c-diff

[Guest guest]

Dear Group,

I am back home recuperating from c-diff as most of you are aware by now.

Little did I know when I posted the article on the subject that I would become a

victim to it. None of us are immune. I experienced unbelievable pain and

nausea. What drove me to go to the hospital was the constant diarrhea and

vomiting, I could keep nothing down. I spent 9 days in " lock down " mode where I

was not even allowed to walk down the halls.

I heard c-diff mentioned by the ER doctor, but there were no tests run at

the time, so I was not diagnosed until a day or so later. I was treated with

Flora-Q, Phlagyl, Dilaudid (2-1/2 times stronger than any opiod), Demerol and

Morphine. The one thing I remember was being in a room closed off with a sign

on my door that I was neutropenic and 3 other notices pasted on my door to read

before entering. I also spent the holidays for the most part, alone. I made

Jimmy leave to be available for the carpenter renovating my kitchen, and to go

and be with the family, he couldn't do anything for me. I was given

transfusions in the middle of the night because my blood counts had crashed. My

SKI 606 was taken away and as many times as I asked if anyone called MDACC, I

never got a clear cut answer because no one called. Little did the nurse know

that one of the meds given me every night was like cement in my colon and I

suffered the consequences. He was only following orders.

The following information, in addition to what has already been posted,

comes from an excellent source - Web MD and I think it very important that we

all become acquainted with the name and the source of this horrible disease:

http://www.webmd.com/news/20080530/c-diff-epidemic-what-you-must-know?page=3

A recent report shows that adult C. diff hospitalizations doubled between 2000

and 2005 to about 300,000 hospitalizations a year. That's more hospitalizations

than are seen with MRSA, which sends about 126,000 Americans to the hospital

each year.There are probably half a million U.S. cases of C. diff infection each

year.

And yes, it is an epidemic: The infection rate is going up by about 10% a year.

But the death rate is going up even faster, says a Zilberberg, MD, adjunct

professor at the University of Massachusetts, Amherst, and president of the

EviMed Research Group. There are actually three ongoing C. diff epidemics. One

is in hospitals. Another is in the community. And a third is in livestock.

All C. diff strains are resistant to many of the antibiotics normally used to

treat other infections. In fact, that's the problem. C. diff most often strikes

people whose intestinal flora have been disrupted by antibiotic treatment. But

most C. diff strains remain sensitive to Flagyl and vancomycin, the drugs

normally used to treat this infection. (Am I lucky, or what, I am highly

allergic to Vancomycin.) That left only one drug, Flagyl. When the NAP1

strain -- which has been around for at least 30 years -- developed

fluoroquinolone resistance. This resistance, plus what Mc calls the

strain's " hypertoxin production, " may explain why this strain has taken off.

a.. In 2005, Canadian researchers bought 53 packages of beef and seven packages

of veal from five grocery stores in Ontario and in Quebec. One out of five

packages carried C. diff. Two-thirds of the C. diff isolates were similar to the

NAP1 strain. C. diff isolates from human patients are quite similar to isolates

found in pigs and cattle. Some of the pig isolates are almost indistinguishable

from human isolates.

a.. I want to thank all of you who called and sent cards, I am humbled by your

sincerity and concern for my well-being. You are all a large part of my CML

life, throwing me a lifeline at every crisis. There is no way I can respond to

everyone, but I do want to acknowledge what part you played in keeping my

spirits up. Thank you. I can only reciprocate by returning my love to everyone

who prayed for me and sent their best wishes.

a.. xoxoxoxo

a.. Lottie

[Guest guest]

Oh, Lottie, my God, I am SO GLAD you are back at home!! And I am *so sorry* you

had to endure all this pain and suffering.

What you report about C-diff is really staggering. I had no idea.

From: lotajam@...

Date: Fri, 2 Jan 2009 12:21:07 -0600

Subject: [ ] c-diff

Dear Group,

I am back home recuperating from c-diff as most of you are aware by now.

Little did I know when I posted the article on the subject that I would become a

victim to it. None of us are immune. I experienced unbelievable pain and

nausea. What drove me to go to the hospital was the constant diarrhea and

vomiting, I could keep nothing down. I spent 9 days in " lock down " mode where I

was not even allowed to walk down the halls.

