Re: I need help, thank you so much all of you

[Guest guest]

thank you so much all of you, your letters made me feel much much better about

all this , and I did ask question , it was yesterday,, and it was good news,,

the last time we went it was 1 out of a 1000, and now its 1 in 10 000 , the

doctor said there was hardly any trase of cancer, that sprycel was working

miracles for her,, I'm so so happy, when they told us,, we started crying like

baby's, May god be with all of you,

From: carolyn_kuptz2000

Sent: Friday, February 06, 2009 7:48 PM

Subject: [ ] I need help

I am so sorry your daughter has to be one that has CML. I know when I

was first diagnosed and even today after 3 years I sometimes don't know

what to ask. When first diagnosed I was given so much information from

the Doctor I couldn't take it all in. I always wanted to know what my

blood counts were and where they were in regard to normal. I always

asked for a copy of the counts so I could compare myself. Be sure to

ask questions about the medicines and side effects. I always write

down questions and take in a list with me. If I don't I tend to forget

to ask. Some of the tests are hard for me to understand, you have to

be forceful and tell the doctor to explain in terms you can understand.

It will get better as time goes by but right now I know it can be

overwhelming. Thank goodness for the target drugs that can keep the

CML under control. Best of luck to you and your daughter. Just know

that she can lead a fairly normal life. Some members have gone on to

have children.

Carolyn_Kuptz2000@...

DX 11-05

On Sprycel 20mg bid

[Guest guest]

Hi Jeanny and Natasha,

That's wonderful news ! Congratulations to both of you, that's the way

to start 2009.

Marcos.

On Sat, Feb 7, 2009 at 10:50 AM, jeanny <jeanny-f@...> wrote:

> thank you so much all of you, your letters made me feel much much better

> about all this , and I did ask question , it was yesterday,, and it was good

> news,, the last time we went it was 1 out of a 1000, and now its 1 in 10 000

> , the doctor said there was hardly any trase of cancer, that sprycel was

> working miracles for her,, I'm so so happy, when they told us,, we started

> crying like baby's, May god be with all of you,

>

> From: carolyn_kuptz2000

> Sent: Friday, February 06, 2009 7:48 PM

>

> Subject: [ ] I need help

>

> I am so sorry your daughter has to be one that has CML. I know when I

> was first diagnosed and even today after 3 years I sometimes don't know

> what to ask. When first diagnosed I was given so much information from

> the Doctor I couldn't take it all in. I always wanted to know what my

> blood counts were and where they were in regard to normal. I always

> asked for a copy of the counts so I could compare myself. Be sure to

> ask questions about the medicines and side effects. I always write

> down questions and take in a list with me. If I don't I tend to forget

> to ask. Some of the tests are hard for me to understand, you have to

> be forceful and tell the doctor to explain in terms you can understand.

> It will get better as time goes by but right now I know it can be

> overwhelming. Thank goodness for the target drugs that can keep the

> CML under control. Best of luck to you and your daughter. Just know

> that she can lead a fairly normal life. Some members have gone on to

> have children.

> Carolyn_Kuptz2000@...

> DX 11-05

> On Sprycel 20mg bid

>

>

[Guest guest]

Jeanny, that is absolutely fabulous news, congratulations, relax and celebrate,

Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)  

From: jeanny <jeanny-f@...>

Subject: Re: [ ] I need help, thank you so much all of you

Date: Saturday, February 7, 2009, 1:50 PM

thank you so much all of you, your letters made me feel much much

better about all this , and I did ask question , it was yesterday,, and it was

good news,, the last time we went it was 1 out of a 1000, and now its 1 in 10

000 , the doctor said there was hardly any trase of cancer, that sprycel was

working miracles for her,, I'm so so happy, when they told us,, we started

crying like baby's, May god be with all of you,

From: carolyn_kuptz2000

Sent: Friday, February 06, 2009 7:48 PM

groups (DOT) com

Subject: [ ] I need help

I am so sorry your daughter has to be one that has CML. I know when I

was first diagnosed and even today after 3 years I sometimes don't know

what to ask. When first diagnosed I was given so much information from

the Doctor I couldn't take it all in. I always wanted to know what my

blood counts were and where they were in regard to normal. I always

asked for a copy of the counts so I could compare myself. Be sure to

ask questions about the medicines and side effects. I always write

down questions and take in a list with me. If I don't I tend to forget

to ask. Some of the tests are hard for me to understand, you have to

be forceful and tell the doctor to explain in terms you can understand.

It will get better as time goes by but right now I know it can be

overwhelming. Thank goodness for the target drugs that can keep the

CML under control. Best of luck to you and your daughter. Just know

that she can lead a fairly normal life. Some members have gone on to

have children.

