Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 Thanks so much for the thoughts and prayers. I know that your problem is quite different from most of ours and sometimes I feel like I can't help you as much as I would like to. All I can do is keep you in my thoughts and prayers. You hang in there. Thinking about you here in Virginia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Lynn, Thanks so much. I'm much better now. I was just exhausted and had pushed way to hard with the move. I should have taken a few days off. I'm fine. Hope all is well with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Lynn, Im glad to hear that things went so well for you!!! Best wishes for a continued recovery. Sincerely, Renonda (s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 Thank You Renonda. Lynn -- Re: Re: LYNN Lynn,Im glad to hear that things went so well for you!!! Best wishes for a continued recovery.Sincerely,Renonda(s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Hi a, Thank you for the note. I had to cancel my appointment. The work is being done on May 27th. I have a nasty cold and I was afraid to have the work done not feeling well. The whole infection thing scares me. When I called the dentist agreed it would not be a good idea to go ahead and do the work when I was sick. Sounds like you are happy in your new home. I hope you are very happy. We did have a nasty winter this year. It was far too cold. I wish you much happiness in your new house. My brother has a house near Key West. I am not a warm weather person so I would never go there. I'll let you know how I make out on May 27th. Lynn a wrote: > Hi Lynn, > I can understand how you feel about the U of P. If you were closer, you may > not mind having to > go back so many times. The distance was a hardship for us too, so we > stopped going. I know > you¹re nervous about tomorrow, but that beautiful smile will make it worth > it. I know several > people that had a lot of teeth pulled at one time and had a denture put in > right away. They say it > acts as a bandaid and actually heals faster. > I¹m very happy in my new home, thanks. The thought of no more ice and snow > is such a relief. > I¹m still trying to get settled, find new doctors etc. We¹re down to ONE > room full of boxes, so > normalcy is in sight LOL! > Good luck tomorrow. I¹ll be keeping you in my thoughts and prayers. > a > > > Hi a, > > I wanted to let you know that I am having my teeth out next Thursday. I > > decided > > to go to my own dentist. My son was concerned that if I went to the U. of P. > > and > > anything went wrong I would be so far from home. I would have had to take the > > train > > down there. Also I am chicken when it comes to dentist and I didn't want to > > have to > > wait to have the work done little by little. My dentist is doing it all in > > one > > day. He doesn't put you to sleep or anything. But he assured me there will > > be no > > pain. So I have to go get the vitamin K checked. It is only a little better > > than > > it was after the second surgery. So all this time taking the Vitamin K didn't > > help. But then I don't know what would have happened if I hadn't taken it. > > So now > > I have to take it twice a day to try and get it were it should be. They feel > > with > > the whipple I just don't absorb it anymore. I find myself wondering whatever > > I am > > not absorbing. Anyway I wanted to let you know. Oh I get my new teeth the > > day the > > work is done. I have never had nice teeth so a part of me is looking forward > > to > > being able to smile without thinking about my terrible teeth. Long story > > about my > > teeth. > > How are you doing? I hope you are happy in your new home. You were missed > > when you > > were gone. Hope you are well and I think of you often. > > Lynn MeMom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Lynn, It¹s better to be safe than sorry. The infections scare me to and I¹d rather be overcautious. I love Key West to visit, but I¹d be afraid to live there since it takes so long to get off the islands. The medical care there is sparse. I don¹t think it gets as hot there as you think since the ocean breezes are so strong. Have you ever visited him? It may be a great place to visit when your winters are bad. a > Hi a, > Thank you for the note. I had to cancel my appointment. The work is > being done > on May 27th. I have a nasty cold and I was afraid to have the work done not > feeling > well. The whole infection thing scares me. When I called the dentist agreed > it > would not be a good idea to go ahead and do the work when I was sick. > Sounds like you are happy in your new home. I hope you are very happy. > We did > have a nasty winter this year. It was far too cold. I wish you much > happiness in > your new house. My brother has a house near Key