Re: Re: Re BMB Pain - Barb

[Guest guest]

Hi Barb,

I hadn't seen your record of treatment before and just wanted to say that it's

great that Tasigna is working so well for you with minimal side effects.

Sprycel is working just as well for me but since others have had to get off

Sprycel at some point it's good to know that Tasigna is out there and viable for

PCRU.

Cheers,

L

[ ] Re: Re BMB Pain

Jeanie

My computer went down last night about the time I sent the email. I

think that is what happened to it.

So sorry.

Here is my info again:

Barb Stanley 57

DX 5-5-2002 age 51

Hydroxurea 5-5-02-6-3--02

Gleevec 400 mg 6-11-02

MMR 8-1-02

CCR 12-10-02

PCRU 3-17-03

Gleevec break: Feb. 15 - May 1-2007 (severe side effects)

Gleevec 300 mg. May 1 - Dec. 15- 2007

800 mg tasigna Dec. 27 -Jan 12 ( stopped because of side effects)

400 mg tasigna Jan 20 - present (MINIMAL SIDE EFFECTS)

Continuing strong PCRU

& #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > > Hi all, I have to jump in here reading about the pain of BMB,

> > your & #65007; & #65007;

> > > > are right it does hurt! I had 3 done, one each year when I was

> > first & #65007; & #65007;

> > > > diagnosed but they don't do them any more here in New Zealand,

> > well & #65007; & #65007;

> > > > not in my city anyway. I have a wonderful specialist who has

> a & #65007; & #65007;

> > > > special blood test done, I can't explain the technicalities,

> but & #65007; & #65007;

> > > > somehow from this test he gets the results of

> my " molecular & #65007; & #65007;

> > > > arrangement " and this is sufficient for him to determine where

> I & #65007; & #65007;

> > > > am... which at the moment is .7 (just had to add that). But

> > anyway do & #65007; & #65007;

> > > > continue to ask about this because BMB are horrible, my first

> one

> > was & #65007; & #65007;

> > > > the day I was diagnosed which was probably the scariest day of

> my & #65007; & #65007;

> > > > life and I can remember nearly breaking my poor best friends

> hand

> > the & #65007; & #65007;

> > > > pain was so horrible and even then they couldn't really get

> > enough. & #65007; & #65007;

> > > > > And as for the lady who wasn't allowed to stay with her

> Granny & #65007; & #65007;

> > > > while she had hers, that just about made me cry, I couldn't

> > imagine & #65007; & #65007;

> > > > going through it on my own. & #65007; & #65007;

> > > > > Anyway just had to add my bit, good luck to you all in

> finding

> > out & #65007; & #65007;

> > > > about this blood test. & #65007; & #65007;

> > > > > Hugs from New Zealand. & #65007; & #65007;

> > > > > & #65007; & #65007;

> > > > >