Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 Hi Lynn Nice to hear from you, I hope you are well. That's a very good reminder about the Internet. I think the surgeon I'm seeing is very able but he does tend towards the cheery side of optimism regarding any surgery etc as a 'piece of cake'. I suspect he underplays things as a part of his bedside manner and so I end up searching the Internet just to get another side on what he tells me. So yes - I should keep a perspective! Regards Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2003 Report Share Posted February 16, 2003 That is okay Tess. I just wish you were feeling better. Hope today is better for you. Lynn (MeMom) tess_northwest@... wrote: > Dearest Lynn...I am pretty much being a couch potato. Thanks for your > caring. > > Love... > > Tess > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Congratulations, Lynn! We are so happy to welcome little to this world! Send us a photo when you can. Do you have to change your name to MeMomGrandMom? Iris > > > Hi Everyone, > > > Yesterday was very special, my son and his wife had their son. He > > > is so cute and all boy. No mistaking him for a girl. He looks like > > > and my dad. Everything went so well. Everyone is fine and > > the > > > baby's name is . > > > Lynn MeMom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi Iris, Actually MeMom is for Grandmom. My little granddaughter Alyssa started calling me, MeMom on her own. She has been doing it ever since she was very little. I love it. I think since 's daughter my little Becky calls me Grandmom Lynn, will too. However, I do love MeMom. Thank you for the note. Hope you are feeling well. Lynn MeMom Iris Nosker wrote: > Congratulations, Lynn! We are so happy to welcome little to this world! Send us a photo when > you can. Do you have to change your name to MeMomGrandMom? Iris > > > > > Hi Everyone, > > > > Yesterday was very special, my son and his wife had their son. He > > > > is so cute and all boy. No mistaking him for a girl. He looks like > > > > and my dad. Everything went so well. Everyone is fine and > > > the > > > > baby's name is . > > > > Lynn MeMom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Will you let me know how the homeopath goes? Email privately if no one else is interested... mamapudd@... I'm really wanting to try the vaccine clearing. Lynn > > I have to tell you that my son wouldn't have been autistic at 13 > > months either! That's when the problems started though. Speech was > > first just like you mention. Don't drop this issue if the > > neurologist does. Please seek help here or through a DAN! dr. You > > may want to even implement the GFCF diet and see what that does. > > check out www.gcfcdiet.com > > > > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi a, I do know what the insurance company is putting you through and it is terrible. I have been dealing with an insurance company for eight years. My hearing to stop my income is on June 10. All the depositions are in so we will see what happens. Dealing with an insurance company is very stressful as you know. I just wish it was better for you. My grades for the geography class are in. I am in shock, I got a B. I truly believe the teacher dropped the last test because I know I did so bad on it. I heard he does drop test when the class does badly. I am just waiting for the other class. I went for the test today for my stomach. The doctor let me watch, it was interesting. He explained what every thing inside me was, even if it all isn't in the right place. The stomach empties well but than stops and that is why I feel sick whenever I eat. I don't think anything can be done about that. The pain well I am lucky there is no obstructions. However, I don't have an answer either. He thinks it is probably scar tissue and it doesn't always show up. That is exactly what the GI specialist told me. I haven't spoken to her yet but I feel like I am between a brick and a hard place. But she told me nothing was going to show. I hate to think that I will have to stay in this pain but that is what it looks like at this point. I will wait and talk to her, it is just frustrating. I sure hope you start to feel better and that insurance company helps you. They fight and fight a person and end up paying for everything anyway. They waste more money and it makes no sense. They hope if they hold out you will just go away. Just keep fighting them. I'll let you know what the GI doc says and how the hearing goes. Lynn a wrote: > Lynn, > You must be so proud of your daughter. I see she took after you with her > interest in history. It's nice to have a common interest with your > daughter. > I'm glad you were able to go to school. I know how much it means to you. > I'll be going back one of these days. I had hoped to go this summer, but my > granddaughter from Florida is coming up for the summer and will be staying > with me. Maybe I can sneak in an online course. > > Sorry you've been in such pain. Has the doctors ever suggested taking > digestive enzymes to help you digest food? > > So glad you've figured out how to eat your pizza even if it isn't the > complete pizza! > > I know you've been through the mill with wc and know how I feel. I'm trying > not to let it get to me, but it's difficult