Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 kay now, the only reason i said to look into it because of the comment the doctor said, if the meds go wrong u got 2 years, now 2 years is not alot of time, it depends on the stage of cirrohsis u have, Now the memory lost is mostly confusion which can be from maybe high ammonia level in the liver, I have the problem with the ammonia level being high, and i forget stuff, or i walk around in a dazed, HEy i'm not blond. ja if u have copies of the blood results or if u going in for one check the ammonia level of the liver. kay hey don't worry u can ask, everyone here experience different effects of the drug, like my vision is still great except for the mass amount of hair i've grown like if i'm starting puberty, ja well take care LOL miguel AIH brooklyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 1999 Report Share Posted July 13, 1999 , this has given me a lot to ask the Dr. Before I had no idea what to ask or what I was intitled to, like records, or what to do next. So all this gives me something to go from. I am making a list. Thanks for the ammonia info too, I can ask about that, I have been so worried about it, sometimes I think I am going nuts. I can remember things later on sometimes and sometimes not. I used to have a great memory untill about 12 years ago, so if I have had AIH for years it could be that. Everyone laughs and says it is just old age, for which I would like to slap them (not really) because this started at 35 and I really didn't think that was " old " yet and should have been taken seriously. I appreciate all of your insight, you have been very helpful, Lynn AIH MRios81143@... wrote: > From: MRios81143@... > > kay now, the only reason i said to look into it because of the comment the > doctor said, if the meds go wrong u got 2 years, now 2 years is not alot of > time, it depends on the stage of cirrohsis u have, > Now the memory lost is mostly confusion which can be from maybe high ammonia > level in the liver, I have the problem with the ammonia level being high, and > i forget stuff, or i walk around in a dazed, HEy i'm not blond. ja > if u have copies of the blood results or if u going in for one check the > ammonia level of the liver. kay > hey don't worry u can ask, everyone here experience different effects of the > drug, like my vision is still great except for the mass amount of hair i've > grown like if i'm starting puberty, ja > well take care > LOL > miguel AIH > brooklyn > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 1999 Report Share Posted July 23, 1999 LARancourt@... () thanks for the welcome! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Hi Lynn, I haven't tried any of the supplements yet, still trying to go the food route, but I, too, would love to hear anyone else's experience with the supplements. About eating red meat-I'll tell you my story. When I was 19, I became a serious vegetarian, and refused meat for about five years. I had so convinced myself that it was poison (from all the vegetarian books I had read), that I vowed I would never eat it. That was about the worst time in my life for my health. I was so spaced out all the time, and had no strength or energy or endurance. And that's when my thyroid problems started. Eventually, I began to eat a little chicken and fish, but never red meat. I still didn't feel very well, and developed more health problems. Finally, now in my forties, I am eating red meat. And now that I'm on ER4YT, I'm finally able to relax and know it's the best for me. Every time I eat roast beef, I feel the very best. I found a source for Bison, and I can't wait to try it! There's a lot of pressure out there from many nutrition " experts " that give red meat a bad rap. I'm sure that the more you go along, the more you'll be able to accept it. Mainly because you'll feel so much better! And, I also got some " Mega-Zyme " from Enzymatic Therapy to take for a while. (Dr. D'Adamo reommends it for when you first start incorporating red meat). I notice that I don't do as well with ground beef. My blood sugar feels stable most of the time now, and I don't have the cravings for pretzels and chips like before. Maybe because of the extra meat? I'm not sure, but I'm going to keep it up. Best of luck to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 Lynn, i don't know of course but it took 150mgs to get Hunt's labs to finally stableize. Seems like a high dosage but he has no side effects, at least yet and his lft's are all under 15. Maybe worth a try. Now, watch Hunt have a flare up tomorrow. He just got down to 10mgs Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 In a message dated 7/24/01 3:04:39 PM Pacific Daylight Time, mamacdoo@... writes: Lynn, i don't know of course but it took 150mgs to get Hunt's labs to finally stableize. Seems like a high dosage but he has no side effects, at least yet and his lft's are all under 15. Maybe worth a try. Now, watch Hunt have a flare up tomorrow. He just got down to 10mgs Rosemary Rosemary, 150 mgs of what? Prednisone? Imuran? Or something else? Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 sorry about that,,Hunt is taking 150mgs of imuran. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Kelley, Thank you so much for your support and encouragement. I will do as you recommend if I feel the need to seek professional help. I hope to handle this on my own since it surely isn't the first time my heart has been broken. I am just hoping it won't happen again...I have alot of difficulty trusting men and this only reinforces these negative feelings towards men. I know my prince is out there waiting for me...I just keep meeting the TOADS!!! LOL You are a jewel. I hope to meet you at the picnic!! Take care and your words have helped more than you realize!! Bless YOU!! Lynn Brown Lynn >Lynn, > >I feel your pain! I KNOW losing one you love that you think you're going to >spend the rest of your life with is gut wrenching. I had to start seeing a >psychiatrist and counselor due to my break up. If you continue having >problems and can't seem to move on - - - PLEASE go seek professional help!!! >I can't encourage this enough. > >My thoughts and prayers are with you during this difficult time. > > in OK > >In a message dated 09/05/2001 6:04:41 AM Pacific Daylight Time, >lyndsayb@... writes: > ><< I thought I had met the man of my dreams but he called me on Tuesday >morning > to say he needed space so I am at home recuperating for the next 4-6weeks > from a hysterectomy that I had on August 30th and now my heart has to > regroup and I have to move forward without that special someone that I > THOUGHT was special. MEN do have a way of kicking you down even when you > are at one of the lowest points in your life. So please keep me in your > prayers. Maybe I needed this jolt because it has taken my appetite and that > is a good thing!! LOL > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Hi Lynn Sweetie! Just to let you know I'm thinking about you..I'm always so busy but my thoughts are close! I hope to see you soon! in Raleigh MGb 11/22/99 270/127 size 24/4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 Wow, thanks for letting me know that. Please keep me informed. Lynn has been around for as long as I can remember and she is so sweet!!! I've been thinking about her alot. in Raleigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 , Lynn told me yesterday that she was seeing her doctor for some problems from her surgery and she thought she might end up in the hospital. I emailed her privately about 1/2 hour ago to see if she was home and I am going to wait a little while for a reply then call the hospital she said she would be in in fayetteville, I hope to God she doesn't have additional problems with all that is happening to her. Re: Lynn Hi Lynn Sweetie! Just to let you know I'm thinking about you..I'm always so busy but my thoughts are close! I hope to see you soon! in Raleigh MGb 11/22/99 270/127 size 24/4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2001 Report Share Posted September 9, 2001 LYNN LYNN LYNN, STOP all that negative thinking. SPEAKING from experience, there is someone out there, I believe that. It just has to be the right time for you. When I found my prince, I had basically given up and BAM, he typed his way right into my heart and the rest is history. YOU know the story so, STOP saying that. Do what I did. STOP looking so hard and just enjoy life. Be a good friend to someone, be a volunteer, do things with your neighbors. GO walking at the mall, go to a laundry mat and wash a big comforter or something, be a good mother and volunteer at the school for something if time permits. IE, get out and BE in life and don't dwell on finding Mr Perfect. LET HIM come to you. Or let it happen naturally. I know, I know, it's easier said than done, easy to say while sitting home happily married but Lynn, you know that hasn't been my story for long. I met Rudie 1/98 and prior to that I was depressed, lonely and 384 lbs. I really do know what you are feeling and listen, I didn't have a great kid like you. I'd never been married. I was ALONE! Please please be kind to yourself and let life work for you. Okay, I'm done preaching. Love you lady!!! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hi, I was 37 when I found my prince and I'm so glad I waited!! paulaw Re: Lynn LYNN LYNN LYNN, STOP all that negative thinking. SPEAKING from experience, there is someone out there, I believe that. It just has to be the right time for you. When I found my prince, I had basically given up and BAM, he typed his way right into my heart and the rest is history. YOU know the story so, STOP saying that. Do what I did. STOP looking so hard and just enjoy life. Be a good friend to someone, be a volunteer, do things with your neighbors. GO walking at the mall, go to a laundry mat and wash a big comforter or something, be a good mother and volunteer at the school for something if time permits. IE, get out and BE in life and don't dwell on finding Mr Perfect. LET HIM come to you. Or let it happen naturally. I know, I know, it's easier said than done, easy to say while sitting home happily married but Lynn, you know that hasn't been my story for long. I met Rudie 1/98 and prior to that I was depressed, lonely and 384 lbs. I really do know what you are feeling and listen, I didn't have a great kid like you. I'd never been married. I was ALONE! Please please be kind to yourself and let life work for you. Okay, I'm done preaching. Love you lady!!! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Thanks for caring! You are TOO SWEET!! LOve you, Lynn LYNN >Lynn, >I hope that you feel better. Keep your chin up! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi , You said: <<I had that one, it is amazing, thanks for your efforts....I found another one that said the effexsor tablets had lactose and sucrose in them and hydroclorate which is a derivitive of hydrochloric acid....that is the kind of stuff I need...no wonder Bob lost 80 pounds on the stuff and had such terrible stomach problems, he is very lactose intolerant and the acid must really be a brain killer...thanks so much hugs >> People have problems with their stomachs because of an overabundance of serotonin, . It is rare that those who are lactose-intolerant would react to the tiny amount of lactose that is in these pills. regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi , You said: <<I had that one, it is amazing, thanks for your efforts....I found another one that said the effexsor tablets had lactose and sucrose in them and hydroclorate which is a derivitive of hydrochloric acid....that is the kind of stuff I need...no wonder Bob lost 80 pounds on the stuff and had such terrible stomach problems, he is very lactose intolerant and the acid must really be a brain killer...thanks so much hugs >> People have problems with their stomachs because of an overabundance of serotonin, . It is rare that those who are lactose-intolerant would react to the tiny amount of lactose that is in these pills. regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2002 Report Share Posted March 17, 2002 I don't know why it wouldn't be in the plan... it's truly the best part! Nice to catch up with you ;-) Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2002 Report Share Posted March 17, 2002 I don't know why it wouldn't be in the plan... it's truly the best part! Nice to catch up with you ;-) Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 You, dear, have made my day. I love to make people laugh..... > >> Truly frightening that Lilly can and is doing this - doesn't anyone > >> in the government care about human life? > > > > NO THEY DON'T > > > > Or do they just want to > >> destroy it at all costs. > > > > YES THEY DO > > > > We should be grunting, wearing cloth and > >> living in caves. > > > > SOUNDS LIKE A PRETTY GOOD IDEA, AS LONG AS I CAN PLUG MY COMPUTER INTO > > A CRYSTAL ROCK FORMATION AND THE CAVE AIN'T IN THE MIDDLE EAST. > > > > STINKY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Hi Heidi, Thanks that class was the hardest class I have ever taken. I had no idea what the teacher was talking about. There was no way to get your grade up,, no homework, no term papers, nothing. Two test together worth a hundred point and what you got was your grade. Very difficult but somehow I made it. This C is my lowest grade, I always said if I got anything under a B I would take it over. But I am not going to do that, the class is not worth it. I need the credits to get my degree at my current school but not to go to the next school. Hope you have a good day, Lynn (MeMom) Heidi Steppe-Hoareau wrote: > Hi Lynn, > Sorry to hear about your diagnosis but glad that it will help your wc case. > I'll keep you in my prayers and hold thumbs that the therapy offers some > relief. Well done for passing your economics!! You are a star, amazing > after all you've been through! Give yourself a big hug!! > Hugs, > Heidi > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hi a, I so sorry you are having such a bad time. The nerve pain sounds awful, maybe you should call your doctor. It is awful when your arms hurt because you really can't do much of anything. Plus whatever you can accomplish makes your arms feel worse. I sure hope it improves soon. I saw my primary today, he always goes over all the reports from other doctors. Which is good for me. He told me that the GI doctor wrote that my stomach does not contract like it should. Not sure what they would do for that since it is a side effect of the whipple. But he also told me, she is concerned that there is a small bowel obstruction. She did tell me about this scar tissue because of the pain I am in. I know Deb can relate to this too. He thinks she should be doing something but I am willing to wait. He agrees