subject

> of pain that people have written about.

>

> Hope the pain gets better.

>

> Aletha

August 5, 2006

If the pains are in the legs, try this.

Take an old pair of socks, cut them off at the ankles.

If you're female, stitch them to stop them fraying, if not, find a female to do it for you.

Get two small bars of soap, the kind you get in hotel rooms.

When you go to bed, pull the socks up over your calves and push one small bar of soap into the top of each sock.

I still don't believe it works, and maybe I do look stupid, but I now get a good sleep most nights.

Danny

[low dose naltrexone] Re: pain relief

Hi everyone,Just wanted to let you all know that Aletha's soap trick really works! I have had lower back pain for a couple of years, and have tried Baclofen (hated it, made my legs turn to jello) and Robax Platinum (works ok usually, but not great to use long-term). Yesterday was probably the worst it's ever been - even chiropractic adjustment didn't do anything. So I decided to give the soap a try. I only had liquid (not bar soap), so that is all I used. Rubbed it into my lower back, and went to bed. Not only did the pain go away, but I had the best sleep I've had in longer than I can remember! I don't know how it works, but it really, really works!Good luck to any of you who decide to try this! >> Hi,> > For pain, try rubbing liquid soap in the area at night and leaving it there > until the next morning. Also put a bar of soap (or 2) under your sheets. > See it that works. I will also forward on some earlier chats on the subject > of pain that people have written about.> > Hope the pain gets better.> > Aletha

August 15, 2006

Try barefoot coral calcium plus. I have bulging discs and a torn disc, and

this relieved my pain tremendously. Vary antinflamatory.

[low dose naltrexone] pain relief

>I have been successfully taken LDN for 3 years I have extreme lower

> back pain which is not relieved by any over the counter medication. I

> have tried marijuana but it have no effect. Does anyone have any other

> suggestion for non-narcotic pain relief?

> Thanks.

>

January 28, 2007

Jeanine I am so so happy for you.

Marsha

Jeanine Kinsey <songbirdscout@...> wrote:

To all my friends who are suffering with pain, I pray that you may

find

relief soon

For those who have been wanting to know about how Orencia works - it works

great!

I had my second infusion a week ago, and didn't really expect any changes

for another couple of weeks. Monday night (72 hours later) we noticed a

dramatic decrease in swelling in my hands! As the week progressed, so did

my improvement. This morning I got up and had almost no stiffness even!

AMAZING! I will have my third infusion next Friday and then go to monthly.

I will keep you all posted.

Jeanine in FL

January 28, 2007

That is wonderful, Jeanine. It's nice to hear some good news. I hope

Orencia continues to work well for you.

Sue

On Sunday, January 28, 2007, at 08:50 AM, Jeanine Kinsey wrote:

> For those who have been wanting to know about how Orencia works - it

> works

> great!

January 28, 2007

Thank you, thank you, thank you for sharing this information with the group.

I have my 2nd Orencia treatment tomorrow morning and this was such an

uplifting message for me. I had to raise my prednisone level until it kicks

in and we all know how that goes with the mood swings and excessive

appetite. I wish you the best of luck with it. I'll keep in touch with my

progress, also,

Joanne

[ ] Pain Relief

> To all my friends who are suffering with pain, I pray that you may find

> relief soon

>

> For those who have been wanting to know about how Orencia works - it works

> great!

>

> I had my second infusion a week ago, and didn't really expect any changes

> for another couple of weeks. Monday night (72 hours later) we noticed a

> dramatic decrease in swelling in my hands! As the week progressed, so did

> my improvement. This morning I got up and had almost no stiffness even!

> AMAZING! I will have my third infusion next Friday and then go to

> monthly.

> I will keep you all posted.

>

> Jeanine in FL

>

November 22, 2008

A groundbreaking treatment for pain, eight times stronger than morphine, has

been discovered by scientists. The revolutionary technique involves an injection

of the protein prostatic acid phosphatase (PAP), which can combat serious

discomfort for more than three days -- an astonishing 14 times as long as the

five hours of pain relief brought about with a dose of morphine.

http://articles.mercola.com/sites/articles/archive/2008/10/30/this-pain-relief-i\

s-8-times-more-effective-than-morphine.aspx

Something you may be interested in,

Lottie

November 23, 2008

Dear Lottie,

Could I inject a couple of doses of this pain reliever in Pat--she's

been the pain in my a@* for a long time and I need some relief.

