Guest guest Posted August 9, 2007 Report Share Posted August 9, 2007 , I asked doctor to do the capsule test on me but he said he had to do endoscopy by tube first and I went through that, down throat to look at stomach. I have had this several times. I had ulcers one time since I became sick and was biopsied for the usual culprit, H Pylori and test came back negative. On same day, had colonoscopy and gi doctor said everything looked normal so he was willing to do capsule test then. However the prep for the endoscopy/colonoscopy was so hard on me I am putting it off for now. For test he already did, he told me to take 4 Ducalax to start off with, then two other laxatives next day. I took only one Ducalax first day and had painful cramping and diahrea that lasted into next day. I was supposed to take two more laxatives next day but didn't and took large dose of vit C and then later magnesium and those worked but I felt so weak and sick. That is why now I can have capsule test, not sure I want to do it. I have had two endoscopies before with no trouble but before I got sick. For now I figure no use irritating my gi system when it is already having problems and for what...? My experience is they don't know what to do anyway. A D.O. is doing the Great Smokies stool test on me, so I will see what that shows as it does test for pathogens...not fungal (of course) but bacteria and will show yeasts. I don't think pathogens do not show up in every test even if present. Another problem is I eat a very low carb, low to no sugar, diet and that would keep count down anyway. Results are compared to general public which eats MOSTLY carbs and sugar so last stool test I took showed yeast but not high amounts but compared I'm sure to people who eat bread with every meals, rice, potatoes, desserts, etc as opposed to me going without all those things. Sugar to me is fruit juice once in awhile. I did eat 'normal' diet a couple days before test but I still am conservative about it and a few days doesn't compare to someone who doesn't know to avoid these things and has been eating these things all along. --- In , " ldelp84227 " <ldelp84227@...> wrote: > > Barb I think I am dealing with similar issues. I think mine is yeast on > stools, I can see it. Don'tknow if it is that leaky gut. I have a > puffy thing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 My Wife Sandy has this,keeps it under control thrught diet.. Marty --- michele horton <epifany97523@...> wrote: > My mom has this disease, she has had this all her > life, but didnt know that she had it. She suffered > terribly, and still does. Doctors in the USA are > just > learning about this, they have told my mom that it's > her nerves, that it's in her mind, and that there is > nothing they can do but give her steroids. > > Finally she found out what she had through the > internet looking up her symptoms, she goes to her > doc > and shows him and he says that he never heard of it, > its more common in europe. > > Her symptoms were GERD, blotches on her skin like > leaporsy, itchy, terrible sores, bloating, she hurt > real bad, couldnt go to work in public. > > And all from not being able to digest " gluten " ..read > more: > > What is Celiac Disease? > Celiac disease is an autoimmune digestive disease > that > damages the villi of the small intestine and > interferes with absorption of nutrients from food. > What does this mean? > > > Celiac disease is triggered by consumption of the > protein called gluten, which is found in wheat, > barley > and rye. > > When people with celiac disease eat foods containing > gluten, their immune system responds by damaging the > fingerlike villi of the small intestine. When the > villi become damaged, the body is unable to absorb > nutrients into the bloodstream, which can lead to > malnourishment. > > Celiac disease is also known as celiac sprue, > nontropical sprue, and gluten-sensitive enteropathy. > > Researchers have determined that celiac disease is a > genetic condition, meaning that it is inherited. In > some cases, celiac becomes active or is triggered by > events such as surgery, pregnancy, childbirth, viral > infection, or severe emotional stress. > > Roughly one out of every 133 Americans has celiac > disease, but 97% remain undiagnosed. This means that > almost three million Americans have celiac disease > and > only about 100,000 know they have it. > > Left untreated, people with celiac disease can > develop > further complications such as other autoimmune > diseases, osteoporosis, thyroid disease, and cancer. > > > There are a number of medical problems that are > associated with undiagnosed celiac disease including > cancer, osteoporosis, diabetes Type 1, thyroid > problems and reproductive health issues. > Learn more about diseases related to celiac disease. > > > > What are the symptoms? > The symptoms of celiac disease vary amongst > different > people. Some patients develop symptoms as early in > life, while others feel healthy far into adulthood. > > > Symptoms of celiac disease may or may not occur in > the > digestive system. For example, one person might have > diarrhea and abdominal pain, while another