I heard c-diff mentioned by the ER doctor, but there were no tests run at the

time, so I was not diagnosed until a day or so later. I was treated with

Flora-Q, Phlagyl, Dilaudid (2-1/2 times stronger than any opiod), Demerol and

Morphine. The one thing I remember was being in a room closed off with a sign

on my door that I was neutropenic and 3 other notices pasted on my door to read

before entering. I also spent the holidays for the most part, alone. I made

Jimmy leave to be available for the carpenter renovating my kitchen, and to go

and be with the family, he couldn't do anything for me. I was given

transfusions in the middle of the night because my blood counts had crashed. My

SKI 606 was taken away and as many times as I asked if anyone called MDACC, I

never got a clear cut answer because no one called. Little did the nurse know

that one of the meds given me every night was like cement in my colon and I

suffered the consequences. He was only following orders.

The following information, in addition to what has already been posted, comes

from an excellent source - Web MD and I think it very important that we all

become acquainted with the name and the source of this horrible disease:

http://www.webmd.com/news/20080530/c-diff-epidemic-what-you-must-know?page=3

A recent report shows that adult C. diff hospitalizations doubled between 2000

and 2005 to about 300,000 hospitalizations a year. That's more hospitalizations

than are seen with MRSA, which sends about 126,000 Americans to the hospital

each year.There are probably half a million U.S. cases of C. diff infection each

year.

And yes, it is an epidemic: The infection rate is going up by about 10% a year.

But the death rate is going up even faster, says a Zilberberg, MD, adjunct

professor at the University of Massachusetts, Amherst, and president of the

EviMed Research Group. There are actually three ongoing C. diff epidemics. One

is in hospitals. Another is in the community. And a third is in livestock.

All C. diff strains are resistant to many of the antibiotics normally used to

treat other infections. In fact, that's the problem. C. diff most often strikes

people whose intestinal flora have been disrupted by antibiotic treatment. But

most C. diff strains remain sensitive to Flagyl and vancomycin, the drugs

normally used to treat this infection. (Am I lucky, or what, I am highly

allergic to Vancomycin.) That left only one drug, Flagyl. When the NAP1

strain -- which has been around for at least 30 years -- developed

fluoroquinolone resistance. This resistance, plus what Mc calls the

strain's " hypertoxin production, " may explain why this strain has taken off.

a.. In 2005, Canadian researchers bought 53 packages of beef and seven packages

of veal from five grocery stores in Ontario and in Quebec. One out of five

packages carried C. diff. Two-thirds of the C. diff isolates were similar to the

NAP1 strain. C. diff isolates from human patients are quite similar to isolates

found in pigs and cattle. Some of the pig isolates are almost indistinguishable

from human isolates.

a.. I want to thank all of you who called and sent cards, I am humbled by your

sincerity and concern for my well-being. You are all a large part of my CML

life, throwing me a lifeline at every crisis. There is no way I can respond to

everyone, but I do want to acknowledge what part you played in keeping my

spirits up. Thank you. I can only reciprocate by returning my love to everyone

who prayed for me and sent their best wishes.

a.. xoxoxoxo

a.. Lottie

[Guest guest]

Lottie, it's great to hear you are recuperating.

--

Kristie Skipper

skipper3@...

-------------- Original message --------------

From: " Lottie Duthu " <lotajam@...>

Dear Group,

I am back home recuperating from c-diff as most of you are aware by now. Little

did I know when I posted the article on the subject that I would become a victim

to it. None of us are immune. I experienced unbelievable pain and nausea. What

drove me to go to the hospital was the constant diarrhea and vomiting, I could

keep nothing down. I spent 9 days in " lock down " mode where I was not even

allowed to walk down the halls.

I heard c-diff mentioned by the ER doctor, but there were no tests run at the

time, so I was not diagnosed until a day or so later. I was treated with

Flora-Q, Phlagyl, Dilaudid (2-1/2 times stronger than any opiod), Demerol and

Morphine. The one thing I remember was being in a room closed off with a sign on

my door that I was neutropenic and 3 other notices pasted on my door to read

before entering. I also spent the holidays for the most part, alone. I made

Jimmy leave to be available for the carpenter renovating my kitchen, and to go

and be with the family, he couldn't do anything for me. I was given transfusions

in the middle of the night because my blood counts had crashed. My SKI 606 was

taken away and as many times as I asked if anyone called MDACC, I never got a

clear cut answer because no one called. Little did the nurse know that one of

the meds given me every night was like cement in my colon and I suffered the

consequences. He was only following orders.