Bob , Granger, IN

>

> A groundbreaking treatment for pain, eight times stronger than

morphine, has been discovered by scientists. The revolutionary

technique involves an injection of the protein prostatic acid

phosphatase (PAP), which can combat serious discomfort for more than

three days -- an astonishing 14 times as long as the five hours of

pain relief brought about with a dose of morphine.

>

http://articles.mercola.com/sites/articles/archive/2008/10/30/this-pain-relief-i\

s-8-times-more-effective-than-morphine.aspx

> Something you may be interested in,

> Lottie

>

November 23, 2008

Ha HA HA oh Bob u are so funny

anita

________________________________

From: <bob-stewart@...>

Sent: Sunday, November 23, 2008 10:44:01 AM

Subject: [ ] Re: Pain Relief

Dear Lottie,

Could I inject a couple of doses of this pain reliever in Pat--she's

been the pain in my a@* for a long time and I need some relief.

Bob , Granger, IN

>

> A groundbreaking treatment for pain, eight times stronger than

morphine, has been discovered by scientists. The revolutionary

technique involves an injection of the protein prostatic acid

phosphatase (PAP), which can combat serious discomfort for more than

three days -- an astonishing 14 times as long as the five hours of

pain relief brought about with a dose of morphine.

>

http://articles. mercola.com/ sites/articles/ archive/2008/ 10/30/this-

pain-relief- is-8-times- more-effective- than-morphine. aspx

> Something you may be interested in,

> Lottie

>

October 21, 2009

, is there any way to get off this sight? It is not that I don't care about

the plight of others who have spinal problems... I have had three neck sugeries

and have degenerative back desease. My pain specialist gives me

(Vicoden)Hydrocodone/APAP 10.325(substitute for NORCO) and (Soma)Chorosprodol

350mg. Nueronton for seisures.Tell your Doctors that you have to have

NSAIDs they do not affect your kidneys or liver. I get labs once a year just to

make sure. I get really sick with any thing that has asprin in it which is why I

originally ask for nothing with asprin in it. Anyway I would be glad to email

you about meds if I can help....I have had many but I really want off the site

because I get 150 messages a day from that web site, don't know how I did that

but I can't seem to get off, do you know how????? I guess I don't know what

your pain level is or what your back problem is .... let me know. Thanks Vonda

From: Babbitt <tpowell1977@...>

Subject: Re: Re: Tramadol

spinal problems

Date: Wednesday, October 21, 2009, 5:46 PM

That doesn't make any sense. Tramadol and Ultram are identical... .they are the

SAME. Ultram is just a different name! They contain the same amount of

tramadol... they ARE tramadol. Even if you took Ultracet, I believe they have

the same amount of tramadol but it also has tylenol includud.... but still, same

amount of meds!

--- Babbitt

____________ _________ _________ __

From: mamawolf33 <vendetta33comcast (DOT) net>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Wed, October 21, 2009 10:00:56 AM

Subject: Re: Tramadol

Yeah, that's what she told me. She said that tramadol " had more available

medication " than Ultram, and to take 2 Tylenol along with the tramadol!

SO glad I fired her! What was she trying to do, kill my liver?!

Thanks, . Now if I talk about it with someone, I won't be passing on the

same sh*t info!!! (Like, to my father who's got liver damage!)

> > >

> > > From: cathy mccarthy <bbhorsetack@ ...>

> > > Subject: K all. Neurontin® Anybody using

> > > it???

> > > spinedisorderssuppo rtgroup@gro ups.com

> > > Date: Sunday, October 18, 2009, 12:16 PM

> > >

> > > K all. Neurontin. Anybody using it??? I have nerve pain... this

> > > kinda sounded like it might help. Was warned though it might screw

> > > up my brain a bit and make me depressed... . Just wanted to " float "

> > > it past the group and see if anybody had any problems with it....

> > > hehehe. as a group we sure have tried a lot of drugs and treatments

> > > out there. Some drugs, treatments, are absolutely worthless. GROUPS

> > > like this, where people can discuss their problems, comment, have a

> > > voice, I think will make for better results all around.

> > >

> > > JMO. in NH

> > >

October 21, 2009

Me too -

________________________________

From: Vonda Fleetwood <fleetwoodvonda@...>

spinal problems

Sent: Wed, October 21, 2009 12:32:18 PM

Subject: Re: Pain relief