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Thanks, Greg. I'll post again on Monday night after my appt. Will

be interesting to see what different drs. say.

One thing I've noticed is the pain is less if I wear sweat pants and

bare feet...seems the way zipped/buttoned pants make you stand

(posture), though I can't quite comprehend that.

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Saw my PCP today. She couldn't give me anymore anti-nflammatories

as I'm already on prednise (down to 20 mg and 200 mg Celebrex).

She's prescribed ultrasound physical therapy with a corticosteriod

cream - it worked on my costochondritis last year. It's a painless

therapy where they just rub the cream in with a small ultrasound

wand...usually 2-3 times a week for about 15 minutes.

Hopefully it will work as I can't do a thing other than sit at work

and design kitchens on the computer all day (thankfully I have a sit

down job and an extremely understanding boss).

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  • 7 months later...

That sounds so utterly painful, Terri! So sorry to hear that. I hope

that your back will be feeling normal again soon. Don't rush back to

work if you don't have to.

[ ] Back pain

> Hello everyone,

>

> Today is my first day out of bed in a few days. I somehow pulled a

muscle in my mid back that has been hard as a rock and swollen. It

started on Thursday as a twinge in my back and then on Friday it was

there pretty much constantly. By Friday night I was fairly

uncomfortable. Then early Saturday night I was up pacing and moaning

and crying very quietly so as not to disturb my husband. Saturday

morning I got into my doctor and he said that somehow I pulled a muscle

in my back and that it was enlarged and hard as a rock. He gave me a

shot of Demerol in the office and put me on Percocet and muscle relaxers

and had me increase my Vioxx. I was to be on bedrest with heat. Today

is my first day being up a little. I can still feel the slight

tightness in my back. Was supposed to work yesterday and today. Taking

sick leave. I already have tomorrow off so will attempt to go back to

work on Thurs.

>

> My husband saved all my emails and have now gotten through them. Hope

this is the end of the back pain for awhile. Have never had anything

like this.

>

> Terri

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  • 2 months later...

>>But, I had to have a spinal block for the delivery of my 2nd (he

was fully breeched) and I really wish I didn't have to. My back

*still* (after nearly 2 1/2 years) hurts from where I received the

injection.<<

Sharissa,

Reiki, Healing Touch and/or the cranial sacral therapies may help

you with this. I'm sorry about the chronic pain.

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  • 2 weeks later...
  • 11 months later...

Happy New Year Everyone

My back was doing so good after the radio frequency ablation and the last 3

days it hurts like never before.

This time the pain is not on one side or the other like before. It is right

in the center just below my waistline. Any movement, getting dressed, walking

etc. hurts like the dickens. Pain medication only helps a little bit.

I think I just needed to vent. I am so afraid this PA is getting worse and

attacking my back. My next appointment is not until the end of March. I think

I might try to get in earlier.

Thanks for listening everyone.

Barb

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In a message dated 1/5/2005 4:25:42 PM Eastern Standard Time, NITTYG@...

writes:

This time the pain is not on one side or the other like before. It is right

in the center just below my waistline. Any movement, getting dressed,

walking

etc. hurts like the dickens. Pain medication only helps a little bit.

Hi Barb,

That is right where I have my worst pain pain. I see a chiropractor every

other week and get a weekly half hour therapuetic massage in his office and

it helps a great deal. I have to pay out of pocket for the massage but to me

it is worth it. It costs $25.00 for the half hour. Have your tried any

therapy?

Janet

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Hi Janet:

I have been through multiple courses of therapy and it does help but always

comes back.

Will have to check this massage thing out.

I will have to wait though, since later today I am having a bone graft on my

jaw.

Thanks for the information.

Barb

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  • 3 months later...
Guest guest

Gretchen,

Do you know what was causing your pain? I wish they would just do test on me to

see why I am having this pain instead of guessing at it. Thanks for the

information and Have A Great DAY.

Sue.

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  • 1 month later...
Guest guest

What test have you had performed? What kind of doctors have you seen?

Chronic pain is always attributed to something. The hard part is finding a

doctor

who is willing to think outside the box to figure it out. Also, are you

undergoing and pain management for relief from your pain? If you can find a good

pain management doctor who can relieve your pain while you continue your quest

to find out the source of your pain would help you a lot.

Sorry I don't have answers for you but sometimes treatment of the pain is

just as important if not more important initially than determining what's

causing the pain. I say this because I know what's causing my pain but because

the

surgery is so invasive, the neurosurgeon won't perform the surgery just for

pain. He will only operate if I show the appropriate neurological signs. I

have a great pain management doctor who has helped me keep my sanity by

controlling the pain the best he can. Thoracic pain is very difficult and like

yourself has cost me my job, social life has been reduced greatly and several

other

issues that you know yourself.

