CEliac Disease

[Guest guest]

Al,

Good news! Is this controlled by diet and/or medication? Maybe this will

answer some of those questions that needed to be so desperately answered.

The GI doc will probably have even more answers for you and should take away

any and all doubts that you may have.

Now, try to have a nice pain free evening!!!!

Debs in FL

[Guest guest]

Oh Alan, I'm so sorry to hear that. On the other hand, like you said it is

better than some of the alternatives. Five diseases! It seems like with

autoimmune problems, you take one step forward then two backward.

I'm going through my " pity party " day today, and you're welcome to join me.

My self-pity is a result of the continuing chest wall pain. As if it wasn't

enough to have such joint pain. I really had hoped this would be resolved

by now. I have so much I need to do, and I'm sick of taking pain meds just

to be able to function normally.

Don't you avoid gluten with Celiac Disease? I've been on a wheat-free,

gluten-free diet before, and it really wasn't that bad. There are many

people who claim it helps with the joint pain as well. I tried it for about

4 months, but I didn't see much improvement in my RA.

No need to apologize for your absence of late. We all know what it's like

to need to go off and focus on ourselves to get through a health situation.

We've certainly missed you and hope you'll be feeling better soon.

We'll have to start adding some cabana girls to entice you back. When Lucy

is feeling up to it, I think I'm going to head down there and we'll have

open auditions for both cabana sexes. Add some new faces. I think we all

need to be spoiled by the pool right about now. Just close your eyes ---

imagine the calypso music in the background, coupled with the laughing of

many friends in the distance. Lying on a chaise lounge chair being fanned

by the cabana person of your choice, while another massages whatever body

part is giving you a problem at this moment. A third has a drink on a tray,

filled with ice. It's not hot out, just a nice 83 degrees, but as you sip

your tall cold drink, your cares and concerns all seem miles away.

Sometimes it's nice to indulge in a little visualization!

In all seriousness, Al, I'll be sending prayers that you're on the road to

recovery soon.

Much love always,

Carol

[ ] Celiac Disease

Hi Everyone,

Just heard from my rheumy and it looks like I may have Celiac

Disease. I have to see a gastro doctor next Wednesday and have to

reschedule my CT scans. I guess 5 diseases wasn't enough already...

That would definitely explain the weight loss and is better than some

alternative diseases. I am just feeling pretty run down by it all.

I hope everyone is doing good. Sorry for not posting much lately. I

just want to get this behind me one way or the other.

My love to all,

Al

[Guest guest]

Hi Al...I don't know much about Celiac disease, but I do know it is

better than some of the alternatives. I just hope you get feeling

better soon. You've been run through the mill lately.

Love & Hope & Hugs & Prayers....

Tess

[Guest guest]

Hi Tess,

Thank you. Yes, it is better than some of the alternatives. It is

controlled by a gluten free diet which is fine by me. It would also

explain the weight loss and a few other problems I am having.

I hope you are doing well.

Much love,

Al

> Hi Al...I don't know much about Celiac disease, but I do know it is

> better than some of the alternatives. I just hope you get feeling

> better soon. You've been run through the mill lately.

>

> Love & Hope & Hugs & Prayers....

>

> Tess

[Guest guest]

Hi Carol,

Thank you for the kind message. I may have to join you on the pity

party. I am getting so tired of all of this. Every year it seems I

have a new disease crop up. It really wears me down. I do know

however, that I won't stay down for long.

I am so sorry to hear about your chest pain. If I could wish or pray

it away, I would in a heartbeat. Please try and hang in there and

know it will get better eventually. taking pain meds to get through

the day can't be any fun. I'm praying for you.

Yes, you avoid gluten with Celiac Disease. I love wheat but will

definitely let it go if this is what I have. When I compare it to

what I could have I feel I got out easy if you know what I mean.

The cabana girl imagery is simply divine. Thank you.

Love and hugs,

Al

[Guest guest]

Hi Debs,

How are you dear? I am sorry I haven't posted to you personally in a

while but my thoughts and prayers are always of you. I hope you are

finding some relief.

