Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Chris Whatever you do - do not stop taking your medications if that be glivec or any other drug that has been prescribed without speaking to your specialist. Certainly will stop side effects from the drugs - but you will have more serious side effects from the condition. To make good decisions based you have to have base knowledge and be well rested and fed healthily. There is the saying you are what you eat. You sound like you are not managing and that will have serious consequences on your health and family interactions. Have you thought about counselling or someone to support you with some time management issues That is why the Leukamia Foundations around the globe were formed in part to be a support network. They are only a phone call away. Tiredness - well why would not you be tired. That is what glivec will be helping you with. - You are not alone with the tiredness and fatigue I always have the view that Tiredness is just a tap on the shoulder to make you rest while your body is healing - it is a survival mechanism. Tired - stop. Remember your bloods are working really hard so it is like you are running a marathon each day - your body is working that hard - even marathoners have to rest Once your bloods come down to within the normal range and improve to CCR and even further south to PCRU your energy will come back Even now - I call myself having an ENERGY BANK - whereby there are deposits and withdrawals - if too many withdrawals you have to deposit something like rest - eating well - managing your life a little better This is a small tap on the shoulder to be grateful that you have been diagnosed so How about putting up your hand and saying ME TIME You must decide when is tiredness part of the condition or drug impacts and when is tiredness caused by stress or burning candles at both ends or just because ........ . or as an example When first diagnosed I found it hard to walk up the train stations ramps and stairs so would have to take the escalators now that I am PCRU I find it hard to walk up the train stations ramps and stairs so take the escalators because it is easier - So you make choices based on your health and attitude Keep as in good health as you can be and as you become healthier you change the attitude from patient to client (my words) - I am no longer see myself as a patient but a client and this has freed me up so much in speaking to health professionals and other aspects of my life. You will be fine just listen to your body, and rest as your body is going thru alot. Sue (Aussie) Quote Link to comment Share on other sites More sharing options...
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