Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Welcome aboard. Glad you found us I was dx april 2007. There are a lot on here from other sites and to listen to them talk we have the best ever. One big family, always giving support and comfort. Anita ________________________________ From: suzzienovember <suzzienovember@...> Sent: Saturday, November 8, 2008 6:46:08 PM Subject: [ ] I have CML Hi: I have been on the CML Hope Group for quite sometime, and also the CML Talk. I just noticed the (DOT) com <mailto:the (DOT) com> , and it seemed like there were a lot of different people whose names did not seem familiar to me. Just thought I would sign on here also. I was on the CML Support Group on back in 1998 when I was first diagnosed, then it kept saying it was not up and running anymore. Hope I get to meet some new people to share and help if I can. Suzzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi Suzzie, welcome, I've had cml for 13 years, I'm in a trial, XL228 with Dr. Talpaz at the U of Mich. I;m one of the older ones, 79 next month, and there is loads of info on this site and lots of interesting contributors, pleased to meet you, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) From: anita <awristen1@...> Subject: Re: [ ] I have CML Date: Saturday, November 8, 2008, 10:34 PM Welcome aboard. Glad you found us I was dx april 2007. There are a lot on here from other sites and to listen to them talk we have the best ever. One big family, always giving support and comfort. Anita ____________ _________ _________ __ From: suzzienovember <suzzienovember> groups (DOT) com Sent: Saturday, November 8, 2008 6:46:08 PM Subject: [ ] I have CML Hi: I have been on the CML Hope Group for quite sometime, and also the CML Talk. I just noticed the (DOT) com <mailto:the@ . com> , and it seemed like there were a lot of different people whose names did not seem familiar to me. Just thought I would sign on here also. I was on the CML Support Group on back in 1998 when I was first diagnosed, then it kept saying it was not up and running anymore. Hope I get to meet some new people to share and help if I can. Suzzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi Suzzie I'm dx 05 Gleevec 600 from east Tn.USA. welcome 98 you have had a trip. From: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi Suzzie, Welcome to the group. I was on the old CML group back in 2001. Tell us about your CML and where you are at right now. I'm always looking to assign Zero Club numbers to those patients who have achieved a CCR level of remission. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of suzzienovember Sent: November 8, 2008 7:46 PM Subject: [ ] I have CML Hi: I have been on the CML Hope Group for quite sometime, and also the CML Talk. I just noticed the (DOT) <mailto:the%40> com <mailto:the (DOT) <mailto:the%40> com> , and it seemed like there were a lot of different people whose names did not seem familiar to me. Just thought I would sign on here also. I was on the CML Support Group on back in 1998 when I was first diagnosed, then it kept saying it was not up and running anymore. Hope I get to meet some new people to share and help if I can. Suzzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi Zavie: I am not new. I have been on CML Talk and CML Hope and also on the Leukemia & Lymphoma website. I made up a whole new book with my e-mails etc., and you did give me a number. I think I am 253 for some reason. Its Armour or Suzzie 60. I just wanted to see if the people on were the same ones from years ago, or some new people dealing with CML like us. From: Zavie <zmiller@...> Subject: RE: [ ] I have CML Date: Sunday, November 9, 2008, 12:23 AM Hi Suzzie, Welcome to the group. I was on the old CML group back in 2001. Tell us about your CML and where you are at right now. I'm always looking to assign Zero Club numbers to those patients who have achieved a CCR level of remission. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmillersympatico (DOT) ca Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of suzzienovember Sent: November 8, 2008 7:46 PM groups (DOT) com Subject: [ ] I have CML Hi: I have been on the CML Hope Group for quite sometime, and also the CML Talk. I just noticed the (DOT) <mailto:the% 40> com <mailto:the@ . <mailto:the% 40> com> , and it seemed like there were a lot of different people whose names did not seem familiar to me. Just thought I would sign on here also. I was on the CML Support Group on back in 1998 when I was first diagnosed, then it kept saying it was not up and running anymore. Hope I get to meet some new people to share and help if I can. Suzzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi : I have been on the Google Group for a long time, and our group had been inactive for quite sometime. When I saw , I thought I would sign in to see if it was new people or people from way back. Yes, I was diagnosed in 1998, and I have been on the regular dose of 400mg. since day 1 which was Oct. of 2000. Gleevec did not exist when I was diagnosed. I did the Interferon with the Ara-C, but it became toxic to my liver. I might have written all that when I signed into your group. Thank You for the Welcome. I go back and forth to different websites for CML. Hope this finds you doing very well. I am from New Jersey. From: Shipley <paulorkay@...> Subject: Re: [ ] I have CML Date: Sunday, November 9, 2008, 12:19 AM Hi Suzzie I'm dx 05 Gleevec 600 from east Tn.USA. welcome 98 you have had a trip. From: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2008 Report Share Posted November 10, 2008 Hi Suzzie, Welcome back. Your new email address threw me off. You are # 293 in the Zero Club. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of Armour Sent: November 9, 2008 2:22 PM Subject: RE: [ ] I have CML Hi Zavie: I am not new. I have been on CML Talk and CML Hope and also on the Leukemia & Lymphoma website. I made up a whole new book with my e-mails etc., and you did give me a number. I think I am 253 for some reason. Its Armour or Suzzie 60. I just wanted to see if the people on were the same ones from years ago, or some new people dealing with CML like us. From: Zavie <zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca> Subject: RE: [ ] I have CML groups (DOT) <mailto:%40> com Date: Sunday, November 9, 2008, 12:23 AM Hi Suzzie, Welcome to the group. I was on the old CML group back in 2001. Tell us about your CML and where you are at right now. I'm always looking to assign Zero Club numbers to those patients who have achieved a CCR level of remission. Zavie Zavie (age 70) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 e-mail: zmillersympatico (DOT) ca Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-282-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of suzzienovember Sent: November 8, 2008 7:46 PM groups (DOT) com Subject: [ ] I have CML Hi: I have been on the CML Hope Group for quite sometime, and also the CML Talk. I just noticed the (DOT) <mailto:the% 40> com <mailto:the@ . <mailto:the% 40> com> , and it seemed like there were a lot of different people whose names did not seem familiar to me. Just thought I would sign on here also. I was on the CML Support Group on back in 1998 when I was first diagnosed, then it kept saying it was not up and running anymore. Hope I get to meet some new people to share and help if I can. Suzzie Quote Link to comment Share on other sites More sharing options...
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