Yes, Celiac Disease is controlled mostly by diet. You have to stiop

eating foods that contain gluten, a protein. It's mostly in wheat and

rye products.

I see the GI doctor on Wednesday of next week and am hoping he can

make some sense of it all.

Take care and much love,

Al

[Guest guest]

Dear , I'm very sorry to hear of your problem. I have not had your problem but I have had as a consequence from implants an Irritable bowel syndrome and the leaky gut syndrome, and chronic diarehha. I did very quick research on your condition and it seems like an immune response, I beleave could have been brought on my the implant rupture. It is supposedly a genetic problem however, I beleave implants work to trigger our weaknesses. I really do. Here is what I copied for you. Good luck. this should pass once you have removal and restore the inflammation in your intestines. I can tell you many of us have had intestinal problems.

Immune System Cells May Trigger Food Allergies and Gastrointestinal Inflammation

See your ad here!

T-Shirts:

Nature Immunology 2, 353 - 360 (April 2001)

Celiac.com 04/12/2001 - According to an article published in the April issue of Nature Immunology, Dr. Marc Rothenberg and colleagues at the Children's Hospital Medical Center in Cincinnati, Ohio performed a series of experiments on mice which led them to the conclusion that white blood cells called eosinophils could be the cause of many food allergies and gastrointestinal inflammation. The researchers believe that the eosinophil cells, which are present throughout the body, mistakenly identify food proteins as germs in individuals with food allergies. When the intestinal lining of an allergic person is exposed to an allergen, a substance called eotaxin is released by the cells lining the intestine, which causes the eosinophil cells and other immune cells to attack them and release powerful proteins that destroy the surrounding tissues and cause eosinophilic inflammation.

The results of this study are unique because this is the first time eosinophils cells have been implicated in causing allergies, even though scientists have known for some time that they were present in great numbers at the sites of inflammation caused by reactions to food. The implication of this study is the possible development of drugs that stop this reaction from occurring, and thus prevent digestive inflammation and destruction that occurs when people with food allergies eat foods to which they are allergic. These results put scientists one step further in understanding how and why the digestive system is attacked in certain individuals, and a possible means of one day controlling the process.Love, shannon_892000 <shannon_892000@...> wrote:

Hello.I've been sick for a while after having one of my saline implants deflate. Recently I found out that I have celiac disease. I never had any symptoms of this before my implant burst. Did this happen to anybody else?

[Guest guest]

Dear ,

Thank you for the information. I have had my implants out, but i

still need to detox I guess. I wish I had known all of this before.

I did not keep my implants or have tests done on them. I am worried

and will have to do more reading. I have been too tired to do much

so far. Thanks again and God bless.

> Hello.

> I've been sick for a while after having one of my saline implants

> deflate. Recently I found out that I have celiac disease. I never

> had any symptoms of this before my implant burst. Did this happen

to

> anybody else?

>

>

>

>

>

>

[Guest guest]

I've known of a few women who developed celiac disease after ruptured saline implants. Eileen Swanson who started the SOSalines website is one of them. You might want to check out her website and contact her.

Pattyshannon_892000 <shannon_892000@...> wrote:

Hello.I've been sick for a while after having one of my saline implants deflate. Recently I found out that I have celiac disease. I never had any symptoms of this before my implant burst. Did this happen to anybody else?

[Guest guest]

It was told to me that I had antibodies against gliadon after implants. Meaning-Celiac disease. Mercola finds this in almost all ill patients. it is very common, actually we are very ignorant to knowlegde in the states when it comes to this. It is believed that one in 5 people in the us have this. Actually Europe countries like Italy screen all newborns for it, as about 50 % of population has this. We will soon come to that as well.

After I had them removed, and got rid of gluten for a while, it went away, and I am able to eat it again in small amounts. It is a sensitivity that often can go away, instead of a disease as most think. Once the "trigger" is found and rid of, you can get better, and build a tolerance for it.

Re: celiac disease

I've known of a few women who developed celiac disease after ruptured saline implants. Eileen Swanson who started the SOSalines website is one of them. You might want to check out her website and contact her.

