RE: Thoracentesis for Pleural Effusion

[Guest guest]

Hi, Name here is Skip

I was on sprycell for about 6 months

I had to have my chest tapped three times in that period

First they took two 500ml bottles next time three half bottles

and the next time they took two. It was NOT painful, well at

least the doc that did me was good.  They then took me off

sprycell, as there is a very high percent of people that do have

PE with sprycell.  in all cases my lung could be hardly seen

as there was so much PE.  I am back on Nilotinib, although

I still have some PE around my right lung, not enough to tap.

 

SkipD

dx'ed 30++++ years ago

From: Gail s <gail.stephens@...>

Subject: [ ] Thoracentesis for Pleural Effusion

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

I wonder what the rate of PE is on Sprycell? I have noticed a lot of post

where PE occurred. I think I can live without that one happening! =) Now

about 2.5 weeks into Sprycell, doing much better, now. But, am tired a lot,

but

the head pain is much better.

Cheers,

Chris

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[Guest guest]

I was on Sprycel for 3 years before I got PE. Had to get my lungs drained.

I don't know how much they took but it looked like about 2 or 3 cups. They

stopped my sprycel and put me on Tasigna. No problems since.

Sharon

_____

From: [mailto: ] On Behalf Of Skip

Duffie

Sent: Friday, January 30, 2009 4:01 AM

Subject: Re: [ ] Thoracentesis for Pleural Effusion

Hi, Name here is Skip

I was on sprycell for about 6 months

I had to have my chest tapped three times in that period

First they took two 500ml bottles next time three half bottles

and the next time they took two. It was NOT painful, well at

least the doc that did me was good. They then took me off

sprycell, as there is a very high percent of people that do have

PE with sprycell. in all cases my lung could be hardly seen

as there was so much PE. I am back on Nilotinib, although

I still have some PE around my right lung, not enough to tap.

SkipD

dx'ed 30++++ years ago

From: Gail s <gail.stephens@ <mailto:gail.stephens%40sbcglobal.net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:%40> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

Just wondering how you know (without going to the doctor) if this is happening

-- PE?

Will you know something is happening before going to the doctor?

 

Crestview, FL

Sprycel

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal. net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

I too had pulmony edema after taking sprycel for 6 weeks. Was rushed to ER and

had full cardiac attention. After being taken off sprycel and going back on

gleevec, have not had that problem. however I still have side effects e.g.

weight gain (40 lbs), edema, fatigue, etc. but gleevec has worked well

otherwise.

 

 

Margaret ,

mpraymond@...

margaret-raymond@...

 

 

 

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal. net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

With me, I found it hard to breathe,and had a lot of pain on my right side, in

the chest.  I went to the ER thinking I was having a heart attack, and was

misdiagnosed with pneumonia, even though I kept telling them pleural effusion

was a side effect of Sprycel.  Eventually I had to have the procedure done, they

removed over 1 1/2 liters of fluid, and I hear everyone saying it was painless,

well, I must have had a novice do mine because it was far from painless. The

procedure itself did not hurt, the needle did not hurt, but it hurt towards the

end of the procedure, the more fluid they took, the more it hurt.  Do not know

why.  I was treated with mega prednizone and lasix, and taken off Sprycel. 

Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)  

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal. net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

Actually I did not know-they found it from a chest X ray. I guess the Dr.

heard fluid in my lungs.

Aloha Sharon

_____

From: [mailto: ] On Behalf Of

Sent: Friday, January 30, 2009 4:01 PM

Subject: RE: [ ] Thoracentesis for Pleural Effusion

Just wondering how you know (without going to the doctor) if this is

happening -- PE?

Will you know something is happening before going to the doctor?

Crestview, FL

Sprycel

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal.

net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

You can hear it, have your partner put two fingers at the top of the lung

and tap with the other hand, work your way down the lung you will

hear a hollow sound until you hit fluid then it will be a dull thud.

my doc showed me this, he said my wife could check it to see if

I am building up anymore fluid.  right now it is about the bottom

1/4 then the thud. 

SkipD

dx'ed 30++++years ago

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal.

net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

30+++++++ years? OMG!!!!! I love ya!!!

Aloha Sharon

_____

From: [mailto: ] On Behalf Of Skip

Duffie

Sent: Friday, January 30, 2009 6:29 PM

Subject: RE: [ ] Thoracentesis for Pleural Effusion

You can hear it, have your partner put two fingers at the top of the lung

and tap with the other hand, work your way down the lung you will

hear a hollow sound until you hit fluid then it will be a dull thud.

my doc showed me this, he said my wife could check it to see if

I am building up anymore fluid. right now it is about the bottom

1/4 then the thud.

SkipD

dx'ed 30++++years ago

From: Gail s <gail.stephens@ <mailto:gail. stephens% 40sbcglobal.

net>

sbcglobal.net>

Subject: [ ] Thoracentesis for Pleural Effusion

groups (DOT) <mailto:% 40groups. com> com

Date: Thursday, January 29, 2009, 6:29 PM

I am a Sprycel taker. Has anyone out there had to have a thoracentesis

to drain the fluid from your chest? If so, please write. I would love

to talk. I may be close to having to do that.

[Guest guest]

thanks everyone for sharing, I was wondering, had a feeling it was like it

is, the how you know part. I had developed fluid around the heart once, it

was painful to breath, I cannot even remember how that was treated, but it was

not drained, I recall that.

cheers,chris

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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