Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 I have been taking vitamin C for a couple of weeks now, however, my hands haven't seemed to have gotten any better at all. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Thanks Gretchen, I will give it more time. I am probably taking about 5000 mg a day and I am also taking vitamin E. Its just when it gets colder (this time of year), my CMT seems worse and I'm hoping this vitamin C will at least keep it stable. Thanks for the advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Just to make sure I'm not reading anything wrong into this, because I've been taking 1000 mlgrms a day of Vitamin C, it IS good for us, right?? I've only been taking it this strong for the last 4 months or so. So if anyone has an input, I am doing the right thing, right??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hello , No doctor has ever suggested that vitamin C is harmful. Some simply say what your body can not absorb will be excreted in the urine. EdM from NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Hi Sherry, My daughter and I are still taking Vitamin C. I take between 6,000 and 7,000 a night now time release. It is still helping. I continue to gain strength in my hands and have more movement in my toes. I have been taking it for about 2 years now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Hi , Which type of CMT do you have? It seems like those who are reporting improvement then to have type 1A. I wonder if it would help type 2? Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Hi Barbara, I believe I have 1A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Spy, What dose are you taking? Is it Natural or man made? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Spy, , others taking Vitamin C, Can you remind us again how much Vitamin C you are taking? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 I am taking 6,000 to 7,000 milligrams a day of time-release Vitamin C, GNC brand. My hands don't even look like my hands anymore. My right hand pinky finger is almost straight. My left hand pinky finger needs more time but it has straightened out some. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Donna in London, From what I have read about Vitamin C and from what I have done for myself over the past 2 years now 1,000 milligrams a day is not enough to turn anything around as far as CMT goes. Of course I hope I am wrong. It would be much easier to just take 1 pill a day and a lot cheaper. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi, all I used to take 3000 twice a day, breakfast and dinner. I take vit E as well to help absorb the the Vit C. I have since reduced to 2000 twice a day and have noticed that I am more tired so I think I am go to back to 3000 twice a day. I buy the big bottles at Costco and they are great. I am a 230 lbs male 36 years old for reference. I find the Vit C helps alot in many ways. My daughter is 6 and she takes 250 twice a day, same thing with meals. She does not take Vit E, just her multi vitamin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi Jo, I can not believe how much feeling I actually have in my fingers. I never knew it was gone until it came back. My pointer finger has the most feeling and strength. I can do a peace sign no problem now (Right hand only). Peace out everyone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Hi , I need to increase my Vit C intake, thought interesting when you said that regarding your little finger...on my right hand , my small finger did bend a bit( curved) and I also would love to see my small finger gets straight back again...it lost a bit of the normal moviment and strengh.Thanks for this email, give me hope too! Hugs Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Dear , I am taking VIT C too, but always during the day! I have problems to sleep and though if I will take it VIT C in the evening it will be worsen. I always thought that VIT C is a great energetic, don't you think? Take Care Joana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 That is GREAT news !!!! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 , I know you've mentioned before, but how much vitamin C do you take and at what intervals? Is it time released? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 ....How much Vit C do you take daily? Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Hi So there's a big, multi-center ascorbic acid study underway now. Can I ask how much you take? Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Hi Gretchen, Could you please tell me what is the recommended dose of Vit C please. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Hi Peggy and Jill, The problem is there isn't a 'recommended' daily dose of Vitamin C for CMT 1A. It was only 2 years ago the first research was done, and that was on mice. Actual humans are in trials right now in Europe, and soon to be the USA. Many of our members seemed to discover their own doseage needs - like in the 5,000 to 8,000 mg range. And members have discovered the 'timed- release' version seems to sustain them longer. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 , I had been on vitamin C for the past 3 years, I think we started the same time more or less. We could have our own trials. I feel fine, my hands are staying the same, I think.,which I think it is a good thing because they were going fast and I can manage. Spy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2007 Report Share Posted January 18, 2007 Hi Spy, Its fun to have a vitamin C buddy. My theory is that after the vitamin C stabilizes the CMT then it starts to rebuild slowly. Just my two cents. I bet your hands are getting stronger little by little. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Hi Spy, I'm just wondering how much vit. C you currently take each day? B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 My daughter has CMT 1A, she is 15 months old. what would be the max vitamin C I could give her. By max I mean max theraputic amount? Does anyone have any suggestions? Thanks M Quote Link to comment Share on other sites More sharing options...
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