when I have a headache as a > constant reminder. The unfairness of how I'm treated is really hard to > swallow. > I have a lot of problems, but I don't think carpel tunnel is one of them. > Sometimes I think the RA is creeping into my wrists, but they haven't > bothered me for quite a while. I too feel bad when I hear of how much some > people suffer. All we can do is pray for a miracle. > > I hope you enjoy your graduation festivities! > a > > > Hi a, > > Right now I am involved with my daughters graduation from college. I am so > > proud of her. Her goal is to return to school in the fall for grad work. > > Right > > now her plan along with this is to teach history at the college level. It is > > a > > nice time. I finish school this week. It was a challenge but I am glad I > > went > > back and look forward to the fall semester. > > I saw the GI doctor on Monday the pain has become very bad. She doesn't > > know > > what is wrong but believes it is scar tissue. I don't agree because it is the > > same > > pain in the same location I had before the second surgery. I am wondering if > > something isn't twisted again. She has me going for a bunch of GI test to see > > what > > is happening. If nothing is found she has suggested a pain management doctor. > > However, my primary is totally against this and says we have to talk. But I > > am to > > get the test first. It is almost constant pain just like before. We did > > agree I > > will not be going back to the U. of P. or Doctor to. He is a very nice > > man but > > totally out of touch with his patients. She told me that she has heard all > > these > > complaints about this hospital and doctor many times. So I will be going to a > > surgeon (if it comes to that) at Abington. I didn't get his name but he > > trained > > under to. I hate going for these test I thought it was all behind me. She > > also > > told me that no surgeon will touch me unless it is life threatening. I don't > > know > > how you live with this pain on top of the RA, carpal tunnel, and neck. > > Eating I have come to terms with. Sometimes I will make a whole bag of some > > fresh > > veggie and munch off it all day. My life is a lot of veggies & soup which is > > fine. Sitting down to a meal is impossible and I pay a price if I try to eat > > to > > much. I found a way of eating pizza if you can call it that. It is just a > > very > > thin crust and sauce, hehe better than nothing. Actually, Laurie makes it > > when she > > makes pizza and it is not so bad, we laugh. I absolutely crave anything with > > acid > > in it. I put lemon juice all over any veggies. Oddly enough I can eat > > pickles > > and do I ever. I think because there is no acid in my stomach (pouch) I crave > > it. > > I am trying to deal with it all. The RA is bad but I am trying to walk as > > much as > > I can. I keep thinking if I could get one problem solved (stomach) everything > > would be better. I just pray and I do get through it. I am so looking > > forward to > > Laurie graduation on Friday. Friday night my sons are going to take all of > > out to > > dinner for a small celebration. Her party is on Sunday. > > I feel so bad when I read all you are going through. Plus the pain you are > > in, I > > wish there was some advise I could give you. I know one thing do not let that > > insurance company get to you, that is what they are trying to do. Fight them > > a > > on everything, you have to keep at them. You DESERVE to have the medical care > > and > > equipment you need so you can function. The insurance company knows they will > > have > > to pay, they do this in the hopes you will go away. My ortho did a wonderful > > deposition for me, with the wc. So we go back to court in June or July. If I > > win > > my attorney feels this maybe it. Apparently the ortho's depo couldn't have > > been > > better. I remember one time you sent me a site that explained most judges do > > not > > go against a patients doctor, so I am hoping all we be okay. I also think > > when you > > are going through all this stuff with an insurance company it makes you tense, > > hence making everything worse. > > I hope the sun starts to shine for you and you feel better. If I can do > > anything > > just let me know. You are in my prayers. > > Lynn > > > > > > a wrote: > > > >> Thanks Lynn. I know you've been through a lot of fighting with WC and know > >> how it feels. I hope your battle is over soon. How have you been feeling? > >> Are you done school? > >> a > >> > >>> Hi a, > >>> I am so sorry to read you are still having so many problems. Insurance > >>> companies are terrible. The people can be very rude and mean. I know I > >>> have > >>> been dealing with wc for eight years. I wish things could be better for > >>> you. > >>> Also, wish you felt better. You are in my prayers. > >>> Lynn MeMom > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Congratulations on your geography grade. Are you taking any classes over the summer or taking a break? I'll be praying that your hearing goes well. You've had such a long battle. I'm sorry nothing can be done for your stomach. I can't believe there are not alternatives and you just have to live in pain. I hope your GI doctor will come up with something to make your life more comfortable. I know