Pattyshannon_892000 <shannon_892000@...> wrote:

Hello.I've been sick for a while after having one of my saline implants deflate. Recently I found out that I have celiac disease. I never had any symptoms of this before my implant burst. Did this happen to anybody else?

[Guest guest]

:

Hi. What are the symptoms of this disease and how does one get tested for it?

BTW, did you get my e-mails on the hormone questions? I sent you a private e-mail.

Thanks and take care.

LMJOSEPH PALANCA <juliejp61@...> wrote:

It was told to me that I had antibodies against gliadon after implants. Meaning-Celiac disease. Mercola finds this in almost all ill patients. it is very common, actually we are very ignorant to knowlegde in the states when it comes to this. It is believed that one in 5 people in the us have this. Actually Europe countries like Italy screen all newborns for it, as about 50 % of population has this. We will soon come to that as well.

After I had them removed, and got rid of gluten for a while, it went away, and I am able to eat it again in small amounts. It is a sensitivity that often can go away, instead of a disease as most think. Once the "trigger" is found and rid of, you can get better, and build a tolerance for it.

Re: celiac disease

I've known of a few women who developed celiac disease after ruptured saline implants. Eileen Swanson who started the SOSalines website is one of them. You might want to check out her website and contact her.

Pattyshannon_892000 <shannon_892000@...> wrote:

Hello.I've been sick for a while after having one of my saline implants deflate. Recently I found out that I have celiac disease. I never had any symptoms of this before my implant burst. Did this happen to anybody else?

[Guest guest]

No, we don’t live in a bubble — BUT we do have a full house water purifier, full house air purifier, air sanitizer, fresh air return, no carpet, eat organically and healthy, use green laundry detergent, no food additives or colorings, no lawn spray, no fabric softener, and no household cleaners. I clean with a professional steam machine and use vinegar. All that said, I cannot say we haven’t been exposed to toxins because they everywhere but we have done everything we can to minimize them — more so than most.

The literature regarding celiac disease that I have read doesn’t state the above are causes for the disease. SOME people first notice the disease following a surgery or illness, there is nothing that I have read or the doctors have shown me that indicate that an illness or surgery is NECESSARY. The only true way one can know if celiac disease was caused by a certain event is to be tested prior to the event and afterward. If one tested negative at one point in their life and then positive, you would have a pretty good idea of what set the disease off. The fact is that many celiacs go many years without having any symptoms whatsoever but are still positive for the disease.

Kenda

And absolutely no exposure to toxins, such as pesticides, food additives,

food colorings, lawn spray, fabric softener, laundry detergents, household

cleaners, air pollution, car exhaust, etc.??????????????

We kid ourselves if we think we have not had exposure to toxins. And some

are just extremely sensitive and it affects them a lot more.

Lynda

At 08:32 AM 4/13/2005, you wrote:

>We aren’t going to agree, no where have I read that an “environmental”

>trigger is “necessary”, including the information you have provided. The

>information from specialists and books I have read state that many people

>with celiac disease have had a trigger such as an illness or surgery but

>that one is not NECESSARY. In proof of that, my daughter had no trigger

>other than gluten, no surgeries and no illnesses.

>

>You know your body better than anyone else, I am not disputing the issues

>that you have or why you have them, that would be foolish on my part. I

>have never met you and I am not a doctor. The reason you have diseases or

>how they manifest is not the same for every patient and there is no golden

>rule by which to follow.

>

>If you wish to continue this conversation, I suggest we take it privately.

>

>Kenda

>

>

>Kenda, no I am not mistaken, the " trigger " is an envirnmental trigger,

>which numerous studies make examples such as viral infection or surgery.

>Do a search. I also sent another post on this. I want to set this straight

>to all the women on this site, that this is the only disease known to

>need an envornmental trigger to set it off, which then can also be

>implants, or infections casued by them, or toxic poisoning. This can be

>what triggered it in me. I said " can "

>

>The environmental trigger that begins the process is not gluten itself,

>gluten is merely what the body then reacts to, or is suspeptable to. To

>understand it, environmental triggers such as surgeries or viral

>infections, bring out a genetic suseptabilty to gluten intolerance or

>celiac disease, making the body senstive to gluten. Of course I know what

>tests are needed to rule it in, as well as for my son, I have been there.

