Guest guest Posted December 23, 1998 Report Share Posted December 23, 1998 >I'm on Minocin 50mg twice daily, MWF. No IV or clindamycin. Does Clinda >come in oral? Is it expensive. Doubt very much my Rheumy Yes, clindamycin comes in an oral form which is usually cheap in most countries. You take it as 1200mg in a single dose once a week on a day you're not taking Minocin. We have a list of doctors if you decide to try someone else who is more supportive. >Is the FAQ on the Web Site? Didn't happen to notice while in there. My diet Look at www.rheumatic.org/faq.htm and also Dr. 's clinic notes as www.rheumatic.org/martin.htm - hope you're feeling better soon and stick with the improved diet Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 1998 Report Share Posted December 25, 1998 Dear , This is the dose used normally - I have heard of other patterns from time to time. I'd just stick with it and trust that it will help - it will aid the Minocin by killing off harmful organisms in your gut and gives a boost to the therapy. Be even more careful to take lots of acidophilus while you're on both antibiotics. Chris. << You take it as 1200mg in a single dose once a week on a day you're not taking Minocin >> Are there any other dosages? I'm not sure if the 1200mg are making any difference with me, how do I know? I can't find anyone to do the IV's... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Dear Anita, > I am just getting worse and worse. Then I called a radio station yesterday > and " Asked the Doc. " He was appalled that I was on 4mg of Prednisone daily. > Paid no attention to my mention of Minocin. I had asked a question about > osteoporosis (of which I'm now boderline). Wanted to know if any walking in > a pool would be bone building. (He didn't answer that either.) I do swim > laps 3 and 4 times a week but of course that does not build bone. > > So could anyone please tell me how they are doing after over a year on the > AP? I am currently taking 4mg Pred, Aleve 4 per day, Cytotec, an absolute > must, as my stomach really gets angry when I quit. Then the Fosamax for the > bones, which I just hate to do. I'm sorry you're feeling so bad. Can you update us on what antibiotic you're taking? What dose and how often? Are you having IV, IM or oral clindamycin IVs as well? There are lots of other things to look for, but you may already be aware of it. Have a look at our FAQ in the section " I'm not seeing improvement " near the end. Diet, supplements, tons of water, little or no sugar, taking acidophilus are very important. Candida, leaky gut, streptococcus infection or other infections in teeth, gut, throat etc. will hinder your progress and need to be dealt with. If you can give more information, we may be able to help, Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 <PRE>hey gina, where is your daughter going to go for college? mine is just going to attend the local community college once he finishes high school. so he will still come home at night. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Yes, Al, but you can afford to gain the weight! I'm glad things went well, and I hope you can get some rest this afternoon (since you didn't get much last night). Love and hugs, Carol [ ] I'm Back Hi Everyone, First, thank you very much for all of the well wishes. It meant a lot to me. The tests went without a hitch. Although I am not claustrophobic, the CT scanner was an " open " one which is nice. They injected me with iodine contrast dye (what a lovely taste) and scanned me for about 5 minutes. The ECG was pretty interesting. I never saw my heart working before. On a good note, the technician said she couldn't see any fluid but of course I still need to wait for the cardiologist's report. Both ladies that administered the tests were great and very compassionate. I love Lake Forest Hospital. Now, I wait. Even though I haven't slept much, I feel good. I think the steroids are doing the trick although I am glad I am cutting down the dosage. Just so you know it doesn't only happen to ladies, I have put on about 2 1/2 pounds since I started the prednisone. Have a great day. Hugs, Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Glad you are home and feeling pretty good, Al. The waiting stinks. Hope you get some results and answers soon. [ ] I'm Back > Hi Everyone, > > First, thank you very much for all of the well wishes. It meant a lot > to me. The tests went without a hitch. Although I am not > claustrophobic, the CT scanner was an " open " one which is nice. They > injected me with iodine contrast dye (what a lovely taste) and > scanned me for about 5 minutes. > > The ECG was pretty interesting. I never saw my heart working before. > On a good note, the technician said