Re: Jeanny's daughter, wow that is a answer

[Guest guest]

Jeanny:

When I was on Gleevec, I could not tolerate alcohol as it

made me feel sicker and in a lot of pain. However, now

that I am on Tasigna, I tolerate alcohol better, but I still

am not much of a drinker.

It really would help your daughter if she could speak with

someone or email them and there are some young people

that she could relate to more. Going through the issues and

doubts of Leukemia can best be discussed with someone that

is going through the same thing. I found some friends early on

that really helped me. I hope she is able to find someone through

the Internet, by text or phone. There are some wonderful

organizations that can help her find someone including:

LLS First Responder Program

CancerCare.com

LAF.org

As far as the other comments, I think someone was trying to

defend you for helping her. Try not to let it bother you, we

are here to help in anyway possible.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

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In a message dated 1/19/2009 7:15:29 P.M. Eastern Standard Time,

jeanny-f@... writes:

ok , wowo,, I was not saying she was on booz and all, she is a very nice

girl, I was just saying that she did not want to talk to people about her

cancer, and that she still have a lot of pain , she is on sprycel and I was

asking

, if it was normal to have such pain .her back her legs and harm ect,, ar

always in pain and headack ect... yes I have ask that last year about booz and

sprycel but you did give me a answer , and lots of you did, and since then she

have not drink, thank god and I did say thank you to all of you for

answering my letter,, yes I do help her and the baby a lot, but that is because

I

want to be around them as much as I can, I haven't put any more letters in here

saying she was a alcoolic or a bad mom, so were are u taking that she is not

a good mother? my little skyler is very spoiled and is having a very good

life, I love my kids to death and I love my grand kid, they are the world to

me,

and my daughter natasha, she loves me to death, she woudent do any thing to

hurt me or hurt that child, we are very very close , she doesent go to bars

any more, and if she do , she goes with me and we drink wather and she sings

at karioki nights, were from a little little town of 9000 people , you have

sugested for her to go to cancer places , to talk about leukemia and stuff,

well she cant , there is none here, we would have to go to timmins for that ,

and that is 2 hours from here,

p,s, wen I have ask last year about my daughter , if she could drink, no one

have pounded us, they were all nice about it,, saying the truth about the

matter , that she had to choose, to die or to live a longer life , and she did

do the right thing,, she decided to have the longer life, to be here for me

and her son, and she was crying wen saying it, and she promise that she will

never touch another alcoolic drink in her life, and she never did, So please

don't put my daughter down or my grand son before you know exactly what have

happen, the question I have ask , have nothing to do with this letter you have

send ,

sincerely jeanny

From: Lottie Duthu

Sent: Monday, January 19, 2009 2:25 PM

CML

Subject: [ ] Jeanny's daughter

That girl needed to have someone turn her over on their knee and give her a

good spanking. She's only 20, has a child, no job and living off her mother

who works in a store, so you know she's living marginally. I don't think there

is a dainty way to talk to her, but you have a good idea of what cancer is

like and she should get her head screwed on right. Do you remember when Jeanny

wrote and asked if her 19 year old daughter could drink while on BMS? I

think she got a good pounding then from several of us, but it's not only her

daughter, it's her letting her daughter off the hook for everything. Probably

sleeps half the day and goes out clubbing at night. If she wanted to do that,

she should not have put herself in a position to have a child. Some girls who

have babies out of wedlock make wonderful mothers and put their lives on hold

to take care of the baby and others like the woman in Florida, Cayla ,

kill them. That is the most egerious crime you can commit, to kill your own

child. Killing a child with partial birth abortions is equally as criminal.

You can't kill a cat or a dog, but you can kill a baby that is being born

live???? Turns my stomach.

xoxoxox

Lottie

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

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[Guest guest]