>Done it. We are diagnosed celiac's. Of course, I have gotten better off

>gluten products, I have had to go this route now that I am showing an auto

>immnue response to it. The question I merely brought up- is the response

>triggered by implants causing a overeactive system in some individulas? I

>have tried to explain this, and dont want to argue with you on this. But

>envonmental trigger means-surgery or illness, or stress that brings on the

>disease. Reread. Or specifically ask your doctor. " What is an

>environmental trigger? "

>

> I was merely trying to help as I have done on this site for years. I

> didnt think I would be argued with by saying my implants, that were moldy

> and 9 years old " could have triggered this " , this is exactly what this

> site if for, is for information about our illnesses, to keep an open

> mind, as many of our docs will never do, and not to discredit our

> questions, Or new findings, as I have been told. I'll go with the top

> celiac specialist in the country on this one, that believes the implants

> triggered this in both me an my son, as it fits envirnmental trigger

> " criteria "

>

> >From one artilce_

> " Celiac disease--also called sprue, nontropical sprue, gluten sensitive

>enteropathy, celiac sprue, and adult celiac disease--may be discovered at

>any age. Researchers believe that a combination of genetic and

>environmental factors trigger the disease. Environmental events that may

>provoke celiac disease in those with a genetic predisposition to the

>disorder include surgery or a viral infection. "

>

>

>another-

>

>CAUSES

>

>The symptoms of celiac disease (such as diarrhea, weight loss, and

>abdominal bloating) are caused by eating foods that contain gluten. Why

>eating gluten triggers symptoms of celiac disease in some people is though

>to be related to:

>

>Genetics: Celiac disease may be inherited. Current research indicates

>celiac disease is strongly associated with a group of genes on Chromosome

>6. These genes (HLA class II antigens) are involved in the regulation of

>the body's immune response to the gluten protein fractions.

>Occurs more often in genetically susceptible Caucasians.

>Is rare in blacks, Japanese, and Chinese.

>Occurs at the same rate in male and female children.

>In adults, the disease is found twice as often in females than males.

>Occurs more often (about 5-15%) in first-degree relatives (brothers,

>sisters, parents, sons, daughters) of people who have the disease. In 70%

>of identical twin pairs, both twins have the disease. It is suggested that

>family members be tested for celiac disease.

>Immune System Problems: Problems with a person's immune system may

>increase the likelihood that eating gluten will trigger an immune

>reaction. This immune reaction may damage the lining of the small

>intestine, leading to symptoms of celiac disease.

>

>IMMUNE SYSTEM OVERVIEW:

>

>The immune system is the body's natural defense system. A health immune

>system recognizes foreign substances, such as bacteria and viruses, as

>being different from body tissues. It then attacks and destroys them. When

>working properly, the immune system allows the body to fight off infections.

>

>The immune system is also responsible for allergic reactions and

>allergies, which may occur when the immune system overreacts to a

>substance called an allergen (such as pollen, mold, chemicals, plants, and

>medications).

>

>The body's immune system consists of:

>

>Special proteins called antibodies. Antibodies attach themselves to

>foreign substances, such as bacteria or viruses, and allow other immune

>system cells to attack and destroy them.

>Special types of white blood cells produced by the lymphatic, or lymph,

>system. When the body is fighting an infection, the lymph nodes may swell

>or become hard or tender.

>Many chemicals and proteins that help kill bacteria or viruses or remove

>unknown substances from the blood or tissues.

>The health of the immune system can be affected by many factors, including

>age, medications, and medical conditions. If the immune system is weakened

>or impaired by disease or medications, the person will be at higher risk

>for infections.

>

>Sometimes the body responds to its own tissues as if they were foreign

>substances. This is called autoimmune response.