West. I am not a warm > weather > person so I would never go there. > I'll let you know how I make out on May 27th. > Lynn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Hi a, As I get closer to the dental day I think I really don't want to do this. However, I don't have any choice. I have never had nice teeth, so it will be nice to be able to smile and not think about my terrible teeth. They tell me there will be no pain. My brother and I are not close at all. I don't believe he ever liked me. He is older than I am. I think he has resented me since the day I was born. We don't fight or anything. He just doesn't speak to me. I remember when I was a child being bothered by all this and trying to get him to speak to me. After awhile I just gave up. I don't believe he wishes me anything bad, he just doesn't like me. So I accept it for what it is. So I will probably never be invited to his house. If I were to travel I would go north. I really prefer the cold or cool weather areas. I would love to see the New England States. But that won't be possible at this time. I hope you are feeling well. Any luck in finding good doctors? It has to be hard changing doctors. My primary doctor, I have been seeing since I was 15. We have a long history. Hope you are well. I'll let you know how the teeth turn out. Lynn a wrote: > Lynn, > It¹s better to be safe than sorry. The infections scare me to and I¹d > rather be overcautious. > I love Key West to visit, but I¹d be afraid to live there since it takes so > long to get off the islands. > The medical care there is sparse. I don¹t think it gets as hot there as you > think since the ocean > breezes are so strong. Have you ever visited him? It may be a great place > to visit when your > winters are bad. > a > > > Hi a, > > Thank you for the note. I had to cancel my appointment. The work is > > being done > > on May 27th. I have a nasty cold and I was afraid to have the work done not > > feeling > > well. The whole infection thing scares me. When I called the dentist agreed > > it > > would not be a good idea to go ahead and do the work when I was sick. > > Sounds like you are happy in your new home. I hope you are very happy. > > We did > > have a nasty winter this year. It was far too cold. I wish you much > > happiness in > > your new house. My brother has a house near Key West. I am not a warm > > weather > > person so I would never go there. > > I'll let you know how I make out on May 27th. > > Lynn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 That is to bad Lynn. Your brother doesn't realize the wonderful person he is missing. I had a brother Like that too. He would talk to me, but not very nice things came out of his mouth and he got great joy out of seeing how many bruises he could put on one arm. It turns out he was very ill and I¹ve forgiven him for his meanness. My little brother made up for it. He is a very special brother that would do anything for me (include drive my moving van 1200 miles away from him in spite of the fact he hated to see me move away). You just may get to see the New England states one day. You have a lot of living left to do and you don¹t know what tomorrow brings. The NE states are beautiful. I found a primary doctor and she seems very nice. I am going to see a rheumy at the Cleveland Clinic in June. Finding a new rheumy doesn¹t bother me because I¹d like to get some new input and ideas for treatment. Enbrel helps, but not enough. You¹re lucky to have a long relationship with a doctor. I¹ve never needed a primary very much because except for RA, I rarely get sick, not even with colds etc. My rheumy has always been my primary. Good luck with your teeth. It will be worth it when you have that big beautiful smile a > Hi a, > As I get closer to the dental day I think I really don't want to do this. > However, I don't have any choice. I have never had nice teeth, so it will be > nice > to be able to smile and not think about my terrible teeth. They tell me there > will > be no pain. > My brother and I are not close at all. I don't believe he ever liked me. > He > is older than I am. I think he has resented me since the day I was born. We > don't > fight or anything. He just doesn't speak to me. I remember when I was a > child > being bothered by all this and trying to get him to speak to me. After awhile > I > just gave up. I don't believe he wishes me anything bad, he just doesn't like > me. > So I accept it for what it is. So I will probably never be invited to his > house. > If I were to travel I would go north. I really prefer the cold or cool > weather > areas. I would love to see the New England States. But that won't be > possible at > this time. > I hope you are feeling well. Any luck in finding good doctors? It has to > be > hard changing doctors. My primary doctor, I have been seeing