ok , wowo,, I was not saying she was on booz and all, she is a very nice girl, I

was just saying that she did not want to talk to people about her cancer, and

that she still have a lot of pain , she is on sprycel and I was asking , if it

was normal to have such pain .her back her legs and harm ect,, ar always in pain

and headack ect... yes I have ask that last year about booz and sprycel but you

did give me a answer , and lots of you did, and since then she have not drink,

thank god and I did say thank you to all of you for answering my letter,, yes I

do help her and the baby a lot, but that is because I want to be around them as

much as I can, I haven't put any more letters in here saying she was a alcoolic

or a bad mom, so were are u taking that she is not a good mother? my little

skyler is very spoiled and is having a very good life, I love my kids to death

and I love my grand kid, they are the world to me, and my daughter natasha, she

loves me to death, she woudent do any thing to hurt me or hurt that child, we

are very very close , she doesent go to bars any more, and if she do , she goes

with me and we drink wather and she sings at karioki nights, were from a little

little town of 9000 people , you have sugested for her to go to cancer places ,

to talk about leukemia and stuff, well she cant , there is none here, we would

have to go to timmins for that , and that is 2 hours from here,

p,s, wen I have ask last year about my daughter , if she could drink, no one

have pounded us, they were all nice about it,, saying the truth about the matter

, that she had to choose, to die or to live a longer life , and she did do the

right thing,, she decided to have the longer life, to be here for me and her

son, and she was crying wen saying it, and she promise that she will never touch

another alcoolic drink in her life, and she never did, So please don't put my

daughter down or my grand son before you know exactly what have happen, the

question I have ask , have nothing to do with this letter you have send ,

sincerely jeanny

From: Lottie Duthu

Sent: Monday, January 19, 2009 2:25 PM

CML

Subject: [ ] Jeanny's daughter

That girl needed to have someone turn her over on their knee and give her a good

spanking. She's only 20, has a child, no job and living off her mother who works

in a store, so you know she's living marginally. I don't think there is a dainty

way to talk to her, but you have a good idea of what cancer is like and she

should get her head screwed on right. Do you remember when Jeanny wrote and

asked if her 19 year old daughter could drink while on BMS? I think she got a

good pounding then from several of us, but it's not only her daughter, it's her

letting her daughter off the hook for everything. Probably sleeps half the day

and goes out clubbing at night. If she wanted to do that, she should not have

put herself in a position to have a child. Some girls who have babies out of

wedlock make wonderful mothers and put their lives on hold to take care of the

baby and others like the woman in Florida, Cayla , kill them. That is the

most egerious crime you can commit, to kill your own child. Killing a child with

partial birth abortions is equally as criminal. You can't kill a cat or a dog,

but you can kill a baby that is being born live???? Turns my stomach.

xoxoxox

Lottie

[Guest guest]

Oh Jeanny, So sorry you got such an email in response to your post. My

husband was diagnosed in Oct 2006 and had NO interest in talking with anyone

about it - it really shoves your mortality in your face when you have to

confront it..its normal coping. As far as having a drink here and there is

ok according to all sources..my husband had a few beers at Christmas and at

various summer picnics..really just watch the liver and being upfront with

your primary Dr who is managing the CML - many are very quick to take

Tylenol or whatever other pharm - a drink is generally not more toxic that

those - but as I said - your daughter should just give a head's up..the

thing is she is young and can have a good life if the side effects will

subside so SHE has to figure out how to live with CML and the drugs which

treat it.. Its such a shock when you have to deal with this at such a young

age- I know quite a few young people with CML - so I can put you or her in

touch...ranging ages from 22 - 35..let me know

My husband had quite severe side effects for the first year..now after 2

years, there are a few side effects he could do without but he has learned

to live with most...Oh as well - headaches are very common on sprycel

...sorry to re-ask - how long has she been on it?

-shalyn

From: [mailto: ] On Behalf Of jeanny

Sent: January-19-09 4:15 PM

Subject: Re: [ ] Jeanny's daughter, wow that is a answer

ok , wowo,, I was not saying she was on booz and all, she is a very nice

girl, I was just saying that she did not want to talk to people about her

cancer, and that she still have a lot of pain , she is on sprycel and I was

asking , if it was normal to have such pain .her back her legs and harm

ect,, ar always in pain and headack ect... yes I have ask that last year

about booz and sprycel but you did give me a answer , and lots of you did,

and since then she have not drink, thank god and I did say thank you to all

of you for answering my letter,, yes I do help her and the baby a lot, but

that is because I want to be around them as much as I can, I haven't put any

more letters in here saying she was a alcoolic or a bad mom, so were are u

taking that she is not a good mother? my little skyler is very spoiled and

is having a very good life, I love my kids to death and I love my grand kid,

they are the world to me, and my daughter natasha, she loves me to death,

she woudent do any thing to hurt me or hurt that child, we are very very

close , she doesent go to bars any more, and if she do , she goes with me

and we drink wather and she sings at karioki nights, were from a little

little town of 9000 people , you have sugested for her to go to cancer

places , to talk about leukemia and stuff, well she cant , there is none

here, we would have to go to timmins for that , and that is 2 hours from

here,

p,s, wen I have ask last year about my daughter , if she could drink, no one

have pounded us, they were all nice about it,, saying the truth about the

matter , that she had to choose, to die or to live a longer life , and she

did do the right thing,, she decided to have the longer life, to be here for

me and her son, and she was crying wen saying it, and she promise that she

will never touch another alcoolic drink in her life, and she never did, So

please don't put my daughter down or my grand son before you know exactly

what have happen, the question I have ask , have nothing to do with this

letter you have send ,

sincerely jeanny

From: Lottie Duthu

Sent: Monday, January 19, 2009 2:25 PM

CML

Subject: [ ] Jeanny's daughter

That girl needed to have someone turn her over on their knee and give her a

good spanking. She's only 20, has a child, no job and living off her mother

who works in a store, so you know she's living marginally. I don't think

there is a dainty way to talk to her, but you have a good idea of what

cancer is like and she should get her head screwed on right. Do you remember

when Jeanny wrote and asked if her 19 year old daughter could drink while on

BMS? I think she got a good pounding then from several of us, but it's not

only her daughter, it's her letting her daughter off the hook for

everything. Probably sleeps half the day and goes out clubbing at night. If

she wanted to do that, she should not have put herself in a position to have

a child. Some girls who have babies out of wedlock make wonderful mothers

and put their lives on hold to take care of the baby and others like the

woman in Florida, Cayla , kill them. That is the most egerious crime

you can commit, to kill your own child. Killing a child with partial birth

abortions is equally as criminal. You can't kill a cat or a dog, but you can

kill a baby that is being born live???? Turns my stomach.

xoxoxox

Lottie