Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Rose from Sweden here, My oldest son (soon 13) is sometimes called: Slowmotion-man (in English by the way). Even if that´s not so spiteful maybe, he doesn´t like it as it reminds him all the time about his problems. Another thing; severel times when me and my boys have been walking somwhere strangers have come forward to me (only older women I must admite) and made comments like: " Oh what a tired and lazy boy who walks there " . And as these comments always make me so surprised I get totally dumb. So mean and stupid they are; havn´t they learned anything at all about life? Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Rose, This is a from eugene, Oregon. My 13 yo daughter has been diagnosed with CMT since age 8. she was a lively, energetic child who played soccer and softball. She started tripping and getting very tired. Her coaches called her lazy. We finally had her looked at by a family physican who referred us right away to a nuerologist. My daughter then became heavier and it has been a battle ever since to try to keep weight off her and balance some exercise with her. I find adults are the worst. They peek at her from behind clothing racks at stores and stare. Kids are more up front " did you break your legs or something? " However, when we explain her problem or better yet, when she explains her problem, most people are kind and compassionate. Kids fight to take her on rides at amusement parks because she and a companion get special treatment. I think all of this has toughed her up beyond belief. Hang in there with your son. a Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.