Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Lynn, regrding your question about insommnia. Yes many of us have these issues. I also had a Dx of Atpycal Connective Tissue Disease, then a Lupus Dx and finally a Tick Born Illness Dx (lyme). An immune system doesn't just turn on itself, it is triggered by something, many times an infectious agent or in my case multiple infectious agents. Encephalitis (infection) and encephalaphy (swelling) of the Brain are causes of problems with sleeping. I am on low doe antibiotics to keep the infections an inflamation down. When I was put on Klonopin and large does of Magnesium that helped my eeg (brain wave studies) which is very abnormal slow down the brain waves and I am able to sleep much better. I take it prior to goin to bed and then if i awake I take anotehr Klonopin and Magnesium tablet. I hope this info helps. Adjunct Professor Emeritus of Laboratory Science, Carol Fisch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 In the beginning I had EXTREME insomnia and I think I tried everything that was prescribed or natural and took alot of advice but nothing seemed to work. I finally decided to just start trying things on my own and through trial and error I found what works for me and that is I do not eat or drink anything after supper and I try to read at least 30 minutes before I try to sleep and that has worked for me I get at least 4-5 hours of sleep a night compared to 0-2. When that does not work I try a very warm bath and reading and that usually works. I hope this helps,I know that insomnia is miserable. > > Hi Everyone, > > I have a concern about insomnia and whether or not there is a direct link to Mixed > Connective Disease or other Autoimmune Diseases. I was wondering if anyone else was > experiencing extreme insomnia like myself. If anyone has any solutions/remedies that > had work for themselves, it would be greatly appreciated. > > Lin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Hi-- Have you considered seeing a sleep specialist? You could have sleep apnea has led you to insomnia. It takes a while to establish a healthy sleep pattern. (drugs not needed) Also checking in with a naturalpathic physician could be helpful because there are some amino acid/nutritional imbalances that contribute to sleep disruption. ew -- Esther Warkov, Ph.D Member OMTA, SMTA Founder, The Piano Connection www.thepianoconnection.com 971.255-0388 (Portland) 206.417-0689 (Seattle) pianos@... esther_warkov@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Hi Lin, Try taking the lemon and olive oil drink a short time before going to bed. I found this put me to sleep right through the night. Die off is one of two things that keep me awake, tossing and turning in the night. Lemon/oo detoxes. Jan In a blender for 1 minute: 1 lemon sliced 1 T. olive oil 1 cup pure water stevia if you need it sweetened (i like the tartness) Strain through a screen type sieve, pushing the pulp with a spoon until all liquid is gone. Drink. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 I also used Magnesium but it wasn't being absorbed because my body was completely deficient in Taurine (determined by a naturalpath physician through a lab test). With the addition ftaurine, I noticed a huge improvement . . . but I don't advocate taking it without knowing if it's needed A lot of people use 5HTP for sleep. It's worth investigating. Not to be used with anti-depressants. . . . >Lynn, regrding your question about insommnia. Yes many of us have these >issues. I also had a Dx of Atpycal Connective Tissue Disease, then a >Lupus Dx and finally a Tick Born Illness Dx (lyme). An immune system >doesn't just turn on itself, it is triggered by something, many times >an infectious agent or in my case multiple infectious agents. >Encephalitis (infection) and encephalaphy (swelling) of the Brain are >causes of problems with sleeping. I am on low doe antibiotics to keep >the infections an inflamation down. When I was put on Klonopin and >large does of Magnesium that helped my eeg (brain wave studies) which >is very abnormal slow down the brain waves and I am able to sleep much -- Esther Warkov, Ph.D Member OMTA, SMTA Founder, The Piano Connection www.thepianoconnection.com 971.255-0388 (Portland) 206.417-0689 (Seattle) pianos@... esther_warkov@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 have you tried melatonin ? rheumatic Insomnia Hi Everyone, I have a concern about insomnia and whether or not there is a direct link to Mixed Connective Disease or other Autoimmune Diseases. I was wondering if anyone else was experiencing extreme insomnia like myself. If anyone has any solutions/remedies that had work for themselves, it would be greatly appreciated. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 I've had a period of extreme insomnia before I was diagnoised with mixed connective tissue disease. Sleeping only 0-2 hours a day for months at a time, occassionally getting 4-5 hours. I tried everything from prescription drugs to natural herbs and nothing seemed to help, I got desperate and finally took chinese herbs which did help a little bit. After the diagnosis which was in mid January I still get some insomnia but it wasn't as bad as before... however now I'm getting it very extreme again recently and I'm a little worried. Thank you all for all your advice I will definately give it a try and pray that it helps I got diagnoised when I lost almost all my hair literally in a matter of days, it has been very traumatic for me being that I'm only in my twenties. I had a swollen lymph node back in nov but as you all know how tedious this process of finding a diagnosis can be, it wasn't until the loss of my hair that they gave me a dx. I'm curious to know if anyone else suffered the same symptoms as me and how they've dealt with it. Currently I'm off of predisone and only taking hydroxychloriguine. I do get monthly steroid injections to my scalp to help slow down the falling out of my hair... which hasn't stablized as of yet. It has been over a month since the hair loss began and I just want to know about how long it will take to start seeing any growth and if the steriod injections which are not pleasant will help. <dadskel@...