Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Pattie, I will not pretend to know a lot about osteopenia, but I can tell you about my friend. She was dx'd with osteopenia about several years ago. It is not as severe as osteoporosis, but if not treated will lead to osteoporosis. She takes fosamax for it and at her last physical, it is not 100% gone, but is much, much improved! I can only imagine from your question how your ortho visit went today. I will say some extra prayers for you this evening!!!! And, please forgive me if this info is not accurate. Meg, mom to 14yo, asthma, allergies, growth hormone def , 10yo, asthma allegries Annie 7yo, asthma, allergies, hopefully still hanging on to those pneumo antibodies! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 No-it is very accurate. Of course in an 8 year old...~SIGH~ there are a lot of SDS kids with osteopenia/osteoporosis, though...at least seems to be okay. Thanks for the prayers. I found this on another website: Definition of Osteopenia Osteopenia: Mild thinning of the bone mass, but not as severe as osteoporosis <http://www.medterms.com/script/main/art.asp?articlekey=434> . Osteopenia results when the formation of bone (osteoid synthesis) is not enough to offset normal bone loss (bone lysis). Osteopenia is generally considered the first step along the road to osteoporosis, a serious condition in which bone density is extremely low and bones are porous and prone to shatter. Diminished bone calcification, as seen on plain X-ray film, is referred to as osteopenia, whether or not osteoporosis is present. The diagnosis of osteopenia may also be made by a special X-ray machine for bone density testing. The World Health Organization (WHO) recognizes osteopenia, for people 50 and older with lower than average bone density who do not have osteoporosis. WHO defines osteopenia as a bone density between one standard deviation (SD) and 2.5 SD below the bone density of a normal young adult. (Osteoporosis is defined as 2.5 SD or more below that reference point.) " Osteopenia " has two Greek ancestors: " osteon " , bone and " penia " , poverty = bone poverty. Common Misspellings: osteopena, osteopoenia, osteopaenia ~Pattie~ " What matters is not great deeds, but great love. " ~ St. Therese of Lisieux Family website: www.shwachman.50megs.com _____ From: [mailto: ] On Behalf Of megoonie99 Sent: Monday, June 05, 2006 9:35 PM Subject: Re: Osteopenia question Pattie, I will not pretend to know a lot about osteopenia, but I can tell you about my friend. She was dx'd with osteopenia about several years ago. It is not as severe as osteoporosis, but if not treated will lead to osteoporosis. She takes fosamax for it and at her last physical, it is not 100% gone, but is much, much improved! I can only imagine from your question how your ortho visit went today. I will say some extra prayers for you this evening!!!! And, please forgive me if this info is not accurate. Meg, mom to 14yo, asthma, allergies, growth hormone def , 10yo, asthma allegries Annie 7yo, asthma, allergies, hopefully still hanging on to those pneumo antibodies! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 " ...She takes fosamax for it and at her last physical, it is not 100% gone, but is much, much improved!.. " Pam and Pattie - You are not going to believe this but my parents were on Fosamax. It caused slow death of the jaw bone -- and now my mom is facing various oral surgeries. We just figured this out last weekend and it was rather tragic. Now, this issue is all over the news -- apparantly, bisphosphonates are the problem -- perhaps you have heard. As always, weigh the costs/benefits... mom to CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Pattie, I have osteopenia - " A condition of bone in which decreased calcification, decreased density, or reduced mass occurs. " It is a precursor to or very early stages of osteoporosis - Osteoporosis is " A disease in which the bones become extremely porous, are subject to fracture, and heal slowly, occurring especially in women following menopause and often leading to curvature of the spine from vertebral collapse. " Hope this helps. mom to , 16, CVID, autoimmune dis. Pattie Curran <catholicmomof3@...> wrote: My MIL says that osteopenia and oteoporosis are two different things. I looked them up in my medical encyclopedia and have seen them used interchangeably in medical articles and such- Does anyone know if they are different? I have even heard doctors use them interchangeably.. Thanks for any info! ~Pattie~ " What matters is not great deeds, but great love. " ~ St. Therese of Lisieux Family website: www.shwachman.50megs.