she couldn't see any fluid but of > course I still need to wait for the cardiologist's report. > > Both ladies that administered the tests were great and very > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > I haven't slept much, I feel good. I think the steroids are doing the > trick although I am glad I am cutting down the dosage. > > Just so you know it doesn't only happen to ladies, I have put on > about 2 1/2 pounds since I started the prednisone. > > Have a great day. > > Hugs, > Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hi Carol, Yeah, that's probably true... Thanks. Hugs, Al > Yes, Al, but you can afford to gain the weight! > > I'm glad things went well, and I hope you can get some rest this afternoon > (since you didn't get much last night). > > Love and hugs, > Carol > > [ ] I'm Back > > Hi Everyone, > > First, thank you very much for all of the well wishes. It meant a lot > to me. The tests went without a hitch. Although I am not > claustrophobic, the CT scanner was an " open " one which is nice. They > injected me with iodine contrast dye (what a lovely taste) and > scanned me for about 5 minutes. > > The ECG was pretty interesting. I never saw my heart working before. > On a good note, the technician said she couldn't see any fluid but of > course I still need to wait for the cardiologist's report. > > Both ladies that administered the tests were great and very > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > I haven't slept much, I feel good. I think the steroids are doing the > trick although I am glad I am cutting down the dosage. > > Just so you know it doesn't only happen to ladies, I have put on > about 2 1/2 pounds since I started the prednisone. > > Have a great day. > > Hugs, > Al in IL > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Thanks ! Hope you're having a good day. Hugs, Al > Glad you are home and feeling pretty good, Al. The waiting stinks. Hope > you get some results and answers soon. > > > > > > [ ] I'm Back > > > > Hi Everyone, > > > > First, thank you very much for all of the well wishes. It meant a lot > > to me. The tests went without a hitch. Although I am not > > claustrophobic, the CT scanner was an " open " one which is nice. They > > injected me with iodine contrast dye (what a lovely taste) and > > scanned me for about 5 minutes. > > > > The ECG was pretty interesting. I never saw my heart working before. > > On a good note, the technician said she couldn't see any fluid but of > > course I still need to wait for the cardiologist's report. > > > > Both ladies that administered the tests were great and very > > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > > I haven't slept much, I feel good. I think the steroids are doing the > > trick although I am glad I am cutting down the dosage. > > > > Just so you know it doesn't only happen to ladies, I have put on > > about 2 1/2 pounds since I started the prednisone. > > > > Have a great day. > > > > Hugs, > > Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 You're welcome, Al. And, no, I'm not having a good day. I'm about to send my oldest off to college for the first time very soon. Two words: SEPARATION ANXIETY. Don't get me wrong, I'm not in favor of letting the kids stay and stay and stay until they are old and gray, too, but I didn't expect this to happen so quickly. I feel unprepared for this. Worried. She's a bright, beautiful girl, and I hope I gave her enough guidance about all of the dangers out there - especially men, LOL!! Sorry, I couldn't stop myself from saying that. But you know what I mean, I'm sure. Thanks, I'll be fine eventually. We're doing a lot of joking here and that's helping. [ ] I'm Back > > > > Hi Everyone, > > > > First, thank you very much for all of the well wishes. It meant a lot > > to me. The tests went without a hitch. Although I am not > > claustrophobic, the CT scanner was an " open " one which is nice. They > > injected me with iodine contrast dye (what a lovely taste) and > > scanned me for about 5 minutes. > > > > The ECG was pretty interesting. I never saw my heart working before. > > On a good note, the technician said she couldn't see any fluid but of > > course I still need to wait for the cardiologist's report. > > > > Both ladies that administered the tests were great and very > > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > > I haven't slept much, I feel good. I think the steroids are doing the > > trick although I am glad I am cutting down the dosage. > > > > Just so you know it doesn't only happen to ladies, I have put on > > about 2 1/2 pounds since I started the prednisone. > > > > Have a great day. > > > > Hugs, > > Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 ((((((((((((((((((((())))))))))))))))))))))) I'm sorry you're not having a good day but you know your daughter will be just fine. And yes, I know what you mean about men...LOL. Just think what an exciting time it is going to be for her. Personally, I think all of us with kids will find ourselves feeling that way you do. Try not to let it get you down. The bond you've established will undoubtedly last a lifetime. Love and hugs, Al > > Glad you are home and feeling pretty good, Al. The waiting stinks. > Hope > > you get some results and answers soon. > > > > > > > > > > > > [ ] I'm Back > > > > > > > Hi Everyone, > > > > > > First, thank you very much for all of the well wishes. It meant a > lot > > > to me. The tests went without a hitch. Although I am not > > > claustrophobic, the CT scanner was an " open " one which is nice. > They > > > injected me with iodine contrast dye (what a lovely taste) and > > > scanned me for about 5 minutes. > > > > > > The ECG was pretty interesting. I never saw my heart working > before. > > > On a good note, the technician said she couldn't see any fluid > but of > > > course I still need to wait for the cardiologist's report. > > > > > > Both ladies that administered the tests were great and very > > > compassionate. I love Lake Forest Hospital. Now, I wait. Even > though > > > I haven't slept much, I feel good. I think the steroids are doing > the > > > trick although I am glad I am cutting down the dosage. > > > > > > Just so you know it doesn't only happen to ladies, I have put on > > > about 2 1/2 pounds since I started the prednisone. > > > > > > Have a great day. > > > > > > Hugs, > > > Al in IL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Al, I¹m glad the tests are over and the preliminary report looks good. Pretty cool that you could watch your own heart beating! I hope now that this is behind you, you¹ll sleep well tonight. Hugs, a > Hi Everyone, > > First, thank you very much for all of the well wishes. It meant a lot > to me. The tests went without a hitch. Although I am not > claustrophobic, the CT scanner was an " open " one which is nice. They > injected me with iodine contrast dye (what a lovely taste) and > scanned me for about 5 minutes. > > The ECG was pretty interesting. I never saw my heart working before. > On a good note, the technician said she couldn't see any fluid but of > course I still need to wait for the cardiologist's report. > > Both ladies that administered the tests were great and very > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > I haven't slept much, I feel good. I think the steroids are doing the > trick although I am glad I am cutting down the dosage. > > Just so you know it doesn't only happen to ladies, I have put on > about 2 1/2 pounds since I started the prednisone. > > Have a great day. > > Hugs, > Al in IL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Hi a, Thank you very much. I'll try. Hugs, Al > Al, > I¹m glad the tests are over and the preliminary report looks good. Pretty > cool that you could watch your own heart beating! I hope now that this is > behind you, you¹ll sleep well tonight. > Hugs, > a > > > > Hi Everyone, > > > > First, thank you very much for all of the well wishes. It meant a lot > > to me. The tests went without a hitch. Although I am not > > claustrophobic, the CT scanner was an " open " one which is nice. They > > injected me with iodine contrast dye (what a lovely taste) and > > scanned me for about 5 minutes. > > > > The ECG was pretty interesting. I never saw my heart working before. > > On a good note, the technician said she couldn't see any fluid but of > > course I still need to wait for the cardiologist's report. > > > > Both ladies that administered the tests were great and very > > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > > I haven't slept much, I feel good. I think the steroids are doing the > > trick although I am glad I am cutting down the dosage. > > > > Just so you know it doesn't only happen to ladies, I have put on > > about 2 1/2 pounds since I started the prednisone. > > > > Have a great day. > > > > Hugs, > > Al in IL > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Sounds like things went great. I hope you can narrow things down and figure out what's going on. Thanks again for your help. Keri in MI > Hi Everyone, > > First, thank you very much for all of the well wishes. It meant a lot > to me. The tests went without a hitch. Although I am not > claustrophobic, the CT scanner was an " open " one which is nice. They > injected me with iodine contrast dye (what a lovely taste) and > scanned me for about 5 minutes. > > The ECG was pretty interesting. I never saw my heart working before. > On a good note, the technician said she couldn't