Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Hi,I have a friend who has used LDN for LUPUS and it has been helpful. I also know someone who is using hyperbaric oxygen for Lupus. She owns a center and has Lupus and believes she has completely stopped her Lupus. Her name is . Her website is rapidrecovery.com.My dad has PD and has used LDN since October 2004 with great success. He also uses hyperbaric oxygen to treat for stroke. Good luck,Destiny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 THe LDN website lists Lupus as one disease that could benefit: " The experience of people who have autoimmune diseases and who have begun LDN treatment has been remarkable. Patients with diagnoses such as systemic lupus, rheumatoid arthritis, Behcet's syndrome, Wegener's granulomatosis, bullous pemphigoid, psoriasis, and Crohn's disease have all benefited. " http://www.low dose naltrexone.org/ldn_and_ai.htm check the above link for more information Dee --- rone327 <rone327@...> wrote: > Has there been any known use of LDN with Lupus? > > ________________________________________________________________________________\ ____ Food fight? Enjoy some healthy debate in the Answers Food & Drink Q & A. http://answers./dir/?link=list & sid=396545367 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2007 Report Share Posted May 6, 2007 > > Has there been any known use of LDN with Lupus? > ========== My best friend is on LDN for Lupus and I tested positive for Lupus twice and once borderline positive on top of the MS. My friend is seeing positive results on the LDN, she takes 4.5mg and has been on it 1 year. LDN has halted all of my progression for 4 1/2 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 A close friend of ours has now been on LDN for 18 months to help with her lupus. She is currently doing the best she has done in over 20 years. Bruce Guilmette, PhD Author: THERE'S MORE TO LIFE THAN JUST LIVING, A Personal Story About Cancer Survival Survive Cancer Foundation, Inc. http://survivecancerfoundation.org Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of BrenSent: Sunday, May 06, 2007 12:28 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Lupus >> Has there been any known use of LDN with Lupus?>==========My best friend is on LDN for Lupus and I tested positive for Lupus twice and once borderline positive on top of the MS. My friend is seeing positive results on the LDN, she takes 4.5mg and has been on it 1 year. LDN has halted all of my progression for 4 1/2 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 I know of a good protocol to CURE lupus! Its calle dte MArshall Protocol and many have Lupus/ms sarcoidosis, RA CFS, Lyme, Fibro and are getting better - i am one of them.... www.marshallprotocol.com I dont do the Vit D deprivation they recommend and my dr. sees his patients gte better faster if they dont reduce their D. The key is Benicar + very low dose ABX and ones own immune system. For diet - I would recommend as raw as possible with grains, beans good oils liek coconut and flax and omegas.....maybe the budwig diet would be helpfyul unless she has dairy allergies from the lupus..... Garth & Kim wrote: Does anyone know of a good list for controlling lupus with diet? A close friend was just diagnosed and wants natural, not main stream. Bright Blessings, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2007 Report Share Posted September 10, 2007 Thanks so much for mentioning the Marshall Protocol, Meredith. I have a friend who has fairly advanced Lyme Dis-ease, and who has not been able to do much for it. The Marshall Protocol looks like something solid and real. I am passing it on to my friend, and hope it helps him. It is very encouraging to see that Marshall, who has a degree in biomedical engineering, has apparently found a way to get the body's immune system to be able to recognize and to destroy the very tiny bacteria which are believed to be responsible for Lyme and some other dis-eases. Kim, I can't say for certain, but I would think that something along the lines of Gerson or Budwig would be good for someone with Lupus. It just appears to me, from my reading and learning over the years, that what's good for one degenerative dis-ease is generally good across the board for other degenerative diseases. Best wishes, Elliot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi: I knew a woman who claims she cured herself of Lupus with a foot ionizer. She said she did the foot bath 3 times a week for 1 year and now she just does once a week. She says she can eat anything! I don't know what Dr. thinks of this, but I would love to find out what she thinks of the foot ionizer! If you want the contact I can look it up for you. Good Luck lupus Hello: Does anyone know of a natural cure for lupus. Thank