>

>

>Environment: Agents, such as bacteria, may play a role in triggering

>celiac disease in susceptible people who eat gluten. A virus that causes

>upper respiratory and stomach illness may also trigger celiac disease in

>people who are prone to developing the disease.

>

>

>Another srticle-

>

>The exact cause of celiac disease is unknown. The development of celiac

>disease requires a genetically predisposed person to be eating wheat, rye,

>oats or barley. Even if these two factors are present, celiac disease may

>not develop until a " trigger factor " starts the abnormal immune system

>response. Sometimes, a viral illness appears to be that

> " trigger. " Celiac disease causes the intestine‚s villi to become

>flattened and lose the ability to absorb nutrients. Weight loss, anemia

>and vitamin deficiencies may occur as a result of the malabsorption

>(inadequate absorption of nutrients from the intestinal tract). After

>exposure to gluten, intestinal damage may develop within a few months or

>may be postponed for several years.

>

>

>

> >From: Kenda Skaggs <kdskaggs@...> >Reply-

> >

> < > >Subject: Re: celiac

> disease trigger needed -- yes and it is gluten >Date: Tue, 12 Apr 2005

> 22:12:26 -0500 > >, > >The environmental trigger is gluten, which is

> what I said in my previous >email, not an unknown trigger such as

> silicone. You eliminate gluten, you >eliminate the damage done by Celiac

> Disease. Very few people do not respond >positively to the CD diet. You

> need to test positive for CD and react to >gluten to be a Celiac with

> symptoms. Asymptomatic celiacs do not react to >gluten. A lot of people

> with immune problems have more than one disease but >Celiac Disease is

> caused by gluten. > >There are two different ways to diagnose CD and

> there is a lot of debate >about the efficacy of both. The gluten antibody

> test can predict one’s >tendency toward CD but is not considered

> conclusive in itself. A biopsy of >the intestine is needed for a

> definitive diagnosis. People are often >misdiagnosed as having CD when

> what they really have is an intolerance to >gluten, which is not the same

> thing. > >I highlighted the areas in blue that refer to triggers. If you

> reread them, >you will see that they are referring to the trigger as

> gluten. > >Kenda > > > > Read lower: Paragraph 16- " Celiac disease is the

> only auto immnue disease > > where a trigger is known " you must have

> both an envionmental trigger as well > > as a genetic predisposition.

> > > > > Celiac disease is far more common than thought > > Monday,

> February 10, 2003 > > > > A massive, multi-center study has found that

> celiac disease is much more > > common in the United States than

> previously believed. The study, published in > > the 10 February 2003

> issue of the Archives of Internal Medicine, found that > > one out of

> every 133 Americans has celiac disease. Since only about one out of > >

> 4,700 Americans has been diagnosed, this means that 97 percent of cases

> in > > this country go undetected. > > > > The prevalence is far higher

> for those considered " at risk. " One out of 22 > > people with a

> first-degree relative has the disease, one out of 39 with a > >

> second-degree relative, and one out of 56 people with symptoms but no > >

> diagnosed relative. > > > > " Celiac disease is a much greater problem in

> the United States than has > > previously been appreciated, " write the

> researchers, who recommend screening > > of those at greatest risk, " to

> alleviate unnecessary suffering, prevent > > complications and improve

> the quality of life. " > > > > " We hope this study will change the

> perspective of the health care community > > and that physicians will be more l

>

>Opinions expressed are NOT meant to take the place of advice given by

>licensed health care professionals. Consult your physician or licensed

>health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians mislead you.

>Find out what the facts are, and make your own decisions about how to live

>a happy life and how to work for a better world. " - Linus ing,

>two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

Wow Kenda,

Did you plastic surgeon realise the measures you take

to stay healthy? . . . And he still thought implants

were right for you? . . .

If I remember right, guildelines say they are

counter-indicated for women with a history of

autoimmune disease.

Dunce!!

Hugs,

Rogene

[Guest guest]

As a celiac who experienced adult onset CD only after pregnancy,

childbirth (two C-sections) and post-nursing implants, it is my

personal belief that my pregnancies and surgeries and implants (all

within a four year period) triggered my (genetic) proclivity to

develop celiac disease.

