Re: rash...Shingles....help

December 30, 2008

I don't post on here very often either, but i do read alot! It

doesn't sound like shingles to me. I just got over having shingles

about 2 months ago. I think usually shingles happen on the trunk of

the body, mine was on my lower back. Also the rash is really painful,

plus it usually look like a bunch of little blisters lined up in a

row. Usually they blister and then they scab up and then slowly start

to heal up and go away.. Well that is at least my experience with it!

It sounds like you have some type of weird infection.. Like i said

this was just my recent experience with shingles.. I hope you can get

it figured out. I can't imagine how irritating it is to have a rash

on your face! Hope this helps!

gillian

wife to Kris

mother to 3 year old twin girls!

gleevec 2005-2006

sprycel 2006-2007

BMT 2007- no Cml has been found since!

>

> Hey gang-

>

> Haven't been on for a while but read messages. I need some advice

and hope

> ya'll have it today. To bring you up to snuff on me, I am on

Syprcel 100mg a

> day taken at night. I am PCR undetectable at this time. I have

had what

> I'll call a rash to the left side of my face for about 3 months.

Mild in

> nature. Itches and turns bright red, more so when I get hot or

body temp heats

> up. It was able to be under control with use of hydrocortisone

cream and

> ointments. It has slowly traveled up along my hairline to my

forehead and to the

> right side of my face. I went to the doctor last week and he

instructed me

> to see a dermatologist, which I had already set up an appointment

just cant

> get into them until the 8th of Jan which is why I went to the

primary doctor.

>

> He wasn't going to do anything about it until I questioned if it

could be

> shingles? He said it hadn't crossed his mind until I brought it up

but decided

> it could be and put me on valtrex. Besides taking the biggest pills

I have

> ever seen in my life, it does seem to have faded it out a little

bit BUT I now

> have very red and itchy side of my eyes, the underneath of my eye

is

> extremely puffy to they point that I can now see it in my vision

line and its

> driving me crazy. I woke up this morning and my other eye is

starting the redness.

> This itches extremely bad and the redness and swelling is crazy.

Does that

> sound like shingles? or does it sound like an infection? I guess

you could

> probably get one from the other right? I guess I will call and

get back in

> today but I was wondering if this is related to the sprycel or

just something

> caught from the compromised immune system?

>

> Any thoughts?

>

> Thanks in advance for your help!

>

> Hugs & Hope-

> (36)

> Wife and mom to 3 (13,9,7)

> CML 5/13/05

> Gleevec 800mg until 8/07

> Sprycel 100mg since 9/07

> **************One site keeps you connected to all your email: AOL

Mail,

> Gmail, and Mail. Try it now.

> (http://www.aol.com/?optin=new-

dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

>

December 30, 2008

Jen,

I am on sprycel and get 'red face' often and it 'heats up' at night when it

feels like i have a fever but i don't.

I had what the docs thought was a raging case of pink eye.... But not sure now.

Im on the third round of anti'b's to kill off whatever it was. So far so good.

What i heard from the docs when i have the puffy eye and scales on my face was

that hydrocortisone cream for long periods of time can make your skin thinner...

Thus mor prone to problems.

I have no idea about the shingles, but i hope you don't have shingles! My eyes

and eyelids were bright red and uber itchy. They gave me drops for my eyes and

that helped after one day, but said i should take them for a week. When it

cleared i was very relieved as the pain was awful.

Good luck!!!

Rhonda

Good

Sent from my Verizon Wireless BlackBerry

[ ] rash...Shingles....help

Hey gang-

Haven't been on for a while but read messages. I need some advice and hope

ya'll have it today. To bring you up to snuff on me, I am on Syprcel 100mg a

day taken at night. I am PCR undetectable at this time. I have had what

I'll call a rash to the left side of my face for about 3 months. Mild in

nature. Itches and turns bright red, more so when I get hot or body temp heats

up. It was able to be under control with use of hydrocortisone cream and

ointments. It has slowly traveled up along my hairline to my forehead and to

the

right side of my face. I went to the doctor last week and he instructed me

to see a dermatologist, which I had already set up an appointment just cant

get into them until the 8th of Jan which is why I went to the primary doctor.

He wasn't going to do anything about it until I questioned if it could be

shingles? He said it hadn't crossed his mind until I brought it up but decided

it could be and put me on valtrex. Besides taking the biggest pills I have

ever seen in my life, it does seem to have faded it out a little bit BUT I now

have very red and itchy side of my eyes, the underneath of my eye is

extremely puffy to they point that I can now see it in my vision line and its

driving me crazy. I woke up this morning and my other eye is starting the

redness.

This itches extremely bad and the redness and swelling is crazy. Does that

sound like shingles? or does it sound like an infection? I guess you could

probably get one from the other right? I guess I will call and get back in

today but I was wondering if this is related to the sprycel or just something

caught from the compromised immune system?

Any thoughts?

Thanks in advance for your help!

Hugs & Hope-

(36)

Wife and mom to 3 (13,9,7)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Mail. Try it now.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000025)

December 31, 2008

Hi , my daughter had shingles earlier this year, it was the most painful

thing she ever encountered. She had a rash that itched, on her face, and her

eye was swollen, so she went to emergency. It was shingles, it lasted months,

of pain and itching. I don't think what you have sounds like shingles, there

was lots of pain with hers, but whatever you do have does not sound good

either. I had a bad rash with Gleevec, but it was right after I started it.

It's too bad you had to wait so long for an appointment, on the other hand, when

my daughter went to emergency care, they billed her $500.00 ! that did not cover

the doctor...get well soon, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's

Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

From: vegasrnjen@... <vegasrnjen@...>

Subject: [ ] rash...Shingles....help

Date: Tuesday, December 30, 2008, 10:36 AM