What now?

[Guest guest]

, I know you must be discouraged but keep searching. I think the

current trend of thinking is to try the enzymes at least 3 weeks. Also, what

enzymes are you using? After 3 weeks you may want to try another. Do you give

them in powder form or pill form ? Some pills take a while to dissolve. Do

you give them with all foods? My child was gfcf but I discovered that he had

a lot of other food issues and so I try to give enzymes with everything.My

child has trouble with phenols even on enzymes and so I try to avoid a lot of

those. A lot of people have good luck with probiotics and yeast treatment.

Since he has terrible stools, I would keep searching for something to help

his gut. I never recognized that high look when my son was small. I didn't

know what was going on. I am glad you know to look for that. Hang in there

and keep posting and give lots of detail. There are a lot of experience

people with children that responded to many different things. Hang in there.

You are not alone in this and a lot of people care about your son and want to

help you. God Bless, DonnaC

[Guest guest]

Thank you so much for replying i am on a super enzyme from celltech , this

enzyme also contains blue green sea algea which i have read helps absorbs

other nutrients given. I mix the tablets with water and give them orally

from a syringe. I only give them with lunch and dinner - do you think I

should give them with all snacks?. Bobi is also taking Bio-Kult for a good 6

months now but again with no real changes.

Thank you kindly

Re: [ ] what now?

> , I know you must be discouraged but keep searching. I think the

> current trend of thinking is to try the enzymes at least 3 weeks. Also,

what

> enzymes are you using? After 3 weeks you may want to try another. Do you

give

> them in powder form or pill form ? Some pills take a while to dissolve. Do

> you give them with all foods? My child was gfcf but I discovered that he

had

> a lot of other food issues and so I try to give enzymes with everything.My

> child has trouble with phenols even on enzymes and so I try to avoid a lot

of

> those. A lot of people have good luck with probiotics and yeast treatment.

> Since he has terrible stools, I would keep searching for something to help

> his gut. I never recognized that high look when my son was small. I didn't

> know what was going on. I am glad you know to look for that. Hang in there

> and keep posting and give lots of detail. There are a lot of experience

> people with children that responded to many different things. Hang in

there.

> You are not alone in this and a lot of people care about your son and want

to

> help you. God Bless, DonnaC

>

>

>

[Guest guest]

>

> Hi everyone, my name is rachel and my son is 4 and a half years

old and autistic. He has been gf/cf free for a year and a half, he is

still non-verbal,not potty trained, still has terrible stools and

still seems high most of the time.

My son is intolerant to almost all foods. If your child still seems

" high " , have you considered other food issues? Phenols are big for my

son.

http://home.pacbell.net/cscomp/phenol.htm

> I have just started an enzyme for a

week but no changes.

I have not used the enzyme you mention in your other message here. I

use these enzymes.

http://www.houstonni.com/

I don't know much about the enzyme you mention, but it may not be

formulated for the food issues your child has. Or your child may have

other issues like yeast which an enzyme would not help much.

>>He is A.B.A at home and gets through the day but

no suprises. Has anyone out there had a child who responds to no

treatments or is there a treatment i am missing?

My son progresses very slowly, perhaps your son is like that also. He

began progressing much faster after I began chelating, here is his

story.

http://home.pacbell.net/cscomp/myson.htm

Dana

[Guest guest]

Wow what an interesting article- I am really interested in this chaletion

method. Do you live in England- if so where did you go for this treatment,

if not has anyone on the list had successful chelation treatment anywhere in

England,preferably London.

Thank you for this hope

[ ] Re: what now?

>

> >

> > Hi everyone, my name is rachel and my son is 4 and a half years

> old and autistic. He has been gf/cf free for a year and a half, he is

> still non-verbal,not potty trained, still has terrible stools and

> still seems high most of the time.

>

> My son is intolerant to almost all foods. If your child still seems

> " high " , have you considered other food issues? Phenols are big for my

> son.

>

> http://home.pacbell.net/cscomp/phenol.htm

>

>

>

> > I have just started an enzyme for a

> week but no changes.

>

> I have not used the enzyme you mention in your other message here. I

> use these enzymes.

>

> http://www.houstonni.com/

>

> I don't know much about the enzyme you mention, but it may not be

> formulated for the food issues your child has. Or your child may have

> other issues like yeast which an enzyme would not help much.

