Fatigue

[Guest guest]

Well put , you put into words what most of us with CMT go thru and

feel.

Fatigue has always been my biggest factor. I cured that hurdle by going to a

wheelchair in situations where stamina is a factor. Stories like yours inspire

the rest of us, thanx for sharing.

Sparky

[Guest guest]

I have a lot of fatigue. I also have a thyroid problem that makes me tired. The

vitamin C that I take seems to have helped me ith the fatigue issue. Not as

much as I would like but I do have more energy then I used to have.

[Guest guest]

Yes, I usually feel the same way--always fatigued. After a couple of

hours of yard work or after an hour of water aerobics, I don't have

much energy left for the rest of the day. But because I have problems

breathing at night and am now using a CPAP, I avoid taking naps during

the day. I wish I had half the energy I had 20 years ago. --Joe

[Guest guest]

Dear Patti,

I would certainly follow up on your doctor's advice. I am a patient at

MDACC and see Dr. Kantajarian. He and Dr. Cortez work closely together, so I

wouldn't have a problem seeing either of them. They reduced my dose to 20 mg.

after I started because I couldn't take the side effects. There is someone else

in this group who is on 20 mg. a day and PCRU. I will let her identify herself

if she wants to respond to you. I will be going to MDACC on March 16, so it's

possible I may meet or bump into you one of these days. If you want to know how

to find me, I am always the oldest person in the room. LOL

Blessings,

Lottie

Diagnosed 7/96, agee 67

Still CHR