Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 I don't have much positive to say, but at all costs I would avoid Crestor. It's very nasty stuff. Gayla Bob and Gayla Always Enough Ranch Acampo, CA Question - Fabrys Disease > Okay, I just went to the doctor and he confirmed with some blood tests > that I have this Fabrys Disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics... but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. From: Caroline <theladie@...>Subject: Question - Fabrys Diseasehealth Date: Monday, May 11, 2009, 7:38 PM Okay, I just went to the doctor and he confirmed with some blood tests that I have this Fabrys Disease. My eye doctor discovered it because of some calcium deposits in my eyes that he thought were strange. Anyway, what this is basically is the lack of or faulty enzyme needed to metabolize lipids. My doctor is wanting me to start taking Crestor. I am really not interested in taking this medication and looking for something that might work better that does not have side effects of weakness, nausea, muscle pain and whatever other horrible "possible" side effects. So, I come to all of you, this wonderful bunch of people who know everything! What would you suggest my next course of action should be? If you were in my shoes, what would you do?Thanks in advance for all of your help!Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Well my blood work shows my cholesterol and my triglicerides have raised drastically in the last year. This is why he wants to put me on this medication. I just really don't want to have to take it. I told him this yesterday but he wants to try it for 30 days. I still don't want to do it after reading about it. I have done a lot of research on Fabrys but just am a bit stumped on how to progress. I am working on going as raw as I can right now. I still have a teenage carnivore that I live with so I have to work around him and make sure he is sustained. Lol. I was reading about manganese and that is a major contributor to adjusting the enzyme level which I am missing. I will eat more bananas and dark leafy greens for these. I also thought I should do kombucha (is that spelled right?) but have no idea where to start or get a starter. I want to try this for the 30 days I have and see how my blood levels are after that and THEN if it hasn't helped I will take the medication. I am going to also start taking that complete nutrition I have had in my cabinet forever. If anyone else has some ideas I would be very open to it. I want to make some tonic but don't really have the six weeks to wait for it since I need to get started right away so I am not sure what I am going to do there. Anyway thanks for all of your help!Caroline Sent from Caroline's iPhoneOn May 12, 2009, at 12:02 PM, Suzanne <suziesgoats@...> wrote: I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics... but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Flax seed will lower cholestrol.. grind up only the amount of seeds you will take that day. They go stale in a day. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics.. . but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Don't know if this is relevant, but when I was a young teen, my mom and I were both diagnosed with elevated levels of triglycerides. The dr put on large doses of lecethin. It seemed to work. Hope this helps. I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics.. . but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 , I will look it up and see if it will help! Thanks!CarolineSent from Caroline's iPhoneOn May 12, 2009, at 1:58 PM, <deuteronomy2929@...> wrote: Don't know if this is relevant, but when I was a young teen, my mom and I were both diagnosed with elevated levels of triglycerides. The dr put on large doses of lecethin. It seemed to work. Hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 You might want to give yourself at least 90 days. I doubt 30 days would show great enough improvement unless you were fasctidious and perfect in all ways, water, food, exercise, stress, meditation.........just my thoughts on the whole situation. Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Just an added thought... since I was looking into a high colonic to get old feces and possibly stones to clear out... I read they deplete your body of much needed enzymes and bacteria. Not sure if you have ever had one or have them but if you do... stop!!! Candace From: Caroline <theladie (DOT) com>Subject: [HAWK_Health_ Awareness] Question - Fabrys DiseaseHAWK_Health_ AwarenessDate: Monday, May 11, 2009, 7:38 PM Okay, I just went to the doctor and he confirmed with some blood tests that I have this Fabrys Disease. My eye doctor discovered it because of some calcium deposits in my eyes that he thought were strange. Anyway, what this is basically is the lack of or faulty enzyme needed to metabolize lipids. My doctor is wanting me to start taking Crestor. I am really not interested in taking this medication and looking for something that might work better that does not have side effects of weakness, nausea, muscle pain and whatever other horrible "possible" side effects. So, I come to all of you, this wonderful bunch of people who know everything! What would you suggest my next course of action should be? If you were in my shoes, what would you do?Thanks in advance for all of your help!Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Isn't cholesterol processed (or not) in the liver? Maybe a liver cleanse would do you some good! As for me and my vegetarian diet... its going well except last night I decided to eat some chicken with my son and was up all night in the most HORRIBLE pain!!! Nothing would make it go away... not a hot soak.... not .... ANYTHING! To the point of dry heaving.... and I could taste blood..... That'll teach me! SERIOUSLY! OW! I guess "they" aren't kidding when they say to avoid meat at all costs if your body is trying to heal!!!!!! Candace I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics.. . but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I have considered a liver cleanse...I will look into it. I have no idea what this entails really. Thanks! Caroline Isn't cholesterol processed (or not) in the liver? Maybe a liver cleanse would do you some good! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I have never had one so I guess I am safe. LOL Thanks! Caroline Just an added thought... since I was looking into a high colonic to get old feces and possibly stones to clear out... I read they deplete your body of much needed enzymes and bacteria. Not sure if you have ever had one or have them but if you do... stop!!! Candace From: Caroline <theladie (DOT) com>Subject: [HAWK_Health_ Awareness] Question - Fabrys DiseaseHAWK_Health_ AwarenessDate: Monday, May 11, 2009, 7:38 PM Okay, I just went to the doctor and he confirmed with some blood tests that I have this Fabrys Disease. My eye doctor discovered it because of some calcium deposits in my eyes that he thought were strange. Anyway, what this is basically is the lack of or faulty enzyme needed to metabolize lipids. My doctor is wanting me to start taking Crestor. I am really not interested in taking this medication and looking for something that might work better that does not have side effects of weakness, nausea, muscle pain and whatever other horrible "possible" side effects. So, I come to all of you, this wonderful bunch of people who know everything! What would you suggest my next course of action should be? If you were in my shoes, what would you do?Thanks in advance for all of your help!Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Hi Caroline, I'm sorry to hear the trouble you're dealing with in health. I have recently become a big supporter of the posit that " the body can heal itself " ... this does not go without saying/noting that the body can heal itself when given the proper support system. I am also a big proponent of critical thinking and due diligence in anything I study... and I have come to understand in my own personal journey of experimentation and experience in health. I had come across a perspective (Bragg's healty lifestyle book - have to look up the exact name if you want to know what it is), that i believe to be true. patricia bragg indicated: It is not the doctor that heals the body... it is the vital force of the body [the body's life force] that does the ACTUAL healing of a wound/ailment. the doctor only sets the broken bones in place to provide proper healing... the medicines we take help the body reach a certain point of equilibrium [in your case, bringing down the abnormally high levels of cholesterol & lipids in your system] so that the body has a chance to heal itself. fyi, i'm not one to blindly believe everything i read, nor everything an " expert " tells me of their opinion... at the same time, I do consider those sources of expertise more weighted than some random opinion w/o any background in the field. considering the above observation by patricia bragg in her book, I would have to agree that no doctor nor medicine truly HEALS our body. the body, by its own power and natural function heals itself. the assistance from technology, meds, and doctors provide a more balanced state of equilibrium to give the body a chance to heal by it's own " vital force. " NOW, that said... consider this observation (an important observation, while not new, created an AHA moment for me b/c of the practical understanding of it): symptoms of our genetic weaknesses manifest at threshold. that's it.. done... simple, huh? so some questions come to mind: 1. did you ever have these symptoms or diagnosis when you were younger (or ever)? 2. what is your diet made up of? mostly veggies... processed foods... meats... frozen dinners (aka: processed food)? 3. do you get at least 30m of cardio (reaching 80% of your target heart rate) 3-4 times a week? the observation: symptoms of our genetic weaknesses manifest at threshold. explains how we notice things of our body not working as well as they used to ... or how we begin to have symptoms of disease and various commonly related health issues with age. in considering a health of the whole body... whole system health, the weakest link in the body is the first to break down and show signs of deterioration. the weakest link in our genetic makeup will show the symptoms before the stronger parts of our body. in your case, i would guess your genetic weakness is your eyes - it is where first symptoms have been observed/discovered by your doctor. left unchecked, i would submit that the next weakest link in your body will begin to manifest symptoms and so on... the body is a complex whole system... disruption in certain parts of the body bound to have impact (great or small depending on the body part) on overall health and ... convenience. it's this overall view I have come to understand and believe that my responses below originate: CAROLINE WROTE: >>what this > is basically is the lack of or faulty enzyme needed to metabolize lipids. << KELVIN WROTE: " symptoms of our genetic