Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 I really think we should interview these Drs. before we pay them a penny, I wish I had the money and time and the BIG let downs that so many drs. have put me through, Hey someone out there this would be a great book?? We could call it Hang EM High. I swear that some are not real or they are like DR. SWANGO who was doing everyone in. Because of my bad attitude I basically have been treating myself, I have a DO who just gives me what I ask for, sometimes we fight about it, but he gives it to me. but I am just trying to maintain at this point. I just can't bear to go to one more Rhemuy and have test after test and have to argue, I have had afew good drs. but one died and then one retired, so I am beyond burned out. Just my view, and I am learning all the new stuff here anyway. from Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Chris- Love that name - " Hang EM High " - I think they deserve what horse theives got in the old west! I'm burnt out, too, from the disappointments fr these drs, & fr having to do all their work. Lyn ============== > I really think we should interview these Drs. before we pay them a penny, >I >wish I had the money and time and the BIG let downs that so many drs. have >put me through, Hey someone out there this would be a great book?? We could >call it Hang EM High. I swear that some are not real or they are like DR. >SWANGO who was doing everyone in. Because of my bad attitude I basically >have >been treating myself, I have a DO who just gives me what I ask for, >sometimes >we fight about it, but he gives it to me. but I am just trying to maintain >at >this point. I just can't bear to go to one more Rhemuy and have test after >test and have to argue, I have had afew good drs. but one died and then >one >retired, so I am beyond burned out. Just my view, and I am learning all the >new stuff here anyway. from Ohio > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 How long does ot take for your taste buds to return to normal? My surgery was Oct. 1st, and my mouth tastes like metal all the time. ann <ann_stargazer@...> wrote: Kimi, Great to hear that your post-op is going good. Yeah - taste bud change is definitely a good excuse to try different things - enjoy !! Wishing you a speedy recovery - take care annkimmie3_us <kimmie3_us@...> wrote: Hi, I am 4 days post-op & doing better than any other dreaded c-toma surgery I have ever had !! There are a couple new post-op experiences this time but I can hear better than ever so I figure this should be a breeze !!!!!!!!!! The worst one is food I have always loved just doesn't taste the same !! But hey, that just means I have an excuse to try lots of new stuff !!!!!!!!!!!! My main reason for posting tonight is to say Thank You again to all of you that have been so sweet & supportive to me. This is a great place to share your feelings & further educate yourself about c-toma. I don't know about alot of you but in my 35 yrs of dealing w/ this most folks shy away cause this is a problem not many are educated about. If anyone should ever like to chat my user name on messenger is kimi616. I know I have found solace in the great folks I have met on here !!!!!!!!Good Luck to all !!!!!!!!kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 , That totally depends. But hopefully the metalic taste will not last for much longer. Since my surgery I can tell whenever I'm gettig an infection or anything because I get the metalic taste. Before I hurt I have the taste, so I can really control my infections (of which I have a few) because my Doctor knows and can give me antibiotics early. As to the sense of taste in general. That could take a while, depending on if there was any nerve damage. Occassionally, and with severe c-tomas, you can loose the nerve and never taste on that side of your mouth again. (Which you cease to notice after a little bit cause your brain adapts.) But like I said, I believe that is fairly uncommon. Osburn <malissaosburn@...> wrote: How long does ot take for your taste buds to return to normal? My surgery was Oct. 1st, and my mouth tastes like metal all the time. ann <ann_stargazer@...> wrote: Kimi, Great to hear that your post-op is going good. Yeah - taste bud change is definitely a good excuse to try different things - enjoy !! Wishing you a speedy recovery - take care annkimmie3_us <kimmie3_us@...> wrote: Hi, I am 4 days post-op & doing better than any other dreaded c-toma surgery I have ever had !! There are a couple new post-op experiences this time but I can hear better than ever so I figure this should be a breeze !!!!!!!!!! The worst one is food I have always loved just doesn't taste the same !! But hey, that just means I have an excuse to try lots of new stuff !!!!!!!!!!!! My main reason for posting tonight is to say Thank You again to all of you that have been so sweet & supportive to me. This is a great place to share your feelings & further educate yourself about c-toma. I don't know about alot of you but in my 35 yrs of dealing w/ this most folks shy away cause this is a problem not many are educated about. If anyone should ever like to chat my user name on messenger is kimi616. I know I have found solace in the great folks I have met on here !!!!!!!!Good Luck to all !!!!!!!!kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 - My surgery wast Sept. 26th and my taste-buds have not returned as well. Just to let you know that you're not alone. - On Fri, 31 Oct 2003 08:07:05 -0800 (PST), Osburn wrote > How long does ot take for your taste buds to return to normal? My surgery was Oct. 1st, and my mouth tastes > like metal all the time. > > > > ann <ann_stargazer@...