you in advance to anyone who responds. <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 How about the manufacturer of the foot ionizer? Michele Weissman, LMT Florida _____ From: Dr [mailto:Dr ] On Behalf Of Sent: Wednesday, January 23, 2008 1:29 AM Dr Subject: Re: lupus Hi: I knew a woman who claims she cured herself of Lupus with a foot ionizer. She said she did the foot bath 3 times a week for 1 year and now she just does once a week. She says she can eat anything! I don't know what Dr. thinks of this, but I would love to find out what she thinks of the foot ionizer! If you want the contact I can look it up for you. Good Luck lupus Hello: Does anyone know of a natural cure for lupus. Thank you in advance to anyone who responds. <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform :uppercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;paddin g-right:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height: 122%;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> __________________________________________________________ Never miss a thing. Make your home page. http://www.. <http://www./r/hs> com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Txs, Cooky!!!!I I will read them all. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Jan you might also want to call Doc Whitman in New Jersey. I understand he answers phone calls and you don't have to be a patient of his. Cooky _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Janiceesher@... Sent: Thursday, February 21, 2008 10:39 AM rheumatic Subject: Re: rheumatic Lupus Txs, Cooky!!!!I I will read them all. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 LDN should help your daughter's Lupus. Please read and study the LDN website for more info: http://www.low dose naltrexone.org/ Art -- > > My daughter has Lupus....diagnosed last september...very painful and is > on lots of meds....Could she benefit from Low dose Naltrexone? If so > does anyone know of a doctor or a pharmacy in the Aiken, SC or Augusta, > GA area where she could get such medications. Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hello, I am 28 and have lupus and it has helped me tremendously. I tried medications, including a cancer treatment, and this medication has helped me the most so far. Please feel free to contact me directly and I can give you more details on what/how it has helped. Take Care, Cami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 I started Lupus when I was 28 after the birth of my 2nd son. So I feel for you. I didn't get diagnosed until 1989 when I was 42. Was so sick all those years and raised two sons. That's why the Burzynski clinic was a lifesaver for me. But they did have a lot of problems it seemed back then, with responding to phone calls. Wouldn't always return calls, etc.They must;ve made a mint with all the money they were charging cancer patients. But I did go to the 25 th anniversary of Dr. Burzynski and there were hundred of patients there we met that were doing so well and got rid of their cancer, it was like a miracle. Some of them we saw just starting treatment when we went to Washington, D.C. and then saw them again several years later at the anniversary, all doing good and cured! If I was as young as you are, I would definitely try this Ambrotose. <img src=" "><img src=" "> [low dose naltrexone] Re:Lupus Hello,I am 28 and have lupus and it has helped me tremendously. I tried medications, including a cancer treatment, and this medication has helped me the most so far. Please feel free to contact me directly and I can give you more details on what/how it has helped.Take Care,Cami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Here is a post from March 18: Â here is data base of some people using ldn.there is one lupus there and i know she is excited about the results. https://cancer-research.dabbledb.com/page/other/bmdUfoFr dr berkson in the confrences (you can search in you tube berkson low dose naltrexone) says he sees very good results with lupus,but knowing him a bit he might use some other treatments together with ldn like iv alpha lipoic acid. This person also replied to this posting and was glad to help! Best of luck! Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2009 Report Share Posted May 18, 2009 Hi The best way to get to the database is to go to www.ldndatabase.com and click others the one entry is under Systemic Lupus Erythematosus so its under S not L Here is a post from March 18: here is data base of some people using ldn.there is one lupus there and i know she is excited about the results. https://cancer-research.dabbledb.com/page/other/bmdUfoFr dr berkson in the confrences (you can search in you tube berkson low dose naltrexone) says he sees very good results with lupus,but knowing him a bit he might use some other treatments together with ldn like iv alpha lipoic acid.This person also replied to this posting and was glad to help! Best of luck! Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 To Carl and and others interested in slightly alternative health care, I wrote a little about my experience and success in health a couple of months ago, and I apologize, but I must not have told the whole story (I've also been on the LDN and Lupus blogs, and I think I must have explained it to them, thinking it was you all); and Ethel kindly suggested that I fill in the blanks. I want everyone with autoimmune disorders to know this, but especially those who don't like the side effects or the 'unknown' of toxic prescriptions drugs and are looking for another option. I have been diagnosed with Lupus, Sjogren's Syndrome, fibromyalgia and rheumatoid arthritis which has attacked the cartilage in my joints. Everything started after my son was born 12 years ago and my eyes and mouth as dry as a desert; then came the fevers every day and the exhaustion, lack of sleep, pain in my joints and muscles, and brain fog and depression. My joint pain got so bad that I couldn't walk and I had surgery--Dr. said no cartilage left. After almost two years of FRUSTRATION with doctors, I was diagnosed with Sjogren's and fibromyalgia, then Lupus. Traditional meds helped (Plaquenil and occasional prednisone) to a degree. Three years ago, my dermatologist suggested antibiotics for my Lupus rash/rosacea, and I noticed I felt much better (my rheumy suggested I stay on it for life) but I still had extreme fatigue, restricting joint pain and swelling, occasional fevers, bad sleep, etc. Through much research, I found a center near me in Atlanta last May that had integrative MDs that work with their patients more holistically, saving the toxic drugs for a last option. They have MDs and DOs as well as naturopaths, an oncologist, dietician, nutritionist, herbalist, accupuncturist, pain-management specialist, etc. They did many comprehensive tests on me to find out what was off in my body. They, like most holistic doctors, will not necessarily diagnose a patient with 'Lupus' (or whatever disease), they simply want to figure out what is going wrong in your body to cause all these symptoms--it could be different for each person. Sure enough, I had MANY deficiencies and excesses that could have easily explained all my many ailments. I went on supplements that were specific to what I was deficient in (amino acids, neurotransmitters function, vitamins, minerals, etc.) and others that would help bring down my toxic excesses (minerals, heavy metals, etc.) and get rid of a parasite and bacteria. A lot of people will try supplements that are supposed to be helpful for their particular ailment, but they don't know EXACTLY what THEY are missing, so those particular supplements may not help them. They also coach you on things you can do at home to help i.e. eliminating certain foods for a temporary 'detox diet,' eliminating other offending foods for several months (they do food allergy testing to see if you're sensitive to certain things which would be causing inflammation), eating certain natural foods to help your condition, etc. I also do infra-red saunas which they have free for patients there. My lead was quite high (they think that could be one culprit for the autoimmune disorders), and recommended chelation to keep my body from going awry again (I'm still looking into that). Well, for the first time in 12 years, I am feeling very much like my 'old self.' My brain functions SO much better, almost no pain or stiffness (only when I don't get enough rest), so much more energy (I rarely nap now), my mood is wonderful, sleep well, increased strength. The only thing that has not improved on the same level is eye dryness from Sjogren's for some reason, but I haven't brought that up to my doctors yet; dryness elsewhere has improved. I've had six of my friends go there after they saw how much better I looked and felt and they are also doing so much better. I know many of you have gone to holistic doctors before, but I don't know if you've had all these tests done to test for you, specifically. Also, this center takes insurance which is a wonderful thing, and that has definitely helped with cost. I know there are a few of these centers around the country (although not NEARLY enough, in my opinion), but from my wonderful success in health, I strongly recommend anyone interested to at least look into a place like this if you have one close enough. If you find one, check out their reputation carefully for a bit before you go. I've been living in this city but knew so few people who went to holistic doctors, and when they did the dr. did not take insurance and the patients