weaknesses manifest at threshold. " lack of or faulty enzyme needed to metabolize lipids is a symptom of a body not at equilibrium... UNLESS, this abnormality has been a lifelong situation... or considered a birth defect ... i would view this as your body (a part of your body at least) at threshold and now showing signs of potentially bigger problems. CAROLINE WROTE: >> > My doctor is wanting me to start taking Crestor. I am really not interested > in taking this medication and looking for something that might work better > that does not have side effects of weakness, nausea, muscle pain and > whatever other horrible " possible " side effects. << KELVIN WROTE: I presume that crestor would help bring down the abnormal levels of lipids or cholesterol in your system... meanwhile causing other symptoms (symptoms of further imbalance in your body) as you noted: " weakness, nausea, muscle pain, etc. " I am a proponent of meds when the body is at a state of emergency and cannot bring itself under " normal " healthy, balanced levels to give itself a chance to begin healing. The fact you have some time to discuss whether you should pursue the route of crestor or not, leads me to believe you are not at that " emergency state. " I also believe that when you help your body (by meds, tech, or self-discipline) get to a more balanced state of balance. this does not mean you have to be in ideal health/balance in order to heal... just means you have to be healthy/balanced enough so your body has a chance to focus on healing.. then again, getting to balance is the body's process of " healing " i believe. balance is how our body strives to reach... it is evident by how our body seeks to balance our blood pressure... our heart rate... our body temp... even our blood alkalinity... etc.! healing is the body seeking equilibrium (excuse me... i'm having another aha moment... and yes... nothing brilliant, again, BUT worth noting for myself at least!). ok so where was i... the good news, in my humble opinion, is that you do have an alternative option ... a natural and healthy option to reach equilibrium... but it's not without focus, commitment, and work... the question becomes: are you motivated enough to take the natural (and proper) way out to better health? oh ya... about drugs and herbs, etc. while herbs are not the same as drugs, herbs CAN create imbalance in the same way drugs can. HOWEVER, mother nature has a much more sophisticated and balanced way manufacturing a " drug " than mankind *currently* does in trying to imitate what mother nature has already perfected about drugs: we have yet to understand all the intricate interactions/reactions drugs have with the human body... we're still trying to figure out how nature does it. 0 points for current state of human technology... 1 point for mother nature. anyway... moving on... CAROLINE WROTE: >> If you were in my > shoes, what would you do? << KELVIN WROTE: knowing what i finally know now from experimentation and personal experience, I would consider what I have come to know, the 4 fundamentals of optimal health. not only consider them, but put together a plan based on these fundamentals to do consistently every day for the next 90 days. afterall, it is how I have come to truly enjoy the optimal health i have today: 1. you are what you eat... you're only as good as the quality of stuff you take in; 2. if you don't use it, you lose it... cardio exercise is VITAL for .... vitality and capacity; 3. elimination is critical to optimal health - much like living in a filthy home, you only welcome disease if you don't have a CLEAN system... or a clean home (to continue my analogy). 4. rest and relaxation... even god needed to rest on the 7th day. that, and the body needs time to recoup from the exercise and stress we put it thru. what would i do if i were in your shoes? in a nutshell, 1. i'd start whipping up some green smoothies on a daily basis - using at least 3 green leafy types, a banana, 1/4 lemon, water, ice and blend til smooth - drink either once or twice a day (morning/evening) and consider at least one of those smoothies a meal replacement by making one at least a 40oz size to down; 2. make time 4 times out of the week (mon, wed, fri, sat) to do 30m of cardio to bring my heart rate to 80% of my target heart rate; 3. eat steel cut oats once a day (you pick a time) - take in a 3/4-1cup's worth... if you don't eat enough, you won't have enough fiber to flush out the waste in your system. mix w/dried fruits (no sulfur dioxide!) or fresh fruits... add granola... avoid adding sugar or other sweeteners (i.e., honey) if you can! 4. try to get enough sleep daily so your body can recoup from the exercise and stress of the day; 5. fast once a week - only drinking green smoothie for that day (you can do a water fast if you're up to it). I had done this for myself when the doc recommended i consider taking cholesterol meds... i told the doc...NO WAY... gimme 3mo's i'll turn it around! in short order i came back to the doc's office and he was surprised to see i dropped ~25lbs and all levels were at optimal levels! it's hard at first...but fortunately, momentum is at your side. keep at it, and it won't be hard enough...it'll be as hard as brushing your teeth or cooking a meal or taking a shower... second nature! good luck! just my 2cents, Kelvin On Mon, May 11, 2009 at 5:38 PM, Caroline <theladie@...