The following information, in addition to what has already been posted, comes

from an excellent source - Web MD and I think it very important that we all

become acquainted with the name and the source of this horrible disease:

http://www.webmd.com/news/20080530/c-diff-epidemic-what-you-must-know?page=3

A recent report shows that adult C. diff hospitalizations doubled between 2000

and 2005 to about 300,000 hospitalizations a year. That's more hospitalizations

than are seen with MRSA, which sends about 126,000 Americans to the hospital

each year.There are probably half a million U.S. cases of C. diff infection each

year.

And yes, it is an epidemic: The infection rate is going up by about 10% a year.

But the death rate is going up even faster, says a Zilberberg, MD, adjunct

professor at the University of Massachusetts, Amherst, and president of the

EviMed Research Group. There are actually three ongoing C. diff epidemics. One

is in hospitals. Another is in the community. And a third is in livestock.

All C. diff strains are resistant to many of the antibiotics normally used to

treat other infections. In fact, that's the problem. C. diff most often strikes

people whose intestinal flora have been disrupted by antibiotic treatment. But

most C. diff strains remain sensitive to Flagyl and vancomycin, the drugs

normally used to treat this infection. (Am I lucky, or what, I am highly

allergic to Vancomycin.) That left only one drug, Flagyl. When the NAP1 strain

-- which has been around for at least 30 years -- developed fluoroquinolone

resistance. This resistance, plus what Mc calls the strain's " hypertoxin

production, " may explain why this strain has taken off.

a.. In 2005, Canadian researchers bought 53 packages of beef and seven packages

of veal from five grocery stores in Ontario and in Quebec. One out of five

packages carried C. diff. Two-thirds of the C. diff isolates were similar to the

NAP1 strain. C. diff isolates from human patients are quite similar to isolates

found in pigs and cattle. Some of the pig isolates are almost indistinguishable

from human isolates.

a.. I want to thank all of you who called and sent cards, I am humbled by your

sincerity and concern for my well-being. You are all a large part of my CML

life, throwing me a lifeline at every crisis. There is no way I can respond to

everyone, but I do want to acknowledge what part you played in keeping my

spirits up. Thank you. I can only reciprocate by returning my love to everyone

who prayed for me and sent their best wishes.

a.. xoxoxoxo

a.. Lottie

[Guest guest]

WELCOME HOME LOTTIE.....

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)  

From: Lottie Duthu <lotajam@...>

Subject: [ ] c-diff

" CML " < >

Date: Friday, January 2, 2009, 1:21 PM

Dear Group,

I am back home recuperating from c-diff as most of you are aware by now.

Little did I know when I posted the article on the subject that I would become a

victim to it. None of us are immune. I experienced unbelievable pain and

nausea. What drove me to go to the hospital was the constant diarrhea and

vomiting, I could keep nothing down. I spent 9 days in " lock down " mode where I

was not even allowed to walk down the halls.

I heard c-diff mentioned by the ER doctor, but there were no tests run at the

time, so I was not diagnosed until a day or so later. I was treated with

Flora-Q, Phlagyl, Dilaudid (2-1/2 times stronger than any opiod), Demerol and

Morphine. The one thing I remember was being in a room closed off with a sign

on my door that I was neutropenic and 3 other notices pasted on my door to read

before entering. I also spent the holidays for the most part, alone. I made

Jimmy leave to be available for the carpenter renovating my kitchen, and to go

and be with the family, he couldn't do anything for me. I was given

transfusions in the middle of the night because my blood counts had crashed. My

SKI 606 was taken away and as many times as I asked if anyone called MDACC, I

never got a clear cut answer because no one called. Little did the nurse know

that one of the meds given me every night was like cement in my colon and I

suffered the consequences. He was

only following orders.

The following information, in addition to what has already been posted, comes

from an excellent source - Web MD and I think it very important that we all

become acquainted with the name and the source of this horrible disease:

http://www.webmd. com/news/ 20080530/ c-diff-epidemic- what-you- must-know?

page=3

A recent report shows that adult C. diff hospitalizations doubled between 2000

and 2005 to about 300,000 hospitalizations a year. That's more hospitalizations

than are seen with MRSA, which sends about 126,000 Americans to the hospital

each year.There are probably half a million U.S. cases of C. diff infection each

year.

And yes, it is an epidemic: The infection rate is going up by about 10% a year.