results were OK, so I always was afraid to get stuck in a treatment that may or may not help that would also drain me and my family financially. By asking around at Whole Foods and health food stores and attending health expos, I was able to find my new doctors. A friend is borrowing my test results right now, but if anyone wants to know about the specific tests, I'd be happy to share with you. Good luck to all! My best, On Oct 13, 2009, at 12:13 PM, Vicki wrote: > Hi Sue, > thank you. I wonder if i should try Plaquenil again I am just so > worried about some of the side effects that can be long term but you > dont know till its too late. i am glad something is helping you. > > > > > > > > > > > > > > From: phillipstradling <phillipstradling@ cox.net> > > > > > > Subject: Re: rheumatic Re: Dr. Whitman in NJ - Anyone go to him? > > > > > > rheumatic@grou ps.com > > > > > > Date: Wednesday, October 7, 2009, 8:57 PM > > > > > > > > > > > > Hi Rose, I read your post on the fourth of October. My wife has been > > > > > > diagnosed with polymyositis also. Have you always been on the > antibiotic > > > > > > therapy or have you tried other things? It would be interesting to > compare > > > > > > notes on what works. Phil > > > > > > > > > > > > rheumatic Dr. Whitman in NJ - Anyone go to him? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am considering switching AP doctors and wanted to get some > opinions on > > > > > > > > Dr. Whitman.. I have been on AP for about 10 months for RA and > I'm doing > > > > > > > > good but wondering if I could be doing better.. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I have read that Dr. Whitman is one of the more experienced AP > docs out > > > > > > > > there.. I am around 6 hours away from him so it wouldn't be an > easy trip > > > > > > > > but if it was worthwhile I would definitely do it.. > > > > > > > > > > > > > > > > > > > > > > > > > > > > For those that go to him... > > > > > > > > > > > > > > > > > > > > > > > > > > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? > > > > > > > > > > > > > > > > > > > > > > > > > > > > 2. Being I am over 6 hours away.. Does he work with you > knowing it's far > > > > > > > > away? IE: Over the phone appts, tweak protocol w/out seeing > you, order > > > > > > > > blood tests and review them via fax, etc? > > > > > > > > > > > > > > > > > > > > > > > > > > > > 3. I understand he is a rheumy as well? Does he try to push > the standard > > > > > > > > meds? > > > > > > > > > > > > > > > > > > > > > > > > > > > > 4. Does he introduce other abx if Minocin isn't fully working > (ie: tweak > > > > > > > > the protocol)? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Thanks for any info! > > > > > > > > > > > > > > > > > > > > > > > > > > > > Tom > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 , I have someone looking for just such an integrative medical center in the Atlanta area as the one you went to. Was it Progressive Medical or some other medical office? Please supply the full name, address and phone number. Thank you. Ethel rheumatic Dr. Whitman in NJ - Anyone go to him? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > I am considering switching AP doctors and wanted to get some >> opinions on >> >> > >> >> > > > Dr. Whitman.. I have been on AP for about 10 months for RA and >> I'm doing >> >> > >> >> > > > good but wondering if I could be doing better.. >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > I have read that Dr. Whitman is one of the more experienced AP >> docs out >> >> > >> >> > > > there.. I am around 6 hours away from him so it wouldn't be an >> easy trip >> >> > >> >> > > > but if it was worthwhile I would definitely do it.. >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > For those that go to him... >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 2. Being I am over 6 hours away.. Does he work with you >> knowing it's far >> >> > >> >> > > > away? IE: Over the phone appts, tweak protocol w/out seeing >> you, order >> >> > >> >> > > > blood tests and review them via fax, etc? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 3. I understand he is a rheumy as well? Does he try to push >> the standard >> >> > >> >> > > > meds? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 4. Does he introduce other abx if Minocin isn't fully working >> (ie: tweak >> >> > >> >> > > > the protocol)? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Thanks for any info! >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Tom >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Hello , it looks like you found a good doctor. please be so kind and list the lab tests that your doctor order for you. I will take the list to my doctor and ask him to order the tests for me. thank you much, ________________________________ From: Ethel Snooks <emsnooks@...