what it's like to loose the joy of eating. When eating causes pain, it puts food in a different light. a > Hi a, > I do know what the insurance company is putting you through and it is > terrible. > I have been dealing with an insurance company for eight years. My hearing to > stop > my income is on June 10. All the depositions are in so we will see what > happens. > Dealing with an insurance company is very stressful as you know. I just wish > it was > better for you. > My grades for the geography class are in. I am in shock, I got a B. I truly > believe the teacher dropped the last test because I know I did so bad on it. > I > heard he does drop test when the class does badly. I am just waiting for the > other > class. > I went for the test today for my stomach. The doctor let me watch, it was > interesting. He explained what every thing inside me was, even if it all > isn't in > the right place. The stomach empties well but than stops and that is why I > feel > sick whenever I eat. I don't think anything can be done about that. The pain > well > I am lucky there is no obstructions. However, I don't have an answer either. > He > thinks it is probably scar tissue and it doesn't always show up. That is > exactly > what the GI specialist told me. I haven't spoken to her yet but I feel like I > am > between a brick and a hard place. But she told me nothing was going to show. > I > hate to think that I will have to stay in this pain but that is what it looks > like > at this point. I will wait and talk to her, it is just frustrating. > I sure hope you start to feel better and that insurance company helps you. > They > fight and fight a person and end up paying for everything anyway. They waste > more > money and it makes no sense. They hope if they hold out you will just go > away. > Just keep fighting them. I'll let you know what the GI doc says and how the > hearing > goes. > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi a, I was thinking of you this morning when I got up and it was raining again. I'm sure your jaw must be very painful. But I am glad the insurance company has to pay for what you need. I am not taking a class this summer. The last semester was very hard. There were days when I dragged myself to class. Plus the pain with my stomach didn't help any. So I am taking the summer off. I am so relieved with my Geo.. grade. I am waiting for my English Comp II grade. However, I did get my research paper back. I was so excited about that because he gave me an A. It was 20 pages long and I wrote it on Historic Preservation. I was hoping for a B but was blown away with the A. He wrote some very nice compliments on the paper. I feel so much better. I really thought I had made a mistake going back when I did, but you know it worked out. It will be a little harder to go now. I can't get anyone financial aid at my school. If I transferred to a four year school I could. So I will have to scrape the money together to continue. Even if I can only take one class at a time I will have to do it that way. I hate to not go with only 5 classes to take for my degree. I will just trust God will help me find a way. Tylenol was helping with the pain in my stomach but no longer works. So I started taking darvocet. I am still waiting to here from the GI doctor but with the holiday I think it will be a couple of days. I do plan on going down to the hospital and picking up a couple of the reports myself. I like to read what has been written that way I have questions. Laurie made pizza last night so I got a slice of what I like to think of as pizza. Really just a slice of dough and sauce but who cares it is a treat. I hope your holiday is peaceful and you can enjoy it. Isn't the weather terrible, I can't remember the last time the sun was out. Hugs, Lynn a wrote: > Congratulations on your geography grade. Are you taking any classes over > the summer or taking a break? > I'll be praying that your hearing goes well. You've had such a long battle. > I'm sorry nothing can be done for your stomach. I can't believe there are > not alternatives and you just have to live in pain. I hope your GI doctor > will come up with something to make your life more comfortable. I know what > it's like to loose the joy of eating. When eating causes pain, it puts food > in a different light. > a > > > > Hi a, > > I do know what the insurance company is putting you through and it is > > terrible. > > I have been dealing with an insurance company for eight years. My hearing to > > stop > > my income is on June 10. All the depositions are in so we will see what > > happens. > > Dealing with an insurance company is very stressful as you know. I just wish > > it was > > better for you. > > My grades for the geography class are in. I am in shock, I got a B. I truly > > believe the teacher dropped the last test because I know I did so bad on it. > > I > > heard he does drop test when the class does badly. I am just waiting for the > > other > > class. > > I went for the test today for my stomach. The doctor let me watch, it was > > interesting. He explained what every thing inside me was, even if it all > > isn't in > > the right place. The stomach empties well but than stops and that is why I > > feel > > sick whenever I eat. I don't think anything can be done