> wrote: > Kimi, > > Great to hear that your post-op is going good. Yeah - taste bud change is definitely a good excuse to try > different things - enjoy !! > > Wishing you a speedy recovery - take care > > ann > > kimmie3_us <kimmie3_us@...> wrote: > Hi, > > I am 4 days post-op & doing better than any other dreaded c-toma > surgery I have ever had !! > There are a couple new post-op experiences this time but I can > hear better than ever so I figure this should be a breeze !!!!!!!!!! > The worst one is food I have always loved just doesn't taste the > same !! But hey, that just means I have an excuse to try lots of new > stuff !!!!!!!!!!!! > > My main reason for posting tonight is to say Thank You again to > all of you that have been so sweet & supportive to me. > > This is a great place to share your feelings & further educate > yourself about c-toma. I don't know about alot of you but in my 35 > yrs of dealing w/ this most folks shy away cause this is a problem > not many are educated about. > > If anyone should ever like to chat my user name on messenger > is kimi616. I know I have found solace in the great folks I have met > on here !!!!!!!! > > Good Luck to all !!!!!!!! > > kimi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi , From my recent surgery Jan 9th my taste buds till aren't back 100%. The first major surgery it took a few months to come back fully (at least for me, every one varies). Jane >From: " " <purr_30@...> >Reply-cholesteatoma >cholesteatoma >Subject: Taste Buds >Date: Fri, 13 Feb 2004 04:52:12 -0000 > >Can anyone share their experience on how long it took for your taste >buds to return. > >Thanks > > > > _________________________________________________________________ Choose now from 4 levels of MSN Hotmail Extra Storage - no more account overload! http://click.atdmt.com/AVE/go/onm00200362ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hello ~ I had my surgery back on November 4, 2003 and am still having great difficulties with my taste buds. I would like to know the answer to this question also. You will always find me either with a lemon drop in my mouth or drinking lemonade. Its helps with the taste a little. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 It took me 3-4 months to regain the taste (10 months later, I can still tell that my right side of my tongue isn't as good as my left, but it doesn't bother me much (I had a Right ear operation). it seems to come back for most (at different rates) carrie > Can anyone share their experience on how long it took for your taste > buds to return. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 ---, Wow, I have had 20 plus c-toma surgeries & waiting for the taste buds to return to normal has varied.But usually they return to normal for me by about 5 to 8 months after surgery. After past surgeries food has usually tasted really bland & not good at all. But this last surgery threw me a new way. Its been 5 months & it seems my food either tastes as if a box of salt has been added or my food burns my throat as if all the hot spices known to mankind have been added !!! I don't know whats up w/ this last one but it is slowly getting better!!! Its not enough to deal w/ the c-toma & surgeries is it? No....we have to eat ucky food for awhile also!! LOL It does get better tho....just takes a little time! kimi In cholesteatoma , " " <purr_30@y...> wrote: > Can anyone share their experience on how long it took for your taste > buds to return. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 , And some people have many more tastebuds than others do. People with many taste buds are the ones with less tolerance for hot spices. I cannot eat what my kids and grandkids eat. And I could not tolerate hot spices when I was young., either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 , Based on your previous e-mail, which side is salty and what on the side of the tongue? Re: Taste > > Alice, > > I am pretty certain that we have taste buds all over our tongue (or > maybe > just the upper surface). Maybe you were referring to the side of the > brain that > interprets taste. > > I have never heard that only those implanted on the right side may have > taste involvement. I know I did , but I am implanted on the right. > > > > ________________________________________________________________ > Speed up your surfing with Juno SpeedBand. > Now includes pop-up blocker! > Only $14.95/ month - visit http://www.juno.com/surf to sign up today! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Surfin Dave wrote:- > Yes, my left taste nerve was severed during my surgery. I didn't have > any taste on the left side of my tongue for a couple of months, so I > was chewing mostly on the right side - except for foods I didn't like > :-). There was also a metallic taste for awhile. Now my taste is > normal again. That was my experience too. I hadn't been forewarned, but when it was explained to me I thought " fair enough " , and within a month or two all was well again. As others have posted, the brain is a clever beast and works its way around these things given time. Also Phil wrote:- >A good time to show off one's ability to eat raw chillis without flinching! Phil, I will have to bow to your superior experience on that one !! , Milton Keynes , UK Signup to supanet at https://signup.supanet.com/cgi-bin/signup?