Carrying either one of the two main celiac genes (HLA DQ 8 or DQ 2)

does not in itself cause celiac - it only predisposes one to develop

it (after exposure to a trigger).

I carry one of the main celiac genes (I did a gene test); and yet I do

not fall into common narrow ethnic categories most often sited for

celiac; I am not Irish or blue-eyed, or Italian, or Finnish. I am

Eastern European-Russian Jewish.

Like many other auto-immune diseases - diabetes comes to mind - there

may be several possible triggers for celiac disease:: illness,

exposure to a particular virus or bacterial agent, surgery, pregnancy,

accident/trauma/severe stress, or diet.

Celiac disease is also linked to other auto-immune diseases and often

co-exists with other auto-immune diseases, such as Graves/Hashimotos

thyroid disease, diabetes, lupus, rhuematoid arthritis, Sjorgens,

etc...In fact it is often the surfacing of these other auto-immune

diseases that tips off the doctor:: celiac may be afoot.

It was routinely believed (years ago) that celiac was primarily a

childhood disease, a sensitivity often " outgrown " . However, new

studies reveal that this is not so; it is now estimated 1 in 130 to

150 adults have undiagnosed gluten-sensitivity.

Here's the thing::

I find it most interesting that women are diagnosed (as adults) about

twice as much as men. 2 for 1.

Could it be that a certain two " triggers " exist for women that men do

not share?

Pregnancy and breast implants????

Moss

[Guest guest]

Thanks for your comments Moss,

IMHO, women contract autoimmune diseases more often

than men because of environmental toxins . . . those

may come in the form of cosmetics, cleaning products,

hygiene items, etc.

I would love to see what a study of people dx'd with

autoimmune illnesses turned up in the way of

environmental exposure!

I don't think I'll hold my breath waiting for a study

though!

Hugs,

Rogene

[Guest guest]

Rogene,

I agree with you! I would like to see studies done re: environmental

exposure, too. And implants and other internal devices, of course.

And...unbiased studies - ha! ;-)

hugs back,

Moss

> Thanks for your comments Moss,

>

> IMHO, women contract autoimmune diseases more often

> than men because of environmental toxins . . . those

> may come in the form of cosmetics, cleaning products,

> hygiene items, etc.

>

> I would love to see what a study of people dx'd with

> autoimmune illnesses turned up in the way of

> environmental exposure!

>

> I don't think I'll hold my breath waiting for a study

> though!

>

> Hugs,

>

> Rogene

[Guest guest]

This is why testing for celiac disease is necessary to conclusively diagnose the disease, as opposed to a gluten intolerance. The treatment for both is avoidance of gluten but a gluten intolerance will not cause the villi to die or cause cancer, as celiac disease can.

Kenda

This message is from Cochran on the SiliconeKids group. I asked

if she would share it with .

I think everyone will find it interesting. - Rogene

-------------------------------------

In my work with people, the first question asked, " are you allergic to

gluten and/or milk?' Few people are aware if they have allergy - what

I find most often is that people have varying degrees of gluten

intolerance rather than full-blown celiac disease. They have irritable

bowel with a variety of symptoms.

Milk is another true irritant to the bowel that is often overlooked.

These allergies can cause the body to crave rather than reject an

allergy irritant thus you hear people say, " oh, I love milk or bread " .

That is often a clue to the problem. For some raw milk is digestible.

The key is to identify which problem you have - many people figure it

out by the simple elimination diet test. The key is to know all the

foods in the list that contain gluten. This can be difficult because

gluten and dehydrated milk are often used in " box mix " type foods in

addition to the inordinate amount of chemicals.- especially MSG and

maltodextrins. You can go to an allergist and have a series of tests

for environmental and food allergies. Food allergies testing can be

expensive.

The issue of health in the gut begins with having healthy bacteria.

Many people have a gut full of candida/parasites and are not digesting

or absorbing their food. Gluten flattens the villi to prevents

absorption. I have found using products such as pau d' arco (taheeboo)

or ia and re-seeding the bowel with healthy bacteria key to

recovery of a healthy bowel. This is true even in the presence of

heavy metals.