All I can say is to continue to be strong and pray. My faith in the Lord and

support from my church family has really gotten me through the tough times.

God Bless You,'

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Guest guest

damn lannie, sometimes doctors suck. and it is so much easier to either

give you drugs or send you home. have you tried going into the emergency ward

of the city hospital. not a private hospital. sometimes if you go thru the

emergency ward, they will try a little harder. also, when i am in pain and a

doctor tells me it is in my head, then he better stop acting so stupid and

look for the cause.

pain is real. good luck

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Guest guest

Wow! I'm sorry to hear of all you are going through. It does sound

like the typical plight most of us in chronic have had. It took 3+

years for me to find a doc to put a name to my symptoms. Just when

you need help the most, it seems the medical profession becomes deaf,

dumb, and insensitive. There are a few things you can do.

First, keep searching for a doc who will listen to you and work with

you. This can be frustrating and will take time.

Next, keep a journal. It is not an easy or fun thing to do. However,

it will help you to describe your symptoms more clearly to you doc,

and give you a better idea of the severity, location, and limitations

your pain causes. When I started my journal, I made entries every 3

hours for the first several days (about 9 or 10). Begin each page with

the date and general weather conditions. Then note where each

pain/cramp, etc. is located on your body- start with your head and

work down to your feet. Assign a number for each pain entry. The

scale I use is:

0 = NONE; 1-3 = MILD, aware only if thinking about it;

4-5 = MODERATE, can be ignored at times; 6-7 = FAIRLY SEVERE, painful

but can continue tasks; 8-9 = VERY SEVERE, concentration difficult,

can do only undemanding tasks; 10 = WORST IMAGINABLE, incapacitating

can do almost nothing.

Also note things that cause/increaee pain, such as holding a book for

xxx minutes, tucking in your shirt, looking 'up' or 'to the right',

etc.

Make a note of things you can no longer do- like balance your check

book, sweep the floor, pick up your baby- practical things that you

normally do but need more time, or help, or can't do at all.

Armed with this info, you will have a clearer idea of exactly what

is 'going on' with your life. You can also make a list/note of the

things that are prevalent, most limiting to tell your doc. This with

the high, low, and average pain score per day will give your doc

specific info he can work with. It will help a lot to get the help

and advice you need.

Like I said, it isn't easy or fun. Men don't have an easy time with

this stuff- we don't admit to pain or limitations, we usually hate to

write, and 'sharing' details of our lives/weaknesses with anybody is

practically unheard of. But, do it we must. This 'beast' of chronic

pain is bigger than a whole bunch of us put together.

I( hope this helps. If you can, recruit someone to be your advocate-

wife, friend, sibling. This person needs to be aware of your symptoms

and limitations, meds you take, and able to observe the subtle (and

not so subtle) changes that are taking place in your life. This

person needs to be in the 'driver's seat' in finding a doc, keeping

records of: doc visits, tests/results, meds, and all things relevant

to your quality of life.

God bless you

> hi ev1, i need help, i dont know go t go next.all the test that was

> done came back neg. has been in pain for 1 whole year the pain is

bad

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ask to be referred to pain management. and maybe see a neurologist to do

some emg testing to see if you have any nerve/muscle damage. that sort of

thing show up on an mri and definitely not on x-rays.

where is the pain in you back, and is it ONLY in you back or do you have pain

elsewhere too?

there are many, many things that cause pain. what tests have you had done?

-melanie

> hi ev1, i need help, i dont know go t go next.all the test that was

> done came back neg. has been in pain for 1 whole year the pain is bad

> that you cant do any thing. where do you go for help from here? job is

> gone, no life at all. the pain is real its not just in your head. what

> else could it be? seen 4 doctors this last said he couldnt tell

> me ,what was wrong all the test are neg. please someone help me! thank

> you

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  • 7 months later...

Hi Faith

I also have a lot of very sore muccles in my back. If I overwork or

strain them then I will get a very intense headache which is always

related to the back muscles which become knotted. These headaches

used to last 24 hours but now are going on to 2 days. Last night I

took an enema and the back pain and headache were gone in an hour or

two so I think they must be related to the candida somehow.

Take care

Laurie

>

> I was just wondering if anyone has back pain with their candida. I

have

> had this for years and am wondering if it could be related. It is

just

> below my shoulder blade. That spot can really hurt sometimes, and

then

> I won't feel it for weeks. If I keep working around the house when

it

> is acting up, it will get worse and spread across my back. Can

anyone

> relate to this?