> wrote: In the beginning I had EXTREME insomnia and I think I tried everything that was prescribed or natural and took alot of advice but nothing seemed to work. I finally decided to just start trying things on my own and through trial and error I found what works for me and that is I do not eat or drink anything after supper and I try to read at least 30 minutes before I try to sleep and that has worked for me I get at least 4-5 hours of sleep a night compared to 0-2. When that does not work I try a very warm bath and reading and that usually works. I hope this helps,I know that insomnia is miserable. > > Hi Everyone, > > I have a concern about insomnia and whether or not there is a direct link to Mixed > Connective Disease or other Autoimmune Diseases. I was wondering if anyone else was > experiencing extreme insomnia like myself. If anyone has any solutions/remedies that > had work for themselves, it would be greatly appreciated. > > Lin > --------------------------------- Get your own web address. Have a HUGE year through Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Yup tried melatonin and my pcp prescribed Ambien CR and neither had helped. Even tried warm milk and honey =(... no good. ionstanciu <ionstanciu@...> wrote: have you tried melatonin ? rheumatic Insomnia Hi Everyone, I have a concern about insomnia and whether or not there is a direct link to Mixed Connective Disease or other Autoimmune Diseases. I was wondering if anyone else was experiencing extreme insomnia like myself. If anyone has any solutions/remedies that had work for themselves, it would be greatly appreciated. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Lin, If you are in menopause...that will effect your sleep. Also when I first developed rheumatoid I was put on the antidepressant trazadone and I was out like a light and stayed out. My hubby said I was so still he checked if I was still breathing. After a while (months) it got to where I was sleeping too much and could not wake up for work so I got off it. cooky AP 9 yrs Re: rheumatic Insomnia Yup tried melatonin and my pcp prescribed Ambien CR and neither had helped. Even tried warm milk and honey =(... no good. ionstanciu <ionstanciu@...> wrote: have you tried melatonin ? rheumatic Insomnia Hi Everyone, I have a concern about insomnia and whether or not there is a direct link to Mixed Connective Disease or other Autoimmune Diseases. I was wondering if anyone else was experiencing extreme insomnia like myself. If anyone has any solutions/remedies that had work for themselves, it would be greatly appreciated. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 Have you tried 5 HTP? -- Esther Warkov, Ph.D Member OMTA, SMTA Founder, The Piano Connection www.thepianoconnection.com 971.255-0388 (Portland) 206.417-0689 (Seattle) pianos@... esther_warkov@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 In the early 90's my then rheumatologist commented that with the muscle spasms she could feel on my back, I could not be getting restful sleep. I was not even aware that I had muscle spasms! Be careful with the Klonopin as it is highly addictive, according to what I haveread. HTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Yes, Klonopin is addictive, as are all Benzadyealzophines but when ones brain waves are so abnormal that one would be psychotic and die without sleep. Addiction is not as important as staying alive when everything else has been tried. Dr. Cheney one of the leading CFIDs Doctors has written may articles regarding Klonopin actually saving the brain from Brownouts. I'm sure you can Keyword studies done by Cheney MD and the use of Klonopin. My background is medical therefore, I know the dangers of addiction but for me it was shut the brain down and sleep or die.. Carol n a message dated 3/3/07 9:51:37 PM Eastern Standard Time, RNMSW@... writes: In the early 90's my then rheumatologist commented that with the muscle spasms she could feel on my back, I could not be getting restful sleep. I was not even aware that I had muscle spasms! Be careful with the Klonopin as it is highly addictive, according to what I haveread. HTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2007 Report Share Posted March 5, 2007 Hi , I didn't mean to sound like a know it all. it's just that without Klonopin, I would not be here. I went through hell finding out all the issues I face. Carol, Adjunct Professor Emeritus, of Laboratory Science. (I taught Physicians Laboratory Science and have a background in Microbiology, Immunology and Parasitology.) In a message dated 3/4/07 5:22:32 PM Eastern Standard Time, RNMSW@... writes: Wow! Just because I said to be careful because it is highly addictive to anyone reading this?? I don't know what medical background means. Are you an M.D. R.N., B.S., M.S.W <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 Melatonin can help. Doctor needs to prescribe it I