Figuring out how to eat becomes especially tricky for people who eat

away from home routinely.

In my years of working with people, I have found removing the irritant

is key but healing may not spontaneously occur.

The work of D'Adamo with regard to blood types is significant.

Persons with O Blood type are often allergic to gluten. There is a

general theory that suggests the O blood type belongs to persons of

Paleo times. Our genetic code does not change - the gluten and milk

based foods were introduced into the diet post Paleo man therefore

this is the most likely person to exhibit signs. These signs can be

mental, physical or emotional.

As a school nurse, I saw children taken off milk or gluten begin to

learn and were taken off ADD/ADHD drugs.

The trans fatty acids can destroy the bowel too so determining the key

is not always simple. It is most often a combination problem therefore

takes time and thought to work out the problem.

The key is that an inflammatory process that is going on - If you have

inflammation the doctor can do a work-up to determine if you have

C-Reactive Proteins or abnormal immune response.

It now appears that most disease in the US is related to the

inflammatory process.

A key to reduction of inflammation is via the removal of of irritating

or offending carbohydrates and the addition of what are believed to be

necessary carbs. For some this is simply and for others much de-tox

must occur to get to health in the colon.

Thanks for the wonderful work you do sharing information to help others.

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

My celiac daughter is 12-years old and doesn’t have either breast implants or pregnancy. She does, however, fit the genetic profile but has never had a “trigger”. Since I never had breast implants, that wouldn’t be a trigger for her during pregnancy either.

Kenda

Could it be that a certain two " triggers " exist for women that men do

not share?

Pregnancy and breast implants????

Moss

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

I have to wonder if there is a hormonal involvement. I also wonder what the ratio of autoimmune diseases are in Asia, where menopause is unheard of.

Kenda

Thanks for your comments Moss,

IMHO, women contract autoimmune diseases more often

than men because of environmental toxins . . . those

may come in the form of cosmetics, cleaning products,

hygiene items, etc.

I would love to see what a study of people dx'd with

autoimmune illnesses turned up in the way of

environmental exposure!

I don't think I'll hold my breath waiting for a study

though!

Hugs,

Rogene

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

Moss, thank you for all your input, you put it all so simple. Greatly stated! I also believe that the "environmental triggers" in combination with the deterioting implants, was pregnancy, c-section as well and an almost 7 hour explant in three years! That was my point exactly, triggers are known to be needed,and my question was- Can implants be a major cause in that whole thing? Will it be for others/ Have many children or othe people have this expose tyo implants, that dont even know they have full blown celiac's now? I thought this was a good one to keep an eye out for its symptoms.

My family carries the genes as well, and gluten thus far, has not affected them as a trigger-whatsoever. They are negative for celiac disease, the 11 tested so far that is.

Im am dark haired, dark eyes and never was sick or in the hosptial, and highly athletic my whole life. Being so ill when implanted, was not me. Perhaps it was just too much for us. Thanks for the imput! >From: " Moss" <northside_books@...> >Reply- > >Subject: Re: celiac disease >Date: Wed, 13 Apr 2005 23:27:05 -0000 > > > >As a celiac who experienced adult onset CD only after pregnancy, >childbirth (two C-sections) and post-nursing implants, it is my >personal belief that my pregnancies and surgeries and implants (all >within a four year period) triggered my (genetic) proclivity to >develop celiac disease. > >Carrying either one of the two main celiac genes (HLA DQ 8 or DQ 2) >does not in itself cause celiac - it only predisposes one to develop >it (after exposure to a trigger). > >I carry one of the main celiac genes (I did a gene test); and yet I do >not fall into common narrow ethnic categories most often sited for >celiac; I am not Irish or blue-eyed, or Italian, or Finnish. I am >Eastern European-Russian Jewish. > >Like many other auto-immune diseases - diabetes comes to mind - there >may be several possible triggers for celiac disease:: illness, >exposure to a particular virus or bacterial agent, surgery, pregnancy, >accident/trauma/severe stress, or diet. > >Celiac disease is also linked to other auto-immune diseases and often >co-exists with other auto-immune diseases, such as Graves/Hashimotos >thyroid disease, diabetes, lupus, rhuematoid arthritis, Sjorgens, >etc...In fact it is often the surfacing of these other auto-immune >diseases that tips off the doctor:: celiac may be afoot. > >It was routinely believed (years ago) that celiac was primarily a >childhood disease, a sensitivity often "outgrown". However, new >studies reveal that this is not so; it is now estimated 1 in 130 to >150 adults have undiagnosed gluten-sensitivity. > >Here's the thing:: > >I find it most interesting that women are diagnosed (as adults) about >twice as much as men. 2 for 1. > >Could it be that a certain two "triggers" exist for women that men do >not share? > >Pregnancy and breast implants???? > >Moss > > > > > > > >