> rheumatic Sent: Tue, January 26, 2010 7:49:56 PM Subject: Re: rheumatic Lupus  , I have someone looking for just such an integrative medical center in the Atlanta area as the one you went to. Was it Progressive Medical or some other medical office? Please supply the full name, address and phone number. Thank you. Ethel rheumatic Dr. Whitman in NJ - Anyone go to him? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > I am considering switching AP doctors and wanted to get some >> opinions on >> >> > >> >> > > > Dr. Whitman.. I have been on AP for about 10 months for RA and >> I'm doing >> >> > >> >> > > > good but wondering if I could be doing better.. >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > I have read that Dr. Whitman is one of the more experienced AP >> docs out >> >> > >> >> > > > there.. I am around 6 hours away from him so it wouldn't be an >> easy trip >> >> > >> >> > > > but if it was worthwhile I would definitely do it.. >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > For those that go to him... >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 1. What is his standard AP treatment? Is it Minocin M-W-F Bid? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 2. Being I am over 6 hours away.. Does he work with you >> knowing it's far >> >> > >> >> > > > away? IE: Over the phone appts, tweak protocol w/out seeing >> you, order >> >> > >> >> > > > blood tests and review them via fax, etc? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 3. I understand he is a rheumy as well? Does he try to push >> the standard >> >> > >> >> > > > meds? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > 4. Does he introduce other abx if Minocin isn't fully working >> (ie: tweak >> >> > >> >> > > > the protocol)? >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Thanks for any info! >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Tom >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > >> >> > >> >> > >> >> > >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Lupus is an autoimmune disorder where the body's immune system attacks its own tissue. Here is an interesting website regarding lupus... especially on herbal treatments. http://www.whispy.com/alternative_lupus_treatments.htm Suzi List Owner health What is a weed? A plant whose virtues have not yet been discovered. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Listmates, This is a little off topic, but I¹m trying to help an old college friend find information (her daughter has lupus). TheyŒre considering a new drug called Rituximab that is usually given to Lymphoma patients but is in the clinical trial stage for Lupus. They would use the drug as a tool to destroy the B-cells that are attacking her central nervous system. My friend was hoping to find someone either familiar with the drug or Lupus that she could bounce ideas off of. She¹s already extremely knowledgeable about things but just looking for as much information as she can gather. It is a very big decision and needs to be made before her daughter leaves for college on 8/14. Anyway, I referred her to one group for lupus, but wondered if any of you have advice. Caroline G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2010 Report Share Posted August 25, 2010 Lupus tends to be autoimmune, and the symptoms are similar to being hypothyroid. I would suggest testing all his thyroid hormones and antibodies: TSI, TBII aka TRab, TPO, TGab, and the usual Free Ts for thyroid, etc. If he tests low in anything, at least the thyroid part is treatable. I test low positive for ANA antibodies (lupus) but don't show any symptoms. However, I also test positive for all the Graves' and Hashi's antibodies and had RAI, so just treat for hypo now. This site mentioned some interesting triggers like sulfa antibiotics and even echinacea. I once went into anaphylactic shock from sulfa antibiotics and had to go to the ER. http://www.hopkins-arthritis.org/arthritis-info/lupus/ Best, Barb > > Some months ago I posted my Son In Law had a small stoke he recovered from it very fast but has not felt good a lot of fatigue much like we have. Dr.'s tested him and his hormones his Total T is up in the mid 400's top of Quest range on that test is in the 800's. > > But his labs show he has Lupus we think this has been active for the last 2 yrs he has a red rash off and on on his face below his eyes and to the sides of his face. > > The Dr. said he has a mild case of it and it was the reason for his stroke. > > Anyone here have this problem or know of someone with it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 philip georgian <pmgamer18@...