Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Hi Garrett, Welcome to our fabulous and elite group! Everyone here has an inspiring story to share. Wow. I'm impressed by your level of activity despite the obstacles you've faced with surgeries, etc. Now I have a new role model to add to my mental list. Seriously, I have a list of people in my head whose stories inspire me to keep on plugging when I think about everything being too much. My Dad is at the top of that list. Another is a young dancer who lost a leg to a rare bone disease (and cointinued to ice skate and dance). Yet another is an older dancer who has a muscle disease that has put her in a wheelchair but she continues on in the performing arts and has written plays and choreographed dances to include the able-bodied and handicapped. Alisha sweetie - you are also on my mental list. I think of you often as an inspiration. My mental list of role models has been a tremendous coping tool for me. And with this list, I find it keeps growing!!!!! Welcome to our group Garrett! Ruth Warren gdevier@...> >Reply-onelist >onelist >Subject: [] New here... >Date: Fri, 10 Mar 2000 10:36:22 -0000 > >From: " Garrett Devier " <gdevier@...> > >Hello I am new to . I have been following the CMTA discussion >forum for awhile. > >Just to introduce myself. I am 28 and was diagnosed with CMT when I >was about 12 but first developed symptoms when I was 7. > >I have muscle atrophy in my hands and lower legs and have had >reconstructive surgeries for all. > >I also have paralysis of my vocal chord muscles. This has left my >vocal chords in a talking posistion (luckily I can still talk fine) >but I have difficulty breathing and have had a tracheotomy since I >was 14. > >I am very physically active and have made efforts not to let CMT stop >me. I work on a trail crew for North Cascades National park and have >been a wilderness backcountry ranger in the past. I bike, ski, >snowboard, and just returned from two months trekking in Nepal. > >I am looking forward to being apart of this group. > >Sincerely, > >Garrett > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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