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I just wanted to add that this list is such a wealth of support and info you wont be a newbie for long.You will be a JRA pro in no time.Nobody knows everything,sneaky Arthur makes sure of that,but you can be sure that you will be more prepaired to make medical decisions for your child.Before joining this list last October the rheumy was the next thing to God and I would just go along with whatever they said or wanted to do.Now I tell them what I want and I either get it or I dont.s treatment is much more agressive then if the rheumies just did what they wanted.He is on triple combination DMARD therapy,but he is just as normal as any child.As soon as he can come off the prednisilone for 6 months we start decreasing.With any luck we will lick this thing.For any of you that have only had a diagnoses for a few months,be patiant,it takes time,lots of it,but with the right drug coctail,it is possible for your child to live a normal life,with some bumps along the way.

Love and Hugs

Becki and 4systemic

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  • 3 months later...

Hi Lucy, thank you for the nice welcome. I am new to the group. i

am usually not so quiet however when i got my emails after joining

this group, it had said that spelling and grammar were to be watched

and to re-read before posting. I am lousy at both so I decided I

would just sit back and aquire support by reading the wonderful posts

as i hate having to work so hard to make sure every word is spelled

correct. I just dont have time, and I really dont type well so that

makes it even worse. :( But again, I thank you for the support.

congrats on your success so far....I am rooting for you. :) I am

5'7 " 270lbs from Washington State. Huggies.....Boo

> Welcome to all the newbies!!

>

> I hope you all feel very welcome here, as I certainly have. My

name is Lucy, I live in IL. I had some success and lost 40 lbs but I

am back up a few. I am up to 212.2 lbs and would like to lose

another 75 lbs. I originally needed to lose 110 lbs and the ladies

here are very helpful with support, advice or just a shoulder to cry

on.

>

> This is a wonderful list with terrific people, so again welcome.

>

> Lucy

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Boo - I thought your post was great - 100%.

Jump right in and share with us all! The more you share the more inspired you will feel -- at least that is how it works for me!

Take Care,

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Well, I for one am a terrible speller. So I try really hard to remember to hit the F7 key and run a spell check before I post. Most email programs have a spell checker. I have been on this list for about 5 months and I cant recall anyone getting upset over spelling or grammar. Mainly I see lots of hints, tips,suggestions, support and love on this list.

Today I am reading the plan my doctor and I have for 2003 and I will share parts of it with you all later. I need to run a few errands before company comes.

Jelayne

250/189/150?

-----Original Message-----From: Boo <booboo_wa@...> [mailto:booboo_wa@...] Sent: Monday, December 30, 2002 8:49 PM100-plus Subject: Re: NewbiesHi Lucy, thank you for the nice welcome. I am new to the group. i am usually not so quiet however when i got my emails after joining this group, it had said that spelling and grammar were to be watched and to re-read before posting. I am lousy at both so I decided I would just sit back and aquire support by reading the wonderful posts as i hate having to work so hard to make sure every word is spelled correct. I just dont have time, and I really dont type well so that makes it even worse. :( But again, I thank you for the support. congrats on your success so far....I am rooting for you. :) I am 5'7" 270lbs from Washington State. Huggies.....Boo> Welcome to all the newbies!!> > I hope you all feel very welcome here, as I certainly have. My name is Lucy, I live in IL. I had some success and lost 40 lbs but I am back up a few. I am up to 212.2 lbs and would like to lose another 75 lbs. I originally needed to lose 110 lbs and the ladies here are very helpful with support, advice or just a shoulder to cry on.> > This is a wonderful list with terrific people, so again welcome.> > LucyTo leave the list, send a blank email to: 100-plus-unsubscribe To contact the owners of this group, send an email to:100-plus-owner

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  • 3 months later...
Guest guest

Glad you folks could join us. I have to apologize to some of you for taking

so long to get your message on the board. Problems with the system somewhere,

but if some of you are still being monitored please let me know and I will

change your status.

Connie

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Guest guest

Glad you folks could join us. I have to apologize to some of you for taking

so long to get your message on the board. Problems with the system somewhere,

but if some of you are still being monitored please let me know and I will

change your status.