person > has > irritability or depression. In fact, irritability is > one of the most common symptoms in children. > > Some of the most common symptoms of celiac disease > include: > > > Bloating or Gas > Diarrhea Constipation Fatigue > Itchy Skin Rash > Tingling/Numbness Pale Mouth Sores > Joint Pain > > Delayed Growth > Poor Weight Gain > Thin Bones > Infertility > > Headaches > Depression Irritability Discolored Teeth > > > > > Anemia, delayed growth, and weight loss are signs of > malnutrition. Malnutrition is a serious problem for > anyone, but particularly for children because they > need adequate nutrition to develop properly. Failure > to thrive during childhood development is a common > indicator of celiac. > > > Some people with celiac disease may not have > symptoms. > This is known as asymptomatic celiac disease. The > undamaged part of their small intestine is able to > absorb enough nutrients to prevent symptoms. > However, > people without symptoms are still at risk for the > complications of celiac disease. > > > > How is celiac disease diagnosed? > Accurately diagnosing celiac disease can be quite > difficult largely because the symptoms often mimic > those of other diseases including irritable bowel > syndrome, Chron's's disease, ulcerative colitis, > diverticulosis, intestinal infections, chronic > fatigue > syndrome, and depression. > > To gain a proper diagnosis of celiac disease, a > physician will order the following blood tests: > > Total IgA > IgA antitissue transglutaminase (tTG) > IgA antiendomysial antibody immunofluorescence (EMA) > > If IgA is deficient, IgG tTG test should also be > ordered. At the discretion of the doctor, > antigliaden > IgG can also be ordered. > **It is important to continue eating a normal, > gluten-containing diet before being tested for > celiac. > If the blood tests and symptoms indicate celiac, a > physician may suggest a biopsy of the lining of the > small intestine to confirm the diagnosis. > > For more information about celiac disease screening, > please visit Quest Diagnostics. Although test names > may vary from those listed above, they are testing > the > same antibodies and are the same test. > > > > What is the treatment? > The only treatment for celiac disease is a lifelong > gluten-free diet. A gluten-free diet means avoiding > all foods that contain wheat (including spelt, > triticale, and kamut), rye, and barley. > > Despite these restrictions, people with celiac > disease > can eat a well-balanced diet with a variety of > foods, > including bread and pasta. For example, instead of > wheat flour, people can use potato, rice, soy, or > bean > flour. Or, they can buy gluten-free bread, pasta, > and > other products from specialty food companies. > > The gluten-free diet is a lifetime requirement for > people with celiac disease. Eating any gluten, no > matter how small an amount, can damage the > intestine. > This is true for anyone with the disease, including > people who do not have noticeable symptoms. > > Following a gluten-free diet may seem daunting at > first, but, with a little creativity, anyone can > make > delicious gluten-free meals! NFCA's monthly > newsletter > features decadent gluten-free recipes that anyone > can > make in a home kitchen. > > For example, plain meat, fish, rice, fruits, and > vegetables do not contain gluten, so people with > celiac disease can eat as much of these foods as > they > like. > > > Brown Rice Flour Guar Gum Potato Starch > === message truncated === Spiritual freedom is my birthright. I am a free thinker. I am able to rise above mental prejudices and stereotypes of others. I am a free thinker. Nobody and nothing can manipulate me or deceive me. I am a free thinker. I freely choose truth and love. Today, I embrace a greater degree of spiritual freedom. ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi Marty, My mom has it so bad that she has to be so stricked that even the cosmetics she uses she calls the companies and asks if its gluten free, she keeps a log on companies that she calls. Kraft (cheese products) is mostly gluten free, if it says so on the package, they have a CEO that has celiac. Now more companies are putting on their products " gluten free " . It is a pain in the arse, you cant go to restaraunts, the only one she is able to go to is the Outback steak house, they are the only ones that have a gluten free menu. She uses a mix that she found at the health food store for baking with called " Aunt patty's " , I buy this too, cause I like the way baked good come out. I got tested for the celiac disease a few yrs back, and I was negative, but once in a while I get an itchy break out which looks like what my mom has gotten, but not that bad, they say the test really isnt that acurate. Thanks for sharing LUV Michele --- Marty Cline <stompingelk@...> wrote: > My Wife Sandy has this,keeps it under control > thrught > diet.. > Marty > --- michele horton <epifany97523@...