>

>

> >>He is A.B.A at home and gets through the day but

> no suprises. Has anyone out there had a child who responds to no

> treatments or is there a treatment i am missing?

>

> My son progresses very slowly, perhaps your son is like that also. He

> began progressing much faster after I began chelating, here is his

> story.

>

> http://home.pacbell.net/cscomp/myson.htm

>

> Dana

>

>

>

>

>

[Guest guest]

Darlene,

Toe walking is usually associated with low muscle tone or sensory integration

dysfunction. He maybe doing it to increase his muscle tone to help him with

balance / awareness of body in space. Has your son been seen by an occupation

therapist? They could give you some ideas on how to improve tone. Also,

essential fatty acids helped us improve our son's muscle tone somewhat. I don't

know what the literature about it is out there. But you may want to research it

a bit before starting it.

HTH,

Deb---------------------------------------------------Get more from the Web.

FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Hi Deb,

Thank you! Yes my son has seen an OT. He was in OT from

kindergarten through 5th grade at school. I put him in PT too over a

couple of summers and he was in a horse back riding (hipotherapy -

not sure if this is spelled right) for several years. This is the

first summer he's not in it because he just wasn't interested in it

anymore - outgrew it I guess. I also took him to an orthopedic

pediatrician a couple of times. The first time was when he was 3 and

he said that he did it for balance and was normal. When he was 5 I

took him back and he said it wasn't normal at this age and put him in

braces for a year to break the habit but it didn't work. I know his

muscle tone is different from him walking this way and also because

when he's walking his legs are turned out. He's very flexible in

some ways - he can pull his feet up and over his head! But in other

leg muscles he's tight. Now that he's in junior high I think the

other kids notice more. He gets along pretty well with the kids but

there are always the bullies. We've done stretches to stretch out

his heel chords but nothing seems to work.

I've gone through all the professionals and was just wondering if

there was something that was causing it that I could treat at home.

Thanks again,

Darlene

> Darlene,

> Toe walking is usually associated with low muscle tone or sensory

integration dysfunction. He maybe doing it to increase his muscle

tone to help him with balance / awareness of body in space. Has your

son been seen by an occupation therapist? They could give you some

ideas on how to improve tone. Also, essential fatty acids helped us

improve our son's muscle tone somewhat. I don't know what the

literature about it is out there. But you may want to research it a

bit before starting it.

>

> HTH,

> Deb---------------------------------------------------Get more from

the Web. FREE MSN Explorer download : http://explorer.msn.com

>

>

>

[Guest guest]

Dr Kaplan for vision therapy says that toe-walking is greatly helped

by prism glasses. He said that during evaluation, he had seen many

children stop toe-walking. You may try that..

-Geeta

> > Darlene,

> > Toe walking is usually associated with low muscle tone or sensory

> integration dysfunction. He maybe doing it to increase his muscle

> tone to help him with balance / awareness of body in space. Has

your

> son been seen by an occupation therapist? They could give you some

> ideas on how to improve tone. Also, essential fatty acids helped

us

> improve our son's muscle tone somewhat. I don't know what the

> literature about it is out there. But you may want to research it

a

> bit before starting it.

> >

> > HTH,

> > Deb---------------------------------------------------Get more

from

> the Web. FREE MSN Explorer download : http://explorer.msn.com

> >

> >

> >

[Guest guest]

> Hello everyone,

>

> I'm trying to figure out what to start now with my son - 12 yo

> Aspergers - and wanted some opinions first.

>

> He's gfcf, sugar, yeast, soy, artificial stuff free and I keep the

> eggs as low as possible. He is on the Pep, HNZyme, and NoFenol. I

> took him off of the SNThera but he is on Vitamin C and a Calcium,

> Magnesium, Zinc Supplement. He's also on Zoloft and Risperdal.

For some kids, using enzymes allows more efficient absorption of

medications. Consider that you might need to reduce the dose of these

medications.

He's

> been on the enzymes for about 3 or 4 weeks but I just recently

> switched the timing. Before I would give him the enzymes as he

> started eating - now I'm waiting 15 - 30 mins. before eating (except

> at school lunch he takes right before). It seems like since I

> started giving it to him 20 or 30 mins before he is more hyper,

silly

> and stimmy - only been 4 days.

This sounds like withdrawal symptoms, which would be a good sign,

unless it is also that he now needs less dose of the medications.