Connie

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  • 1 year later...
Guest guest

Hi to all the newbies. RA is a nasty beast that can affect you at any age,

but most of us here are late forties when we were diagnosed I believe.

I'm 49, have two grown children, a newly engaged daughter who is 20, and an

engaged for several years, but no date yet, son, who is 23.

Also a not very helpful husband of 26 years.

I have two collies whom are my new babies, since my kids are off, and a very

pesty big grey cat.

I live in Northern Minnesota and have lived here forever. I am at least the

second generation to have RA, my father had it very bad.

Sorry to have all of you in this boat with us, but we at least have each

other to whine, complain and share with. It is a great group.

Noreen

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  • 9 months later...
Guest guest

On 4/25/05, Connie Mullins <cmull3700@...> wrote:

> Please tell us why you decided to join SSRI medications.

> We would all love to hear from you.

>

> Connie (Moderator)

>

I joined because I am currently on Prozac, and I want to get off it.

I have been taking prozac 60mg a day for ten years. I was also on

zyprexa (sp) and trazidone. I have stopped the zyprexa and trazidone.

I am not sure I ever needed any of this. I was young and immature

and needed to learn to deal with other people better. My problems

were / are not really great depression but my inter personal

relational skill are quite poor.

Troy

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Guest guest

On 4/25/05, Connie Mullins <cmull3700@...> wrote:

> Please tell us why you decided to join SSRI medications.

> We would all love to hear from you.

>

> Connie (Moderator)

>

I joined because I am currently on Prozac, and I want to get off it.

I have been taking prozac 60mg a day for ten years. I was also on

zyprexa (sp) and trazidone. I have stopped the zyprexa and trazidone.

I am not sure I ever needed any of this. I was young and immature

and needed to learn to deal with other people better. My problems

were / are not really great depression but my inter personal

relational skill are quite poor.

Troy

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Guest guest

Hello Troy and welcome,

We would all encourage you to decrease slowly with

support from a good doctor (which are hard to find)

that is familiar with decreasing. And to also get

support from your family and friends. I would also

recommend that you join a group called withdrawl

and recovery. You will find much needed support from

these members. Thanks for sharing Troy.

Connie (SSRI-Crusader Moderator)

--- Troy Bik <troyorama@...> wrote:

---------------------------------

On 4/25/05, Connie Mullins <cmull3700@...>

wrote:

> Please tell us why you decided to join

SSRI medications.

> We would all love to hear from you.

>

> Connie (Moderator)

>

I joined because I am currently on Prozac, and I want

to get off it.

I have been taking prozac 60mg a day for ten years. I

was also on

zyprexa (sp) and trazidone. I have stopped the

zyprexa and trazidone.

I am not sure I ever needed any of this. I was young

and immature

and needed to learn to deal with other people better.

My problems

were / are not really great depression but my inter

personal

relational skill are quite poor.

Troy

---------------------------------

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Guest guest

Hello Troy and welcome,

We would all encourage you to decrease slowly with

support from a good doctor (which are hard to find)

that is familiar with decreasing. And to also get

support from your family and friends. I would also

recommend that you join a group called withdrawl

and recovery. You will find much needed support from

these members. Thanks for sharing Troy.

Connie (SSRI-Crusader Moderator)

--- Troy Bik <troyorama@...> wrote:

---------------------------------

On 4/25/05, Connie Mullins <cmull3700@...>

wrote:

> Please tell us why you decided to join

SSRI medications.

> We would all love to hear from you.

>

> Connie (Moderator)

>

I joined because I am currently on Prozac, and I want

to get off it.

I have been taking prozac 60mg a day for ten years. I

was also on

zyprexa (sp) and trazidone. I have stopped the

zyprexa and trazidone.

I am not sure I ever needed any of this. I was young

and immature

and needed to learn to deal with other people better.

My problems

were / are not really great depression but my inter

personal

relational skill are quite poor.

Troy

---------------------------------

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Guest guest

On 4/25/05, Connie Mullins <cmull3700@...> wrote:

> Hello Troy and welcome,

>

> We would all encourage you to decrease slowly with

> support from a good doctor (which are hard to find)

> that is familiar with decreasing. And to also get

> support from your family and friends. I would also

> recommend that you join a group called withdrawl

> and recovery. You will find much needed support from

> these members. Thanks for sharing Troy.