since I was 15. > We > have a long history. Hope you are well. I'll let you know how the teeth turn > out. > > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Hi a, I don't let my brother bother me. I think what happen was my Dad was away fighting in the war and it was just my mom and brother. Well along comes my dad back, someone couldn't remember. On top of that he gets a sibling who had to turn out to be a girl. I'm sure his world was turned up side down. On top of all that I have been told my grandparents were very happy they had a granddaughter. I don't remember any of that, all I know is my grandmother was wonderful and we were good friends. Anyway I have so much more to worry about than him. I don't think he wishes me any ill, he just doesn't like me. That's okay my younger brother and I are so close it makes up for a lot. He was with me through both surgeries. He only has a short time to live. He had a heart transplant and it is not working right. So his time is limited. I can't imagine my life without him. But time is short for him. He will have a heart attack and die. I'm sorry your brother was mean to you. But if he was ill that says a lot. You forgive him and that is what is important. I am getting ready for Thursday. They tell me it will only take a 1/2 hour. We will see. I will feel awful if I go through this and the teeth don't look good. Do you think you will continue on in school, living in Florida? I hope you can, it is rewarding going back to school. Hope you are well and able to enjoy your new home. Love Lynn a wrote: > That is to bad Lynn. Your brother doesn't realize the wonderful person he > is missing. I had a brother > Like that too. He would talk to me, but not very nice things came out of > his mouth and he got great joy > out of seeing how many bruises he could put on one arm. It turns out he was > very ill and I¹ve forgiven > him for his meanness. My little brother made up for it. He is a very > special brother that would do > anything for me (include drive my moving van 1200 miles away from him in > spite of the fact he hated to see me move away). > You just may get to see the New England states one day. You have a lot of > living left to do and you don¹t know > what tomorrow brings. The NE states are beautiful. > > I found a primary doctor and she seems very nice. I am going to see a > rheumy at the Cleveland Clinic in June. > Finding a new rheumy doesn¹t bother me because I¹d like to get some new > input and ideas for treatment. > Enbrel helps, but not enough. You¹re lucky to have a long relationship with > a doctor. I¹ve never needed > a primary very much because except for RA, I rarely get sick, not even with > colds etc. My rheumy has > always been my primary. > Good luck with your teeth. It will be worth it when you have that big > beautiful smile > a > > > > Hi a, > > As I get closer to the dental day I think I really don't want to do this. > > However, I don't have any choice. I have never had nice teeth, so it will be > > nice > > to be able to smile and not think about my terrible teeth. They tell me there > > will > > be no pain. > > My brother and I are not close at all. I don't believe he ever liked me. > > He > > is older than I am. I think he has resented me since the day I was born. We > > don't > > fight or anything. He just doesn't speak to me. I remember when I was a > > child > > being bothered by all this and trying to get him to speak to me. After awhile > > I > > just gave up. I don't believe he wishes me anything bad, he just doesn't like > > me. > > So I accept it for what it is. So I will probably never be invited to his > > house. > > If I were to travel I would go north. I really prefer the cold or cool > > weather > > areas. I would love to see the New England States. But that won't be > > possible at > > this time. > > I hope you are feeling well. Any luck in finding good doctors? It has to > > be > > hard changing doctors. My primary doctor, I have been seeing since I was 15. > > We > > have a long history. Hope you are well. I'll let you know how the teeth turn > > out. > > > > Lynn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 Tess, I am so glad things are going well for you. Not only did my DIL have the surgery but so did her mother. She lost about 125 pounds, she looks wonderful. It took them both a year which is not bad at all. I don't plan on going without my teeth either, I keep them in at night also. The dentist told me it will take 2 months to get use to them. That is okay I am already glad I did this, not that I had a choice I didn't. My teeth were really bad. They just look nicer than the old ones. Lynn tess_northwest@... wrote: > Hi Lynn...for the first time in nearly 2 years I was able to go shopping > without using a mart-cart! I had no back spasms or cramps at all. If I > have a bad RA flare I won't be shy about using one again, but this was > so encouraging to just walk through the store without such pain. I > haven't weighed in almost a month...I was down 44 pounds then so I'm > sure I'm down some more. > > Congratulations to your DIL! I am so happy she has done so well. > > I'm sure glad you're doing better too, Lynn. My Mom, who is 82 now, had > to have her teeth extracted when she was in her late thirties. She grew > up very poor in the depression years and had no real dental care. She > was MORE than happy to give up those old teeth! And in the 45 years or > so she has had dentures, I have NEVER seen her without them. She is > fastidious in caring for them, but she vows no one will ever see her > without them nor will they be in a little container at her bedside! She > has never regretted either decision! : ) > > Much love & many hugs.... > > Tess > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Dear Althea, Thank you for your note and prayers. I try not to cry just think of all the wonderful memories he left with me. He was very special. Hope you are feeling okay. My RA has been terrible but maybe it is all the stress. I called my insurance company yesterday to find out about remicade. Found out they won't cover it for me. My insurance only pays for generic drugs. Guess I wasn't meant to have it. Thanks, Lynn blueroses11 wrote: > Dearest Lynn, > Please know that my prayers have gone out for you and your family > during this very stressful time in your life. I know it is hard to > go through and that only time will heal your open wounds but please > know that I am thinking of you and hoping that you find something to > ease your pain. > > God bless, > Althea > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 good deal!!! build on it --- Lynn Whitton <angelalynnwhitton@...> wrote: > Hello, I'm somewhat excited. I had to take > Austin (my son), to day > Dr. Yesterday. He had to weigh so I took the > atvantage of me awaying > my self. I was down 4 lbs. Now some of that > was water - because I > was on those water pills. > > lynn Whitton > > > Live, Love, Laugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 -: Congratulations on your weight loss, water or not, a loss is a loss and something to be proud of!!!! Faye -- In 100-plus , " Lynn Whitton " <angelalynnwhitton@y...> wrote: > Hello, I'm somewhat excited. I had to take Austin (my son), to day > Dr. Yesterday. He had to weigh so I took the atvantage of me awaying > my self. I was down 4 lbs. Now some of that was water - because I > was on those water pills. > > lynn Whitton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 Did you start them yet Lynn? Larissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 I took my first 10mg dose today. At least I had no reaction like I did with the Effexor. After only dose I had an allergic reaction. ~Lynn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Good luck Lynn!!!! Keep us updated. Barb mrtigersgal <mrtigersgal@...> wrote:I took my first 10mg dose today. At least I had no reaction like I did with the Effexor. After only dose I had an allergic reaction. ~Lynn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 I took my first 10mg dose today. At least I had no reaction like I did with the Effexor. After only dose I had an allergic reaction. ~Lynn~ 10mg right off the bat? Im a chicken, Im going to start at 2.5mg whenever I get my nerve up Good luck to you, let us know how you do. Larissa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Thanks Lynn, I really believe that happened to my mom also. It has come down about 20 points, so that is good. These medications can sure do alot to us. Thanks for writing. Chris > Date: Thu, 19 Jan 2006 06:38:30 -0800 (PST) > From: Lynn Holbrook <lynntmj2000@...> >Subject: (unknown) > > My mother-in-law has had injections in her knees and shoots her >blood pressure out of sight. She is in such bad shape physically, the docs >won't operate on her knees, or anything for that matter. But, I guess >there is something in the cortisone shots that effect blood pressure. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Thank you so much for your support and congradulations on today. I'm so happy for you and to hear that you have your husband there taking care of you. I was going through a really bad divorce when my symptoms started so everyone just kept telling me it was stress. I sat in many dr offices crying while waiting for them to come in because I just felt so sick and couldn't understand what was happening to me. When I started losing my hair and getting a chronic dry mouth/soar throat I started researching like crazy like you did. I started eating an 80% raw diet and drinking green smoothies. I figured nothing else worked and as it turns out it was my saving grace because it brought me here. I was on a raw food website and saw a pamphlet written by a raw food dr and it said something about saline implants and illness. I couldn't get anymore information on it so I just put it in and got to implantsout and than here. I've been a such a rollercoaster of feelings since last night. I was so excited I already told everyone what was wrong with me, I couldn't wait to finally say this is it! I'm sick, I have a real problem! Than I was sad because I have had the implants for four years, what is it going to be like to go back to a minus A cup. Of course I felt guilty to even care about it that but I did. I felt like I was going to be losing something and than latter today it all changed. I thought about all the horrible things that were happening to me and what it will be like to have relief of it, to feel something besides sick, all the things that I can do again. I can imagine having my life back and being happy even without them. It's been as they say one of the best and worst days of my life, ending as the best. It's so encouraging to hear everyones support I just cried and cried with relief. I already have an appointment on Monday with DR. Copland in NYC. She had a cancellation, has anyone been to her? How did she get on the list here? Thank you all again and I hope you have a comfortable night. Thank you for listening, Lynn > > My dear Saline Sister, > > You are so precious, and I know you are here for a reason. Just > like the rest of us. My heart aches for your suffering, and I want > you to know, I am where you are. Your story word for word describes > me, even in the same progression. My first symptoms started around > the first of last year. It hit my right arm first, the thought it > was carple tunnel or " over-use syndrom " . I was a full time mother, > nursing student, and part-time nursing assistant. Then it moved to > my left arm, then legs. They put me on a muscle relaxer (with > already weak mucscles) I became wheelchair bound after that. I had > a bad reaction to neurotin. So, I decided to ban any and all > prescription medication.I had every symptom you mentioned, including > on and off abnormal paps. I was even diagnosed with a bladder > condition called interstitial cystitis (an auto-immune disorder) > All my tests turned out normal. Then after a very painful test by a > neurologist, he suggested the only doctor I should see is a > psychiatrist. I literally gave up for some time after that. My > symptoms got worse so I decided to go with a kineseiologist, who > suggested detoxing. I ded lots of detoxing, juicing, and even the > Maker's diet. My chronic fatigue and my mental clearity got better, > but the pain did not. I researched every symptom and desease and > nothing quite fit. Then more symptomes came on. My eyes dried out, > my hair started to fall out, my heart started showing signs of > stress, and I had difficulty breathing. I knew I was getting worse. > I have been officially diagnosed with fibromyalgia, glossophayngeal > neurolgia, IC, and chronic fatigue. Mostly by the process of > eminating all major diseases. I miraculously found Kacey's website > and knew within minuets this must also be my problem. Then I joined > this group. Days later, I had my explant surgery scheduled with Dr. > Feng. Today, they were removed. My husband and I are relieved. I > am so glad to have found a doctor who believes these are making me > sick. Her staff is wonderful and they all have stated how they have > seen hundreds of women like us. You will be so encouraged after > talking with one of these great doctors on the list. > > I just wanted to let you know, you are not alone...anymore! You > have a new family now. I will keep you in my prayers. > > God Bless, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Lynn, I'm so glad you found us! You're moving at lightning speed! . . . When you see the plastic surgeon, please be emphatic that you want an " en bloc " explant. Since she's on the list, it's likely one of our ladies saw her and was properly explanted. . . There will likely be more ahead as you detox . . . If you'll read up on systemic yeast/fungus/Candidia problems . . " The Yeast Connection " is a good book . . .. you'll understand better what's involved. It seems that, for whatever reason, these problems are very common among women who have had implants. In the meantime, drink plenty of non-chlorinated water, get sufficient sleep, and try to keep stress and anger under control. I know it's tough! . . . But your health is more important! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Lynn, what part of NJ do you live in (you don't have to name a town if you don't want). I'm in Warren County. Sis > > > > My dear Saline Sister, > > > > You are so precious, and I know you are here for a reason. Just > > like the rest of us. My heart aches for your suffering, and I > want > > you to know, I am where you are. Your story word for word > describes > > me, even in the same progression. My first symptoms started > around > > the first of last year. It hit my right arm first, the thought it > > was carple tunnel or " over-use syndrom " . I was a full time > mother, > > nursing student, and part-time nursing assistant. Then it moved > to > > my left arm, then legs. They put me on a muscle relaxer (with > > already weak mucscles) I became wheelchair bound after that. I > had > > a bad reaction to neurotin. So, I decided to ban any and all > > prescription medication.I had every symptom you mentioned, > including > > on and off abnormal paps. I was even diagnosed with a bladder > > condition called interstitial cystitis (an auto-immune disorder) > > All my tests turned out normal. Then after a very painful test by > a > > neurologist, he suggested the only doctor I should see is a > > psychiatrist. I literally gave up for some time after that. My > > symptoms got worse so I decided to go with a kineseiologist, who > > suggested detoxing. I ded lots of detoxing, juicing, and even the > > Maker's diet. My chronic fatigue and my mental clearity got > better, > > but the pain did not. I researched every symptom and desease and > > nothing quite fit. Then more symptomes came on. My eyes dried > out, > > my hair started to fall out, my heart started showing signs of > > stress, and I had difficulty breathing. I knew I was getting > worse. > > I have been officially diagnosed with fibromyalgia, > glossophayngeal > > neurolgia, IC, and chronic fatigue. Mostly by the process of > > eminating all major diseases. I miraculously found Kacey's > website > > and knew within minuets this must also be my problem. Then I > joined > > this group. Days later, I had my explant surgery scheduled with > Dr. > > Feng. Today, they were removed. My husband and I are relieved. > I > > am so glad to have found a doctor who believes these are making me > > sick. Her staff is wonderful and they all have stated how they > have > > seen hundreds of women like us. You will be so encouraged after > > talking with one of these great doctors on the list. > > > > I just wanted to let you know, you are not alone...anymore! You > > have a new family now. I will keep you in my prayers. > > > > God Bless, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Hi Sis, I'm in Orange County NY, not too far from NJ. If you're familiar with Woodbury Commons I live near that. Lynn > > > > > > My dear Saline Sister, > > > > > > You are so precious, and I know you are here for a reason. Just > > > like the rest of us. My heart aches for your suffering, and I > > want > > > you to know, I am where you are. Your story word for word > > describes > > > me, even in the same progression. My first symptoms started > > around > > > the first of last year. It hit my right arm first, the thought > it > > > was carple tunnel or " over-use syndrom " . I was a full time > > mother, > > > nursing student, and part-time nursing assistant. Then it moved > > to > > > my left arm, then legs. They put me on a muscle relaxer (with > > > already weak mucscles) I became wheelchair bound after that. I > > had > > > a bad reaction to neurotin. So, I decided to ban any and all > > > prescription medication.I had every symptom you mentioned, > > including > > > on and off abnormal paps. I was even diagnosed with a bladder > > > condition called interstitial cystitis (an auto-immune > disorder) > > > All my tests turned out normal. Then after a very painful test > by > > a > > > neurologist, he suggested the only doctor I should see is a > > > psychiatrist. I literally gave up for some time after that. My > > > symptoms got worse so I decided to go with a kineseiologist, who > > > suggested detoxing. I ded lots of detoxing, juicing, and even > the > > > Maker's diet. My chronic fatigue and my mental clearity got > > better, > > > but the pain did not. I researched every symptom and desease > and > > > nothing quite fit. Then more symptomes came on. My eyes dried > > out, > > > my hair started to fall out, my heart started showing signs of > > > stress, and I had difficulty breathing. I knew I was getting > > worse. > > > I have been officially diagnosed with fibromyalgia, > > glossophayngeal > > > neurolgia, IC, and chronic fatigue. Mostly by the process of > > > eminating all major diseases. I miraculously found Kacey's > > website > > > and knew within minuets this must also be my problem. Then I > > joined > > > this group. Days later, I had my explant surgery scheduled with > > Dr. > > > Feng. Today, they were removed. My husband and I are > relieved. > > I > > > am so glad to have found a doctor who believes these are making > me > > > sick. Her