I'm thinking this is a good sign and

> although I saw some improvements before I'm hoping to see more

> improvements now.

>

> He is also on Milk Thistle to see if it helped to get rid of rash on

> his arms, legs and trunk - didn't help the rash but want to keep him

> on it.

Rash can be yeast, food intolerance and/or detox, lack of EFAs, or

celiac DH, to name a few. Do you use an EFA supplement? Is he still

gf?

He's had these bumps since he was a baby. I just got him

> some garlic tabs today to start. I saw some Coloidal Silver (sp?)

> today at GNC - it was in liquid form - is this a good one? and is

> this to fight bacteria?

Colloidal silver can fight bacteria, but don't use it for more than

about 10 days at a time.

http://www.autismchannel.net/dana/yeast.htm

I also saw a pro-biotic there but I think

it

> was acidopholus (sp?). Is this made from milk?

Some probiotics are cultured in milk, be sure you get one which is not

cultured in milk if you want to stay cf.

>

> I think he has a yeast issue but I don't know if I should just work

> on that for now or try other things also. He toe walks, and stims.

Do NOT use GSE for yeast because your son is using Zoloft.

For some kids, toe walking is a sign of bowel impaction. What are his

bms like?

> His stims are chest slapping, pencil twirling, vocal noises,

> screeches, hand flapping, hopping, rocking, swaying, etc.

Many of these stims can be directly associated with foods and/or

yeast. After he has been using enzymes for 3-4 weeks, you can

discover which stims might disappear, or conversely if any increase or

you see new ones appear.

He is

high

> functioning in school but has a hard time with hand writing along

> with his gross motor.

Lots of people recommend handwriting without tears, have you

considered that?

http://www.hwtears.com/

Dana

[Guest guest]

> > Hello everyone,

> > I'm trying to figure out what to start now with my son - 12 yo

> > Aspergers - and wanted some opinions first.

> > He's been on the enzymes for about 3 or 4 weeks but I just

recently

> > switched the timing. Before I would give him the enzymes as he

> > started eating - now I'm waiting 15 - 30 mins. before eating

(except

> > at school lunch he takes right before). It seems like since I

> > started giving it to him 20 or 30 mins before he is more hyper,

> silly

> > and stimmy - only been 4 days.

>

> This sounds like withdrawal symptoms, which would be a good sign,

> unless it is also that he now needs less dose of the medications.

Dana, I already reduced both his meds. I'm planning on taking him

all the way off over the summer to see what happens.

> Rash can be yeast, food intolerance and/or detox, lack of EFAs, or

> celiac DH, to name a few. Do you use an EFA supplement? Is he

still gf?

Yes he's gfcf. What are EFA supplements? Also where would I get a

pro-biotic that's not cultured in milk? Do you know a good brand?

>For some kids, toe walking is a sign of bowel impaction. What are

his

> bms like?

He's always been one who was constipated. I think that has improved

since the gfcf w/enzymes. He's 12 so I don't always see his bm's but

the last few times that I did check they seemed " fluffy " and like a

yellowish color. That's why I thought I should start something for

yeast. For now I'm just using the garlic along with the HNI enzymes

including the NF. I have him on very low sugar and no yeast. Do you

think this is enough to fight the yeast?

>

>

> > His stims are chest slapping, pencil twirling, vocal noises,

> > screeches, hand flapping, hopping, rocking, swaying, etc.

>

> Many of these stims can be directly associated with foods and/or

> yeast. After he has been using enzymes for 3-4 weeks, you can

> discover which stims might disappear, or conversely if any increase

or

> you see new ones appear.

His stims have decreased and after reducing the Risperdal they stayed

decreased which is good - I just don't know if I should keep working

to bring them down more or not.

> Lots of people recommend handwriting without tears, have you

> considered that?

>

> http://www.hwtears.com/

>

> Dana

I'll check the web-site. Thank you! I'm also planning on trying the

Brain Gym stuff over the summer.

Thanks again,

Darlene

[Guest guest]

> Dr Kaplan for vision therapy says that toe-walking is greatly

helped

> by prism glasses. He said that during evaluation, he had seen many

> children stop toe-walking. You may try that..