>

> Connie (SSRI-Crusader Moderator)

All this is already done or in process. I found a great dr that seems

very excited / enthusiastic about getting me off the meds. I am a

member of Withdrawl and Recovery but that group is starting to give me

some bad vibes....

Troy

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Guest guest

On 4/25/05, Connie Mullins <cmull3700@...> wrote:

> Hello Troy and welcome,

>

> We would all encourage you to decrease slowly with

> support from a good doctor (which are hard to find)

> that is familiar with decreasing. And to also get

> support from your family and friends. I would also

> recommend that you join a group called withdrawl

> and recovery. You will find much needed support from

> these members. Thanks for sharing Troy.

>

> Connie (SSRI-Crusader Moderator)

All this is already done or in process. I found a great dr that seems

very excited / enthusiastic about getting me off the meds. I am a

member of Withdrawl and Recovery but that group is starting to give me

some bad vibes....

Troy

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Guest guest

>>All this is already done or in process. I found a

great dr that seems

very excited / enthusiastic about getting me off the

meds. I am a

member of Withdrawl and Recovery but that group is

starting to give me

some bad vibes....

Excellent Troy, from the looks of your sentence

structure, you look like your doing great. Considering

you were on this drug for so long. Although this

groups focus is to put an end to the use of these

drugs, we still love to hear words of encouragement.

Stories were people were able to come off this trash

successfully, so if you have a story you would like to

share we would love to read it. Also, i would

recommend you keep a diary of your experience and then

even a shorter copy of your story, so that you can

share with others without having to type and re-type

every time someone wants to know what you did and how

you did it. Keeping in mind the readers need to be

very careful when decreasing. People want off these

drugs so bad and soooo many times they decrease to

fast and end up back in the hospital. So, we want to

be mindful of this as well.

Thanks for sharing Troy, take care and please keep us

posted on your progress. :)

Connie (SSRI-Crusader Moderator)

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Guest guest

Since I live with a former smart man who no longer has a brain, and who believes

every word spoken by his shrink, including the diagnoses of ME that arise during

their 10 minutes every three months @ $70 (cash)(BTW, the shrink has never met

me, nor even laid a rheumy eyeball upon me), I wanted to have some contact with

people who KNOW why I am not pleased with this state of affairs. gertie

Re: Newbies

Please tell us why you decided to join SSRI medications.

We would all love to hear from you.

Connie (Moderator)

------------------------------------------------------------------------------

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Guest guest

Since I live with a former smart man who no longer has a brain, and who believes

every word spoken by his shrink, including the diagnoses of ME that arise during

their 10 minutes every three months @ $70 (cash)(BTW, the shrink has never met

me, nor even laid a rheumy eyeball upon me), I wanted to have some contact with

people who KNOW why I am not pleased with this state of affairs. gertie

Re: Newbies

Please tell us why you decided to join SSRI medications.

We would all love to hear from you.

Connie (Moderator)

------------------------------------------------------------------------------

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  • 2 months later...
Guest guest

Hi Deborah and Audrey,

Welcome to our LL family!!!! You'll both love LL and be amazed at how better

you'll look and feel after using it. It's become a way of life for most of us.

It's as important as brushing your teeth each day and it's sooooo easy and very

effective!!!!! I love to do my LL breaths while watching TV in the evening. I

feel so good afterwards... I feel like I get a great workout plus I feel so

relaxed. You'll find that there's nothing quite like LL, it's amazing!!!!!

Love, Liz

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  • 2 months later...
  • 2 years later...

Hello , and welcome to the Forum.

> Hello, I read the article in the mail yesterday and it struck a chord.> My wife has been diagnosed with Chronic Fatigue for the last 10 years> and the situation is getting worse. She is now 40 and has the energy> levels of a 90 year old - (hope she doesn't read this post...).

I am sure your wife would understand - you obviously care about her very much and want to help her regain her normal health. We will try to help you to do this - so do tell her, there is light at the end of the tunnel.

> The symptons she suffers from resemble those of having an underactive> thyroid. She has constipation, extreme tiredness, bags under her eyes,> describes thinking as "thinking through a fog", has a poor memory> (mind you sometimes that works for me!!)- whereas she used to have a> great memory etc etc.