> wrote: > > His Total Testosterone is 425 top of range at this Quest lab is 860 something. He was talking to his Ant a RN she told him his Testosterone levels are to low and this might be why he is feeling fatigued. > He has no problems with his night time and morning wood or sex. I would think he has enough testosterone then. Just like some women are naturally high estrogen (think Dolly Parton), some are naturally low (think tall, thin, Olympic volleyball players). I would be much more inclined to check his thyroid, because there is a definite correlation of lupus with hypothyroid. Thyroid eye disease (not related, just an example) flares up when levels are too low. So with autoimmune diseases, it's important to keep thyroid levels optimal. > His Ant told him to take 50 mgs of DHEA to bring up his Testosterone levels. I told him this only works on women in men if you do to much it will make your Estradiol levels go up. I could not handle 1.25 mg DHEA, gave me zits. DH could not tolerate 2.5 mg, his must've turned to estrogen because he got all depressed and weepy and when we stopped it, he came right back. > There are supplements that men have tied to get there Testosterone levels up. Do you or anyone know about this and if they work. > > I told him about Pregnenolone Cream I just started on this today. > http://www.vitaminusa.com/prbocr2ozbyl.html > But I am not sure it will bring up his T levels. Pregnenolone works great for me, brought my DHEA up and I'm guessing, testosterone too, because I have great muscle tone for someone who doesn't do much. I only take 2.5 mg twice a week. Pregnenolone was a disaster for DH, said it made his head feel like it was going to explode. And I only gave him 2.5 mg. That's a symptom mentioned with his thick blood, and I wonder if that's what was happening. Anyway, stopped that and put him back on progesterone, because I think it converts to cortisol in him, and he must be hypopituitary, cause thyroid, testosterone, and cortisol are all low. I don't know anything about the supplements you listed except zinc. That is known to help, but it also lowers cortisol, so not something DH needs. I've read chrysin is bogus and additionally, impedes T4 to T3 conversion, so don't need that either. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Thanks Barb he is going to have all his thyroid levels check when get labs done tomorrow. Co-Moderator Phil > > > > His Total Testosterone is 425 top of range at this > Quest lab is 860 something. He was talking to his Ant a RN > she told him his Testosterone levels are to low and this > might be why he is feeling fatigued. > > > He has no problems with his night time and morning > wood or sex. > > I would think he has enough testosterone then. Just > like some women are naturally high estrogen (think Dolly > Parton), some are naturally low (think tall, thin, Olympic > volleyball players). I would be much more inclined to > check his thyroid, because there is a definite correlation > of lupus with hypothyroid. Thyroid eye disease (not > related, just an example) flares up when levels are too > low. So with autoimmune diseases, it's important to > keep thyroid levels optimal. > > > His Ant told him to take 50 mgs of DHEA to bring up > his Testosterone levels. I told him this only works on > women in men if you do to much it will make your Estradiol > levels go up. > > I could not handle 1.25 mg DHEA, gave me zits. DH > could not tolerate 2.5 mg, his must've turned to estrogen > because he got all depressed and weepy and when we stopped > it, he came right back. > > > There are supplements that men have tied to get there > Testosterone levels up. Do you or anyone know about this > and if they work. > > > > I told him about Pregnenolone Cream I just started on > this today. > > http://www.vitaminusa.com/prbocr2ozbyl.html > > But I am not sure it will bring up his T levels. > > Pregnenolone works great for me, brought my DHEA up and I'm > guessing, testosterone too, because I have great muscle tone > for someone who doesn't do much. I only take 2.5 mg > twice a week. > > Pregnenolone was a disaster for DH, said it made his head > feel like it was going to explode. And I only gave him > 2.5 mg. That's a symptom mentioned with his > thick blood, and I wonder if that's what was > happening. Anyway, stopped that and put him back on > progesterone, because I think it converts to cortisol in > him, and he must be hypopituitary, cause thyroid, > testosterone, and cortisol are all low. > > I don't know anything about the supplements you listed > except zinc. That is known to help, but it also lowers > cortisol, so not something DH needs. I've read chrysin > is bogus and additionally, impedes T4 to T3 conversion, so > don't need that either. > > Barb > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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