about that. The pain > > well > > I am lucky there is no obstructions. However, I don't have an answer either. > > He > > thinks it is probably scar tissue and it doesn't always show up. That is > > exactly > > what the GI specialist told me. I haven't spoken to her yet but I feel like I > > am > > between a brick and a hard place. But she told me nothing was going to show. > > I > > hate to think that I will have to stay in this pain but that is what it looks > > like > > at this point. I will wait and talk to her, it is just frustrating. > > I sure hope you start to feel better and that insurance company helps you. > > They > > fight and fight a person and end up paying for everything anyway. They waste > > more > > money and it makes no sense. They hope if they hold out you will just go > > away. > > Just keep fighting them. I'll let you know what the GI doc says and how the > > hearing > > goes. > > Lynn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Dear Lynn: First....I hope you are having a great Memorial Day! Sometimes, our hopes and plans change for a reason. It could be that you are supposed to cut back to one class at this particular time in your life. No one can take away what you have already learned with the sweat of your brow and sacrifices that have carried you to this point. Who knows what the Master Weaver has ahead for you and sometimes when you look back in retrospect, the pieces of the puzzle fall into their perspective places and a light dawns......... " Oh, I see why that happened! " I'm speaking from experience. I started a community college right out of high school, part time. Circumstances after a year, forced me to stop (not stop, actually, it was always in my mind to go back). When I was able to go back, it was after my husband died and with juggling two kids, working full time, and a myriad of other things, took anywhere from 1 - 3 classes a semester. There were times, I had to drop a semester and wait until the money and/or resources were there. I had difficulty with 3 different subjects and had to drop each one several times before finding a teacher that was able to reach my dense brain before finally succeeding in them and going on to other classes in the same field. In 1977, 19 years after starting my first class, walked with the graduating class and received a well-appreciated AA degree in English. One year later, having had enough credits to take 6 more classes and earn a second AA, received one in Social Science. My GPA was 3.8 and I never realized the significance of the degrees and GPA until later when I had to change careers in mid-stream. I continued the following year for one semester at the University but again, circumstances forced me to postpone any further education. A few years after that, telephone company (where I had worked for 22 years) was in the middle of the divestiture and my department was on the way out having gone from 5 locations with anywhere from over a hundred to two hundred employees down to 1 location and around 50 employees. When several options were presented to us(ie, early full retirement, quitting, waiting it out for a transfer but no guarantee where the location would be, possibility of being laid off, or taking a package early retirement which consisted of in my case of salary and benefits for 10 months, a small lump sum (2500 eaten up by taxes) and picking up a fixed retirement pension at age 65) I opted for the early (VIPP) package because of the stress the job phone company was putting everyone through at the time and pressures at home with a teenager that was trying to find herself. That's when I found that even just the two small degrees were not really small and always played a big influence in all the jobs I have had since. I regretted leaving college when I did, however, when the big picture came into focus, many things were clearer and now there are no regrets. At some point, I will go back for more learning whether it will be for a degree or for my own enjoyment. But then again, all of it has been for my own enjoyment. As for the financial aid, you never know what aids are available. It might take a little research on your part, but I am sure there are resources out there. At San Diego State University's library there is a complete section devoted to scholarships and I'm sure other Universities have something similar. There are scholarships available, for example, if you are over 40 and color your hair with a certain product or if you had a relative that carried the baggage for a wagon train west for his great aunt.(this one is stretched, but just to show you that some of the most ridiculous scholarships are available and usually go unused because no one knows about them). Give it a try and I think you might be surprised. Anyhow......good luck on your learning adventure. It's a great feeling when you are finished. Thinking positive thoughts for you with lots of prayers and (((hugs))). Jan in CA +/:=) Ruf-Caimi <ruf-caimi@...> wrote: " .....I feel so much better. I really thought I had made a mistake going back when I did, but you know it worked out. It will be a little harder to go now. I can't get anyone financial aid at my school. If I transferred to a four year school I could. So I will have to scrape the money together to continue. Even if I can only take one class at a time I will have to do it that way. I hate to not go with only 5 classes to take for my degree. I will just trust God will help me find a way..... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi Jan, I am so impressed with all your accomplishments. You certainly have done so well. It must have been so hard trying to go to school with children at home. My girls are older so it is not hard. I thank you for all your kind words. I really didn't get all that upset when the letter came. I thought I will just trust God to help me find a way. I am disappointed that I won't be able to graduate next May but that is the way it is. I already have a certificate in Historic Preservation that I earned two years ago. That certificate means a lot to me, there were some very difficult courses in that program. I would like to have my AA in Liberal Arts and I think I will be able to get that. I was suppose to go to Temple for a bachelor but I may just stay at Bucks. There are many classes I would like to take. I know God is watching over me and helping me. I am sure he has a good reason for all that has happened. I forgot about all this until I read your note. Thank you from the bottom of my heart. Hope your holiday was nice. Here in Pa., it is nothing but rain and more rain. It was continue for the whole week-end again. Thank you for your kind thoughts, Lynn Jan Tully wrote: > Dear Lynn: > First....I hope you are having a great Memorial Day! > Sometimes, our hopes and plans change for a reason. It could be that you are supposed to cut back to one class at this particular time in your life. No one can take away what you have already learned with the sweat of your brow and sacrifices that have carried you to this point. Who knows what the Master Weaver has ahead for you and sometimes when you look back in retrospect, the pieces of the puzzle fall into their perspective places and a light dawns......... " Oh, I see why that happened! " I'm speaking from experience. I started a community college right out of high school, part time. Circumstances after a year, forced me to stop (not stop, actually, it was always in my mind to go back). When I was able to go back, it was after my husband died and with juggling two kids, working full time, and a myriad of other things, took anywhere from 1 - 3 classes a semester. There were times, I had to drop a semester and wait until the money and/or resources were there. I had di! > fficulty with 3 different subjects and had to drop each one several times before finding a teacher that was able to reach my dense brain before finally succeeding in them and going on to other classes in the same field. In 1977, 19 years after starting my first class, walked with the graduating class and received a well-appreciated AA degree in English. One year later, having had enough credits to take 6 more classes and earn a second AA, received one in Social Science. My GPA was 3.8 and I never realized the significance of the degrees and GPA until later when I had to change careers in mid-stream. I continued the following year for one semester at the University but again, circumstances forced me to postpone any further education. A few years after that, telephone company (where I had worked for 22 years) was in the middle of the divestiture and my department was on the way out having gone from 5 locations with anywhere from over a hundred to two hundred employees down t! > o 1 location and around 50 employees. When several options were presented to us(ie, early full retirement, quitting, waiting it out for a transfer but no guarantee where the location would be, possibility of being laid off, or taking a package early retirement which consisted of in my case of salary and benefits for 10 months, a small lump sum (2500 eaten up by taxes) and picking up a fixed retirement pension at age 65) I opted for the early (VIPP) package because of the stress the job phone company was putting everyone through at the time and pressures at home with a teenager that was trying to find herself. That's when I found that even just the two small degrees were not really small and always played a big influence in all the jobs I have had since. I regretted leaving college when I did, however, when the big picture came into focus, many things were clearer and now there are no regrets. At some point, I will go back for more learning whether it will be for a degree ! > or for my own enjoyment. But then again, all of it has been for my own enjoyment. > As for the financial aid, you never know what aids are available. It might take a little research on your part, but I am sure there are resources out there. At San Diego State University's library there is a complete section devoted to scholarships and I'm sure other Universities have something similar. There are scholarships available, for example, if you are over 40 and color your hair with a certain product or if you had a relative that carried the baggage for a wagon train west for his great aunt.(this one is stretched, but just to show you that some of the most ridiculous scholarships are available and usually go unused because no one knows about them). Give it a try and I think you might be surprised. > Anyhow......good luck on your learning adventure. It's a great feeling when you are finished. > Thinking positive thoughts for you with lots of prayers and (((hugs))). Jan in CA +/:=) > > > Ruf-Caimi <ruf-caimi@...