Those symptoms can be hypothyroidism. Have a look at our website www.tpa-uk.org.uk and click on "Hypothyroidism" and you will see a sub menu showiong symptoms and signs. Check these off with those your wife is suffering. Brain fog and short term memory are usually because not enough thyroid hormone is being made and the brain needs thyroid hormone to make it work. Once she gets treated, do assure her that she will get her brain back.> > She has the Epstein Barr virus present in her blood and so we accepted> the CF diagnosis. However over the years, doctors treating her on> unrelated conditions have questioned whether she as a thyroid problem.> Somethng about "the appearance of her neck". When we had her tested> for thyroid - we were told the results were "normal". However since> reading the Mail article - I now understand that "normal" des not mean> that there isn't a problem.

The British Thyroid Association I blame for the irresponsibility olf doctors within the NHS not looking further than thyroid blood results to get a diagnosis of hypothyroidism. They state on their website (and as advice for doctors) that to reach a precise diagnosis of hypothyroidism, ONLY thyroid function tests will do. This is appalling. A doctor should take into account all the symptoms a patient complains of, look at all the signs, do a thorough clinical examination, listen to the patients story, ask if any members of the family have a thyroid or autoiommune problem - and if they are not 'educated' in how to diagnose, then a GP should refer his patient to an endocrinologist .> > I would like to get my wife Leigh properley tested.

Leigh should ask her GP to test her blood for Thyroid Stimulating Hormone (TSH), Free Thyroxine (FT4), Free Triiodothyronine (FT3). She should also be tested to see if she has antibodies to her thyroid, because the majority of suffers do. If she does, this will mean she has Hashimoto's disease. The antibodies see her thyroid tissue as public enemy number one and set about its destruction. The effect of this is that her thyroid gland is no longer able to excrete the amount of hormone necessary to make her function as she should. If your doctor refuses these tests, you can get them done privately through NPTech Services. Go to our FILES from the Home Page and scroll down, and you will find the document there. It tells you all the tests they do, the prices they charge and the hospitals to get blood drawn.> > can anyone help and let me know the best way to proceed. I have been> told a urine test is better than blood as urine records hormone over> the last 24 hours and blood only hormone level at the time of sample.

It is a fact that blood tests ONLY show the level of thyroid hormone that is in the circulating blood, it does not show what is in the tissues. The urine test does, but it is expensive. Once you have the results, do post them to us (together with the reference range for each test.

> Also the article mentioned Porcine Thyroid treatment. Any advice??

We try to promote Armour Thyroid which is a natural desiccated pigs thyroid extract. It contains all the thyroid hormones a normal body needs. Go to our website www.tpa-uk.org.uk and have a look at the information about treatment under "hypothyroidiosm". While you are there, check out the symptoms and signs and see how many of these your wife suffers.

Would you be prepared to take your wife to a private consultant. If so, let me know where you live in the UK and we will try to help you. We know some good ones, and we know some bad ones.

Luv - Sheila

> > >

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Hello Sheila

That was a really comprehensive reply that took some time to compose.

Thank you!

Yes, I would be willing to do whatever is necessary to test and get a

result - even if only to discount the thyroid as a problem.

Any recommendations for private treatment/diagnosis would be much

appreciated..

Thanks again Sheila.

Regards

>

>

> Hello , and welcome to the Forum.

>

>

> > Hello, I read the article in the mail yesterday and it struck a chord.

> > My wife has been diagnosed with Chronic Fatigue for the last 10 years

> > and the situation is getting worse. She is now 40 and has the energy

> > levels of a 90 year old - (hope she doesn't read this post...).

>

> I am sure your wife would understand - you obviously care about her very

> much and want to help her regain her normal health. We will try to help

> you to do this - so do tell her, there is light at the end of the

> tunnel.

>

>

> > The symptons she suffers from resemble those of having an underactive

> > thyroid. She has constipation, extreme tiredness, bags under her eyes,

> > describes thinking as " thinking through a fog " , has a poor memory

> > (mind you sometimes that works for me!!)- whereas she used to have a

> > great memory etc etc.