But the death rate is going up even faster, says a Zilberberg, MD, adjunct

professor at the University of Massachusetts, Amherst, and president of the

EviMed Research Group. There are actually three ongoing C. diff epidemics. One

is in hospitals. Another is in the community. And a third is in livestock.

All C. diff strains are resistant to many of the antibiotics normally used to

treat other infections. In fact, that's the problem. C. diff most often strikes

people whose intestinal flora have been disrupted by antibiotic treatment. But

most C. diff strains remain sensitive to Flagyl and vancomycin, the drugs

normally used to treat this infection. (Am I lucky, or what, I am highly

allergic to Vancomycin.) That left only one drug, Flagyl. When the NAP1

strain -- which has been around for at least 30 years -- developed

fluoroquinolone resistance. This resistance, plus what Mc calls the

strain's " hypertoxin production, " may explain why this strain has taken off.

a.. In 2005, Canadian researchers bought 53 packages of beef and seven packages

of veal from five grocery stores in Ontario and in Quebec. One out of five

packages carried C. diff. Two-thirds of the C. diff isolates were similar to the

NAP1 strain. C. diff isolates from human patients are quite similar to isolates

found in pigs and cattle. Some of the pig isolates are almost indistinguishable

from human isolates.

a.. I want to thank all of you who called and sent cards, I am humbled by your

sincerity and concern for my well-being. You are all a large part of my CML

life, throwing me a lifeline at every crisis. There is no way I can respond to

everyone, but I do want to acknowledge what part you played in keeping my

spirits up. Thank you. I can only reciprocate by returning my love to everyone

who prayed for me and sent their best wishes.

a.. xoxoxoxo

a.. Lottie

[Guest guest]

Hi Lottie,

I'm so glad you are home and recovering from c-diff. I prayed for your

recovery because I had c-diff last May, and I know how difficult it is. I was

so

sick with it, and in an isolated room like you. Mine came after being

hospitalized for a strep infection following surgery. I was hospitalized on

intravenous iv, then caught the c-diff, then went into kidney failure. It was

quite an ordeal and I wasn't sure I'd survive for a while. I was weak and had

lost quite a bit of weight. It took two months before I felt normal again.

Get lots of rest and stay out of those hospitals!

in NY

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

CML Mama-

We are so glad to have you back. Thanks to Bobby and others we were able to

track your progress. Welcome back home to the list. Take good care.

Lots of love and hugs to you and Jimmy in the new year.

Chi

> From: Lottie Duthu <lotajam@...>

> Subject: [ ] c-diff

> " CML " < >

> Date: Friday, January 2, 2009, 10:21 AM

> Dear Group,

> I am back home recuperating from c-diff as most of you

> are aware by now. Little did I know when I posted the

> article on the subject that I would become a victim to it.

> None of us are immune. I experienced unbelievable pain and

> nausea. What drove me to go to the hospital was the

> constant diarrhea and vomiting, I could keep nothing down.

> I spent 9 days in " lock down " mode where I was not

> even allowed to walk down the halls.

>

> I heard c-diff mentioned by the ER doctor, but there

> were no tests run at the time, so I was not diagnosed until

> a day or so later. I was treated with Flora-Q, Phlagyl,

> Dilaudid (2-1/2 times stronger than any opiod), Demerol and

> Morphine. The one thing I remember was being in a room

> closed off with a sign on my door that I was neutropenic and

> 3 other notices pasted on my door to read before entering. I

> also spent the holidays for the most part, alone. I made

> Jimmy leave to be available for the carpenter renovating my

> kitchen, and to go and be with the family, he couldn't

> do anything for me. I was given transfusions in the middle

> of the night because my blood counts had crashed. My SKI

> 606 was taken away and as many times as I asked if anyone

> called MDACC, I never got a clear cut answer because no one

> called. Little did the nurse know that one of the meds

> given me every night was like cement in my colon and I

> suffered the consequences. He was only following orders.

>

> The following information, in addition to what has

> already been posted, comes from an excellent source - Web

> MD and I think it very important that we all become

> acquainted with the name and the source of this horrible

> disease:

>

> http://www.webmd.com/news/20080530/c-diff-epidemic-what-you-must-know?page=3

> A recent report shows that adult C. diff hospitalizations

> doubled between 2000 and 2005 to about 300,000

> hospitalizations a year. That's more hospitalizations

> than are seen with MRSA, which sends about 126,000 Americans

> to the hospital each year.There are probably half a million

> U.S. cases of C. diff infection each year.

