Eva

[Guest guest]

Dear Eva,

Has it been a year already. I remember when you were a newcomer. There are

many drugs you can take for depression, and perhaps there is one that will be

just right for you. It's hard to be positive when you are depressed and it is

not unusual to be when you are on TKI drugs. Like you, most people live with

it, just glad to be alive, but it would be great to have a better QOL.

Good luck. It will be the first anniversary of your re-birth. I don't remember

who coined that word, but it's one to keep in mind.

Blessings,

Lottie

[Guest guest]

Hi Eva: Sorry your still having such a problem with the liver. I have to ask

you if you have been on Tylenol for pain by any chance.

When I was clinical trial, I had to sign a release that I was informed no

Tylenol for pain. That was back in 2000, and to this day I never took Tylenol.

They put such a scare into me at that time regarding Tylenol and Gleevec

destroying the liver.

I use nothing for pain. I just cope with it. I cannot even use Ibuprofen

because my kidney doctor tells me it will destroy the kidneys.

You have all of us praying for you, and lets get the liver under control so

they can try you on a newer treatment that is available.

Maybe a new doctor too. I don't know.

God Bless You!!!

[Guest guest]

Hi Suzzie,

The debate as to whether Tylonol is OK to take with Gleevec ended for me

years ago when the question was answered by R. years ago. Here is

that post.

Zavie

From: rrockef1 [mailto:rgrock2@...]

Sent: October 9, 2003 9:02 PM

CML@

Subject: [CML] Tylenol - T

> Date: Wed, 8 Oct 2003 10:14:13 -0700 (PDT)

> From: Toole <mltoole2003@...>

> Subject: Re: Re: Insomnia/Lynn

>

> Hi ,

>

> I was told not to take Tylenol because of the drug/drug interaction with

IM.

> Is there some new thoughts on this, because I miss taking Tylenol and also

> Tylenol PM? Tylenol always worked the best for me for pain, but I've been

> told to take Motrin. Would be interested in your take, and others, on

this.

Hi ,

The reason for the fooforaw about Tylenol is that one patient, who already

had liver problems, took too much of it while on IM and died of liver

failure. It has never subsequently caused any problems, to my knowledge,

and I don't believe the big honcho CML docs recommend against it. It should

be used with caution though (one probably shouldn't take more than 6 a day,

for example), and not at all in people with any sort of liver disease.

Best,

R

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08

e-mail: zmiller@...

Tel: 613-726-1117

Tel: 561-429-3309 in Florida

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

suzzienovember

Sent: April-20-09 5:58 PM

Subject: [ ] Re: Eva

Hi Eva: Sorry your still having such a problem with the liver. I have to ask

you if you have been on Tylenol for pain by any chance.

When I was clinical trial, I had to sign a release that I was informed no

Tylenol for pain. That was back in 2000, and to this day I never took

Tylenol. They put such a scare into me at that time regarding Tylenol and

Gleevec destroying the liver.

I use nothing for pain. I just cope with it. I cannot even use Ibuprofen

because my kidney doctor tells me it will destroy the kidneys.

You have all of us praying for you, and lets get the liver under control so

they can try you on a newer treatment that is available.

Maybe a new doctor too. I don't know.

God Bless You!!!