>

> Those symptoms can be hypothyroidism. Have a look at our website

> www.tpa-uk.org.uk <http://www.tpa-uk.org.uk> and click on

> " Hypothyroidism " and you will see a sub menu showiong symptoms and

> signs. Check these off with those your wife is suffering. Brain fog and

> short term memory are usually because not enough thyroid hormone is

> being made and the brain needs thyroid hormone to make it work. Once she

> gets treated, do assure her that she will get her brain back.

> >

> > She has the Epstein Barr virus present in her blood and so we accepted

> > the CF diagnosis. However over the years, doctors treating her on

> > unrelated conditions have questioned whether she as a thyroid problem.

> > Somethng about " the appearance of her neck " . When we had her tested

> > for thyroid - we were told the results were " normal " . However since

> > reading the Mail article - I now understand that " normal " des not mean

> > that there isn't a problem.

>

> The British Thyroid Association I blame for the irresponsibility olf

> doctors within the NHS not looking further than thyroid blood results to

> get a diagnosis of hypothyroidism. They state on their website (and as

> advice for doctors) that to reach a precise diagnosis of hypothyroidism,

> ONLY thyroid function tests will do. This is appalling. A doctor should

> take into account all the symptoms a patient complains of, look at all

> the signs, do a thorough clinical examination, listen to the patients

> story, ask if any members of the family have a thyroid or autoiommune

> problem - and if they are not 'educated' in how to diagnose, then a GP

> should refer his patient to an endocrinologist .

> >

> > I would like to get my wife Leigh properley tested.

>

> Leigh should ask her GP to test her blood for Thyroid Stimulating

> Hormone (TSH), Free Thyroxine (FT4), Free Triiodothyronine (FT3). She

> should also be tested to see if she has antibodies to her thyroid,

> because the majority of suffers do. If she does, this will mean she has

> Hashimoto's disease. The antibodies see her thyroid tissue as public

> enemy number one and set about its destruction. The effect of this is

> that her thyroid gland is no longer able to excrete the amount of

> hormone necessary to make her function as she should. If your doctor

> refuses these tests, you can get them done privately through NPTech

> Services. Go to our FILES from the Home Page and scroll down, and you

> will find the document there. It tells you all the tests they do, the

> prices they charge and the hospitals to get blood drawn.

> >

> > can anyone help and let me know the best way to proceed. I have been

> > told a urine test is better than blood as urine records hormone over

> > the last 24 hours and blood only hormone level at the time of sample.

>

>

> It is a fact that blood tests ONLY show the level of thyroid hormone

> that is in the circulating blood, it does not show what is in the

> tissues. The urine test does, but it is expensive. Once you have the

> results, do post them to us (together with the reference range for each

> test.

>

>

> > Also the article mentioned Porcine Thyroid treatment. Any advice??

>

> We try to promote Armour Thyroid which is a natural desiccated pigs

> thyroid extract. It contains all the thyroid hormones a normal body

> needs. Go to our website www.tpa-uk.org.uk <http://www.tpa-uk.org.uk>

> and have a look at the information about treatment under

> " hypothyroidiosm " . While you are there, check out the symptoms and signs

> and see how many of these your wife suffers.

>

> Would you be prepared to take your wife to a private consultant. If so,

> let me know where you live in the UK and we will try to help you. We

> know some good ones, and we know some bad ones.

>

> Luv - Sheila

>

>

> >

> >

> >

>

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Tell us where you live in the UK and we will see if there are any good endocrinologists around there. Do ask Leigh's GP to carry out the blood tests previously mentioned as soon as possible, and post the results here with the reference ranges. They usually take about a week to 10 days to come back.