think. Gail On 04/03/2007, at 6:11 AM, Esther Warkov wrote: > I also used Magnesium but it wasn't being absorbed because my body > was completely deficient in Taurine (determined by a naturalpath > physician through a lab test). With the addition ftaurine, I noticed > a huge improvement . . . but I don't advocate taking it without > knowing if it's needed > > A lot of people use 5HTP for sleep. It's worth investigating. Not to > be used with anti-depressants. . . . > > >Lynn, regrding your question about insommnia. Yes many of us have > these > >issues. I also had a Dx of Atpycal Connective Tissue Disease, then a > >Lupus Dx and finally a Tick Born Illness Dx (lyme). An immune system > >doesn't just turn on itself, it is triggered by something, many times > >an infectious agent or in my case multiple infectious agents. > >Encephalitis (infection) and encephalaphy (swelling) of the Brain are > >causes of problems with sleeping. I am on low doe antibiotics to keep > >the infections an inflamation down. When I was put on Klonopin and > >large does of Magnesium that helped my eeg (brain wave studies) which > >is very abnormal slow down the brain waves and I am able to sleep > much > > -- > Esther Warkov, Ph.D > Member OMTA, SMTA > Founder, The Piano Connection > www.thepianoconnection.com > 971.255-0388 (Portland) > 206.417-0689 (Seattle) > pianos@... > esther_warkov@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 , Could you experiment by going off the CSM to make sure it is that, OR gradually reduce your dosage to see if sleep improves? Perhaps if you take a break for awhile and then go back on it gradually. Going without sleep is not a good idea. > > As I've been using CSM to detox the biotoxins from mold out of my > systm, I've had increasing difficulty falling asleep as well as waking > in early Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2007 Report Share Posted April 29, 2007 When I am getting mold exposure, one of the first things that happens is that I can't sleep normally. I feel those toxins in me. Cholestyramine in that situation actually helps me sleep.. But first I have to take the CSM, then wait a while, then take some fat (I use fish oil) to cause the bile to flush out and be bound with it.. Then I have to eat some fiber to .. push it out.. Cholestyramine helps get those mold toxins out of your bile, but the best situation is if they are not there in the first place. You need to get out of the moldy environment before you will be able to sleep normally because those toxins have to go through other parts of your body, doing damage all the way, before cholestyramine can bind with them when the liver shunts them into your bile. It can take a long time.. in my case this was a gradual process that took months and months.. I'm still not quite there yet, as when I get even small mold exposures I get sick very quickly. But I am sleeping semi normally now... compared to before when I would never sleep more than four or five hours before waking up, having to take CSM.. etc.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 i too had terrible insomnia.. but now i am just tired and want to sleep all the time!! i had problems sleeping untill about 8 months post explant. i hope you feel better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Melatonin works great, too. My husband was suffering for months w/it and our chiro recommended melatonin. My husband takes 5mg about 1 hr 1/2 before bed and it works like a charm. I only take about 1/6th of a 2.5 mg tablet and it puts me out. ) But those of you w/dizziness be careful. I have noticed it does make me feel kind of dizzy. Here's the brand we use: http://www.vitacost.com/Source-Naturals-Melatonin-2-5-mg-60-Peppermint- Flavored-Sublingual-Tablets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Melatonin kept me awake. It was awful for me. Valerian worked better. Lynda At 12:02 PM 1/23/2008, you wrote: >Melatonin works great, too. My husband was suffering for months w/it >and our chiro recommended melatonin. My husband takes 5mg about 1 hr >1/2 before bed and it works like a charm. I only take about 1/6th of a >2.5 mg tablet and it puts me out. ) But those of you w/dizziness be >careful. I have noticed it does make me feel kind of dizzy. > >Here's the brand we use: > ><http://www.vitacost.com/Source-Naturals-Melatonin-2-5-mg-60-Peppermint->http:/\ /www.vitacost.com/Source-Naturals-Melatonin-2-5-mg-60-Peppermint- >Flavored-Sublingual-Tablets > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 How to Beat Insomnia without Pills It's bedtime, and you're tired so you go hit the sack. You invite sleep by closing your eyes, but sleep ignores your invitation. You toss from left to right and then from right to left, sit up and drink some water and again try your best to get to sleep, but all your efforts fail. If this happens once or only occasionally, on certain bad days, for instance, you most likely have nothing to worry about. However, if sleeplessness haunts you on a regular basis, you may have a sleep disorder called insomnia. Insomnia has various causes. It can result from fear, anxiety, stress, or depression. The side effects of some medications interfere with sleep. Mental or physical exhaustion or pain can also cause insomnia. Insomnia can be transient, acute, or chronic, depending upon its severity. Hundreds of thousands of people pop sleep-inducing prescription drugs and sedatives at bedtime to help get a good night's sleep. The most common drugs prescribed for insomnia are benzodiazepines. The problem with these drugs is