> wrote: > > > My mom has this disease, she has had this all her > > life, but didnt know that she had it. She suffered > > terribly, and still does. Doctors in the USA are > > just > > learning about this, they have told my mom that > it's > > her nerves, that it's in her mind, and that there > is > > nothing they can do but give her steroids. > > > > Finally she found out what she had through the > > internet looking up her symptoms, she goes to her > > doc > > and shows him and he says that he never heard of > it, > > its more common in europe. > > > > Her symptoms were GERD, blotches on her skin like > > leaporsy, itchy, terrible sores, bloating, she > hurt > > real bad, couldnt go to work in public. > > > > And all from not being able to digest > " gluten " ..read > > more: > > > > What is Celiac Disease? > > Celiac disease is an autoimmune digestive disease > > that > > damages the villi of the small intestine and > > interferes with absorption of nutrients from food. > > What does this mean? > > > > > > Celiac disease is triggered by consumption of the > > protein called gluten, which is found in wheat, > > barley > > and rye. > > > > When people with celiac disease eat foods > containing > > gluten, their immune system responds by damaging > the > > fingerlike villi of the small intestine. When the > > villi become damaged, the body is unable to absorb > > nutrients into the bloodstream, which can lead to > > malnourishment. > > > > Celiac disease is also known as celiac sprue, > > nontropical sprue, and gluten-sensitive > enteropathy. > > > > Researchers have determined that celiac disease is > a > > genetic condition, meaning that it is inherited. > In > > some cases, celiac becomes active or is triggered > by > > events such as surgery, pregnancy, childbirth, > viral > > infection, or severe emotional stress. > > > > Roughly one out of every 133 Americans has celiac > > disease, but 97% remain undiagnosed. This means > that > > almost three million Americans have celiac disease > > and > > only about 100,000 know they have it. > > > > Left untreated, people with celiac disease can > > develop > > further complications such as other autoimmune > > diseases, osteoporosis, thyroid disease, and > cancer. > > > > > > There are a number of medical problems that are > > associated with undiagnosed celiac disease > including > > cancer, osteoporosis, diabetes Type 1, thyroid > > problems and reproductive health issues. > > Learn more about diseases related to celiac > disease. > > > > > > > > What are the symptoms? > > The symptoms of celiac disease vary amongst > > different > > people. Some patients develop symptoms as early in > > life, while others feel healthy far into > adulthood. > > > > > > Symptoms of celiac disease may or may not occur in > > the > > digestive system. For example, one person might > have > > diarrhea and abdominal pain, while another person > > has > > irritability or depression. In fact, irritability > is > > one of the most common symptoms in children. > > > > Some of the most common symptoms of celiac disease > > include: > > > > > > Bloating or Gas > > Diarrhea Constipation Fatigue > > Itchy Skin Rash > > Tingling/Numbness Pale Mouth Sores > > Joint Pain > > > > Delayed Growth > > Poor Weight Gain > > Thin Bones > > Infertility > > > > Headaches > > Depression Irritability Discolored Teeth > > > > > > > > > > Anemia, delayed growth, and weight loss are signs > of > > malnutrition. Malnutrition is a serious problem > for > > anyone, but particularly for children because they > > need adequate nutrition to develop properly. > Failure > > to thrive during childhood development is a common > > indicator of celiac. > > > > > > Some people with celiac disease may not have > > symptoms. > > This is known as asymptomatic celiac disease. The > > undamaged part of their small intestine is able to > > absorb enough nutrients to prevent symptoms. > > However, > > people without symptoms are still at risk for the > > complications of celiac disease. > > > > > > > > How is celiac disease diagnosed? > > Accurately diagnosing celiac disease can be quite > > difficult largely because the symptoms often mimic > > those of other diseases including irritable bowel > > syndrome, Chron's's disease, ulcerative colitis, > > diverticulosis, intestinal infections, chronic > > fatigue > > syndrome, and depression. > > > > To gain a proper diagnosis of celiac disease, a > > physician will order the following blood tests: > > > > Total IgA > > IgA antitissue transglutaminase (tTG) > > IgA antiendomysial antibody immunofluorescence > (EMA) > > > > If IgA is deficient, IgG tTG test should also be > > ordered. At the discretion of the doctor, > > antigliaden > > IgG can also be ordered. > > **It is important to continue eating a normal, > > gluten-containing diet before being tested for > > celiac. > > If the blood tests and symptoms indicate celiac, a > > physician may suggest a biopsy of the lining of > the > > small intestine to confirm the diagnosis. > > > > For more information about celiac disease > screening, > > please visit Quest Diagnostics. Although test > names > > may vary from those listed above, they are testing > > the > > same antibodies and are the same test. > > > > > > > > What is the treatment? > > The only treatment for celiac disease is a > lifelong > > gluten-free diet. A gluten-free diet means > avoiding > > all foods that contain wheat (including spelt, > > triticale, and kamut), rye, and barley. > > > > Despite these restrictions, people with celiac > === message truncated === ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 it runs in the family... outback you say,Sandy does not eat meat,at least not red meat//I like outback when we can aford to go there Marty --- michele horton <epifany97523@...