's vacation from Gleevec

[Guest guest]

Gosh, , you should be in the Gleevec's book of records. I know everyone

else will also be crossing their fingers that it will be permanent. I think

they have several trials initiated to test the effectiveness of long term

Gleevec patients by allowing them to stop taking it so see if their counts

remain in the normal range and they continue to be PCRU. Could this be the

future trend for some?

Does your doctor send your information to a tumor bank to follow your progress?

Our hospital has a tumor bank to record all cancers and all str recorded in a

national cancer data bank. I suppose it is also used to track the places were

most cancers are reported. Since CML is a liquid tumor, I would have to assume

that this cohart of patients are included. I'm sure it took a giant leap of

faith to agree to do this and I applaud you for doing it. Thanks for sharing

this part of your life with us.

Blessings and a good measure of peace and hope,

Lottie

[Guest guest]

Thanks for the reply. My ONC and I discussed about being a subjest

of 1 to see if this is a viable procedure for some. He was a

researcher while receiving his certifications for his specialties.

I have not ask if he is writing up what is happening, but do know

that all we are doing is being reviewed by Dr.s associated with

MD. At least the protocal is being reviewed and updated

although a study of one usually doesn't receive much notice but maybe

somewhere sometime another Doctor will remember reading this and try

it again. No medicine is best of course but no one should attempt

this without being monitored by their ONC and maybe be lucky enought

to have 2 as I do.

H.

>

> Gosh, , you should be in the Gleevec's book of records. I

know everyone else will also be crossing their fingers that it will

be permanent. I think they have several trials initiated to test the

effectiveness of long term Gleevec patients by allowing them to stop

taking it so see if their counts remain in the normal range and they

continue to be PCRU. Could this be the future trend for some?

>

> Does your doctor send your information to a tumor bank to follow

your progress? Our hospital has a tumor bank to record all cancers

and all str recorded in a national cancer data bank. I suppose it is

also used to track the places were most cancers are reported. Since

CML is a liquid tumor, I would have to assume that this cohart of

patients are included. I'm sure it took a giant leap of faith to

agree to do this and I applaud you for doing it. Thanks for sharing

this part of your life with us.

>

> Blessings and a good measure of peace and hope,

> Lottie

>

>