Carolyn_Kuptz2000@ .com

DX 11-05

On Sprycel 20mg bid

[Guest guest]

Oh Jeanny and Natasha . That is such great news , I am so happy for both of you

!!!

Eva

From: Marcos Perreau Guimaraes

Sent: Saturday, February 07, 2009 4:24 PM

Subject: Re: [ ] I need help, thank you so much all of you

Hi Jeanny and Natasha,

That's wonderful news ! Congratulations to both of you, that's the way

to start 2009.

Marcos.

On Sat, Feb 7, 2009 at 10:50 AM, jeanny <jeanny-f@...> wrote:

> thank you so much all of you, your letters made me feel much much better

> about all this , and I did ask question , it was yesterday,, and it was good

> news,, the last time we went it was 1 out of a 1000, and now its 1 in 10 000

> , the doctor said there was hardly any trase of cancer, that sprycel was

> working miracles for her,, I'm so so happy, when they told us,, we started

> crying like baby's, May god be with all of you,

>

> From: carolyn_kuptz2000

> Sent: Friday, February 06, 2009 7:48 PM

>

> Subject: [ ] I need help

>

> I am so sorry your daughter has to be one that has CML. I know when I

> was first diagnosed and even today after 3 years I sometimes don't know

> what to ask. When first diagnosed I was given so much information from

> the Doctor I couldn't take it all in. I always wanted to know what my

> blood counts were and where they were in regard to normal. I always

> asked for a copy of the counts so I could compare myself. Be sure to

> ask questions about the medicines and side effects. I always write

> down questions and take in a list with me. If I don't I tend to forget

> to ask. Some of the tests are hard for me to understand, you have to

> be forceful and tell the doctor to explain in terms you can understand.

> It will get better as time goes by but right now I know it can be

> overwhelming. Thank goodness for the target drugs that can keep the

> CML under control. Best of luck to you and your daughter. Just know

> that she can lead a fairly normal life. Some members have gone on to

> have children.

> Carolyn_Kuptz2000@...

> DX 11-05

> On Sprycel 20mg bid

>

>

[Guest guest]

Congratulations to your daughter!

[ ] I need help

I am so sorry your daughter has to be one that has CML. I know when I

was first diagnosed and even today after 3 years I sometimes don't know

what to ask. When first diagnosed I was given so much information from

the Doctor I couldn't take it all in. I always wanted to know what my

blood counts were and where they were in regard to normal. I always

asked for a copy of the counts so I could compare myself. Be sure to

ask questions about the medicines and side effects. I always write

down questions and take in a list with me. If I don't I tend to forget

to ask. Some of the tests are hard for me to understand, you have to

be forceful and tell the doctor to explain in terms you can understand.

It will get better as time goes by but right now I know it can be

overwhelming. Thank goodness for the target drugs that can keep the

CML under control. Best of luck to you and your daughter. Just know

that she can lead a fairly normal life. Some members have gone on to

have children.

Carolyn_Kuptz2000@...

DX 11-05

On Sprycel 20mg bid

[Guest guest]

Congratulations that is fantastic news.. Tears of Joy are always good, Big cyber

hug to you and your daughter.

Anita

________________________________

From: jeanny <jeanny-f@...>

Sent: Saturday, February 7, 2009 12:50:31 PM

Subject: Re: [ ] I need help, thank you so much all of you

thank you so much all of you, your letters made me feel much much better about

all this , and I did ask question , it was yesterday,, and it was good news,,

the last time we went it was 1 out of a 1000, and now its 1 in 10 000 , the

doctor said there was hardly any trase of cancer, that sprycel was working

miracles for her,, I'm so so happy, when they told us,, we started crying like

baby's, May god be with all of you,

From: carolyn_kuptz2000

Sent: Friday, February 06, 2009 7:48 PM

groups (DOT) com

Subject: [ ] I need help

I am so sorry your daughter has to be one that has CML. I know when I

was first diagnosed and even today after 3 years I sometimes don't know

what to ask. When first diagnosed I was given so much information from

the Doctor I couldn't take it all in. I always wanted to know what my

blood counts were and where they were in regard to normal. I always

asked for a copy of the counts so I could compare myself. Be sure to

ask questions about the medicines and side effects. I always write

down questions and take in a list with me. If I don't I tend to forget

to ask.. Some of the tests are hard for me to understand, you have to

be forceful and tell the doctor to explain in terms you can understand.

It will get better as time goes by but right now I know it can be

overwhelming. Thank goodness for the target drugs that can keep the

CML under control. Best of luck to you and your daughter. Just know

that she can lead a fairly normal life. Some members have gone on to

have children.

Carolyn_Kuptz2000@ .com

DX 11-05

On Sprycel 20mg bid