> wrote: > > > Okay, I just went to the doctor and he confirmed with some blood tests that > I have this Fabrys Disease. My eye doctor discovered it because of some > calcium deposits in my eyes that he thought were strange. Anyway, what this > is basically is the lack of or faulty enzyme needed to metabolize lipids. > > My doctor is wanting me to start taking Crestor. I am really not interested > in taking this medication and looking for something that might work better > that does not have side effects of weakness, nausea, muscle pain and > whatever other horrible " possible " side effects. So, I come to all of you, > this wonderful bunch of people who know everything! > > What would you suggest my next course of action should be? If you were in my > shoes, what would you do? > > Thanks in advance for all of your help! > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 ----- Then too I read it could have something to do with the fact that when you stop eating meat you lose the ability to digest it. I am vegetarian also and I sometimes have discomfort if I ever digress. Dove Isn't cholesterol processed (or not) in the liver? Maybe a liver cleanse would do you some good! As for me and my vegetarian diet... its going well except last night I decided to eat some chicken with my son and was up all night in the most HORRIBLE pain!!! Nothing would make it go away... not a hot soak.... not ..... ANYTHING! To the point of dry heaving.... and I could taste blood..... That'll teach me! SERIOUSLY! OW! I guess " they " aren't kidding when they say to avoid meat at all costs if your body is trying to heal!!!!!! Candace I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics.. . but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I didn't know that! Well I've only been avoiding it for a couple weeks but maybe that has something to do with it. My liver and gallbladder are in such bad shape I just assumed meat was causing the pain in the first place... when I stopped eating it the pain got much better and then last night... oooooooh I don't want to think about it! Candace I don't know much about the disease except that the drs I believe are trying to replace missing enzymes in the body. If it were me, I would research enzymes and start taking them... probably a plant enzyme and maybe some probiotics.. . but do your research on this. Depending on how severe it is.. you may have to take the med temporarily ... I hate saying this but from what I remember Febrys is nothing to mess around with for too long. A low fat, raw diet would be good too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Kelvin, I have read and will re read what you say...cause you say a LOT! And I totally appreciate that. The thing about the symptoms of this disease...they have not just appeared. The problem with this thing is that I have spent my whole life fighting several issues that none of the doctors I have been to in the past have had any idea why they are happening. I have had diagnosis for things that no one could ever really confirm, so they would change their minds...and I just ignored it and moved on and dealt with whatever was going on in the best way I know how. I have made many major changes in my eating over the last few years, but will now be making some HUGE ones...and I know I will have many people in my life that will balk about it, but I really don't care. I spent my time in the store today while my son was at his class and when I would see something I usually would love...I would think about how that could be the death of me. I'd have to say that is a pretty eye opening thought. So, I may have some small set backs over the next bit of time to get adjusted to these changes, but I know that I can really work hard at wrapping my head around what I know I need to do. I actually am relieved that I do have some explanation to all of these things that I have had going on over the years...but am definitely not going to let this thing win. I win...always have. Does this make sense? Caroline >>> Okay, I just went to the doctor and he confirmed with some blood tests that> I have this Fabrys Disease. My eye doctor discovered it because of some> calcium deposits in my eyes that he thought were strange. Anyway, what this> is basically is the lack of or faulty enzyme needed to metabolize lipids.>> My doctor is wanting me to start taking Crestor. I am really not interested> in taking this medication and looking for something that might work better> that does not have side effects of weakness, nausea, muscle pain and> whatever other horrible "possible" side effects. So, I come to all of you,> this wonderful bunch of people who know everything!>> What would you suggest my next course of action should be? If you were in my> shoes, what would you do?>> Thanks in advance for all of your help!> Caroline> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Hi Caroline: the fact there have been other symptoms makes my simple observation a bit obsolete. given you have had a history of symptoms over a period of time, it would be ignorant and inaccurate to state that any one thing is the cause of your maladies. I would expect that symptoms over time are the body's way of communicating the needs and issues of health that need to be addressed. again, more common sense - wish i could be more insightful! i'd like to explain a personal story that I believe follows the common sense obvious of my recent observation of symptoms of genetic weaknesses manifesting at threshold. i'll try to keep this short for my sake and yours (reading)! my dad, ever since college had this odd symptom of getting a bloody nose when he ate certain foods (they so happened to be deep fried