thank you so much robert

[Guest guest]

thanks, you made me cry of happiness, I have a hard time typing right now, I

cant see ,, lol,, but thank you from the bottom of my heart

From: ROBERTA DOYLE

Sent: Friday, January 23, 2009 7:32 PM

Subject: Re: [ ] Farewell to XL228

Hi Jeanny, no, 1 1/2 means one and a half . But I have had CML for over 13

years. I just read your other email on how long we have to live. Today there

is no death sentence when you get diagnosed with CML. Years ago, yes, today,

no. There are too many new and good drugs on the market today, and they enable

us to live long and productive years.

Your daughter will live to see her grand children, and I am sure you can have a

specialist verify this for you in a court of law if necessary. If you have a

doctor that does not agree with this, go to another. Good luck, Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's

Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 -

CCR ( in 4 weeks)

From: missymel218 <g8trdoc81@bellsouth .net>

Subject: Re: [ ] Farewell to XL228

groups (DOT) com

Date: Friday, January 23, 2009, 8:44 AM

Hey Bobby and Len,

I as sorry about the trial, I know how that can be.

Disappointing to say the least.

I have been on Tasigna since Feb 08, and I finally got MMR.

The first month can be rough, but you have dealt with worse.

I am on 800mg, 400mg in the morning and 400mg at night.

The only deal with Tasigna is you have to fast 2 hour before taking

it and not eat anything for 1 hour after. So sometimes it creates

scheduling issues. I take it at 6am and 6pm. Unfortunately, it

requires me to eat dinner later than I would like. So that may be a

contributing factor to my weight gain. Prior to taking it I was about

108lbs. and now 128lbs. But I have been off on my excerising for a

while too...LOL, which doesn't help.

ALL the best to you both,

We fight by continuing, go warriors, you are still a big inspiration

to us all.

Love and Light , Mel

>

> > From: ROBERTA DOYLE <rcd1929@... >

> > Subject: [ ] Farewell to XL228

> > " " <groups (DOT) com>

> > Date: Thursday, January 22, 2009, 2:52 PM

> > Hi, we stopped the XL trial today, it was not working. I

> > did more lab work so they can do mutation testing to see

> > what's what, I am to get labs done every two weeks and

> > wait for them to tell me what's next. I think it will

> > be Tasigna, but I thought that the last time. The Ariad

> > dose is not high enough yet for Len and me, have to wait a

> > bit longer.

> > Will keep you posted, blessings, Bobby

> >

> > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox

> > Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004

> > - Sprycel Trial/MDACC, CCR in 10 months #840 -

> > Zavie's Zero Club 09/2006 - out of CCR 04/29/08 -

> > XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks)

> >

> >