see any fluid but of > course I still need to wait for the cardiologist's report. > > Both ladies that administered the tests were great and very > compassionate. I love Lake Forest Hospital. Now, I wait. Even though > I haven't slept much, I feel good. I think the steroids are doing the > trick although I am glad I am cutting down the dosage. > > Just so you know it doesn't only happen to ladies, I have put on > about 2 1/2 pounds since I started the prednisone. > > Have a great day. > > Hugs, > Al in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2002 Report Share Posted August 23, 2002 Thank you, Keri! Al > Sounds like things went great. I hope you can narrow things down and > figure out what's going on. Thanks again for your help. > Keri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2002 Report Share Posted October 27, 2002 Dear Pruney Judi...you DERSERVE a bubble bath, kiddo! I hope it was wonderful. Much Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 <PRE>sorry i missed you while you were here. i missed carol in florida too. time goes by so quick. the flight home was much better for me. i didn't look out the window until the chicago skyline. it was so pretty coming in. also my drive home was in a stretch limo, and we took backroads. the leaves were so pretty. but not far from the hitch inn post, my body felt the weather seep into my bones. i could feel myself sink down in the chair and the pain start. ick!!! they are saying we are supposed to have snow flurries this week. kathy, back in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 June, What a happy day to wake up and check the mail and see a post from you! Welcome back! That is fantastic news about your feet. I'd like to hear all of the gory details if and when you have the inclination and energy. God bless the Queen! Have you had to take a break from your Patient Partners program, too? [ ] I'm back > Hi everyone,after a long absence I am no officially back.I have missed all of you but you have been in my thoughts. I had both feet operated on and reconstructed and it was so successful I don't recognize my feet. The doctor who operated is known as the Queen of feet and that is all she does. Hope to catch up on what is happening here soon. > > Hugs > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Hi June, So glad to see you back and happy your surgery is behind you. Lynn (MeMom) June Dixon wrote: > Hi everyone,after a long absence I am no officially back.I have missed all of you but you have been in my thoughts. I had both feet operated on and reconstructed and it was so successful I don't recognize my feet. The doctor who operated is known as the Queen of feet and that is all she does. Hope to catch up on what is happening here soon. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 hi june. welcome back!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Hi June, I'm so happy to see you posting again. Even happier to hear that the surgery was successful. Welcome back. Love and Hugs, Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Jan, Vicodine isn't HEAVY pain pills. Don't worry! I use to resist any meds, for anything. I could always " do it on my own " ... but the last few years taught me one thing... IF I were going to function, I had to USE all the meds they tried me on. The trick is, DO NOT let the meds " USE YOU " ! I don't care if I have to stay on pain meds for the rest of my life now, if that is what allows me to function and at least enjoy some part of my day/life. As far as your 2 to 3 hours of sleep a night! Welcome to the 3-hour sleep club also! That is my " normal " sleep... around 3 hours. Then on good nights, it is a good solid 5 hours. The " pain " wakes me so often. Ouch! Your description of the " horse sized shot " made my eyes water! The GOOD thing about my MS is it has " numbed " me totally. I can pick up a 400 degree skillet off the stove and never " feel the burn " ... until I SEE the burn. I have to be super careful of my bathwater. When I had any of my cortisone shots, I felt NOTHING. The one they did in my hand/finger joints a couple weeks ago, they told me would hurt WORSE than any of the other steroid shots. They even got someone there to hold my hands down so I would not " jerk " when they put it in! I told them " don't worry...I won't feel a THING. " Ha! They were amazed I didn't even " feel it " . Oh, I can " feel " ... it is just a numb feeling. Like when we were kids and you held your index finger up and the other kid held theirs up and they touched... then you took your other hand and rubbed up and down the 2 fingers touching... we called it " dead man's fingers " ! Kids! That is how I feel all over. When they did the Lumbar punctures, he noted I