>

> -Geeta

What are prism glasses? My son does have visual motor delays. His

eye also didn't line up right all the time. It was only some of the

time when he was a baby but as he got older it got worse and worse to

where most of the time his left eye was all the way out. He just had

eye surgery a few months ago to correct this. What should I look for

in a doctor to prescribe him these types of glasses? He's been to

SEVERAL different eye docs over the years. They all said his vision

was fine. This is so frustrating! I'm going to figure all this out

someday! I think. :0)

Thanks so much!

Darlene

[Guest guest]

I know that 3 days after starting 3750iu. of cod liver geltabs daily, my 6

yr. old w/ADHD, and sensory issues, rode his bike w/o training wheels for the

first time!!!

Dr. Megson recommends this, saying that it improves sensory organs.

Well, after what I saw, I have to agree!

,

Mom to D.J., Evan, and Cherise

[Guest guest]

> Dana, I already reduced both his meds. I'm planning on taking him

> all the way off over the summer to see what happens.

Good luck! I hope it works out for you and for him.

> Yes he's gfcf. What are EFA supplements?

Essential fatty acids, like flax seed oil or evening primrose oil.

CLO also has some EFAs.

> Also where would I get a

> pro-biotic that's not cultured in milk? Do you know a good brand?

My kids don't tolerate probiotics, but I just went to my health food

store and browsed the shelves and read the labels. Or you can

purchase from Kirkman, they sell probiotics which are not cultured in

milk.

http://www.kirkmanlabs.com/

>

> >For some kids, toe walking is a sign of bowel impaction. What are

> his

> > bms like?

>

> He's always been one who was constipated.

Constipation is a precurser to impaction for many kids. Does he walk

on his toes immediately before a bm? Or is it all the time?

I think that has improved

> since the gfcf w/enzymes. He's 12 so I don't always see his bm's

but

> the last few times that I did check they seemed " fluffy " and like a

> yellowish color. That's why I thought I should start something for

> yeast. For now I'm just using the garlic along with the HNI enzymes

> including the NF. I have him on very low sugar and no yeast. Do

you

> think this is enough to fight the yeast?

Possibly, but it depends on the child. My kids need GSE plus

No-Fenol. Gluten can cause constipation in celiac individuals. I

forget now, is he gf even with enzymes? Or have you had him tested

for celiac?

> His stims have decreased and after reducing the Risperdal they

stayed

> decreased which is good - I just don't know if I should keep working

> to bring them down more or not.

I think you should wait for 3-4 weeks, because some of the stims may

be his manner of coping with the adjustment period.

>

> I'll check the web-site. Thank you! I'm also planning on trying

the

> Brain Gym stuff over the summer.

Good luck!

Dana

[Guest guest]

>> For now I'm just using the garlic along with the HNI enzymes

> > including the NF. I have him on very low sugar and no yeast.

Is there a reason why everyone is assuming that people with candida

should not eat yeast ?

For what I learned from a conversation with Dr Rimbault last week

end (he's a microbiologist specializing in bacterias) there is good

yeast and bad yeast just as there are good and bad bacterias.

If candida is a bad yeast, Saccharomyces boulardii (brewer's yeast)

is a good yeast and actually fights candidas (only often it contains

lactose, so if one is lactose intollerant it's better to get one

without lactose), and Saccharomyces cerevisiae (baker's yeast) is a

similar species, which like Saccharomyces boulardii does not

colonize but just gets through. So he actually told me that eating

Saccharomyces boulardii (well.. making bread with it) would be a

good idea for the equilibrium of the intestinal flora (just like

giving probiotics is a good idea).

Does any one have other info? After hearing him I was just wondering

why everyone mentions that if a kid has candida he should not eat

yeast at all.

bye

e

[Guest guest]

In a message dated 12/2/2002 2:34:37 PM Eastern Standard Time,

EMorabito@... writes:

> Hi! It seems like everything has " calmed down " of late and there hasn't

> been any further talk about having a nationwide candle vigil, coordinating

> a

> bumper sticker effort, or finally instigating a media campaign.

>

> If anybody is working on anything that will materialize, please post and

> update us so we can participate. I think there is a lot of interest here

> but like everything else, the interest is probably waning as we get back to

> focusing on our individual child's problems. We all do a lot individually

> for the cause. Now..if we can just surmount all of our collective energy

> into a concise and direct message it would even be more powerful.

>

>

, we're ordering the car flags today and bumper stickers within the

week. You know me, I'll never give up without a fight.

