Hormones and Glivec 800mg

[Guest guest]

Jackie

Many women have had hormone issues when they have commenced glivec and it

doesn't seem to make

any difference if one is on the 400 - 800mg dose.

Many CMLers have experienced very heavy periods - heavy clotting of blood - time

between periods shorter

and length of periods longer. The outcome of this - is that the Hgb counts are

down - people are becoming

very anaemic - with iron infustions, transfusions, hospital stays repeatedly

- loss of work days, fatigue

etc.

Many people go their gyno - and have marina coils - ablastion - or some other

treatments to support

the issue of blood loss.

My experience was extreme - whereby had your same issues - not fibroids but

heavy bleeding -

with infusions becoming more regular - then one day for no reason - had a major

bleed-out -

and I was extremely lucky - that I was still conscious and able to phone my

treating hospital

- who phoned my haem. who then treated me as an emergency - and gyno gave me a

radical hysterectomy.

Many many many bags of blood later - and a week in hospital - 3 months of work -

and back to normal.

In a round-about way- the hysterectomy saved my life, but also the successful

consequence was that my

bloods have been raised into the normal range. In fact my general health has

improved so much - we (family)

haem. / and GP or community medical team - state before hysterectomy and after

hysterectomy as the

difference is so great that there is a comparison.

My specialist gyno - who is one of the top guys in my City of Perth - said it

was a CML - glivec combination

and age relation was very minor part to play.

So my suggestion that saved my life is two fold.

Have a management plan in place and that means that you know what to do in an

emergency not just dial an ambulance

Know who your treating hospital is

Your neighbours have knowledge of your condition and they also know who to

contact in case of emergency

Have somewhere on fridge - phone etc - hospital - nurse manager - your haem

contact - and family member

Since my hysterectomy - I also have a bag packed ready if there is a need to go

to hospital - with a folder

with the last blood report - condition - all necessary information including

your blood type.

Think about a hysterectomy if things get worse - it is very freeing - and your

general health improves considerably

You can email me personally if you wish for more information.

Cheers

Sue (Aussie)