that they become addictive, if used over a long period. There are of course non-benzodiazepine drugs, but these may also cause dependence, both psychological and physical, if used continuously. In addition, there are quite a few non-prescription sleep-inducing drugs and herbs which are used as sedatives. Some people resort to alcohol as a sedative, but their sleep will not be of the quality desired. And alcohol consumption is not without its side effects and hangover problems. Happily, you can overcome insomnia without drugs or pills. Cognitive behavioral therapy has been found quite effective in reducing the problem in many people. This kind of therapy attempts to correct the distortions or unrealistic ways of thinking which appear to be the underlying cause for various types of fear, anxiety, depression or stress, which in turn contribute to insomnia in many cases. Traditional Insomnia Tips People have traditionally used various methods for beating insomnia without pills and drugs. Here are some tips you can use to dial down any insomnia issues you may have... Drink a glass of warm milk before bedtime. Warm milk contains a natural sedative called tryptophan. Adding honey to warm milk will help the body absorb tryptophan faster and will also produce a quicker sedative effect. Try taking a hot water bath in the evening just before going to bed. Natural nutritional factors in pomegranates will help induce sleep, so try eating one a half hour before heading off to bed. Aromatherapy and listening to soft, slow, lilting music are quite effective in producing an atmosphere conducive for sleep. Meditation and other mind relaxation techniques are often found to be extremely helpful in this regard. Note: We recommend our EarthRain Meditation CD or our best-selling Cat's Purr CD. Similarly, insomniacs can also try tai chi, yoga, or acupuncture. Avoid stimulants at night. That means no tea or coffee or soft drinks after five p.m. because these drinks contain caffeine that can disrupt sleep. Avoid smoking in the night, a couple of hours before your sleeping time. If you can quit smoking for good - all the better. Lifestyle changes that help you sleep well are your best bet for beating insomnia. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 Ah yes. I can make it all the way to 3:30! Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 I've never thought it might be hormones. Just figured it was the PTSD from my prison time. I've taken the nerve formula (not nerve regen formula) in capsule form (in the files section) before with some success. But I don't have the resources to make any at the moment. I'll try the melatonin, though, and let y'all know how it works. Peace, love, laughter , men go through hormone changes around the same time women do – in their 40s. The fall off of your hormones causes you to have a disrupted sleep cycle. Try taking a melatonin supplement for two weeks about ½ hour before bedtime. It has no drowsiness or addictive qualities. It works for my boys when they go through a “I can’t sleep” cycle. Janet .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Many people do use benadryl as a sleeping aid, but it has the opposite effect on me for some reason. It makes me wide awake! I take melatonin and an OTC sleeping pill, and sometimes they work and sometimes not. Ambien works very well, but of course I can't take that all the time. Insomnia is a terrible problem. Sue On Aug 31, 2009, at 7:49 PM, rascalsniche@... wrote: > Thanks Barb....have a safe trip...will catch you later.... > > Bedtime...and one benadryl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 I've had sleepless nights for as long as I can remember. In the past few years I've needed more quality rest, so I worked with my sleep doctor to hit a good combo that works. After a number of combinations, we hit on one that is working for me. At bedtime, I take 1/2 of a Soma and 5 mg of Ambien. Taking more Ambien would have me doing things in the night that I wasn't aware of since it's a halucenagenic and I apparently have 'tendencies'.? Dennis in eastexas On Mon, Aug 31, 2009 at 9:00 PM, marysue <marysue@...> wrote: > > > Many people do use benadryl as a sleeping aid, but it has the opposite > effect on me for some reason. It makes me wide awake! I take melatonin > and an OTC sleeping pill, and sometimes they work and sometimes not. > Ambien works very well, but of course I can't take that all the time. > Insomnia is a terrible problem. > > Sue > > On Aug 31, 2009, at 7:49 PM, rascalsniche@... <rascalsniche%40aol.com>wrote: > > > Thanks Barb....have a safe trip...will catch you later.... > > > > Bedtime...and one benadryl. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 My Ambien tablets are 10mg, but I cut them in half. My insurance will let us have only 15 per month. But my PCP, who prescribes them, gives me just a few refills. I have to use them very sparingly, mostly when I travel. Sue On Aug 31, 2009, at 11:16 PM, Dennis W wrote: > I've had sleepless nights for as long as I can remember. In the past > few > years I've needed more quality rest, so I worked with my sleep > doctor to hit > a good combo that works. After a number of combinations, we hit on > one that > is working for me. At bedtime, I take 1/2 of a Soma and 5 mg of > Ambien. > Taking more Ambien would have me doing things in the night that I > wasn't > aware of since it's a halucenagenic and I apparently have > 'tendencies'.? Quote Link to comment Share on other sites More sharing options...
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