Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Bobby- Please keep us posted. Chi From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] xl228 " " < > Date: Wednesday, January 14, 2009, 12:37 PM Hi Everyone, I got a call from Ann Arbor today, my qpcr has gone up from .6 to 3.1. They will put me on Ariad as soon as the dose gets higher. I am wondering why Dr. T doesn't try Tasigna on me, and I will ask him next week when i go for the next infusion. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi Bobby, I'm sorry your pcr went up. Keep your head up. I hope Dr. Talpaz agrees with you. He is a bright doctor! God Bless, Jackie From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] xl228 " " < > Date: Wednesday, January 14, 2009, 2:37 PM Hi Everyone, I got a call from Ann Arbor today, my qpcr has gone up from .6 to 3.1. They will put me on Ariad as soon as the dose gets higher. I am wondering why Dr. T doesn't try Tasigna on me, and I will ask him next week when i go for the next infusion. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 I fear I may have celebrated to soon on stopping the XL trial. The trial nurse called today and said the pcr test may have been inaccurate, as the fish shows 00 and I am still CCR. She said I can stay in the trial if I want, or I can stop it, Dr. T. said it was up to me. I told her I would do what Dr. T said, but I really preferred to try Tasigna. I do not like driving every week to Ann ARbor, it cost me about $100 a week. I also don't like the weird side effects. But if he thinks it is best, I will stay on it. You can't beat CCR. ... Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
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