foods)... i remember growing up, he'd talk about having eaten that fried chicken... or having too many chips or whatever the food was at the time that was deep fried. as he got older, he was diagnosed with high blood pressure, and was supposed to watch his b.pressure. i don't know if he had headaches, other than the ones we as kids would give him when we got rowdy! ... note: the angle i'm coming from is from the paradigm of the acid/alkaline system. when the body becomes too acidic, the body begins to breakdown -and in good form i would estimate that the body manifests symptoms at threshold (acid in body has surpassed body's tolerance for acidity in system). anyway... so he had this high b.p diagnosis... and at the time, he was under a lot of stress at work (big projects and conversion of systems and dealing with merging with another company)... he was also traveling a lot taking flights once a week. all the stress creates more acid in the system. my hypothesis: bloody nose when eating certain foods (too much fried foods), over time he was more sensitive (tolerance/capacity for fried foods lowered), developed high blood pressure at mid 50's?... stress from work and travel... the symtpoms: bloody nose, high blood pressure... not sure what else, as i've never really sat down to ask him.... eventually he had a stroke that paralyzed the left side of his body. i would guess that his genetic weakness was blood vessels? i'm not a doctor, so i can't pinpoint a more precise system or part of the body... circulatory system? (maybe that's too broad/vague!) anyway... this is only my hypothesis, but i would be willing to bet that there are many other ailments out there where the body puts out all types of symptoms for the person to pick up on and respond to. the symptoms - signals can become confusing when other parts of the body's system are reaching their tolerances (thresholds). when we have several systems beginning to show signs of failure (symptoms manifesting), it becomes more complicated to trace back to what the cause is... and even if you find the cause of that symptom, one cannot assume the cause is the SOURCE of the problem. cause and source are not necessarily the same... I can have a headache from the pain in my neck... but taking a pain killer or applying a pressure point or accupressure to relieve the headache does not cure the source of that problem. if the neck pain persists, i will get that headache back - it's only a function of time. when we remove the source that causes the pain to the neck will we have taken care of the true source of the headache. such a simple example, but i hope it makes my point. my point being that it's no wonder the myriad of doctors you've seen over time could not explain/pinpoint the true source or maybe even causes... for the series of symptoms you have had. we have many specialists who are focused on only an aspect of the body... it's easy to lose sight of the bigger picture and they are left to work with only that area of the body. who knows if that growth is caused by an overworked gland or dysfunctional organ b/c it is at ... threshold due to certain environmental factors (by diet or stress or lack of exercise, etc.) i have had a few unexplainable symptoms disappear when i reached equilibrium. it was an unexpected, but welcome surprise! today i'm fortunate to have (and appreciate everyday) the optimal health i have gained. while i do not advocate ignoring medical opinion, i can only offer what has become obvious in my own journey. regardless of what your expertise, or who you are in the medical field, you cannot dispute these fundamentals to optimal health: 1. diet 2. exercise 3. elimination 4. rest the trick is to know the what/how of each fundamental... and the timing and how it all works together. together, they all impact our health status. i look forward to your healthy recovery. and i have no doubt you'll beat this - you have the commitment and motivation... just need the plan and execution! Kelvin On Tue, May 12, 2009 at 5:59 PM, <theladie@...> wrote: > > > Kelvin, > > I have read and will re read what you say...cause you say a LOT! And I > totally appreciate that. > > The thing about the symptoms of this disease...they have not just appeared. > The problem with this thing is that I have spent my whole life fighting > several issues that none of the doctors I have been to in the past have had > any idea why they are happening. I have had diagnosis for things that no > one could ever really confirm, so they would change their minds...and I just > ignored it and moved on and dealt with whatever was going on in the best way > I know how. I have made many major changes in my eating over the last few > years, but will now be making some HUGE ones...and I know I will have many > people in my life that will balk about it, but I really don't care. I spent > my time in the store today while my son was at his class and when I would > see something I usually would love...I would think about how that could be > the death of me. I'd have to say that is a pretty eye opening thought. So, > I may have some small set backs over the next bit of time to get adjusted to > these changes, but I know that I can really work hard at wrapping my head > around what I know I need to do. I actually am relieved that I do have some > explanation to all of these things that I have had going on over the > years...but am definitely not going to let this thing win. I win...always > have. > > Does this make sense? > Caroline > > >> >> >> Okay, I just