> wrote: > " .....I feel so much better. I really thought I had made a mistake going back when I did, but you know it worked out. It will be a little harder to go now. I can't get anyone financial aid at my school. If I transferred to a four year school I could. So I will have to scrape the money together to continue. Even if I can only take one class at a time I will have to do it that way. I hate to not go with only 5 classes to take for my degree. I will just trust God will help me find a way..... " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 Thanks a, I will check this out. The only thing she has me on is Zelnorm. But that is to just empty the pouch when I do eat. Problem with that drug is remembering to take it before you eat. Thanks I will check out the sites. You know I thought I knew all about the surgeries I had. I thought I had researched everything and I really was told I had the best doctors. I am so rethinking everything but at this point it won't do me any good. Lynn a wrote: > Half of the people who have major pancreatic surgery have problems digesting > foods. > This site mentions taking digestive enzymes after the Whipple procedure: > > Digestive Enzymes: The Missing Link > http://www.lef.org/magazine/mag99/apr99-cover.html > http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/ > > Medical College of Wisconsin > http://healthlink.mcw.edu/article/971119645.html > > Malabsorption Syndromes > http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 I saw you mention digestive enzymes for Lynn a few times before, a. I think it's a good idea and I'm wondering why none of the doctors have mentioned it. [ ] Lynn > Half of the people who have major pancreatic surgery have problems digesting > foods. > This site mentions taking digestive enzymes after the Whipple procedure: > > Digestive Enzymes: The Missing Link > http://www.lef.org/magazine/mag99/apr99-cover.html > http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/ > > Medical College of Wisconsin > http://healthlink.mcw.edu/article/971119645.html > > Malabsorption Syndromes > http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 a, I am reading this sites with great interest. I did enzymes when I was having all the attacks but it was stopped. I see that people are suppose to take enzymes before they have a whipple. No one ever told me that one. I don't understand why it hasn't been recommended. I don't eat dairy or meat. I do eat a lot of veggie but they are well cooked and if I understand this site, that cooking takes out the enzymes. I am going to ask my primary on Saturday. I called the hospital to see if an error was made. I am suppose to call them back later today. I feel like the GI doc is so frustrated she doesn't want to deal with it. She told me to call her and let her know what the pain management doctor says. I guess I am suppose to cancel the appointment I have with her. I am going to continue reading the sites you sent. Thank You, Lynn a wrote: > > Half of the people who have major pancreatic surgery have problems digesting > foods. > This site mentions taking digestive enzymes after the Whipple procedure: > > Digestive Enzymes: The Missing Link > http://www.lef.org/magazine/mag99/apr99-cover.html > http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/ > > Medical College of Wisconsin > http://healthlink.mcw.edu/article/971119645.html > > Malabsorption Syndromes > http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 Dear , I am so sorry that the pain continues to be so intense without anyone figuring out how they could help you. My cousin had his spleen removed and he has to take medication daily so I don't see how they could have removed your spleen without you knowing that. I hope that your doc meant that there should be some other way of treating you and was not saying that he doesn't believe in pain treatment. Please let us know what he says. Hugs to you. Iris --- Ruf-Caimi <ruf-caimi@...> wrote: > Hi a, > No she didn't mention the enzymes. She told me there is really nothing she can > do for me. That is why she suggested pain management. But since it is scar tissue > wouldn't it at some point have to be dealt with. I wouldn't want anyone operating > on me at this point. I have had all the surgery I want but with the pain and scar > tissue seems to me it will only get worse. I think I will get more answers when I > see the primary on Saturday. He was not in favor of pain management, he told me, we > needed to talk. I always feel better after I talk to him. I will be calling the > hospital tomorrow to ask that they reread the x-rays. If they don't find a spleen, > the surgeon gets a phone call. I won't deal with his residents either, he will have > to be the one to answer the questions. When I talked to the GI doctor I could > almost feel her frustration, when she said there is nothing to be done. I really > believe she doesn't know what to do. > How are you feeling? Is the pain any better in your jaw? > Lynn > > a wrote: > > > I hope it was a mistake Lynn. I wish you had other options besides pain > > management. Has your doctors mentioned