Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 Okay, I'll share...in 1994 we pressed neuro into helping us start Hannah on the Ketogenic Diet, said we'd do it with or without him. If we went to a center we would have to wait 6 weeks minimum, but he said he knew all about keto diet, so we did it locally, even though he said it would be the worst experience of our lives. It was a Godsend, but we quickly learned he didn't know what he claimed he did and the dietitian knew even less so we networked with parents and found someone who would teach us how to calculate and that parents FedEx'd tons of pages (before Freeman's book came out) and we ended up teaching our neuro. But that's not the lie I was referring to. We trained him, I copied and gave in all the latest info, my mom became a Keto coach and got specific training. People were calling from all over the country. One day we got a call from someone who;s child was seeing this same neuro and they very much wanted to try the diet on their child but neuro told them that child wasn't sick enough, that the only people who do the diet are those confined to wheelchairs, on multiple drugs, and basically non-functioning. This was an outright lie to a desperate parent and I lost all respect for him. We are back there now because we've been away for a few years, I've seen lots of neuros and can see through the crap. Seems like most of them (that we've seen) are very similar to this local one. We had a really terrific neuro in Dallas, but sadly, he's closed his practice and left the state. Besides that, I want to wean her drug, or at least reduce the dose and don't necessarily want to consult with neuro, so this one is perfect because he doesn't even want to do blood levels and gave us a 6 month prescription. It took me a really long time before I was willing to sit down and watch Lorenzo's Oil, but I agree, its a very good film as well as First Do No Harm. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Sigh...I guess that is my basic question too....what is the problem here? If it works, why the resistance? This is crazy that we even have to have this listserv, because this should be a standard and accepted therapy option! I'm personally about sick of the bureaucracy! Dr. Cheryl Bruce, MD The Center For Exceptional Children and Families, Inc. " Where growth begins! " P.O. Box 732 Belmont, CA 94002-0732 http://www.gregorycenter.org cheryl@... 1-650-591-1181 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 I find this position very interesting and am totally perplexed by it. If you do not feel that HBOT is acting on the brain in CP, which is where the problem lies, what system do you propose that the HBOT is acting on, certainly not the muscular system, as that would not account for reduction in spasticity or flaccidity, and not the neurons responsible for the reflex spasticity and flaccidity, because that wouldn't account for the improved muscular control. What system are we talking about here? Dr. Cheryl Bruce, MD The Center For Exceptional Children and Families, Inc. " Where growth begins! " P.O. Box 732 Belmont, CA 94002-0732 http://www.gregorycenter.org cheryl@... 1-650-591-1181 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2003 Report Share Posted February 10, 2003 Hi, I know I don't post a hell of alot. I am usually a lurker. Hello everyone!!!!! I am on 20mg of Lex. I still get vivid dreams. Most are pleasant, and some just down right bizzare. Like, a never ending story. Only a few times did I have what I call night terrors. I get these periodically.(don't think it is a side of Lex, I have always gotten them). I usually get these dreams(all) a total of 10-15 a month. Before Lex I would have vivid dreams and not remember them. You know what I mean? Now I am in the habit of writing them down and take with me to my p-doc...... Jacquie Matt I still get vivid dreams but not as often. Jaw clenching seems to be a side effects for some of us but not all .We have a database that you can have a look at and add yourself to it if you like. Welcome to the group Matt. Hugs all Lesli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Well, I'm probably telling on him but he resubscribed about a week ago. He's probably resting up from his vacation. :-) Rick Hahn rick@... http://www.risg.org > Hey all, has anyone heard from Matt???? > +Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Matt's taking some time off. He's fine. I've talked to him in recent weeks on phone and online. Most recently about two weeks ago. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 Thanks guys. With all the garbage going on in Ottawa at the moment, I was a bit worried. Matt will know what I mean. Hope your holiday was a good one Matt. +Dave Re: Matt > Well, I'm probably telling on him but he resubscribed about a week ago. He's > probably resting up from his vacation. :-) > > Rick Hahn > rick@... > http://www.risg.org > > > > Hey all, has anyone heard from Matt???? > > +Dave > > > > > ------------------------------------------------- > Post message: > > Unsubscribe from any of the RISG.ORG forums: > http://www.risg.org/infosupp/risgorg_unsubscribe.htm > > You can set your subscription to digest (one email a day) by going to > / > > Your contribution to RISG.ORG is tax deductible. > Credit Card or PayPal > http://www.risg.org/contributions.htm > > You're Not Alone! > http://www.risg.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi Dave, I'm okay, I had a great vacation and am catching up on things. The Caribbean is a great place. I understand now why people move there. When I got back I got strep throat and pink eye. However, I do have a funny story. The day I left Tampa, Bush was flying in for President's Day. Security was really tight. They x-rayed my shoes (I am not kidding), my coat and my wallet. They made me open the locks on my suitcases, searched them by hand, then x-rayed the bags. By the time I got everything all back together, they stopped me again. I was wearing a straw hat, it was the only thing that hadn't been searched. So they made me take off my hat to make sure there was nothing underneath there except brains. The hat is loosely woven and that you can see right through it. Anyway, the security people decided that they had to xray my straw hat. Unfortunately they found that it had " gasp " a wire around the brim. After talking back and forth on walkey-talkeys, they decided my hat was not in fact a deadly weapon and a potential menace to the President and I was allowed to board the plane. Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 I'm happy to hear that your trip was all that you hoped it would be. Nice to hear from you. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Hi Matt, 'Glad to hear that you've had a good vacation in the Sun. The thought of having my shoes (and cap) X-rayed is funny, but I guess that Security has been stepped up since " the shoe bomber " tried his stuff over the Atlantic.....So it's nice to know that they taking things a bit more seriously at Airports. At least they got you back in one piece, so I guess that it was worth the hassle. Take it easy now and enjoy the cooler weather. (LOL......That's the worst of coming back home, eh!) Anyway, take it easy now and best regards! Mal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Matt: I am so sorry about the loss of your father. He was a man of many talents and lived a full life. It's so unfortunate that he fell ill on a trip that should have only brought pleasure to him and his family. My deepest sympathy is with you and your family. Margot Quote Link to comment Share on other sites More sharing options...
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