>

> Faith

>

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Muscle aches and pains are caused by toxins so these symptoms are very

common when killing off candida.

Bee

>

> Hi Faith

> I also have a lot of very sore muccles in my back. If I overwork or

> strain them then I will get a very intense headache which is always

> related to the back muscles which become knotted. These headaches

> used to last 24 hours but now are going on to 2 days. Last night I

> took an enema and the back pain and headache were gone in an hour or

> two so I think they must be related to the candida somehow.

>

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  • 2 weeks later...

Hi Jay,

Let's start by asking whether you've been to a doc yet and what the

Dx was. What have you tried already?

Much depends on where your back pain is. Many back problems can be

eased with practicing 'good posture' and doing back

stabilizing 'exercises'. Chiropractors and PT's are very good at

helping with these things. You can get some good back exercises off

the internet, just search key words like 'back exercise', 'back

stabilizing', etc.

You would do well to check the positions of your computer screen and

keyboard to ensure you are not straining your neck or arms. Your

chair needs to have good back support. Tilt, swivel, and roller

chairs are neat but aren't the best things to sit in all day.

I hope some of this helps.

GBY

>

> Hi

>

> Can any one help me....

>

> I am suffering from this back pain since 5 years. I am a software

> engineer working before computer for 7-8 hours. I have been taking

> some treatment but that did not help me.

>

> Please help me....

>

> Regards

> Jay

>

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At 10:10 AM 2/6/2006, you wrote:

>Much depends on where your back pain is. Many back problems can be

>eased with practicing 'good posture' and doing back

>stabilizing 'exercises'. Chiropractors and PT's are very good at

>helping with these things. You can get some good back exercises off

>the internet, just search key words like 'back exercise', 'back

>stabilizing', etc.

, I must respectfully disagree with your advice to have a chronic

back pain patient look on-line for exercises. Self treatment like this can

be very harmful, as is putting yourself in the hands of a chiro who does

not know or care to know when to hand off a back pain patient of hi/hers to

another specialist. I have heard of this happening more often than I am

comfortable with.

http://thebacklog.blogspot.com/

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I would have to agree with . People are different and the human anatomy

reacts differently to surgeries and such. I had fusion at L5 S1 in August of

2004. Exercise and good posture doesnt help the pain at all. I am actually

getting ready to have all of the hardware removed in a drastic attempt to help

relieve some if not all of the pain. My surgeon is rated in the top 100 spinal

surgeons in the United States, and he specifically stated that exercise would

not help my level of pain because my body is still trying to reject the hardware

yet one year later. Chiro's can only help if the area that is causing pain can

be manipulated and cracked... kind of hard to do when your back is full of

Titanium. No matter what, just keep in mind that all humans react differently to

specific problems.. Dont take " online treatments " or good posture exercises

without consulting yor physician. is correct, this practice could do more

harm than good. Just stay strong and hang in there and

know that you are not alone.. The back is very vital to everyday life. Take

your time and have it fixed right.

Respectfully submitted,

Tony

<karens@...> wrote:

At 10:10 AM 2/6/2006, you wrote:

>Much depends on where your back pain is. Many back problems can be

>eased with practicing 'good posture' and doing back

>stabilizing 'exercises'. Chiropractors and PT's are very good at

>helping with these things. You can get some good back exercises off

>the internet, just search key words like 'back exercise', 'back

>stabilizing', etc.

, I must respectfully disagree with your advice to have a chronic

back pain patient look on-line for exercises. Self treatment like this can

be very harmful, as is putting yourself in the hands of a chiro who does

not know or care to know when to hand off a back pain patient of hi/hers to

another specialist. I have heard of this happening more often than I am

comfortable with.

http://thebacklog.blogspot.com/

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  • 4 months later...
Guest guest

Hi,

Has anyone broke out from using the Metho by itself ??

Thanks

Jeanette

[ ] Back Pain

Hi Everyone;

I have started my methotrexate injections ( 2nd one as of this week). I really

don't notice a difference right now but my GP said it could take a few more to

notice.

I just have one question; since I had my last injection 3 days ago I am having

alot of lower back pain; which I didn't have before. Can anyone tell me if itis

realted to my PA or is it a reaction from the injection; I am also takiing Folic

Acid eveyday.

Hope to hear from someone soon;

Goldie

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Guest guest

Yes I broke out from MTX. In fact, I just realized in the last few weeks

that it has been the cause of my pustular p.

Three weeks ago I had a liver biopsy (I call it my core sample) and

purposely stopped the MTX a couple of weeks prior to that when I found out my

liver

blood work was out of whack and something was wrong.