staff is wonderful and they all have stated how they > > have > > > seen hundreds of women like us. You will be so encouraged after > > > talking with one of these great doctors on the list. > > > > > > I just wanted to let you know, you are not alone...anymore! You > > > have a new family now. I will keep you in my prayers. > > > > > > God Bless, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Lynn, I know where that is, probably about an hour and a half from me. Sis > > > > > > > > My dear Saline Sister, > > > > > > > > You are so precious, and I know you are here for a reason. > Just > > > > like the rest of us. My heart aches for your suffering, and I > > > want > > > > you to know, I am where you are. Your story word for word > > > describes > > > > me, even in the same progression. My first symptoms started > > > around > > > > the first of last year. It hit my right arm first, the > thought > > it > > > > was carple tunnel or " over-use syndrom " . I was a full time > > > mother, > > > > nursing student, and part-time nursing assistant. Then it > moved > > > to > > > > my left arm, then legs. They put me on a muscle relaxer (with > > > > already weak mucscles) I became wheelchair bound after that. > I > > > had > > > > a bad reaction to neurotin. So, I decided to ban any and all > > > > prescription medication.I had every symptom you mentioned, > > > including > > > > on and off abnormal paps. I was even diagnosed with a bladder > > > > condition called interstitial cystitis (an auto-immune > > disorder) > > > > All my tests turned out normal. Then after a very painful > test > > by > > > a > > > > neurologist, he suggested the only doctor I should see is a > > > > psychiatrist. I literally gave up for some time after that. > My > > > > symptoms got worse so I decided to go with a kineseiologist, > who > > > > suggested detoxing. I ded lots of detoxing, juicing, and even > > the > > > > Maker's diet. My chronic fatigue and my mental clearity got > > > better, > > > > but the pain did not. I researched every symptom and desease > > and > > > > nothing quite fit. Then more symptomes came on. My eyes > dried > > > out, > > > > my hair started to fall out, my heart started showing signs of > > > > stress, and I had difficulty breathing. I knew I was getting > > > worse. > > > > I have been officially diagnosed with fibromyalgia, > > > glossophayngeal > > > > neurolgia, IC, and chronic fatigue. Mostly by the process of > > > > eminating all major diseases. I miraculously found Kacey's > > > website > > > > and knew within minuets this must also be my problem. Then I > > > joined > > > > this group. Days later, I had my explant surgery scheduled > with > > > Dr. > > > > Feng. Today, they were removed. My husband and I are > > relieved. > > > I > > > > am so glad to have found a doctor who believes these are > making > > me > > > > sick. Her staff is wonderful and they all have stated how > they > > > have > > > > seen hundreds of women like us. You will be so encouraged > after > > > > talking with one of these great doctors on the list. > > > > > > > > I just wanted to let you know, you are not alone...anymore! > You > > > > have a new family now. I will keep you in my prayers. > > > > > > > > God Bless, > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Lynn thank you so much for pouring your heart out - I cried too when I read your post. I had the same feelings, both of relief and regret. For years I tried so many different things - no bleached flour, raw vegies, nothing would help. Sometimes people ask me, " so what is wrong with you anyway? " It really is heartbreaking when I hear someone new come on and tell their story, but it also confirms that the implants were the cause, and that strengthens me. Hugs and prayers to you, Cherie > > > > My dear Saline Sister, > > > > You are so precious, and I know you are here for a reason. Just > > like the rest of us. My heart aches for your suffering, and I > want > > you to know, I am where you are. Your story word for word > describes > > me, even in the same progression. My first symptoms started > around > > the first of last year. It hit my right arm first, the thought it > > was carple tunnel or " over-use syndrom " . I was a full time > mother, > > nursing student, and part-time nursing assistant. Then it moved > to > > my left arm, then legs. They put me on a muscle relaxer (with > > already weak mucscles) I became wheelchair bound after that. I > had > > a bad reaction to neurotin. So, I decided to ban any and all > > prescription medication.I had every symptom you mentioned, > including > > on and off abnormal paps. I was even diagnosed with a bladder > > condition called interstitial cystitis (an auto-immune disorder) > > All my tests turned out normal. Then after a very painful test by > a > > neurologist, he suggested the only doctor I should see is a > > psychiatrist. I literally gave up for some time after that. My > > symptoms got worse so I decided to go with a kineseiologist, who > > suggested detoxing. I ded lots of detoxing, juicing, and even the > > Maker's diet. My chronic fatigue and my mental clearity got > better, > > but the pain did not. I researched every symptom and desease and > > nothing quite fit. Then more symptomes came on. My eyes dried > out, > > my hair started to fall out, my heart started showing signs of > > stress, and I had difficulty breathing. I knew I was getting > worse. > > I have been officially diagnosed with fibromyalgia, > glossophayngeal > > neurolgia, IC, and chronic fatigue. Mostly by the process of > > eminating all major diseases. I miraculously found Kacey's > website > > and knew within minuets this must also be my problem. Then I > joined > > this group. Days later, I had my explant surgery scheduled with > Dr. > > Feng. Today, they were removed. My husband and I are relieved. > I > > am so glad to have found a doctor who believes these are making me > > sick. Her staff is wonderful and they all have stated how they > have > > seen hundreds of women like us. You will be so encouraged after > > talking with one of these great doctors on the list. > > > > I just wanted to let you know, you are not alone...anymore! You > > have a new family now. I will keep you in my prayers. > > > > God Bless, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hi Cherie, It was nice to pour my heart out because I really needed to. I got a surprise today when I received a call from Dr Kolb. I was shocked she would call me on a Saturday to talk about helping me. I was really impressed although I was hoping to use Dr. Copeland because she is hear in NY and with my insurance. However I'm drawn more to Dr. Kolb and Dr. Feng. I was hoping to speak with someone that used Dr. Copeland because you have to pay $200 just to talk to her. How long ago did you have your implants removed? How are you feeling? Thank you for your prayers, Lynn > > > > > > My dear Saline Sister, > > > > > > You are so precious, and I know you are here for a reason. Just > > > like the rest of us. My heart aches for your suffering, and I > > want > > > you to know, I am where you are. Your story word for word > > describes > > > me, even in the same progression. My first symptoms started > > around > > > the first of last year. It hit my right arm first, the thought > it > > > was carple tunnel or " over-use syndrom " . I was a full time > > mother, > > > nursing student, and part-time nursing assistant. Then it moved > > to > > > my left arm, then legs. They put me on a muscle relaxer (with > > > already weak mucscles) I became wheelchair bound after that. I > > had > > > a bad reaction to neurotin. So, I decided to ban any and all > > > prescription medication.I had every symptom you mentioned, > > including > > > on and off abnormal paps. I was even diagnosed with a bladder > > > condition called interstitial cystitis (an auto-immune > disorder) > > > All my tests turned out normal. Then after a very painful test > by > > a > > > neurologist, he suggested the only doctor I should see is a > > > psychiatrist. I literally gave up for some time after that. My > > > symptoms got worse so I decided to go with a kineseiologist, who > > > suggested detoxing. I ded lots of detoxing, juicing, and even > the > > > Maker's diet. My chronic fatigue and my mental clearity got > > better, > > > but the pain did not. I researched every symptom and desease > and > > > nothing quite fit. Then more symptomes came on. My eyes dried > > out, > > > my hair started to fall out, my heart started showing signs of > > > stress, and I had difficulty breathing. I knew I was getting > > worse. > > > I have been officially diagnosed with fibromyalgia, > > glossophayngeal > > > neurolgia, IC, and chronic fatigue. Mostly by the process of > > > eminating all major diseases. I miraculously found Kacey's > > website > > > and knew within minuets this must also be my problem. Then I > > joined > > > this group. Days later, I had my explant surgery scheduled with > > Dr. > > > Feng. Today, they were removed. My husband and I are > relieved. > > I > > > am so glad to have found a doctor who believes these are making > me > > > sick. Her staff is wonderful and they all have stated how they > > have > > > seen hundreds of women like us. You will be so encouraged after > > > talking with one of these great doctors on the list. > > > > > > I just wanted to let you know, you are not alone...anymore! You > > > have a new family now. I will keep you in my prayers. > > > > > > God Bless, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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