taking digestive enzymes to help you > > digest food? > > a > > > > > > > Hi , > > > I talked with the GI doctor and she feels a mistake has been made. She does > > > not recall anything about taking out the spleen. I am going to call the > > > hospital > > > tomorrow and ask that they reread the x-ray and look for a spleen. On the > > > other > > > hand she told me there is nothing she can do for me. She is recommending pain > > > management and wants me to go see them. She said there is no doubt that all > > > the > > > pain is scar tissue and that it would not show up on the test. I feel like I > > > am > > > between a brick and a hard place. I will talk to my primary and see what he > > > thinks. I am suppose to go back to the GI doc in July but I will cancel that. > > > She did say there is nothing more she can do. My primary will just take over. > > > Really I don't want anyone touching the scar tissue if it can be helped. Some > > > mess huh, I didn't think it would all turn out like this. > > > Lynn > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 a, I am printing some of this information out. I want to take it to my primary tomorrow. Thank you so much for all your help. Hope you are feeling better. Lynn a wrote: > Half of the people who have major pancreatic surgery have problems digesting > foods. > This site mentions taking digestive enzymes after the Whipple procedure: > > Digestive Enzymes: The Missing Link > http://www.lef.org/magazine/mag99/apr99-cover.html > http://www.ddc.musc.edu/ddc_pub/patientInfo/surgeries/pancreatic/ > > Medical College of Wisconsin > http://healthlink.mcw.edu/article/971119645.html > > Malabsorption Syndromes > http://www.merck.com/mrkshared/mmanual_home/sec9/110.jsp > > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Hi Iris, Well we found the spleen, thank goodness. The pain is bad but I will just have to deal with it. I really don't want anymore surgery. I think surgery will be in my picture but I hope it hold it off as long as possible. I have had way to much surgery for a long time. Hope you are having a good day, Lynn Iris Nosker wrote: > Dear , > > I am so sorry that the pain continues to be so intense without anyone figuring out how they could > help you. My cousin had his spleen removed and he has to take medication daily so I don't see how > they could have removed your spleen without you knowing that. I hope that your doc meant that > there should be some other way of treating you and was not saying that he doesn't believe in pain > treatment. Please let us know what he says. Hugs to you. Iris > > --- Ruf-Caimi <ruf-caimi@...> wrote: > > Hi a, > > No she didn't mention the enzymes. She told me there is really nothing she can > > do for me. That is why she suggested pain management. But since it is scar tissue > > wouldn't it at some point have to be dealt with. I wouldn't want anyone operating > > on me at this point. I have had all the surgery I want but with the pain and scar > > tissue seems to me it will only get worse. I think I will get more answers when I > > see the primary on Saturday. He was not in favor of pain management, he told me, we > > needed to talk. I always feel better after I talk to him. I will be calling the > > hospital tomorrow to ask that they reread the x-rays. If they don't find a spleen, > > the surgeon gets a phone call. I won't deal with his residents either, he will have > > to be the one to answer the questions. When I talked to the GI doctor I could > > almost feel her frustration, when she said there is nothing to be done. I really > > believe she doesn't know what to do. > > How are you feeling? Is the pain any better in your jaw? > > Lynn > > > > a wrote: > > > > > I hope it was a mistake Lynn. I wish you had other options besides pain > > > management. Has your doctors mentioned taking digestive enzymes to help you > > > digest food? > > > a > > > > > > > > > > Hi , > > > > I talked with the GI doctor and she feels a mistake has been made. She does > > > > not recall anything about taking out the spleen. I am going to call the > > > > hospital > > > > tomorrow and ask that they reread the x-ray and look for a spleen. On the > > > > other > > > > hand she told me there is nothing she can do for me. She is recommending pain > > > > management and wants me to go see them. She said there is no doubt that all > > > > the > > > > pain is scar tissue and that it would not show up on the test. I feel like I > > > > am > > > > between a brick and a hard place. I will talk to my primary and see what he > > > > thinks. I am suppose to go back to the GI doc in July but I will cancel that. > > > > She did say there is nothing more she can do. My primary will just take over. > > > > Really I don't want anyone touching the scar tissue if it can be helped. Some > > > > mess huh, I didn't think it would all turn out like this. > > > > Lynn > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Lynn, I have to start getting ready for work soon and I wanted to get this off to you. I have been wanting to write but time is really hard on me. I am always behind in reading and posting. I always feel bad that I wasn't able to post what I want or be in touch with everybody. It's only been a few months I have been in the group. At first I was really