Stopping the MTX is the only thing different I've been doing and all my P is

going away. I've been fighting this for 5 years. My rheumy, dermo, and PCP

all said the same thing. It's just P, stop scratching it.

It presented itself as an itching scab. They never believed me that I

didn't scratch until after it was already a scab. I know it sounds weird but

that's how it's been. Finally one day, I reached to my back to scratch an itch

and my fingers knocked off a huge nasty scab. I call hubby and he confirmed

it was another " one of those things. " I would remember previously scratching

this thing because I really had to stretch to reach it.

Now without the MTX in my system for a month, 75% of my sores are gone. All

I have left are scars. The scabs dried up and started falling off about a

week ago. I have very little pain in my joints and take a routine Celebrex

every 2nd or 3rd day to ward off the inflammation. My PCP was stunned when he

saw the difference.

Wahoo!!! No more MTX. No more nausea, no more itching, no more ... a host

of other complaints. I can hardly wait to see the Rheumy.

BTW, the core sample revealed virtually nothing. So I had to donate another

5 vials of blood for more tests.

Sorry this was so long but I've not really talked much about this because I

really was beginning to think I was scratching in my sleep and I really was

the cause of all this distress.

Good Health and Healing to you all this wonderful week end.

Sandy swOhio

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Guest guest

Hi, just to reply with you message.

I have been taking Metrotrix. and folic acid for about 5yrs and it does take

time to see the benefit. I have cronic lower back pain all the time and the

meds. helps very little that I have to take hydromorphine and what Rheuma. said

to me there is not much you can do with it. Also, sometime we think its just

the lower back but it can involve the hip as well. I have pain on hip and PA

and lower back. I hope you will feel better soon and give the Metrotrixiate

time but sometime everyones body react different with meds. You just have to

know which one will work for you. Its taking doc. a long time to fine what

works for my PA I only take Metrot. and pain pill. Tried all kind from Enbrel,

humira others meds and I get bad infection with them.

take care t

[ ] Back Pain

Hi Everyone;

I have started my methotrexate injections ( 2nd one as of this week). I really

don't notice a difference right now but my GP said it could take a few more to

notice.

I just have one question; since I had my last injection 3 days ago I am having

alot of lower back pain; which I didn't have before. Can anyone tell me if itis

realted to my PA or is it a reaction from the injection; I am also takiing Folic

Acid eveyday.

Hope to hear from someone soon;

Goldie

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Guest guest

Jeanette,

I was on MTX along with some low key NSAID, I can't remember the

name, but it was the only " big gun " I was on. After a couple years on

it, my mouth became one big blister and canker sore. Nothing I did

fixed it until I discontinued the MTX.

>

> Hi,

> Has anyone broke out from using the Metho by itself ??

> Thanks

> Jeanette

> [ ] Back Pain

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Guest guest

Hi Sandy,

well, sounds familiar, though I was only on it for 9 weeks this round, then I

started breaking out, also had chest tightness, mole changes(have an appointment

to get this removed), and reddish skin...so I am glad to be off it. I read up on

it and it can cause these in a few people. I just hope it hasn't caused any

internal problems.

Thanks

Jeanette

Re: [ ] Back Pain

Yes I broke out from MTX. In fact, I just realized in the last few weeks

that it has been the cause of my pustular p.

Three weeks ago I had a liver biopsy (I call it my core sample) and

purposely stopped the MTX a couple of weeks prior to that when I found out my

liver

blood work was out of whack and something was wrong.

Stopping the MTX is the only thing different I've been doing and all my P is

going away. I've been fighting this for 5 years. My rheumy, dermo, and PCP

all said the same thing. It's just P, stop scratching it.

It presented itself as an itching scab. They never believed me that I

didn't scratch until after it was already a scab. I know it sounds weird but

that's how it's been. Finally one day, I reached to my back to scratch an itch

and my fingers knocked off a huge nasty scab. I call hubby and he confirmed

it was another " one of those things. " I would remember previously scratching

this thing because I really had to stretch to reach it.

Now without the MTX in my system for a month, 75% of my sores are gone. All

I have left are scars. The scabs dried up and started falling off about a

week ago. I have very little pain in my joints and take a routine Celebrex

every 2nd or 3rd day to ward off the inflammation. My PCP was stunned when he

saw the difference.

Wahoo!!! No more MTX. No more nausea, no more itching, no more ... a host

of other complaints. I can hardly wait to see the Rheumy.

BTW, the core sample revealed virtually nothing. So I had to donate another

5 vials of blood for more tests.

Sorry this was so long but I've not really talked much about this because I

really was beginning to think I was scratching in my sleep and I really was

the cause of all this distress.

Good Health and Healing to you all this wonderful week end.

Sandy swOhio

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