didn't even " feel " it when they started to deaden it before the puncture. So he didn't give me hardly any numbing stuff. They were more amazed I didn't even KNOW when they put in the needle for the CSF fluid. I could probably give BIRTH now, and never feel a thing! Whooooah! Did I say THAT??!!!! NOOOOooooo! Why, I am a MEMBER of the 49-ers club as of this coming Sept. 1st! No more babies for ME!!! Ok... hope you did get tired enough to sleep tonight... er... " morning " ! It is 5:00 a.m. here, and I haven't been to bed YET! Been up since 7 a.m. yesterday! I am going to try to sleep now! Elf Jan Tully wrote: > Dear ones. > > I have not been posting because I was having a terribly bad flair (and > yes I can call it that now with the blessing of my new Rheumy). > > Over a period of time, maybe just a little over a week and a half or > so, the pain in my body built up until I was in almost screaming > misery. Everything hurt, I became sleep devritedated with anywhere > from 2 - 3 hours a night and a couple of nights, none and my left > chest around my heart was getting terrible pains both day and night. > Every muscle and joint was going nasty on me. When I went to my > daughters last week to help out by being there for Richie's award at > school, that is why she came down and picked me and took me there and > back. The weekend grew worse and by Monday, I called my internist's > office and she wasn't in but one of her associates saw me. At first, > I got the lecture, I can't do any changes in your doctor's agenda for > you (the old you don't look sick routine). I spoke up and must have > said the right things as he put me up on the exam table and pressed > around on the known Fibro tender points. With each pressure point he > almost threw me off the table and he finally admitted, well yes... you > do have Fibro and asked me if I'd like a pain pill? I accepted only > because I knew the only way I would get out of flare would be to get a > handle on the pain. He prescribed Vicodin and those of you who know > me, know I have resisted heavy pain pills prefering to try to keep it > under control with Extra-strength Tylenol. I took one and that's > all. Tuesday and yesterday, were not totally under control but > better. Tah, dah.........came the sunrise and I headed to La Jolla > for the appointment with the new Rheumy. She was great! A little > lady from Turkey with an accent. My ability to understand accents is > almost nil but she was able to repeat without getting upset until I > understood what she was saying. Most of the time her accent was > fine. She asked questions and listened to me and then put me on the > exam table. Mind you, I was still hurting very badly from stem to > stern and she again applied the pressure on the " points. " When she > hit the one on my left shoulder, again I jerked forward involuntarly > and almost fell off the table. The pain was so bad it brought tears > to my eyes. Then she began to talk to me some more. One of the first > things she said was " You definitely have FMS and don't let anyone tell > you any different. " I did start crying then and she patted me and > said that while it is incurable she wants me to work harder at coping > with it. She told me that she likes the idea that I want to continue > working as long as I can as she feels, giving up and giving in makes > it worse. I have been inactive this period of time since being laid > off and it has gotten worse. She wants me to get into a water > excercise class offered by the Arthritis Foundation here. Then she > told me that the extreme pain in my shoulder is tendonitis. She gave > me a horse sized cortisone shot in the joint and a small one just > inches away from that. The first one going in was excruciating but by > the time the second one in, the pain began to subside. For four > hours, I had no pain in my body as before and when it came back, it > was localized in my shoulder but has not been extreme. The joint > clicks now when I move my extended arm to do anything with the hand. > It's amazing how that pain can radiate through out your body. Another > thing, fortunately (or not), my ankles were swollen and the skin > around and above was overly red, taut and painful to the touch. She > ordered blood tests at that point. I swear they took 4 or 5 large > tubes of blood out of me. I doen't believe I've ever had so many run > at the same time. She or the nurse practisioner will be seing me in 4 > weeks. > > ine........I have a question. With the clicking that joint is > doing now, could it be rotator cuff involvement? > > I am finally getting tired enough, I think I can sleep tonight. Will > close for now and hope to hear from you soon. > > Love and prayers to everyone. I lurked