Luv - Sheila

Hello SheilaThat was a really comprehensive reply that took some time to compose.Thank you!Yes, I would be willing to do whatever is necessary to test and get aresult - even if only to discount the thyroid as a problem.Any recommendations for private treatment/diagnosis would be muchappreciated..Thanks again Sheila.Regards>> > Hello , and welcome to the Forum.> > > > Hello, I read the article in the mail yesterday and it struck a chord.> > My wife has been diagnosed with Chronic Fatigue for the last 10 years> > and the situation is getting worse. She is now 40 and has the energy> > levels of a 90 year old - (hope she doesn't read this post...).> > I am sure your wife would understand - you obviously care about her very> much and want to help her regain her normal health. We will try to help> you to do this - so do tell her, there is light at the end of the> tunnel.> > > > The symptons she suffers from resemble those of having an underactive> > thyroid. She has constipation, extreme tiredness, bags under her eyes,> > describes thinking as "thinking through a fog", has a poor memory> > (mind you sometimes that works for me!!)- whereas she used to have a> > great memory etc etc.> > Those symptoms can be hypothyroidism. Have a look at our website> www.tpa-uk.org.uk <http://www.tpa-uk.org.uk> and click on> "Hypothyroidism" and you will see a sub menu showiong symptoms and> signs. Check these off with those your wife is suffering. Brain fog and> short term memory are usually because not enough thyroid hormone is> being made and the brain needs thyroid hormone to make it work. Once she> gets treated, do assure her that she will get her brain back.> >> > She has the Epstein Barr virus present in her blood and so we accepted> > the CF diagnosis. However over the years, doctors treating her on> > unrelated conditions have questioned whether she as a thyroid problem.> > Somethng about "the appearance of her neck". When we had her tested> > for thyroid - we were told the results were "normal". However since> > reading the Mail article - I now understand that "normal" des not mean> > that there isn't a problem.> > The British Thyroid Association I blame for the irresponsibility olf> doctors within the NHS not looking further than thyroid blood results to> get a diagnosis of hypothyroidism. They state on their website (and as> advice for doctors) that to reach a precise diagnosis of hypothyroidism,> ONLY thyroid function tests will do. This is appalling. A doctor should> take into account all the symptoms a patient complains of, look at all> the signs, do a thorough clinical examination, listen to the patients> story, ask if any members of the family have a thyroid or autoiommune> problem - and if they are not 'educated' in how to diagnose, then a GP> should refer his patient to an endocrinologist .> >> > I would like to get my wife Leigh properley tested.> > Leigh should ask her GP to test her blood for Thyroid Stimulating> Hormone (TSH), Free Thyroxine (FT4), Free Triiodothyronine (FT3). She> should also be tested to see if she has antibodies to her thyroid,> because the majority of suffers do. If she does, this will mean she has> Hashimoto's disease. The antibodies see her thyroid tissue as public> enemy number one and set about its destruction. The effect of this is> that her thyroid gland is no longer able to excrete the amount of> hormone necessary to make her function as she should. If your doctor> refuses these tests, you can get them done privately through NPTech> Services. Go to our FILES from the Home Page and scroll down, and you> will find the document there. It tells you all the tests they do, the> prices they charge and the hospitals to get blood drawn.> >> > can anyone help and let me know the best way to proceed. I have been> > told a urine test is better than blood as urine records hormone over> > the last 24 hours and blood only hormone level at the time of sample.> > > It is a fact that blood tests ONLY show the level of thyroid hormone> that is in the circulating blood, it does not show what is in the> tissues. The urine test does, but it is expensive. Once you have the> results, do post them to us (together with the reference range for each> test.> > > > Also the article mentioned Porcine Thyroid treatment. Any advice??> > We try to promote Armour Thyroid which is a natural desiccated pigs> thyroid extract. It contains all the thyroid hormones a normal body> needs. Go to our website www.tpa-uk.org.uk <http://www.tpa-uk.org.uk> > and have a look at the information about treatment under> "hypothyroidiosm". While you are there, check out the symptoms and signs> and see how many of these your wife suffers.> > Would you be prepared to take your wife to a private consultant. If so,> let me know where you live in the UK and we will try to help you. We> know some good ones, and we know some bad ones.> > Luv - Sheila> > > >> > > >>

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, have a look in our FILES and scroll down until you see our list of "Doctors who Will". See if there is anybody there that you could be referred to - you can go outside of your area within the NHS, or go where you wish privately.

Luv - Sheila

Hello EverybodyWe live in Hertfordshire. Are there any good endocrinologists in thisarea?

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2/1221 - Release Date: 12/01/2008 14:04

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Hi

If you find one pls let me know. I live on the Herts/Cambs border & I am also looking to find one fairly close to home.

Val

Hello EverybodyWe live in Hertfordshire. Are there any good endocrinologists in thisarea?

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