Jo

A " Mom on a Mission for Autism "

<A HREF= " www.momsonamissionforautism.org " >www.momsonamissionforautism.org</A>

SC Chapter of TAAP

<A

HREF= " http://www.autismautoimmunityproject.org " >www.autismautoimmunityproject.or\

g</A>

Representative for Unlocking Autism in South Carolina

<A HREF= " www.unlockingautism.org " >www.unlockingautism.org</A>

[Guest guest]

> In a message dated 12/2/2002 2:34:37 PM Eastern Standard Time,

> EMorabito@m... writes:

>

> > Hi! It seems like everything has " calmed down " of late and there

hasn't

> > been any further talk about having a nationwide candle vigil,

coordinating

> > a

> > bumper sticker effort, or finally instigating a media campaign.

> >

That's what they counted on by timing it around the holiday season.

[Guest guest]

You're no doubt right.

[ ] Re: What NOW?

> In a message dated 12/2/2002 2:34:37 PM Eastern Standard Time,

> EMorabito@m... writes:

>

> > Hi! It seems like everything has " calmed down " of late and there

hasn't

> > been any further talk about having a nationwide candle vigil,

coordinating

> > a

> > bumper sticker effort, or finally instigating a media campaign.

> >

That's what they counted on by timing it around the holiday season.

[Guest guest]

In a message dated 12/3/2002 1:38:02 AM Eastern Standard Time,

ddwisdom@... writes:

> I am still willing. Why not do it in early January (vigil) and get our act

> together and make bumper stickers

> or flags now?

> I know that we all have alot going on but....

> Maybe I will contact a local print shop in the next few days. I also went

> to the mall to get my son's eyewear

> and noticed the kiosk with license plate makers.

> Anyone else?

We're getting the flags ordered today and the bumper stickers should also be

ordered by the end of today or tomorrow.

Jo

A " Mom on a Mission for Autism "

<A HREF= " www.momsonamissionforautism.org " >www.momsonamissionforautism.org</A>

SC Chapter of TAAP

<A

HREF= " http://www.autismautoimmunityproject.org " >www.autismautoimmunityproject.or\

g</A>

Representative for Unlocking Autism in South Carolina

<A HREF= " www.unlockingautism.org " >www.unlockingautism.org</A>

[Guest guest]

I am still willing. Why not do it in early January (vigil) and get our act

together and make bumper stickers

or flags now?

I know that we all have alot going on but....

Maybe I will contact a local print shop in the next few days. I also went to the

mall to get my son's eyewear

and noticed the kiosk with license plate makers.

Anyone else?

Dana W

[ ] Re: What NOW?

> In a message dated 12/2/2002 2:34:37 PM Eastern Standard Time,

> EMorabito@m... writes:

>

> > Hi! It seems like everything has " calmed down " of late and there

hasn't

> > been any further talk about having a nationwide candle vigil,

coordinating

> > a

> > bumper sticker effort, or finally instigating a media campaign.

> >

That's what they counted on by timing it around the holiday season.

[Guest guest]

In a message dated 12/3/2002 3:48:13 PM Eastern Standard Time,

ddwisdom@... writes:

> Please let us know how to purchase them.

The final consensus was that the car flags wouldn't work because it would be

too hard to read the message.

For the bumper sticker we went with:

" No Child Left Behind " ...Unless They Have Autism.

We'll do another one too but this is a good start I think.

You'll be able to purchase them on the Moms On A Mission For Autism and The

Autism Autoimmunity website and we'll let everyone know when they're ready.

Jo

A " Mom on a Mission for Autism "

<A HREF= " www.momsonamissionforautism.org " >www.momsonamissionforautism.org</A>

SC Chapter of TAAP

<A

HREF= " http://www.autismautoimmunityproject.org " >www.autismautoimmunityproject.or\

g</A>

Representative for Unlocking Autism in South Carolina

<A HREF= " www.unlockingautism.org " >www.unlockingautism.org</A>

[Guest guest]

Please let us know how to purchase them.

Thank-you!

Dana W

Re: [ ] Re: What NOW?

In a message dated 12/3/2002 1:38:02 AM Eastern Standard Time,

ddwisdom@... writes:

> I am still willing. Why not do it in early January (vigil) and get our act

> together and make bumper stickers

> or flags now?

> I know that we all have alot going on but....

> Maybe I will contact a local print shop in the next few days. I also went

> to the mall to get my son's eyewear

> and noticed the kiosk with license plate makers.

> Anyone else?