> wrote: > Hi Marty, > > My mom has it so bad that she has to be so stricked > that even the cosmetics she uses she calls the > companies and asks if its gluten free, she keeps a > log > on companies that she calls. > > Kraft (cheese products) is mostly gluten free, if it > says so on the package, they have a CEO that has > celiac. Now more companies are putting on their > products " gluten free " . > > It is a pain in the arse, you cant go to > restaraunts, > the only one she is able to go to is the Outback > steak > house, they are the only ones that have a gluten > free > menu. > > She uses a mix that she found at the health food > store > for baking with called " Aunt patty's " , I buy this > too, > cause I like the way baked good come out. > > I got tested for the celiac disease a few yrs back, > and I was negative, but once in a while I get an > itchy > break out which looks like what my mom has gotten, > but > not that bad, they say the test really isnt that > acurate. > > Thanks for sharing > > LUV > Michele > --- Marty Cline <stompingelk@...> wrote: > > > My Wife Sandy has this,keeps it under control > > thrught > > diet.. > > Marty > > --- michele horton <epifany97523@...> wrote: > > > > > My mom has this disease, she has had this all > her > > > life, but didnt know that she had it. She > suffered > > > terribly, and still does. Doctors in the USA are > > > just > > > learning about this, they have told my mom that > > it's > > > her nerves, that it's in her mind, and that > there > > is > > > nothing they can do but give her steroids. > > > > > > Finally she found out what she had through the > > > internet looking up her symptoms, she goes to > her > > > doc > > > and shows him and he says that he never heard of > > it, > > > its more common in europe. > > > > > > Her symptoms were GERD, blotches on her skin > like > > > leaporsy, itchy, terrible sores, bloating, she > > hurt > > > real bad, couldnt go to work in public. > > > > > > And all from not being able to digest > > " gluten " ..read > > > more: > > > > > > What is Celiac Disease? > > > Celiac disease is an autoimmune digestive > disease > > > that > > > damages the villi of the small intestine and > > > interferes with absorption of nutrients from > food. > > > What does this mean? > > > > > > > > > Celiac disease is triggered by consumption of > the > > > protein called gluten, which is found in wheat, > > > barley > > > and rye. > > > > > > When people with celiac disease eat foods > > containing > > > gluten, their immune system responds by damaging > > the > > > fingerlike villi of the small intestine. When > the > > > villi become damaged, the body is unable to > absorb > > > nutrients into the bloodstream, which can lead > to > > > malnourishment. > > > > > > Celiac disease is also known as celiac sprue, > > > nontropical sprue, and gluten-sensitive > > enteropathy. > > > > > > Researchers have determined that celiac disease > is > > a > > > genetic condition, meaning that it is inherited. > > In > > > some cases, celiac becomes active or is > triggered > > by > > > events such as surgery, pregnancy, childbirth, > > viral > > > infection, or severe emotional stress. > > > > > > Roughly one out of every 133 Americans has > celiac > > > disease, but 97% remain undiagnosed. This means > > that > > > almost three million Americans have celiac > disease > > > and > > > only about 100,000 know they have it. > > > > > > Left untreated, people with celiac disease can > > > develop > > > further complications such as other autoimmune > > > diseases, osteoporosis, thyroid disease, and > > cancer. > > > > > > > > > There are a number of medical problems that are > > > associated with undiagnosed celiac disease > > including > > > cancer, osteoporosis, diabetes Type 1, thyroid > > > problems and reproductive health issues. > > > Learn more about diseases related to celiac > > disease. > > > > > > > > > > > > What are the symptoms? > > > The symptoms of celiac disease vary amongst > > > different > > > people. Some patients develop symptoms as early > in > > > life, while others feel healthy far into > > adulthood. > > > > > > > > > Symptoms of celiac disease may or may not occur > in > > > the > > > digestive system. For example, one person might > > have > > > diarrhea and abdominal pain, while another > person > > > has > > > irritability or depression. In fact, > irritability > > is > > > one of the most common symptoms in children. > > > > > > Some of the most common symptoms of celiac > disease > > > include: > > > > > > > > > Bloating or Gas > > > Diarrhea Constipation Fatigue > > > Itchy Skin Rash > > > Tingling/Numbness Pale Mouth Sores > > > Joint Pain > > > > > > Delayed Growth > > > Poor Weight Gain > > > Thin Bones > > > Infertility > > > > > > Headaches > > > Depression Irritability Discolored Teeth > > > > > > > > > > > > > > > Anemia, delayed growth, and weight loss are > signs > > of > > > malnutrition. Malnutrition is a serious problem > > for > > > anyone, but particularly for children because > they > > > need adequate nutrition to develop properly. > > Failure > === message truncated === Spiritual freedom is my birthright. I am a free thinker. I am able to rise above mental prejudices and stereotypes of others. I am a free thinker. Nobody and nothing can manipulate me or deceive me. I am a free thinker. I freely choose truth and love. Today, I embrace a greater degree of spiritual freedom. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Hi, I am so glad you wrote! I have been tested and yes I have it. The interesting thing is my mom thinks I have had it since I was little. She use to tell me I was sensitive to food, had leaky gut, etc... I have to wonder if I may not of developed Lupus, RA and a host of others. I am currently trying to get gluten out all together. There is a gluten free grocery store in Chicago as does Trader Joes and Whole Foods carrry all types of great gluten free foods! Let me know what happens with you. I live in a small town so its a bit hard to find all the foods. elle On Oct 13, 2008, at 4:52 PM, ~ Kami ~ wrote: > I have been reading with great interest about gluten free diets and > came across Celiac Disease and it has me wondering..... Has anyone > here been diagnosed with Celiac Disease in addition to their RA? > > *~ Kami ~* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I have celiac disease. I found out a year ago and have been gluten free ever since. There is a group that can help you. Search sillyaks in the group search. > > > I have been reading with great interest about gluten free diets and > > came across Celiac Disease and it has me wondering..... Has anyone > > here been diagnosed with Celiac Disease in addition to their RA? > > > > *~ Kami ~* > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I have tested positive for celiac disease thru a blood test and will now have an upper endoscopy next week. Does anyone know if Gleevec contains glutens? I have e mailed Dr. Mauro, and am waiting his his reply. I just thought that I woud throw the question out to all of you. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 , At least you know it could be Celiac, and this gluten problem plaques most of us in the USA and especially in Europe. Most of our children in the USA who are obese, are children who have the gluten problem, yet, most Physician, and or Pediatrics do not know that most of the problems are due to our fatten processed foods in the USA products. My daughter and I have had this problem for many years, and I purchase many varieties of gluten-free foods, from many gluten areas. What I found utilizing gluten-free bread, pizza, and even pancake mixes, was there were too much sugar or salt contained in the mixes, and if you buy each ingredient separately and make your own homemade gluten-free products it is a trial and error, because one needs to add more liquids in each batter, and or substitute other things to enable one to consume them. As my daughter gets older, we found that most of the products we purchased in a box, was not necessary, as it was no longer important to consume how schools set up pizza parties for every event. I hope you find an answer about Gleevec and if does contain gluten, please email me and let me know? Someone once informed us on this site, a specific place where the ingredients of Gleevec could be found. Perhaps you could inquiry this through Tracey and or Lottie. I don't know where you live, however in Canada there is Kinmicnick Foods from Montreal, Canada, which is a gluten-free bakery. In the past, when we would order in the USA we would get it baked fresh and shipped, with all the gluten-free breads donuts, brownies, and even bread crumbs, everything was so delicious. They would even set up deals where one could do a trial package of several of their specials cost only $25.00. Today, due to many circumstances especially in the USA we currently have no choices but to purchase frozen. Who needs to eat frozen? So, we do not purchase them anymore. If you need to question more items or foods that you do not know if gluten is contained, start reading your labels upon your purchase. The Celiac Foundation has many website for you to look into, as far as finding foods that suit your needs. Everything has gluten contained, so if you have been diagnosis with this, you will find out 2 things, you either have it, or you have a sensitivity, which would also state to eliminate any white gluten, or anything containing bleached wheat. If you live in an area that has a public library, and you are a card holder, there are books in most public library which contains recipes however, if you consume lunch meats all contain nitrates and gluten and are very unhealthy to consume. Good luck on your endeavors in receiving your diagnosis from the testings, and keep me posted on what is learned. Happiness comes in abundance! Dory Doggie ________________________________ From: Orenstein <scrappygirl123@...