overwhelmed by the whole thing. I got pretty stressed out by the whole thing. My daughter and ex think it's not good for me to be in the group. That I have gone downhill since being in it. Even my doc says that. In a way they are right, but, I'm not willing to give it up. I am a bit more relaxed now with posting and I can understand how people feel. I don't know if I'll be ever be able to get the total hang of it. If I didn't have to work it would be better. Anyway I just wanted to let you know that I have always enjoyed your little notes for having a good day! Especially the little rose! -NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 , Yes, I got it to and was going to forward it to Jerry to see if I was the only one. I guess I won't now because others must have received it. I was suspect but did open it because it started . I hope someone looks into it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Lynn, Yes you did write me back. Was going to write last night but it got late. Figured I would get to it this morning before going to work and naturally ran out of time. I spent early hours clearing out posts. I'm so afraid if I hold on to to many that my e-mail address will break down again like my other one did! I need to ask you something! And anybody else can answer this too! I was just reading today's messages and there was one from: hot4_azz1 Subject: ( )are you coming to my orgy 7/23/03 DID ANYBODY GET THIS TOO IN THEIR POSTS? I copied it to see the e-mail address and it says: hot4u_azz1@... Can something write back and tell me whether they saw this too? Like right now?? Weird things have been happening and I need to know. -NH Lynn, next post is to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 , unfortunately, I did get the same post. Makes me sick ! I deleted it immmediately. Take care, Sue(from Ohio) Nocera-NH@... wrote: Lynn, Yes you did write me back. Was going to write last night but it got late. Figured I would get to it this morning before going to work and naturally ran out of time. I spent early hours clearing out posts. I'm so afraid if I hold on to to many that my e-mail address will break down again like my other one did! I need to ask you something! And anybody else can answer this too! I was just reading today's messages and there was one from: hot4_azz1 Subject: ( )are you coming to my orgy 7/23/03 DID ANYBODY GET THIS TOO IN THEIR POSTS? I copied it to see the e-mail address and it says: hot4u_azz1@... Can something write back and tell me whether they saw this too? Like right now?? Weird things have been happening and I need to know. -NH Lynn, next post is to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Hi Lynn, I sent you a personal e-mail the other day in the morning. Did you get it? I have to leave to go house sit in a few minutes. Will be home tomorrow morning for awhile so I'll be able to catch some post up. My e-mail address is Nocera-NH@... Take Care! -NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Hi , I did get your e-mail and I am sorry I am late in posting back.. I havent been online much the past couple of days. How are you? We are just going out to eat, however, I have no idea what I will eat as I cant eat meat and most foods in the little restaurants around here is so greasy and fried.. I will be sure and keep up with my mail,, I promise.. Thanks for being there. Have a nice evening and a good Saturday. My grandson is coming down for the weekend. He is eleven .. Take care, LynNocera-NH@... wrote: Hi Lynn, I sent you a personal e-mail the other day in the morning. Didyou get it? I have to leave to go house sit in a few minutes. Will behome tomorrow morning for awhile so I'll be able to catch some post up.My e-mail address is Nocera-NH@... Take Care! -NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 Lynn, I know I asked this before, but, are you seeing a GI or a Hep? Do you live in a small area? I remember you saying finding a doctor who is experienced with PLD is hard to find. Do they have to drain these cysts every so often? Can't these cysts be removed? Are they on the inside of your liver too? I think you mentioned you have fatty liver too. I like seeing the rose again. How do you add these things to your posts. There is much I do not know about computers! Hope you are feeling well. Do you color your hair? If so, what do you use? Take Care -NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Hi Lynn, I have been getting messages ok and I hope you are now. I wouldn't even know where to start to fix your problem except for you to try the help process. Let me know if you get this message or if you are still having the problem and I'll try and think of something to do. MicheleLynn Witkowski <lynnwit@...> wrote: Hi Michele, Several of the messages have been empty... I am just wondering if this is an isolated problem affecting just my mail, or if others in the group are getting the same thing. The following is an example of what I receive. Lynn -- Re: Dental Work after C-Toma ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Michele, the message you sent is still empty... though i am receiving other messages with no problem... -- Re: Lynn ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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