mostly the past few days. You > have all been in my thoughts. Welcome to the newbies. You've found > the " right " place. Has anyone heard from Heidi? It could be the > blessed event is in progress. Carol......you and your mom and > definitly in my prayers. Tess....sorry about the disapointment. I > would have liked to see you go also. You would have been great. ah > well...next time. Or there might even be a bigger project with your > name on it. > > Take care, Jan > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 Hi Jan, I'm sorry that you have been in such pain. I hate that darned FM! When those trigger points start to hurt, you stiffen up and that makes it worse. I have found that the injections tend to make me hurt worse for a day or so but then I feel pretty good. Please have a talk with your doc about pain management. You have seen the articles that a and forward to us about this subject. If you get caught in a web of pain, it tends to get worse if you can't break the cycle. After awhile your body will not be able to shake the pain off and it will perpetuate itself. On the subject of water excercise, a and I are in complete agreement...it works! Give it a try. You can feel worse if you do to much to begin with, but after a while you will notice how much stronger you feel. I hope you have a good weekend. Hugs. Iris --- Jan Tully <camommacat2@...> wrote: > Dear ones. > > I have not been posting because I was having a terribly bad flair (and yes I can call it that > now with the blessing of my new Rheumy). > > Over a period of time, maybe just a little over a week and a half or so, the pain in my body > built up until I was in almost screaming misery. Everything hurt, I became sleep devritedated > with anywhere from 2 - 3 hours a night and a couple of nights, none and my left chest around my > heart was getting terrible pains both day and night. Every muscle and joint was going nasty on > me. When I went to my daughters last week to help out by being there for Richie's award at > school, that is why she came down and picked me and took me there and back. The weekend grew > worse and by Monday, I called my internist's office and she wasn't in but one of her associates > saw me. At first, I got the lecture, I can't do any changes in your doctor's agenda for you > (the old you don't look sick routine). I spoke up and must have said the right things as he put > me up on the exam table and pressed around on the known Fibro tender points. With each pressure > point he almost threw me off the table and he finally admitted, well yes... you do have Fibro > and asked me if I'd like a pain pill? I accepted only because I knew the only way I would get > out of flare would be to get a handle on the pain. He prescribed Vicodin and those of you who > know me, know I have resisted heavy pain pills prefering to try to keep it under control with > Extra-strength Tylenol. I took one and that's all. Tuesday and yesterday, were not totally > under control but better. Tah, dah.........came the sunrise and I headed to La Jolla for the > appointment with the new Rheumy. She was great! A little lady from Turkey with an accent. My > ability to understand accents is almost nil but she was able to repeat without getting upset > until I understood what she was saying. Most of the time her accent was fine. She asked > questions and listened to me and then put me on the exam table. Mind you, I was still hurting > very badly from stem to stern and she again applied the pressure on the " points. " When she hit > the one on my left shoulder, again I jerked forward involuntarly and almost fell off the table. > The pain was so bad it brought tears to my eyes. Then she began to talk to me some more. One > of the first things she said was " You definitely have FMS and don't let anyone tell you any > different. " I did start crying then and she patted me and said that while it is incurable she > wants me to work harder at coping with it. She told me that she likes the idea that I want to > continue working as long as I can as she feels, giving up and giving in makes it worse. I have > been inactive this period of time since being laid off and it has gotten worse. She wants me to > get into a water excercise class offered by the Arthritis Foundation here. Then she told me > that the extreme pain in my shoulder is tendonitis. She gave me a horse sized cortisone shot in > the joint and a small one just inches away from that. The first one going in was excruciating > but by the time the second one in, the pain began to subside. For four hours, I had no pain in > my body as before and when it came back, it was localized in my shoulder but has not been > extreme. The joint clicks now when I move my extended arm to