update on !

[Guest guest]

Hi everyone! I just wanted to give an update on since we've been back

from Chicago! She started school on Mon. and everything was fine and then

yesterday she started complaining of bad headaches, chest pains, and weakness

and pain in her upper legs and back.I kind of thought maybe a virus or

fatigue but then she complained even more last night and this morning she

wanted to stay home from school and she never wants to miss school. I gave

her a advil and sent her, well I called home to check messages and she had

called and said mom Im feeling worse and my chest really hurts and my head

and legs. I got concerned that maybe it was her meds so I called her

pediatrician as I figured he would tell me if it was related to meds or not

and then I could call the Psychiatrist so he confirmed that he thought it was

meds and to contact her other doc, I called right away and he called me back

within 1 1/2 hrs (I thought that was pretty good) he said to stop the

wellbutrin (which she takes 1 100mg a day) and continue the Luvox (2 50mg a

day). And he will see her next week and we will go from there he was confused

at why she would start having side effects after like 2 1/2 months on this. I

also suggested to taper the Luvox and he wasnt crazy about that and said it

would lose its affectiveness.I told him about the conference and that we had

met a child who took 50mg a day of luvox because at 100mg she was violent and

kicking, biting, hitting and running away. He talked about switching to

anafranil which I informed him she spent 15months on already and had to keep

going up and up and then gained alot of weight which really bothered her.

Zoloft made her spin in circles like the Tazmanian devil and rock back and

forth. So he spoke of Ipramine does anyone have experience with this one.

Also I learned at the conference from Dr. Mansuetto that when a

person is on the impulsive side of the spectrum instead of the compulsive

side they usually do better with Paxil and clonadine and things like that

instead of the SSRI'S like prozac, zoloft and Luvox. Any input from anyone

who knows anything that may help please send it my way because I know as soon

as we stop the Wellbutrin we are going to be peeling her off the walls again

because it causes serious over stimulazation. Im really for tapering off and

letting a little bit of symptoms surface so that we can focus more on cbt as

right now she's symptomatic free. What do you think. I was so amazed by

everything I learned at the conference that I still havnt processed it all I

havent really had a chance yet. It was INCREDIBLE being there. I am going to

start saving now for Denver. met a girl 10yrs old like her with OCD

named and that was undescribable how much that meant to her. She is soo

positive about her ocd now and know s she's not alone. We are still worried

about my 5yr Kelsey as she seems to have alot of anxiety and starting Kind.

has been awful for her she is having stomach problems and crying until her

eyes are swollen before school. she makes it through the day fine and seems

sooo happy when she comes home and says shes not going to cry anymore and

then the next morn. starts worrying all over again and can't eat, drink and

only cries and sobs. It breaks my heart I talked to her alot this morning and

found out all her fears, getting sent to the principals office, them giving

her work that she doesnt know how to do, her friend not being there that day,

etc etc. We talked about each issue and talked about what the worst thing

would be if that situation happened and then I told her what she could do if

it did but like the principal thing is highly unlikely but I reassured her

that she could never do anything that we would not love her anymore (she is

very perfectionistic and puts alot of pressure on herself to be the best in

class, the best at gymnastics, the best in sunday school). She seemed better

but fell apart again when we got there.Her teacher was wonderful this

afternoon with reassurance about every issue. I hope that I am handling this

right, I try to down play it as much as poss but feel like I cant have her

there with no coping schools as to what to do when shes feeling this way. I f

anyone has dealt with this please let me know as Im sure many have. Thanks

for your continued support and I will write more about the conference when my

mind is not so jumbled with my kids. Cya Nikki in Orlando P.S. Kathy H. we

are sooo enjoying the candy from Hawaii it is sinfully good. Thank you that

was so thoughtful to bring treats all that way I loved meeting everyone it

was wonderful!!!