_origin=sigwebmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Yes, you pay for chilis one way or another. Either while you're eating them, or a few hours after. :-) I don't think I'll be downing any habeneros to show off my newfound abilities. Gerry - > > >A good time to show off one's ability to eat raw chillis without flinching! > > Phil, I will have to bow to your superior experience on that one !! > > > > , > Milton Keynes , UK > Signup to supanet at https://signup.supanet.com/cgi-bin/signup? _origin=sigwebmail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Hi! my son also has what i would consider odd taste buds. i can never guess what he'll like or not like. for a three year old to refuse chocolate and cookies but love bran muffins?! i always figured he takes after my husband who eats very strong flavors, unlike me although my son is picky about texture. does your son have texture issues? is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 Hi, Sandy - The taste stuff was always explained to me as one of the many sensory issues Josh would have. There was a time he craved really strong tastes - hot and spicy food, tart stuff, etc. Then that subsided and he can't stand anything anymore that has strong flavors. Like with a lot of the sensory issues associated with sensory integration dysfunction, things will change. What I've noticed lately is what part of Josh's tongue is affected by the taste and/or texture of food. I know, sounds weird and as if I'm incredibly anal about all of this. But, and this has happened several times over the last few weeks, I was watching him eat (easy to do since he chews with his mouth open LOL!). We had, for instance, pot roast with roasted potatoes, carrots, onions, and celery last night. If he put the food on his spoon (almost 9 years old and I can't get him to switch to a fork yet! darn fine motor skills make it really tough!) with, from the tip of the bowl end, carrots, potatoes, then meat, he ate it and chewed everything just fine. However, if he put the carrots farthest from the tip of the bowl end (thus touching more at the front of his mouth), he'd spit the carrots out! I experimented with putting the food in different orders and giving it to him to put in his own mouth - everytime carrots were farthest from the tip of the bowl, out they'd come! This has happened with several different things from fresh spinach (in a salad with a vinaigrette dressing) to eggplant to ham. Go figure!! Makes me wonder about the position of the taste buds and the sensitivities in his tongue - would this have an effect on his ability to say different letters, sounds, or words? Hhhmmm... weird but interesting! Sherry sandy lehmann <mommie2chris@...> wrote: Hi I'm wondering if anyone else out there has a child with what seems to be odd taste buds. I've been reading how people are having a hard time getting fish oils into their kids. My son loves the taste of the supplements. I can hardly get it on the spoon quick enough. I use a push pin to prick the capsules(safer than a knife for me, I'm a zlutz:)!)and he's grabbing at the spoon already. My ds(7 years old now)loves anything that tastes strong. Blue cheese, smoked salmon, dijon mustard by the spoonful. I've had a very hard time getting anything kid flavored into him. If I come at him with a bottle of tylenol kid flavor he starts screaming. I've tried thin strips for coughs and he hits and spits at me so I tried the most awful tasting cough syrup I could find and he said " more please " , you could have knocked me over with a feather...the stuff was really bad and he loved it! anyway, just wondering if anyone else is experiencing this! Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 --Hi is, Yes, has alot of texture issues. We still can't feed him chicken or meat such as steak or roast. He eats sausages(again the spicy ones)but if you give him a piece of chicken you'll find it an hour later still in his mouth! I always knew that he liked strong flavours, but lately it's been getting worse and i'm thinking that his taste buds are really off. any other person would have thrown up at the taste of buckleys cough syrup but liked it! Thanks for your response, take care Sandy - In , " alilvrs " <isHMS@...> wrote: > > Hi! > my son also has what i would consider odd taste buds. i can never > guess what he'll like or not like. for a three year old to refuse > chocolate and cookies but love bran muffins?! i always figured he > takes after my husband who eats very strong flavors, unlike me > although my son is picky about texture. does your son have texture issues? > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2007 Report Share Posted January 22, 2007 My 3 year old daughter has an odd set of taste buds. She doesnt like anything sweet. prefers meat over vegetables. wont eat unless it has mustard on it. She will take a sucker and try it but thats about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Dear I've had a funny and strange taste in my mouth since I started INF and then on to other drugs back in 2000. It's like a thick coating and I have lost my appetite for most things. I no longer crave anything. Give Sprycel a chance to show what it can do. They took me off of it, but I still think it is the best drug I ever had. Blessings and keep on keeping on, Lottie Quote Link to comment Share on other sites More sharing options...
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