with me that I should leave my neck alone. But I will see what the therapist says on Wednesday. Today my son hooked up the central air conditioning. The unit is new but it is just now getting hooked up. I didn't want it but he did it anyway. I'm sure the girls will be happy but I worry about the bill. Sure hope you start to feel better. Have a good week end. Lynn (MeMom) a wrote: > Lynn, > I feel the same way after any kind of event. I hope Cherylynn feels better > today. Pretty rotten way to end a nice day. We didn¹t do anything to > recuperate from since has a rotten cold. It was a very quiet day > here. Later in the evening my brother and his family came over and we > watched Shallow Hal. I didn¹t like it very much. > The back of my arm muscles has been giving me lightning nerve pains. It¹s > awful. It goes from my shoulder to my elbow. I¹m a mess. One arm hurts > because my elbow is so swollen and the other one has this strange lightning. > I¹ve been resting it as much as I can for the last few days. It¹s so weird > because I don¹t have swelling in either the elbow or the shoulder. I¹m > thinking that I od¹d the water therapy or slept wrong. So between > feeling bad and me afraid to use my arm much, it¹s been quiet. That¹s > murphy¹s law. gets a 4 day weekend and has to get sick. > > I¹m so glad things are finally going well for you. Once you get everything > straightened out with Medicare, it will be easy. Let me know what the > therapist says. > Hugs, > a > > > > > Hi a, > > Hope you holiday was nice. Ours was but as I sit here I always hate the > > day > > after. We had such a nice day, we go to my sons in laws. I always find that > > the > > day after is a day of fatigue. It is always such a surprise to me though, you > > would think I would get use to it. But I never do and I know other people > > here > > will feel the same way. Now for the next few days it is just tired and > > fatigue > > and a lot of tv. Plus I think my Cherylynn got a little food poisoning > > yesterday > > and we have been up all night. She is sleeping now and a little better, what > > a > > night. > > I haven't gone to La Fitness yet, I am just a little leery. I want to try > a > > stationary bike and pool but I want nothing to do with a trainer. I hate > > therapy > > and feel I would be better off with everything in my neck left alone. They > > called today and canceled, thank goodness. I didn't even ask why. I have to > > see > > the therapist on Wednesday and he will tell me what the doctor wants to do. > > That > > could leave me with a few problems. But I will wait and see what he has to > > say. > > My ss has gone through and I received some money, so that is good. I have > > been > > spending a lot of time with setting up the medicare and getting the other > > medical > > insurance. What a job that has been but I think I have everything settled. > > Hope > > yesterday was nice for you and . > > Lynn (MeMom) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 i had a spell just over 3 hours with no power today. guess my fuse at the electrcal box outside blew. boy was it hot in here. i am sooooo happy for my air conditioning but i too worry about next months bill. it'll work out. i went on the budget plan. although the amount seems to change, at least so far it's been affordable. good luck and enjoy!!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 Thanks Lynn. Many of us are having a bad time. I¹ll be all right. I must have just slept on it wrong because it¹s getting better. Fear of moving it the wrong way and getting zapped is a problem, but the zaps are calming down. I¹ve had plenty of charlie horses in my legs, but never in my arms! Strange. I wish your report from your doc was better. I hope this stomace problem isn¹t something that¹s only correctable by surgery. But if it¹s repairable, maybe you would feel so much better. Don¹t you hate these kinds of decisions? If your doctor thinks you should leave your neck alone, then the therapist should follow his advise since the doctor is the one that writes he prescription. Maybe another doctor wrote the script? I hope the therapist agrees. Some things are better left alone. Glad you got the air. It¹s been entirely to hot to go without it. I only use mine when it¹s unbearable to keep the cost down. I¹ like the heat, but not when it¹s mixed with such high humidity. At least the heat wave has broken and today is beautiful. Hope you enjoy your day. Hugs, a > Hi a, > I so sorry you are having such a bad time. The nerve pain sounds awful, > maybe > you should call your doctor. It is awful when your arms hurt because you > really > can't do much of anything. Plus whatever you can accomplish makes your arms > feel > worse. I sure hope it improves soon. > I saw my primary today, he always goes over all the reports from other > doctors. > Which is good for me. He told me that the GI doctor wrote that my stomach > does not > contract like it should. Not sure what they