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support groups question

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Would someone enlighten me on what actually goes on now in a CMT type

support group? Are these groups for adults or children or both? Are

people all ages and stages of CMT, or are these 'grouped' individually?

Is there an equal mix of women and men? Do they include non-CMT

family/spouses/significant others/friends? Are their speakers? How often

do groups meet? Do you follow a 'program' like 12 step support groups?

Is there a cost? Who are the 'leaders or moderators' - do they have CMT?

I went to one CMT 'support group' years ago and all it was was a bunch

of old women in wheelchairs sitting around listening to a Dr. tell THEM

about CMT! (this was about 20 years ago and I never returned) So, just

wondering if CMT support groups have evolved?

Gretchen

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