Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 thank you so so so much, all of you,, made me feel so much better, and I will read this letters to my daughter, Tracey I love your letter wen you talk about all of you that have servive this for so many years and still feel great and for many years still to come, wow, you guys are amazing, that's what the specialist said in sudbury,, that she will probably servive me,, so not to worry so much, my daughter called her doctor in sudbury today and he was pretty mad that her family doctor told the lawyers that , thanks again and god be with you all, xo From: Marcos Perreau Guimaraes Sent: Friday, January 23, 2009 8:23 PM Subject: Re: [ ] i need help again , please respond to this one Bonjour Jeanny, I strongly second Tracey. If Natasha has a good response and is in remission the odds are VERY good that she will stay that way for a lot more than 5 years. Being diagnosed with cml is scary and can be very emotional at the beginning, but there is a time where you have to make some kind of peace with it and move forward, we have only one life and it must go on. Life is full of dangers, just crossing the street. Once we are in remission for sometime cml is just one among many. Marcos. On a lighter note, I haven't heard France has any plans of invading Ontario ;-) On Fri, Jan 23, 2009 at 3:25 PM, Tracey <traceyincanada@...> wrote: > Jeanny, > > If you have a problem with your plumbing, are you going to listen to > a carpenter about what he thinks about the problem? No, of course > not. While both professions are in the business of making your house > function, one function has nothing to do with the other. > > The same thing goes for CML. A regular family doctor and most > regular oncologists know very little about CML and are not in any > position to advise people on it. This unfortunately doesn't stop > some of them from practicing outside of their field of expertise. > > As you can see from our members, there are plenty of us who have > lived past 3-5 years. Lottie is pushing 14 years of survival and she > hasn't even come close to any type of remission yet. Bobby is > another one who has lived over 10 years with a marginal response and > Skip is our warrior who has lived more than 30 years with no > remission in all of those years. Each of these members was diagnosed > long before we had Gleevec, Sprycel and Tasigna. > > Most CML doctors today are confident that the majority of people who > are diagnosed with CML in this day in age, will live out a normal > life span which is a far cry from the 3-5 years people had before the > new drugs existed. > > Take care, > Tracey > dx January 2002 (which means I'm starting my 8th year) > >> ________________________________ >> From: jeanny <jeanny-f@...> > >> >> Sent: Friday, January 23, 2009 5:08:21 PM >> Subject: [ ] i need help again , please respond to this one >> >> >> Hi every one, im jeanny , its me again, I live in northern ontario > and im french and my daughter natasha is 20 years old with leukemia, > cml, >> today my daughter was talking with the secretary of the lawyer of > the father of my grand son, and she was telling my daughter every > thing they had against her, and she said that natasha doctor said > that the father have to be in the child life because in 3 to 5 years > she will probably be fatal, and wen she went and see her doctor for > cancer in sudbury , they said every thing was going great and she is > only on 100 mg of sprycel and remision was just around the corner, > and then her doctor here in kap that knows nothing about cancer, said > she have 3 to 5 ,,, wow that was a shocker, that secretary was not > supose to say anything, she can loose her job, but its natasha > friend, and she told her any way, how can natasha family doctor say > that, dam, its been over a year im on a dipression and im slowly > getting out of it,, then some one just have to say something like > this, >> >> Recent Activity >> a.. 5New Members >> Visit Your Group >> Finance >> It's Now Personal >> >> Guides, news, >> >> advice & more. >> >> All-Bran >> Day 10 Club >> >> on >> >> Feel better with fiber. >> >> >> Cats Group >> >> Join a group for >> >> cat owners like you >> . >> >> >> Quote Link to comment Share on other sites More sharing options...
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