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Re: Shingles ?

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Hi Sue,

It sounds like your skin reactions are quite severe. According to

http://emedicine.medscape.com/article/1049474-overview

the following skin conditions have been linked to Gleevec:

-Acute Generalized Exanthematous Pustulosis

-Erythema Nodosum

-Lichenoid

-Vasculitis

I wonder if you fall into any of these categories.

As far as the shingles go, shingles itself actually isn't contagious

although for someone who has never had chicken pox, they could catch

chicken pox from someone with shingles.

See

http://tinyurl.com/5kenwx

Skin reactions can be miserable and even embarrassing, I hope they

can identify what you have (and also what has) so it can be

treated accordingly.

Tracey

>

>

>

> I am on Glivec which has skin reactions as one of its side effects,

including rashes, shingles etc.

>

> I have had various types of skin reactions from shingles, to a

weird blood blister rash that lasted several weeks

> , to welts, hives, and other types of rashes that at one time drs

thought was a skin virus (they did not know)

> at present very thin skin and sun sensitivity. I am obviously one

of the senstive skin people that glivec reacts to.

>

> Your explanation of your rash does not sound like shingles at all

from my experience - but your specialist should

> be able to advise.

>

> You can have shingles anywhere on the body or inside of the body

for that matter. Can be a very serious condition.

> You must be very clean in your hygiene habits with shingles, as you

do not want to pass on the virus to other

> areas of your body, like eyes, face, mouth, ears etc .......... can

lead to other medical concerns.

>

> Normally shingles has a common thread much like the cold sore

herpes virus.

> Tingling in the area of the shingle locality, becomes inflamed,

blisters, becomes a sore and disappears.

> However this can take weeks etc - the worst shingle activity is

normally the first - if your immune system

> is compromised more in one area that is perhaps the area that may

continue to have attacks.

>

> Keep out of the sun - white zinc cream on blisters works a treat -

cover with gauze - not bandaids -

> do not touch blisters while they are blisters or sores with

fingers, use a swab. Shingles can be very contagious

> so wash your hands all the time. Don't use soap or use a flannel on

shingles at all. You need to keep the area

> dry as possible and you do not want the area to bleed - the skin is

very sensitive. Once you feel tingling in an

> area after having shingles it maybe that you are more prone and

take defensive measures asap to stop the

> blisters appearing.

>

> You need urgent medical attention with shingles - you do not want

it spreading and cause even more grief.

> Can be extremely painful.

>

> My suggestion is to contact your haem / specialist and advise of

your rash reactions especially if shingles.

> Valtrex is a fantastic drug for shingles - your haem / specialist

will prescribe - check the dose with glivec or your CML Drug.

> You maybe prescribed a lesser dosage than normal and to be used

over a shorter period of time. It is quite a powerful drug -

> but will help even on the lower dosages.

>

> Since you are on Sprycel does Sprycel state in the information

packs that skin reactions are one of the main side effects and type,

> and if so what type of rash does it state.

>

> Do you know if other CML'ers who are on Sprycel have rashes - it

maybe a common side effect ?

>

> Nothing like a rash to make your day not too flash - Hope you are

feeling a little better soon and doctors can make a diagnosis.

>

> Sue (Aussie)

>

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>

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