> And yes, it is an epidemic: The infection rate is going up

> by about 10% a year. But the death rate is going up even

> faster, says a Zilberberg, MD, adjunct professor at the

> University of Massachusetts, Amherst, and president of the

> EviMed Research Group. There are actually three ongoing C.

> diff epidemics. One is in hospitals. Another is in the

> community. And a third is in livestock.

>

> All C. diff strains are resistant to many of the

> antibiotics normally used to treat other infections. In

> fact, that's the problem. C. diff most often strikes

> people whose intestinal flora have been disrupted by

> antibiotic treatment. But most C. diff strains remain

> sensitive to Flagyl and vancomycin, the drugs normally used

> to treat this infection. (Am I lucky, or what, I am highly

> allergic to Vancomycin.) That left only one drug, Flagyl.

> When the NAP1 strain -- which has been around for at least

> 30 years -- developed fluoroquinolone resistance. This

> resistance, plus what Mc calls the strain's

> " hypertoxin production, " may explain why this

> strain has taken off.

>

> a.. In 2005, Canadian researchers bought 53 packages of

> beef and seven packages of veal from five grocery stores in

> Ontario and in Quebec. One out of five packages carried C.

> diff. Two-thirds of the C. diff isolates were similar to the

> NAP1 strain. C. diff isolates from human patients are quite

> similar to isolates found in pigs and cattle. Some of the

> pig isolates are almost indistinguishable from human

> isolates.

> a.. I want to thank all of you who called and sent cards, I

> am humbled by your sincerity and concern for my well-being.

> You are all a large part of my CML life, throwing me a

> lifeline at every crisis. There is no way I can respond to

> everyone, but I do want to acknowledge what part you played

> in keeping my spirits up. Thank you. I can only

> reciprocate by returning my love to everyone who prayed for

> me and sent their best wishes.

> a.. xoxoxoxo

> a.. Lottie

>

>

>

[Guest guest]

My Granny has come down with MRSA (Methicillin Resistant Staph) in her foot. Her

doctor gave her some Sulfur antibiotics until the test results came in showing

MRSA and they made her so sick and I took her to the emergency room to be

admitted into the hospital ,yesterday and they decided to give her a new

antibiotic by mouth, that treats MRSA and she feels much better today. Her foot

is going down already. These antibiotics don't make her nauseated either. From

what I understand, this antibiotic can have some other bad side effects. Just

keep her in your prayers.

--

Kristie Skipper

skipper3@...

-------------- Original message --------------

From: nchando@...

Hi Lottie,

I'm so glad you are home and recovering from c-diff. I prayed for your

recovery because I had c-diff last May, and I know how difficult it is. I was so

sick with it, and in an isolated room like you. Mine came after being

hospitalized for a strep infection following surgery. I was hospitalized on

intravenous iv, then caught the c-diff, then went into kidney failure. It was

quite an ordeal and I wasn't sure I'd survive for a while. I was weak and had

lost quite a bit of weight. It took two months before I felt normal again.

Get lots of rest and stay out of those hospitals!

in NY

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

HI, My son had C-diff a few years ago, before we even knew he had lyme. I feel

sorry for your daughter. It truly is a horrible infection. My son had it for

about a month, and was on the verge of hospitlaization. I didn't know he had it

for quite some time either. I think he was 6 when he had it. I had to spoon him

a tbsp of gatorade every 15 minutes around the clock so he wouldn't dehydrate.

I will keep your daughter in my prayers

Hugs

Judy

From: likeaspeckofpepper <sandsure@...>

Subject: [ ] c-diff

Date: Tuesday, February 15, 2011, 5:56 AM

 

Good morning everyone. I was wondering if anyone has had experience clearing

c-diff. My daughter is on flagyl and it has been almost a week and no change.

Call in to llmd, but while I wait for a call back any information or support is

appreciated. It took about 3 weeks before she was diagnosed. She has just a

slight fever (98.7 rather than her normal 97.0). I am so worried for her. Thank

you.

[Guest guest]

I've recently read about probiotic enemas. I don't know much about c-diff

but I wonder if that would help?

--

*♥´¨)

¸.•♥ ´¸.•*♥´¨)¸.♥•*¨)

(¸.•´ (¸ ;.♥•´ Tricia ♥