We're getting the flags ordered today and the bumper stickers should also be

ordered by the end of today or tomorrow.

Jo

A " Mom on a Mission for Autism "

<A HREF= " www.momsonamissionforautism.org " >www.momsonamissionforautism.org</A>

SC Chapter of TAAP

<A

HREF= " http://www.autismautoimmunityproject.org " >www.autismautoimmunityproject.or\

g</A>

Representative for Unlocking Autism in South Carolina

<A HREF= " www.unlockingautism.org " >www.unlockingautism.org</A>

[Guest guest]

Thanks!!

Dana W

Re: [ ] Re: What NOW?

In a message dated 12/3/2002 3:48:13 PM Eastern Standard Time,

ddwisdom@... writes:

> Please let us know how to purchase them.

The final consensus was that the car flags wouldn't work because it would be

too hard to read the message.

For the bumper sticker we went with:

" No Child Left Behind " ...Unless They Have Autism.

We'll do another one too but this is a good start I think.

You'll be able to purchase them on the Moms On A Mission For Autism and The

Autism Autoimmunity website and we'll let everyone know when they're ready.

Jo

A " Mom on a Mission for Autism "

<A HREF= " www.momsonamissionforautism.org " >www.momsonamissionforautism.org</A>

SC Chapter of TAAP

<A

HREF= " http://www.autismautoimmunityproject.org " >www.autismautoimmunityproject.or\

g</A>

Representative for Unlocking Autism in South Carolina

<A HREF= " www.unlockingautism.org " >www.unlockingautism.org</A>

[Guest guest]

> , we're ordering the car flags today and bumper stickers

within the

> week. You know me, I'll never give up without a fight.

>

> Jo

> A " Mom on a Mission for Autism "

Hi Jo

I have sent you a few emails, but I never receive a reply. Maybe I

don't have your correct address, and I can't find another one.

Can you send me an email? I would like to ask you a few questions.

Thanks

Dana

http://www.danasview.net/

[Guest guest]

Have you had any blood work done yet? I would suggest that when

those results are available that you get copies and monitor your

child's bloodwork throughout the protocol. This really helped

me " see " what was wrong and also understand in my child.

best of luck

>

> We just got our appointment to see Dr G and I was wondering what

to expect

> for the first appointment. I'm excited and apprehensive since,

from what

> I've read, his approach is very different from the DAN protocol

which we've

> been following with a DAN dr we're pretty attached to (it seems to

easy to

> get attached to anyone who helps your child!). We're seeing him

at the end

> of March, and any reading you can suggest or ideas you can give me

are

> greatly appreciated. Also, how do you know if your child has

? Are

> there any signs to look for?

> Thanks!!!

>

[Guest guest]

Hi :

Sorry that the Plaquenil did not work for you. Your

doctor seems to be very thorough, and I hope that the

eye exam finds the source of your visual problems. I

am sure that once the tests are done, she will be

starting you on another DMARD, like Methotrexate, and

hopefully the next medication will help your RA

symptoms. It sometimes takes a few meds/combo of meds

to find the right ones that will help you, so be

patient. Are you also on anti-inflammatories? Hang in

there -

Kathe in CA

--- eandsspivey <ereese@...> wrote:

> Hi all. I saw my rheumy today for a check up. I've

> been on plaquenil

> for 10 weeks now and she took me off it. I'm having

> alot of symptoms

> that seem to be side effects and in the last 2 weeks

> the swelling and

> joint pain have resumed. She has ordered another

> eye exam because my

> vision has gotten really bad and an MRI and said we

> would decide what

> to do next when they are complete. What do I do

> now? I sure was

> hoping the plaquenil would take care of it since my

> inflammation is not

> extreme.

> Thanks for listening.

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

For me, methotrexate was the next step. It's considered to be " the gold

standard " of RA treatment, according to my rheumy. It's worked well for

me.

Sierra

>

> Hi all. I saw my rheumy today for a check up. I've been on

plaquenil

> for 10 weeks now and she took me off it. I'm having alot of symptoms

> that seem to be side effects and in the last 2 weeks the swelling and

> joint pain have resumed. She has ordered another eye exam because my

> vision has gotten really bad and an MRI and said we would decide what

> to do next when they are complete. What do I do now? I sure was

> hoping the plaquenil would take care of it since my inflammation is

not

> extreme.

> Thanks for listening.

>

>