> Sent: Wednesday, February 4, 2009 8:34:30 AM Subject: [ ] CEliac Disease I have tested positive for celiac disease thru a blood test and will now have an upper endoscopy next week. Does anyone know if Gleevec contains glutens? I have e mailed Dr. Mauro, and am waiting his his reply. I just thought that I woud throw the question out to all of you. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 As you may know because you seem pretty well-informed, there are two possible problems with wheat - celiac is a problem with the starches of the grain while another kind of sensitivity is reactive to the proteins in the grain. Houston Nutraceuticals sells enzyme blends for both problems, but crohn's disease (which could be involved) I've read is a feedback loop involving iron and hydroxyl radicals that can be fixed with DMSO, which gets rid of the hydroxyl radicals and restores the balance. You can read this and see what you think. http://www.newtreatments.org/dmso.php I got my DMSO from www.myvitanet.com - you'll want to get it in glass if you decide to try it - plastic and solvents don't mix, imho. > > Hi, > > I am new to this site, so would appreciate any info. anyone > could provide me. I'm looking for nutritional support of people who might think like I do, or to even correct me if I do not have good information. I think that some of you may understand where I am coming from. I > tried a couple of times to get diagnosed for Celiac disease and was > told I didn't have it. However, as it turns out, I may not have been > eating enough gluten at the time to get a reaction from conventional > testing procedures. So, I recently went to another lab, which is > highly rated by many non-conventional medical practitioners (but also > maligned by conventional practioners) and was diagnosed with > sensitivity to wheat gluten. > > If anyone knows better, please > correct me if I am wrong, but as I am beginning to understand it, the > real disease is gluten sensitivity. This manifests itself in different > ways with different people; Celiac Disease, auto-immune disorders, > Dermatitis Herpetiformis, and lots of other supposed diseases are > actually the symptoms of gluten sensitivity. I have read that if the > gluten is sprouted or fermented it could be OK as these processes help > to break down the gluten. In theory that sounds good, but I'm not sure > how well that holds out in practice, but may be fine for people who do > not have extensive damage to their health from eating gluten on a long > term basis. > > One problem I see is that it seems to me that people who were diagnosed > a long time ago, or who began working in this area along time ago may > have out dated information and do not at all seem open to new > information. They have found something that works for some and earns > them a living so there is no need to go on. There only seems to be a > few people trying to put things together and see things from a larger > perspective. > > I > have tried to get involved in support groups in this area, and it seems > to me they have fairly poor nutritional information. Their meetings are like feeding frenzies to try the newest gluten free products on > the market, which, while they may be glutten free, judging from the > ingredients, most are neither real food nor edible and NOT something I > want to put in my body. Since these groups do not have good > information on nutrition, it also leaves them prey to companies trying > to pushing all sorts of cheap, unhealthy ingredients in their products; > soy, tvp, etc.. I tried to get gluten free recipes from several people > in these groups and some of them NEVER cook!! They buy everything > prepackaged. > > The point to these meetings to me really seems to > be how to get a junk food carb fix without the glutten reaction, never > mind having a healthy diet. As I understand it, knowing some > anthropology, we do not even need to eat grains. You can eat good > nutritious meals eating meat, fruit, vegetables, and healthy oils. You > can have nutritious grains as a part of your meals, but they must be > sprouted or fermented. Most of my frends, while they do not eat the > gluten free junk food, they eat your regular junk food. So, I am at a > loss to find supportive people wanting to eat a healthy diet. > > One > idea I think I need to get out of my own head is that it is possible to > get a copy of some product I like, but just be gluten free. I've been > disappointed because its not the same texture, taste etc. Rather than > use chemical additives and fake food particles to achieve a good gluten > free knockoff, I'd rather develop new tastes and have something that's > healthy and tastes good for what it is. That's easier said than done, > though. I think my one big weakness is danish. > > So, I am trying to eat properly prepared grains, when I do have them, but mostly meat, fruit and vegetables. I will be looking forward to anyone's > response. > > Sincerely, > > Gayle > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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