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Thanks, . I saw some info on that. There is an SDS child who had a problem of that nature with her jaw bone. SCARY.they were giving her fosamax. I doubt we would go that route... sometimes the " cure " is worse than the disease/problem! Thanks again! ~Pattie~ " What matters is not great deeds, but great love. " ~ St. Therese of Lisieux Family website: www.shwachman.50megs.com _____ From: [mailto: ] On Behalf Of Schulman Sent: Tuesday, June 06, 2006 12:46 AM Subject: Re: Re: Osteopenia question " ...She takes fosamax for it and at her last physical, it is not 100% gone, but is much, much improved!.. " Pam and Pattie - You are not going to believe this but my parents were on Fosamax. It caused slow death of the jaw bone -- and now my mom is facing various oral surgeries. We just figured this out last weekend and it was rather tragic. Now, this issue is all over the news -- apparantly, bisphosphonates are the problem -- perhaps you have heard. As always, weigh the costs/benefits... mom to CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2006 Report Share Posted June 6, 2006 > My MIL says that osteopenia and osteoporosis are two different things. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~ Hi Pattie!! Osteopenia is where the bones are thinning. One can be put on Actonel or Fosamax orally(mostly menopausal women) & it works good- great for them Osteoporosis is much worse & once you are in the this state, it does not reverse. When Blake was DX'ed with Osteoporosis in 2001, several of his Drs. called it Osteopenia because when you say " Osteoporosis " they do not believe children can have this. But it is being proven over & over again that it is possible for children to have FULL BLOWN Osteoporosis. especially children such as Blake who has been on long term steroids for different reasons. Chemo children or children who are on any kind of Coumadin/Lovenox therapy for blood issues(Blake is on both the long term steroids & Long term Lovenox for his rare Blood Clotting issues). Back in March of this yr. , Blake was taken off the Actonel because through the Bone Density Scans, it was proven that he was still in the SEVERE Range of Osteoporosis & he did NOT have Osteopenia. In April, he was then given his first round(5Yr. therapy....3 days every 12 weeks) of Pamidronate(Aredia)IV. It took 3 days 4hrs. a day. they only premedicated him with a mega dose(1000mg) of Tylenol each day & ran the meds. Blake did really good with the meds. & NO reactions!!!! He is going to get his second round in July & it WILL be done at home!!!! The Dr. who DX'ed the osteoporosis is the same Dr. who told us of the Definite DX of Shwachman-Diamond-Bodine-Syndrome. (mom to Blake 14, CVID with Complete T-Cell Dysfunction, SDS, Asthma, GERD, Asperger's Syndrome & Driving me absolutely INSANE......Teenagers....gotta LOVE 'em!!!!) http://www3.caringbridge.org/sc/blakester Come & Experience the Greatest Adventure of MY Lifetime!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009  Hi Carol, I'm very curious about the red yeast rice product for bone building! Did you have any bone density tests to verify that this product is working for you? Thanks for the info! Peace on earth. Cheryl P.S. I make a big pot of tea for bone building. I boil a pot of water, turn it off and throw in horsetail, nettles, and oatstraw. Then I put the lid on the pot and let it sit for a couple of hours. Then it goes in the fridge and I drink it over the next 2-3 days! I drink it as is (no honey, etc.) and think it's yummy!!! RE: Osteopenia Question .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009  Interesting - I have been drinking tea made from horsetail, nettles and mint. Very nice in this heat wave we are having. Last night I put the very thin peel from an orange in when I made it. Yum! Gayla Re: RE: Osteopenia Question  Cheryl P.S. I make a big pot of tea for bone building. I boil a pot of water, turn it off and throw in horsetail, nettles, and oatstraw. Then I put the lid on the pot and let it sit for a couple of hours. Then it goes in the fridge and I drink it over the next 2-3 days! I drink it as is (no honey, etc.) and think it's yummy!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Hi Cheryl, Yes, I was diagnosed with osteopenia about 10 years ago, and now I no longer have it. I’m not saying it was “just” this product that reversed it for me, because I also changed my diet at the same time, but I’m sure it contributed to the bone building process. My dietary changes were – I added more alkaline foods, eliminated meat (meat is very acidic, and your body uses calcium drawn from your bones and teeth to process the acid), eliminated dairy, I eat more beans (legumes), lots of dark green leafy veggies. At the time I was diagnosed, I was eating/drinking a lot of dairy, and taking calcium pills. My doctor at the time told me I needed to even take more pills and eat more dairy. So, not really believing much of what a doctor tells me, I did completely opposite of what he said. And it worked. Carol Re: Osteopenia Question Posted by: " CHERYL D JONES " cctux@... cctux Hi Carol, I'm very curious about the red yeast rice product for bone building! Did you have any bone density tests to verify that this product is working for you? Thanks for the info! Peace on earth. Cheryl Quote Link to comment Share on other sites More sharing options...
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