do anything with the hand. It's > amazing how that pain can radiate through out your body. Another thing, fortunately (or not), > my ankles were swollen and the skin around and above was overly red, taut and painful to the > touch. She ordered blood tests at that point. I swear they took 4 or 5 large tubes of blood > out of me. I doen't believe I've ever had so many run at the same time. She or the nurse > practisioner will be seing me in 4 weeks. > > ine........I have a question. With the clicking that joint is doing now, could it be > rotator cuff involvement? > > I am finally getting tired enough, I think I can sleep tonight. Will close for now and hope to > hear from you soon. > > Love and prayers to everyone. I lurked mostly the past few days. You have all been in my > thoughts. Welcome to the newbies. You've found the " right " place. Has anyone heard from > Heidi? It could be the blessed event is in progress. Carol......you and your mom and definitly > in my prayers. Tess....sorry about the disapointment. I would have liked to see you go also. > You would have been great. ah well...next time. Or there might even be a bigger project with > your name on it. > > Take care, Jan > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 !!! Welcome back, we've missed you!!! I've emailed you off the board. I can't wait to hear from you. Hugs, > hi everyone. this is brenda. Tuckers mom..some of you may remember me > others may not.. > > first of i noticed gails insurance paid, is this correct..is so > congrats..unfortunatly for us we did not get this..we fought and > fought and right now finances are so tight we can no longer > fight..with a divorce it is hard. > > tuckers update. he has been out of the band for 1 1/2 years. he got a > little more correction since then..he was going for speach therapy > and other skills that he was behind in..but he has caught up great so > we are no longer getting the therapy...he will be 3 dec 13..we are > now trying to conquer the potty > > my email has changed so let me give you that.. it is > mom2tucker12_13_00@c... > > anyone wanting to talk to me please email me as i have chosen to only > get special emails..not every single email or digest.. > > also could i get an update on mods/owner..all that stuff..and didn't > kendra have a baby a while back..wasn't it a boy..i'm so > lost..someone fill me in > > to all parents that are new i wanna say good luck in the banding and > the rounding of your childs head..and stay strong..in the end it is > worth it..this group is great and has helped we out a great deal..the > support here is unbeliveable..they are all like family.. > > thanks to all.. > > brenda rubedor > tuckers mom > banded 8/23/01 > grad 3/6/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 , Welcome back! Glad to hear that Tucker is doing great and no more speech therapy- awesome! Way to stay on top of things- we're working on the potty with too! 'mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Hi , and welcome back to the group. Heidi, mom to Jeffry, local helmet grad, MN Hugs & Drool, Jeffry, Heidi & Brett Zimmerman >From: " brenda " <mom2tucker12_13_00@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: i'm back >Date: Mon, 22 Sep 2003 21:05:53 -0000 > >hi everyone. this is brenda. Tuckers mom..some of you may remember me >others may not.. > >first of i noticed gails insurance paid, is this correct..is so >congrats..unfortunatly for us we did not get this..we fought and >fought and right now finances are so tight we can no longer >fight..with a divorce it is hard. > >tuckers update. he has been out of the band for 1 1/2 years. he got a >little more correction since then..he was going for speach therapy >and other skills that he was behind in..but he has caught up great so >we are no longer getting the therapy...he will be 3 dec 13..we are >now trying to conquer the potty > >my email has changed so let me give you that.. it is >mom2tucker12_13_00@... > >anyone wanting to talk to me please email me as i have chosen to only >get special emails..not every single email or digest.. > >also could i get an update on mods/owner..all that stuff..and didn't >kendra have a baby a while back..wasn't it a boy..i'm so >lost..someone fill me in > >to all parents that are new i wanna say good luck in the banding and >the rounding of your childs head..and stay strong..in the end it is >worth it..this group is great and has helped we out a great deal..the >support here is unbeliveable..they are all like family.. > >thanks to all.. > >brenda rubedor >tuckers mom >banded 8/23/01 >grad 3/6/02 > > > >For more plagio info Quote Link to comment Share on other sites More sharing options...
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