would do for that since it is a > side > effect of the whipple. But he also told me, she is concerned that there is a > small > bowel obstruction. She did tell me about this scar tissue because of the pain > I am > in. I know Deb can relate to this too. He thinks she should be doing > something but > I am willing to wait. He agrees with me that I should leave my neck alone. > But I > will see what the therapist says on Wednesday. Today my son hooked up the > central > air conditioning. The unit is new but it is just now getting hooked up. I > didn't > want it but he did it anyway. I'm sure the girls will be happy but I worry > about > the bill. Sure hope you start to feel better. Have a good week end. > Lynn (MeMom) > > a wrote: > >> > Lynn, >> > I feel the same way after any kind of event. I hope Cherylynn feels better >> > today. Pretty rotten way to end a nice day. We didn¹t do anything to >> > recuperate from since has a rotten cold. It was a very quiet day >> > here. Later in the evening my brother and his family came over and we >> > watched Shallow Hal. I didn¹t like it very much. >> > The back of my arm muscles has been giving me lightning nerve pains. >> It¹s >> > awful. It goes from my shoulder to my elbow. I¹m a mess. One arm hurts >> > because my elbow is so swollen and the other one has this strange >> lightning. >> > I¹ve been resting it as much as I can for the last few days. It¹s so weird >> > because I don¹t have swelling in either the elbow or the shoulder. I¹m >> > thinking that I od¹d the water therapy or slept wrong. So between >> > feeling bad and me afraid to use my arm much, it¹s been quiet. That¹s >> > murphy¹s law. gets a 4 day weekend and has to get sick. >> > >> > I¹m so glad things are finally going well for you. Once you get everything >> > straightened out with Medicare, it will be easy. Let me know what the >> > therapist says. >> > Hugs, >> > a >> > >> > >> > >>> > > Hi a, >>> > > Hope you holiday was nice. Ours was but as I sit here I always hate >>> the > >> > day >>> > > after. We had such a nice day, we go to my sons in laws. I always find >>> that >>> > > the >>> > > day after is a day of fatigue. It is always such a surprise to me >>> though, you >>> > > would think I would get use to it. But I never do and I know other >>> people >>> > > here >>> > > will feel the same way. Now for the next few days it is just tired and >>> > > fatigue >>> > > and a lot of tv. Plus I think my Cherylynn got a little food poisoning >>> > > yesterday >>> > > and we have been up all night. She is sleeping now and a little better, >>> what >>> > > a >>> > > night. >>> > > I haven't gone to La Fitness yet, I am just a little leery. I want >>> to try >> > a >>> > > stationary bike and pool but I want nothing to do with a trainer. I >>> hate >>> > > therapy >>> > > and feel I would be better off with everything in my neck left alone. >>> They >>> > > called today and canceled, thank goodness. I didn't even ask why. I >>> have to >>> > > see >>> > > the therapist on Wednesday and he will tell me what the doctor wants to do. >>> > > That >>> > > could leave me with a few problems. But I will wait and see what he has to >>> > > say. >>> > > My ss has gone through and I received some money, so that is good. I >>> have >>> > > been >>> > > spending a lot of time with setting up the medicare and getting the >>> other >>> > > medical >>> > > insurance. What a job that has been but I think I have everything >>> settled. >>> > > Hope >>> > > yesterday was nice for you and . >>> > > Lynn (MeMom) >>> > > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 it gets so hot in my house. my dad went in the ceiling once to hang the fans. he said he has never seen an insulation job like mine. i just do not handle the heat anymore. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Hi Kathy, Thanks but as soon as my son left I turned it off. One problem is the bill, which I will worry about constantly. The other is I hate my house closed up. I like the windows and doors all open and that presents a problems with air conditioning. But my son is such a good guy. He would let me even pay for the parts he needed. So I thought I would go get him a gift certificate to a restaurant. It's not much but if I do anymore he will get mad. Hope you are feeling a little better. I think of you often, I know how hard all the legal stuff is. It is a drain on a person and doesn't help a thing. Lynn (MeMom) kringlemom@... wrote: > i had a spell just over 3 hours with no power today. guess my fuse at the > electrcal box outside blew. boy was it hot in here. i am sooooo happy for my > air conditioning but i too worry about next months bill. it'll work out. i > went on the budget plan. although the amount seems to change, at least so far > it's been affordable. good luck and enjoy!!! kathy in il > > > Quote Link to comment Share on other sites More sharing options...
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