Re: i need help again , please respond to this one

January 23, 2009

Jeanny

There are so many people on this sight have lived with leukemia many years

longer than that.

Only God can say exactly how long we have to live. True the nurse should not

have said any such a thing. No Doctor can predict the future much less a

secretary/friend.

You cannot live thinking oh my gosh oh my gosh.

You have to wake up every morning happy to be a live happy that you have your

daughter and grandbaby.

We all could get hit by a car, fall out of bed or jsut have a heartattack. But

you cant keep doing this to yourself.

Push all the negative thoughts out of your mind and only think positive, say

positive and do positive.

I know someone will show up on here shortly with more to say please know you and

your family are in my prayers

Anita

________________________________

From: jeanny <jeanny-f@...>

Sent: Friday, January 23, 2009 5:08:21 PM

Subject: [ ] i need help again , please respond to this one

Hi every one, im jeanny , its me again, I live in northern ontario and im french

and my daughter natasha is 20 years old with leukemia, cml,

today my daughter was talking with the secretary of the lawyer of the father of

my grand son, and she was telling my daughter every thing they had against her,

and she said that natasha doctor said that the father have to be in the child

life because in 3 to 5 years she will probably be fatal, and wen she went and

see her doctor for cancer in sudbury , they said every thing was going great and

she is only on 100 mg of sprycel and remision was just around the corner, and

then her doctor here in kap that knows nothing about cancer, said she have 3 to

5 ,,, wow that was a shocker, that secretary was not supose to say anything, she

can loose her job, but its natasha friend, and she told her any way, how can

natasha family doctor say that, dam, its been over a year im on a dipression and

im slowly getting out of it,, then some one just have to say something like

this,

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January 23, 2009

Jeanny,

If you have a problem with your plumbing, are you going to listen to

a carpenter about what he thinks about the problem? No, of course

not. While both professions are in the business of making your house

function, one function has nothing to do with the other.

The same thing goes for CML. A regular family doctor and most

regular oncologists know very little about CML and are not in any

position to advise people on it. This unfortunately doesn't stop

some of them from practicing outside of their field of expertise.

As you can see from our members, there are plenty of us who have

lived past 3-5 years. Lottie is pushing 14 years of survival and she

hasn't even come close to any type of remission yet. Bobby is

another one who has lived over 10 years with a marginal response and

Skip is our warrior who has lived more than 30 years with no

remission in all of those years. Each of these members was diagnosed

long before we had Gleevec, Sprycel and Tasigna.

Most CML doctors today are confident that the majority of people who

are diagnosed with CML in this day in age, will live out a normal

life span which is a far cry from the 3-5 years people had before the

new drugs existed.

Take care,

Tracey

dx January 2002 (which means I'm starting my 8th year)

> ________________________________

> From: jeanny <jeanny-f@...>

>

> Sent: Friday, January 23, 2009 5:08:21 PM

> Subject: [ ] i need help again , please respond to this one

>

> Hi every one, im jeanny , its me again, I live in northern ontario

and im french and my daughter natasha is 20 years old with leukemia,

cml,

> today my daughter was talking with the secretary of the lawyer of

the father of my grand son, and she was telling my daughter every

thing they had against her, and she said that natasha doctor said

that the father have to be in the child life because in 3 to 5 years

she will probably be fatal, and wen she went and see her doctor for

cancer in sudbury , they said every thing was going great and she is

only on 100 mg of sprycel and remision was just around the corner,

and then her doctor here in kap that knows nothing about cancer, said

she have 3 to 5 ,,, wow that was a shocker, that secretary was not

supose to say anything, she can loose her job, but its natasha

friend, and she told her any way, how can natasha family doctor say

that, dam, its been over a year im on a dipression and im slowly

getting out of it,, then some one just have to say something like

this,

>

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> Visit Your Group

> Finance

> It's Now Personal

>

> Guides, news,

>

> advice & more.

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> All-Bran

> Day 10 Club

>

> on

>

> Feel better with fiber.

>

> Cats Group

>

> Join a group for

>

> cat owners like you

> .

>

January 23, 2009

I am happy she is still alive, but that lawyer secretary had no right to say

such a thing, , I try to stay positive, but how can I , wen stuff like this

happen , telling my daughter she will dye in 3 to 5 years and that is why the

doctor took the father side in court,

From: anita

Sent: Friday, January 23, 2009 6:06 PM

Subject: Re: [ ] i need help again , please respond to this one