went to the doctor and he confirmed with some blood tests >> that >> I have this Fabrys Disease. My eye doctor discovered it because of some >> calcium deposits in my eyes that he thought were strange. Anyway, what >> this >> is basically is the lack of or faulty enzyme needed to metabolize lipids. >> >> My doctor is wanting me to start taking Crestor. I am really not >> interested >> in taking this medication and looking for something that might work better >> that does not have side effects of weakness, nausea, muscle pain and >> whatever other horrible " possible " side effects. So, I come to all of you, >> this wonderful bunch of people who know everything! >> >> What would you suggest my next course of action should be? If you were in >> my >> shoes, what would you do? >> >> Thanks in advance for all of your help! >> Caroline >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Milk thistle and more milk thistle is a good place to start. Gayla Bob and Gayla Always Enough RanchAcampo, CA Re: Question - Fabrys Disease I have considered a liver cleanse...I will look into it. I have no idea what this entails really. Thanks! Caroline Isn't cholesterol processed (or not) in the liver? Maybe a liver cleanse would do you some good! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I am still questioning why cholesterol is so bad. Doesn't anyone read Linus ing any more? Gayla Bob and Gayla Always Enough Ranch Acampo, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 "I win...always have. Does this make sense? Caroline" Attagirl! Gayla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I think it's viewed as bad in context of the typical american fast food diet that we have ecome know for .. as well as the growing number of cases we have in the u.s. for cardiac disease and type2 diabetes. cholesterol is as bad as is salt is as bad as is sugar is as bad...as to anything in excess that can majorly impact the state of our health and our body's function. at least.. that's how I see it -kelvin via cell.. On 5/12/09, Gayla <aeranch@...> wrote: > I am still questioning why cholesterol is so bad. Doesn't anyone read Linus > ing any more? > Gayla > > Bob and Gayla > Always Enough Ranch > Acampo, CA > > -- Kelvin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Cholesterol is necessary for proper brain function for starters. The drs have so many people scared of heart attacks because of placque build ups from the Bad Guy - cholesterol. But if your body has the tools to repair itself (vitamin C etc) there is no placque build up. I think typical fast food is deadly because of saturated fats. Even KFC is trying grilled chicken. Believe that??? LOL Gayla Bob and Gayla Always Enough Ranch Acampo, CA Re: Question - Fabrys Disease >I think it's viewed as bad in context of the typical american fast > food diet that we have ecome know for .. as well as the growing number > of cases we have in the u.s. for cardiac disease and type2 diabetes. > cholesterol is as bad as is salt is as bad as is sugar is as bad...as > to anything in excess that can majorly impact the state of our health > and our body's function. > > at least.. that's how I see it > > -kelvin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I'd heard my stones are made of cholesterol.... is that wrong? Candace From: Gayla <aeranch@...>Subject: Re: Question - Fabrys Diseasehealth Date: Wednesday, May 13, 2009, 12:26 AM Cholesterol is necessary for proper brain function for starters. The drs have so many people scared of heart attacks because of placque build ups from the Bad Guy - cholesterol. But if your body has the tools to repair itself (vitamin C etc) there is no placque build up.I think typical fast food is deadly because of saturated fats. Even KFC is trying grilled chicken. Believe that??? LOLGaylaBob and Gayla Always Enough RanchAcampo, CA Re: [HAWK_Health_ Awareness] Question - Fabrys Disease>I think it's viewed as bad in context of the typical american fast> food diet that we have ecome know for .. as well as the growing number> of cases we have in the u.s. for cardiac disease and type2 diabetes.> cholesterol is as bad as is salt is as bad as is sugar is as bad...as> to anything in excess that can majorly impact the state of our health> and our body's function.>> at least.. that's how I see it >> -kelvin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 I have colonics every so often and they will do a "fill" at the very end with any number of things to replace whatever you think you lost. Personally with my colon I'd rather have it cleaned out and then replace the bacteria than leave all the old fecal matter sitting in there doing more damage. I've had acidophilos fills, oxygen fills, coffee fills, you name it, I've tried it with no adverse effect. (or is it affect?) Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 That is what Hulda claims. I do not know for sure. Gayla Bob and Gayla Always Enough RanchAcampo, CA Re: [HAWK_Health_ Awareness] Question - Fabrys Disease>I think it's viewed as bad in context of the typical american fast> food diet that we have ecome know for .. as well as the growing number> of cases we have in the u.s. for cardiac disease and type2 diabetes.> cholesterol is as bad as is salt is as bad as is sugar is as bad...as> to anything in excess that can majorly impact the state of our health> and our body's function.>> at least.. that's how I see it >> -kelvin Quote Link to comment Share on other sites More sharing options...
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