[Guest guest]

I've got another query from a brother-in-law with celiac disease, which I

see is on the list of disorders helped by LDN. Has anyone had expeience

using LDN for celiac and if so, were you then able to tolerate gluten or

did you still need to stay on the gluten free diet?

Kathie

[Guest guest]

A former roomate of mine in the apartment I got sick in was diagnosed with

celiac disease a few years later.

On 8/5/07, salzberglver3 <salzberglver3@...> wrote:

>

> I know three people who have gotten celiac disease post mold exposure.

> Does anyone know of any research on this connection? People with this

> illness cannot tolerate gluten (no wheat, no barley, no rye) because

> the villi in the small intestine have been damaged and thus no

> absorption of nutrients can take place. This can lead to possible

> malnutrition and potential death if the people aren't strict about

> avoiding gluten products.

>

>

>

[Guest guest]

Maybe it has something to do with the mold exposure causing

immunosuppression so that something breaks or is infected and the body fails

to fight it off lie it would otherwise? Then afterward, when the immue

system recovers somewhat, it starts fighting its own body by mistake because

of the time it was weakened?

[Guest guest]

I MIGHT BE WRONG, BUT I BELIEVE DR A. V. CONSTANTINI SAYS THAT CHRONS DISEASE

(ANOTHER BOWEL DISEASE AS WELL) IS FUNGAL.....

VICTORIA

PS--HE WAS HEAD OF THE WHO....WORLD HEALTH ORGANIZATION.

[] Celiac Disease

Here is an answer from a friend of mine who has Celiac regarding Celiac and

mold exposure:

Adult onset Celiac Disease is a trigger disease, meaning we carry the

possibility of having it until some stress to the body triggers it and all

of a sudden we are ill with it. I am not surprised that people have gotten

ill post mold exposure as that is a severe stress to the body. I don't

believe there is anything more to it than that as people get celiac

because of a wide range of stressors.

Weeber

>

> Celiac Disease

>

> I know three people who have

gotten celiac disease post mold exposure.

> Does anyone know of

any research on this connection?

>

> People with this

illness cannot tolerate gluten (no wheat, no barley, no

> rye)

because the villi in the small intestine have been damaged and thus

> no

> absorption of nutrients can take place. This can lead

to possible

> malnutrition and potential death if the people

aren't strict about

> avoiding gluten products.

>

>

>

>

[Guest guest]

Barb I think I am dealing with similar issues. I think mine is yeast on

stools, I can see it. Don'tknow if it is that leaky gut. I have a

puffy thing on right side. It comes and goes, seems like fluid. But it

is there most of the time now. Supposed to see a doctor in a few weeks

but I don't want to waste money and go through that stuff you drink to

make you clear out bowls. Very thin also. Seems like thinking about

going to doctors again is so stressful.

>

> I MIGHT BE WRONG, BUT I BELIEVE DR A. V. CONSTANTINI SAYS THAT CHRONS

DISEASE (ANOTHER BOWEL DISEASE AS WELL) IS FUNGAL.....

> VICTORIA

> PS--HE WAS HEAD OF THE WHO....WORLD HEALTH ORGANIZATION.

>

>